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HIFU

Discussion related to High Intensity Focused Ultrasound (HIFU); comparisons of different technologies; experiences; Q&A. HIFU is a minimally invasive alternative to surgery and radiation for the treatment of prostate cancer.

Members: 20
Latest Activity: Nov 7

Discussion Forum

Jeremy Bacon

Hello from a new member 12 Replies

Started by Jeremy Bacon. Last reply by Ed Beckwith Nov 7.

Ken Wiens

HIFU experience 4 Replies

Started by Ken Wiens. Last reply by mogens eriksen Jul 5.

Comment Wall (63 comments)

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63 Comments

Ron Comment by Ron on October 27, 2009 at 10:46am
I was deleted as well when I posted the letter I recieved from the FDA in response to my question if the FDA has a Board of Directors.

They responded that they don't, as sitemaster said, they call them a "Team of Reviewers".
Ed Beckwith Comment by Ed Beckwith on October 26, 2009 at 12:53pm
I tried to post this information on the main site but the information was deleted by sitemaster. It was in response to the his "opinion" on the effectiveness and strategy of Hormone Therapy for High Risk patient's. I found this information on the Prostate Cancer Foundation in Santa Monica California and is relevant and pertinent to men who ae high-risk with high Gleason score's:

Hormone Therapy
Prostate cancer cells are just like all other living organisms—they need fuel to grow and survive. Because the hormone testosterone serves as the main fuel for prostate cancer cell growth, it is a common target for therapeutic intervention in men with prostate cancer.

Hormone therapy, also known as androgen-deprivation therapy or ADT, is designed to stop testosterone from being released or to prevent the hormone from acting on the prostate cells. Although hormone therapy plays an important role in men with advancing prostate cancer, it is increasingly being used before, during, or after local treatment as well.

The majority of cells in prostate cancer tumors respond to the removal of testosterone. But some cells grow independent of testosterone, and therefore remain unaffected by hormone therapy. As these hormone-independent cells continue to grow unchecked, over time, hormone therapies have less and less of an effect on the growth of the tumor.

Hormone therapy is therefore not a perfect strategy in the fight against prostate cancer, and does not cure the disease. But it remains an important step in the process of managing advancing disease, and will likely be a part of every man’s therapeutic regimen at some point during his fight against recurrent or advanced prostate cancer.

The most common types of hormone therapy are described below. Although each of these therapeutic options is effective at controlling prostate cancer growth, the loss of testosterone confers significant side effects in nearly all men.
Ed Beckwith Comment by Ed Beckwith on October 25, 2009 at 8:28pm
Ron; We did wait approximately 3 months. My PSA was tested and showed 0.1 before I started the hormone therapy. Because I was categorized as as "high-risk", I understood that it was a cautionary decision. Ed
Ron Comment by Ron on October 21, 2009 at 4:34pm
I'd have a hard time starting hormone treatment with a reading of 0.1
I'd wait and see if the reading goes up, before I'd start.
I have faith in HIFU ~ completely.
But, I see you started...so best of luck on that junk.
Ed Beckwith Comment by Ed Beckwith on October 20, 2009 at 10:40am
Ron, my PSA was 0.1 before I received hormone treatment. As you know the Sonablate 500 concentrates on focal points as pointed out in the descirption below:

Sonablate 500:

How Does it Work?

HIFU is similar to the light passing through a magnifying glass to a sharp focal spot an exact distance away from the lens. Similar to the magnifying lens, ultrasound energy is focused through a transducer lens to a prescribed distance (3.0cm or 4.0cm) from the transducer face. Converging ultrasound energy waves of high intensity generate tremendous energy increases in the focal spot driving the focal temperatures up to 70 -100oC in less than one second. The tissue is destroyed within 3 seconds and the energy is turned off. The system then begins to overlap these focal spots on each other, under computer control, back and forth throughout the prostate until the entire gland is destroyed.

The process can take between 1-3 hours depending on the size of the prostate. The tissue is destroyed by thermal damage, or ablation. The dead tissue then sloughs out through the urination process and through absorption of fluid and tissue by the body.
Ron Comment by Ron on October 20, 2009 at 9:06am
got it!
Is my reading right ~ that your PSA was tested prior to hormone treatment and it was 0.1 ?
4+ hours of treatment means they really took their time and did you up well, as my treatment only lasted 2.5 hours.

Yours is a great story! I'm sure there were people everywhere trying to discourage you.
Ed Beckwith Comment by Ed Beckwith on October 19, 2009 at 11:01pm
Ron: You can contact me direct anytime at raymundo0505@hotmail.com

Ed
Ron Comment by Ron on October 19, 2009 at 10:32pm
Ed,
Post your story on the other page here that deals with HIFU, it's being linked to from other cancer sites, so reaches a larger audience: http://prostatecancerinfolink.net/2009/02/22/hifu-under-appreciated-or-over-promoted/
Lets get this thing mainstream, only when enough of us know how great it is will they approve it!
Ron Comment by Ron on October 19, 2009 at 10:26pm
Oh so happy to hear more and more of us are hearing about HIFU. I had mine through International HIFU, who I cannot say enough good about as well, the thing is ~ they care (I think they work together -- they both use the Sonablate). They go out of their way to stay in touch. I've gotten 3 questioneers now, all are 6 pages long, they are keeping incredible data, and as data comes in I hear of small changes in what they prescribe. I used Dr. Scionti, the most devoted respected doctor that I know.

I really really try to tell everyone to keep the catheter in for 14 days as I heard of a guy getting a clog, your info of the green light lazer is fantastic news, ahh finally we live in the 21st Century! But, it isn't available everywhere.

See? We all sound like salesmen....as we are the luckiest guys on earth.
Ed Beckwith Comment by Ed Beckwith on October 19, 2009 at 6:20pm
Ron: Thanks for the response. Please do a google search for Greenlight Laser Therapy which is non-invasive. Much better than having a roto-rooter special (TURP)!!! i had a very enlarged prostate and had the Laser therapy at 1:30 P.M. and was ini my motel room at 5:00 P.M.!!! I only paid $95.00 at the hospital and $200.00 later for the anesthia. Dr. Lotenfoe was an inceptor of this treatment and he's well trained in HIFU. I did everything within 12 days and recovered quickly with the readily available assistance of USHIFU in Charlotte, N.C. There were 10 patients in Cancun last September. They are now doing 50 procedures per month, soon to be 100, mostly in the Bahamas, Cancun and Toronto. They are very well organized and extremely personable.
 

Members (20)

Jeremy Bacon Ron Ken Wiens E. Michael D. ("Mike") Scott Ed Beckwith mogens eriksen George A. Brown Steve Z Richard L. Peter Wenz Walter Mihelich Arnon Krongrad, MD Kathy Meade Bob Wilson Chris Frank Adelino de Almeida Channel Surfer Dude Glenn W Paul Hinshaw
 
 

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