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Adelino de Almeida
- Male
- Lewisville, TX
- United States
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Adelino de Almeida's Groups
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Low Risk PCa Treatment...
28 members
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Diet
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HIFU
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Hormone Suppression
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Faith and Healing
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Adelino de Almeida's Discussions
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My radiation oncologist waited until 2 months after the end of treatment. He said that the prostate needs time to "cool down" and that an early psa would give unrealistic results. Ask to be re-tested in a month or two. Remember- think long-term in...
Why the loss of size? I had heard of that in the context of surgery but not that dramatic in relation to radiation.
It's incredible how our bodies change
Hi Semirade:
The doctor told me about the possibility of ED showing up a year to a year and a half after the radiation treatment. He recommended that I get as much use of the organ as possible (or as reasonable) to keep ED at bay, it's one of thos...
Hi Adelino,
I had external radiation therapy, was advised to have bracchy as well, but my body didn't tolerate the external well, so they discontinued after a longer full course external. My PSA has been fluctuating, but I was warned that it might...
The only aspect you may want to look into is the drive to classify things as the first mental reaction to what you come across: big/small, tall/short, good/bad, and ultimately right and wrong.
At the end of our journey neither you nor I will be ri...
Hi Semirade, I am actually a Chan (rather than Zen) priest in the Linji tradition so we have quite a bit in common :)
I'd say, don't worry so much about the classification of your practice (Zen, Chan, Tibetan, etc) but rather, about the practice i...
To each its own. I am an ordained Buddhist priest and - understandably - my point of view is not the same as Mr Hopkins'. Buddhism (the Zen sect in particular) is less interested in dealing with gods, and more with how we live our lives as humans:...
Adelino:
PSA doesn't measure how fast radiated cells die. That takes time. All the PSA can tell you is the level in your bloodstream at a point in time. I think you can afford to be patient and see what the PSA level looks like in another month o...
Thanks Phil, I am going to ask for a test in about two more months and then try and monitor it closely. This is indeed a scary result to see the PSA rise so much after all the radiation.
My radiologist waited 2 months after the end of treatment before doing the first psa test. He said that at that the end of treatment the prostate was too "hot" to get a reliable reading and that it needs at least 2 months to settle. Then he remind...
Hi Dewey:
That is very true. I got scared as soon as I heard the number :)
Thanks for all your replies, I am going to follow up in about three months and let's see. This was a bit scary.
Adelino
Yes, my radiologist told me not to even take the PSA test until 3 months after the treatment is completed because the treatment itself raises the PSA level. He said that if he took it before three months the results would probably scare me unnnece...
Thanks for your note, Mike.
This result came from a blood test that was run by my urologist. He did seem unconcerned to the point that only the nurse communicated these results and the message was along the lines of what you said: that the PSA had...
Adelino:
One possible explanation of this effect is that you may have a prostate infection (prostatitis) in addition to the actual prostate cancer. I think that the first and most important thing is for you to get some feedback from your radiatio...
Before the radiation treatment my PSA was at 2.5, I have my results back and now a month after finishing radiation the PSA is at 4.3. Is this normal? My cancer was so small to be almost undetectable so it is hard to believe that it may have spread...
Peter:
Regardless of your religion, you may try a little meditation so that you gain a better perspective on your thoughts and feelings. Don't fight your thoughts or feelings: just observe them arising and fading. In time you they will lose subst...
Profile Information
- Have you been diagnosed with prostate cancer?
- Yes
- What brings you to the New Prostate Cancer InfoLink social network?
- Obtain information
- Would you help us grow the network? Would you tell others about it?
- yes
- About Me:
- Just diagnosed today, phase I
Comment Wall (10 comments)
- At 12:21pm on October 29, 2009,
Semirade said…
- Hi - I'm 63, diagnosed and treated 2 yrs. ago. Our paths have crossed on the site a few times now. I'm located in NYC. my email is levans15@rcn.com - if you want to talk, or share some Buddhist thought - I'm all ears - hope all is well with you. lee
- At 11:50am on September 18, 2009,
Guy75 said… - Hope it helps.. It is always tricky working out which thing's doing what. I certainly felt better when I stopped the tamsulosin, but then I was also on holiday for six weeks :-)
- At 11:21am on September 18, 2009,
Guy75 said…
- Hi Adelino. Good to hear you have finished treatment. Good to hear the floxmax is helping, although I have just stopped taking it as my consultant reckoned it was a major cause of fatigue, particularly in "young" (in PCa terms anyway) people. Still feeling tired this week, but that may be the result of going back to work full time.
- At 3:32pm on May 5, 2009,
Guy75 said…
- Play to win is good, although from what I have read, the main three treatments (external rad, brachy + surgery) all seem to have 90%+ success rates so for me it was all in the downside.
- At 12:05pm on May 5, 2009,
Guy75 said…
- Hi Adelino. I would second Steve's comments and empathise with the treatment vs side effects debate - particularly as I am much the same age as you.
As for Mike's comments about brachytherapy, this is the route I chose because of the notionally lower risk of side effects. HAving said this, I am struggling with fatigue, a side effect which gets less headline attention compared to potency/continence but can still be a (hopefully short-term) drag.
- At 7:55pm on May 1, 2009,
Steve Z said… - Adelino - Sorry to hear of your diagnosis. It's hard to ignore prostate cancer at your age, hard to want to undergo radical treatment for what looks like such a small amount of cancer.
Take your time and consider all your options. Do not choose any course that doesn't make sense to you. Don't be afraid to ask the doctors very pointed questions. Be sure that they very specifically define terms like cured, continent, and potent.
- At 6:57am on April 11, 2009,
E. Michael D. ("Mike") Scott said…
- Adelino: Given your interest in radiotherapy, and given your age (47), with your stage (cT1c), PSA (2.5), Gleason score (3 + 3 = 6) and amount of cancer (20% in 1/12 cores), you might want to look carefully at brachytherapy and not just external beam radiation. You are an appropriate candidate for almost any form of treatment, and also for active surveillance, although your comparative youth is likely to make AS difficult to consider.
- At 10:41pm on April 10, 2009,
George A. Brown said… - Hi Adelino,
Welcome to the site. A cancer diagnoses is difficult. Had mine one year ago today. This is the best place to get information, sypport and find new friend. Glad you fould us and welcome aboard. Share with us some cancer info so we can reach out to you. George
- At 10:22pm on April 10, 2009,
Angela Jenkins said… - Adelino - welcome! You have come to the right place. Only 18 short months ago, I remember well sitting in the doctor's office with my husband and hearing the words that would change our lives. What we wanted most of all, after researching and finding all the facts, was someone to talk to, someone that would tell us their story. That's what this network is about - providing current, validated informaiton (on the main site) and tremendous support from our members. The time from diagnosis to decision on treatment, feels like an eternity. Ask any questions you have - our members are always ready to share their story and experience. We're so glad you've joined us. We are here to support you on this journey!
- At 9:17pm on April 10, 2009,
E. Michael D. ("Mike") Scott said…
- Dear Adelino:
Sorry to hear about your diagnosis. Can you tell us a little more? It would be helpful to know your PSA level, your Gleason score, your age, your clinical stage, the number of biopsy cores that were positive, and the total number of biopsy cores taken. If you have a look at Bill Short's page (for example), you will see how he has added this information into his profile under "About Me," which is the best place to put it because then it is easy for people to find.
We will be happy to try and provide you with all the information you need!
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