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Allan Berele
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- Chicago, Illinois
- United States
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Allan Berele's Discussions
Getting ready..
Replied Mar 2
Allan Berele's Groups
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ED and incontinence po...
135 members
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Let's Talk About Survi...
29 members
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Primary Issues
97 members
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Surgery
145 members
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Biopsy and Other Tests
61 members
Allan Berele's Page
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Dear Arnon, I thank you for this discussion, although it seems to have lost steam , lost course, and died. I thank you because I went to a urologist who had been recommended as a 'world expert' on ED, and when I responded to his question 'How woul...
Optimizing functional recovery and what to do if there are problems
Dr. Krongard is right and Mr. Kaplan is out in left field. A married man who wants to have children out of wedlock should be man enough to say "We should be prepared for all eventualities. In case one of us dies, the other one has to go on living....
Am I correct that you are saying that while it may theoretically be possible ( and of course the vas would have to be fed into the urethra), the low chance of success does not justify the violence that would have to be done in what would after all...
Only after the procedure did I find out that it made me infertile. I think that surgeons have an obligation to tell men in advance.
Dr. Krongard, I know that prostatic secretions promote fertility, but would it not be possible to remove the prosta...
1a. Do not worry so much if both lobes are affected. That is common even in low-grade and curable cancers.
1b. 7 is intermediate if you consider everything from 6 to 9 (or theoretically, 10). In some series, every case is either a 6 or a 7.
2. I'm...
Comment Wall (20 comments)
- At 10:52pm on June 29, 2009,
George A. Brown said… - Allan,
I accidently, but we say ther is no thing as an accident, pushed my whole address book and sent the notice to everyone who has, is, or shall be in my life from here on and hereafter forevermore. However, you can join as a representative of an organization. George
- At 9:32pm on March 30, 2009,
George A. Brown said…
- Allan,
You really make me laugh! You have a very unique sense of humor. Look...don't worry about your low score when you don't even know what it is about. You just need to move forward and write down into that the doc tells you. Keep me posted and we will figure out how to disect those 3D fruite models. OK? Take Care but keep me in the loop. By the way, there are only 2 types of math.. George
- At 10:51pm on March 28, 2009,
George A. Brown said…
- Dear Allan,
Mathematicians are not supposed to have a great sense of humor like you do. I think several thousand operations are great. You should do fine with that surgeon team. I don't know what he means when he says you have a low score. Did he elaborate? Let me know please and keep on cracking the jokes. Say, Allan, I just noticed... You have a great big huge yellow head. How come. You friend George the paleo man.
P.S. What are you doing up so late on a Sat noght?
- At 4:40pm on March 27, 2009,
George A. Brown said…
- Allan,
I am so glad that you got rid of the first guy, but how many operations has the second guy performed. This is very important because it takes about 500 to 750 operations to do the Robo Lap Oper skillfully. It's OK to ask the Doc. this. Basically you look for a Doc. who has done a lot of ops with HIS best proceedure.George
- At 4:27pm on March 27, 2009,
George A. Brown said…
- Allan
How many surgeries has the new guy performed with the Robot? Important!
Your New Friend "Old" George
- At 12:37pm on March 27, 2009,
George A. Brown said…
- Allan,
What type of PCa surgery are you having? Open, Lap, Robotic? Takes two to write.! Now I don't chase butterflies I chase fossiles like you and me. Actually they were micro formaniferia found in the ancient sea around chicago. My best lawyer buddy is from chicago. Going back there with him this summer. One of the new guys that joined worked in Chicago as a Mechanical Engineer for 20 years. Keep up you great spirit.. George. .
- At 11:40am on March 27, 2009,
George A. Brown said…
- Hi ALLAN,
Are you still scheduled for surgery on May 20, 2009.?
George
- At 11:24am on February 11, 2009,
E. Michael D. ("Mike") Scott said… - Ah! OK. I "get it."
I dunno why anyone would think that the side effects of radiation are any better or worse than the side effects of surgery. It all depends on how good the surgeon or the radiotherapist is! Ask any man who has radiation cystitis and/or radiation proctitis that starts 3 years after radiotherapy for prostate cancer!
Re George ... Don't worry. George and I have a very strong relationship based on other issues. He will survive my comments -- and then take a dig at me about something else whenever he gets the chance!
- At 4:49pm on February 10, 2009,
E. Michael D. ("Mike") Scott said…
- Dear Allan:
You appear to have what most urologists would define as low risk prostate cancer. (PSA < 10 ng/ml; Gleason 3 + 3 = 6; 1/12 cores positive for cancer). Thus, when your urologist says that this is no reason to have surgery, he does have a good point, because there is a very good chance that your cancer is "latent" (in other words, it will never actually cause you a clinical problem).
Having said that, you appear to also have other prostate problems that sound like symptoms of prostatitis. Obviously I am NOT a urologist and I cannot diagnose your condition, but I can tell you that when I have heard symptoms like this described before, prostatitis has commonly been shown to be an underlying issue.
So what to do? Plenty of men of your age with a diagnosis of cancer like yours do have surgery. And plenty of urologic oncologists will operate on men with your diagnosis. So if you go and get a second opinion, you can very likely find a surgeon who will listen to your plea. It is also very possible that a radical prostatectomy will resolve your other problems.
However (and it's a big however), if you decide you want to go looking for a surgeon who will operate on you, you want to make quite certain that it is someone with an extensive track record. Given the fact that you are otherwise in good health, you presumably have every desire to end up fully continent and fully potent post-surgery. This can never be guaranteed, but the experience and skill of the surgeon can profoundly impact the outcome.
Dr. K''s prior comments may (at least to some extent) reflect the fact that you are not his patient and that he doesn't want to be seen to be "second guessing" one of his peers. However, in the end this decision is down to you.
Does this help?
- At 3:01pm on February 10, 2009,
Arnon Krongrad, MD said…
- The whole trick to managing any illness is to understand competing risk. So if a man is at very high risk of cardiac death, as might be suggested by severe obesity, then he is at lower relative risk of prostate cancer death than a man not at high risk for cardiac death. So yes, a very very obese man needs to think very carefully before he chases down his PSA, biopsy, and surgery.
I am not trying to suggest that we have science behind all this and that we have absolutely precise predictive models of time-to-death or cause-of-death. In fact, I know we do not because I tried very hard to develop such models. All the validations of human and computer modeling showed were not much better than flipping quarters on specifics. Anyway, back to your situation, surgical time is one measure of surgical quality. It is worth noting.
Profile Information
- Have you been diagnosed with prostate cancer?
- Yes
- What brings you to the New Prostate Cancer InfoLink social network?
- elevated PSA; biopsy recommended; biopsy positive with Gleason 6
- Would you help us grow the network? Would you tell others about it?
- I do not know anybody to tell.
- About Me:
- I am a mathematician. I am married with 5 dependent children, the oldest two in college and the youngest in first grade. Except for some garden variety back pain and other urological issues, I was in excellent health until this came along.
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