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Bill Manning
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- Huntington, NY
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PSA Persists After RP
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my husband
Replied Apr 28
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Hi Paul
Sorry to see you here but there are a lot of good people here on this site.
I can't really help you from my personal experience because when I was dx'd at age 49 it was quite clear I needed to do something. I not sure how I would have do...
Glad to hear you are doing well. Enjoy the summer. I hope they let you off the prednisone, sorry but I don't know anything about it.
Best regards,
Bill Manning
Profile Information
- Have you been diagnosed with prostate cancer?
- Yes
- What brings you to the New Prostate Cancer InfoLink social network?
- Information and sharing information
- Would you help us grow the network? Would you tell others about it?
- Yes
- About Me:
- 51 years old
Dx 10/05 cT2a, Gleason 4+4=8 PSA 6.2
RP 12/05 pT3b N1Mx SM+, Gleason 4+3=7
2/06 PSA 0.11
Salvage Rt 4/06 (8 weeks)
PSA 12/07 1.26
1/08 Combined Taxotere and Lupron, completed 2/1/09
Off Treatment 2/09-???
Bill Manning's Photos
Comment Wall (27 comments)
- At 2:28pm on July 6, 2009,
carl97204 said…
- nice looking bike
- At 6:35am on May 23, 2009,
Dean Patrick said…
- Hey Bill, Been up since about 4 am (heat flash) as usual stuck awake pondering my situation. Thought I'd open the old laptop and drop a line on the ADT:
After the Lupron:
-Mild/serious depression.
-Mood swings that I can't seem to control. Even found myself crying watching a Sponge Bob Square Pants cartoon. Would be amusing if it wasn't such a drag.
-Compromised cognitive function: I have a fairly technical job and find myself having to think through tasks I used to do without thought. There is no doubt, not imagining it.
-Heat flashes are brutal, seem to subside in severity with time after each shot. I have a large fan next to my bed that helps.
-I've been very active my whole life and still enjoy playing ice hockey. Pre Lupron biked about 3 times a week, then free weights for a bit and in the pool. My muscle mass is now muscle mess, no stamina, not to mention the thought of fracture on the ice now in my mind every time I lace up.
-Eventual Cardiovascular problems, lipids, moobs, etc. No thanks.
-ZERO interest in sex. Only good thing, as I haven't had an erection since the night before RP. Using a vacuum daily to try to keep it together should I get back my libido. Major shot to my head every time I pull the kit out. Notable decrease in penile and testicular size. My wife is understanding and supportive, I give her credit for being my rock through all this drama.
-Weight gain-about 10lbs over usual, seems mostly belly jelly. I've cut down calorie intake and stopped red meat completely. Seems to have stabilized.
Taking the family up to Tampa this morning visiting grandma (lung cancer surgery on Tuesday) and have scheduled a consultation with a PC Oncologist in Sarasota on Wed.
I'm aware intermittent is controversial. However, like yourself, after much deep thought I'm going to roll the dice and do the IADT. When/if my PSA rises I will readdress ADT. I'm folding my hand before my body is irreversibly damaged by chemical castration. If it takes a year or two off my longevity (and no one can say for sure it will or won't) I'm willing to take that chance.
By the way, my grandfather was diagnosed same age as I (48) and had 15 good years and about 2 sad ones. He refused treatment of any kind. My 60 year old uncle is currently receiving Proton (or is it Photon?) treatment for his PC.
"I've outlived my peter" Willy Nelson
All the best, Dean
- At 4:59pm on May 12, 2009,
E. Michael D. ("Mike") Scott said…
- Hi Bill. Thanks for asking. I'm doing fine (except from a sunburnt back which is entirely my own fault!).
I had seen that report and have been trying to decide what (if anything) to say about it. It's one of those relatively meaningless analyses because at the end of the day it is all opinion and personal choice because there is so little compelling data one way or another. Part of the problem, of course, is that some patients have relatively minor adverse effects from ADT (except for the loss of libido) whereas others can really suffer badly.
Thanks for bringing it to my attention though.
Mike
- At 10:07pm on May 1, 2009,
Peter Zurla said… - Bill,
Sorry it's taken so long for me to get back to you. I am 69 and have been mountaineering for about 10 years and when I got my diagnosis i felt as though my life would stop or I couldn't do the things I have been doing. I now realize that is definitely the wrong way to think. I am still confused about what treatment to pursue as I don't want to have the down time that comes with surgery but in the same breath I want to be rid of this cancer and move on with my life. Sorry to be rambling. Here is my pathology at this point.
Age 69
PSA 6.71
Clinical stage T1c
Biopsy Left mid Small focus of moderately differentiated adenocarcinoma. Gleason score 3+3=6 measuring 0.8mm (3% of tissue)
- At 2:54pm on February 5, 2009,
E. Michael D. ("Mike") Scott said…
- Thank you Bill. I appreciate your kind comment. I try as best I can, and sometimes the magic works. Then again ... I have also been known to [expletive deleted] up big time on occasion, so I try to retain humility about all of this.
:O)
- At 12:37am on February 3, 2009,
Scott Zagarino said… - Bill,
I know it's not exactly "riding" and I take a lot of grief about it, but it's kind of fun and a great fundraiser for both of us. http://spinningnation.org and you can start your own team for Livestrong.
- At 7:40pm on January 20, 2009,
Steve L. said… - Bill,
Thanks for the welcoming comments. Will be more active in time as I get past my bone/CAT scans next Tuesday. Once those final facts are in hand I'm sure I'll have many questions on treatment options and experiences.
Best,
Steve
- At 11:24pm on December 29, 2008,
Rick D. said… - Hello Bill -
Great job on the Tri .... both personally and for Lance. I wear a yellow band (along with a lihjt blue one) permanently and it is a great inspiration when I'm struggling through a tough work-out - no doubt you do the same!
It' s not just the PrCa we have in common; I did FitHampton Tri in both 1994 and 1995. The first time I had a disastrous swim losing a contact lense when my goggle strap broke. The second time I did around 2h 20m with the 6th fastest run - I was competing for Warren Street at the time and lived in Manhattan. Btw, I'm 58.
Had to quit running after a very bad bike accident on 11/01/06; then got nailed with the PrCa and was just starting to bike again when I got doored this past summer and broke my left collarbone and right wrist so I haven't ridden on the rode or mountain since. I now scull or walk every day - mostly row unless I'm having one of those bad days that seems to come about 1 in 10.
Looks like you have a tough case and my heart goes out to you. I opted for IMRT, seeds and lupron first time around since I felt I was looking at radiation whatever I chose. As you now know, the Lupron is tough but exercise certainly helps.
Look forward to chatting with you - we are open to ideas about our Exercise & Cancer effort, and I would be honored to share with you. I',m alops thinking of setting up an exercise sub-group here - could we do that together? Give me a call on 415 388 8480 at your convenience.
Happy New Year, Rick
- At 9:18pm on November 10, 2008,
E. Michael D. ("Mike") Scott said…
- Thanks Bill. I owe you one.
- At 8:36pm on November 9, 2008,
E. Michael D. ("Mike") Scott said…
- Dear Bill: There is a woman who wants to be able to talk to a couple of patients who are/have been through chemo with TAX. If you are willing to talk to her, would you please be so kind as to e-mail me directly at mscott@voxmedica.com and I will help to put you in touch. I do NOT know whether she is looking for help on behalf of a brother, father, friend or what ever. All I know is that the patient has failed pretty much everything and is in his early 60s. Jenn's priority is looking for guidance as to what the experience of being on chemo is like.
Thanks
Mike
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