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Bonnie Savidge's Page
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Thanks Scott, it helps to hear from someone who uses the product, and reading between the lines, recommends it. :)
We know about the vacuum pump, but exploring other possibilities. There is a 30 minute time limit when using it. I can just see us with an egg timer in the background - LOL could inhibate the mood.
Good luck with your insurance company. They are so…
Hi Bonnie,
The MUSE thing is as Claire has said ,"YES" I have used it. And yes there is a slight burning sensation but the benefit out weights the good things that come from it, which is again that togetherness.!!
Claire. Another option to "talk" sooner is go to my profile page and click on the link to my website. Use the contact page form to submit your email address and I can reach you using my phone. For some reason I can only post here and can't use this…
Claire. I got your email but can't reply using my phone. I
will get back to you Sunday when I have internet access again! Dana
He has to talk to his Doctor about it . My husband had his RP at the Henry Ford clinic in Detroit and they have a whole sexual functioning component to it. They have a MUSE representative on site, which is who we contact. Also, you may be able to" G…
Hi Claire,
Thanks for clearing that up for us re MUSE. I think it's a lot less scary then the injections. Alan has told me that if we try the injections, I'll be administering them. (I give shots to my cats, but have never injected a human.) Assume…
Hi Bonnie: MUSE is not an injection; it is a small pellet that is inserted into the penis. This worked for my husband. The only down side is that it is experienced as "burny". But, it is less scary to administer than the injection. I think the effec…
While the drugs may have a similar active. Ingredient apparently there are other inactive ingredients that may play a factor. I don't really know much more but after a year of just a headache and heartburn hubby was glad to switch to another "h" wor…
Thank you Scott. Do you actually use these injections? If you do, anything you feel comfortable sharing would be greatly appreciated.
Thank you Dana. Yes we are very early in the recovery period and feel very fortunate indeed. Interesting to learn that all ED drugs are apparently not the same. All the best! Bonnie
Dear Claire,
So sorry that the Gleason score was not as one would hope and that the margin had any positive results. It makes the fight more difficult, but try not to loss heart. Cancer treatment has come a very long way and is much more effective…
Hello Elaine and thank you for sharing.
Happy for you and your hubby that his cancer was also detected in it's early stage. As a 21 year cancer survivor myself, I know how crutial that is.
I too have heard good things about penile injections speci…
Hi bONNIE,
Ask your doctor about MUSE It's a small pellet injection .Worth a try!! It helped not back to 100% but not bad.
Profile Information
- Have you been diagnosed with prostate cancer?
- No
- What brings you to the New Prostate Cancer InfoLink social network?
- Suggested by patient on Facebook Prostate Cancer group
- Would you help us grow the network? Would you tell others about it?
- Don't know yet....just joining. Certainly if I find it helpful.
- About Me:
- My sweetheart was recently diagnosed with prostate cancer. Twelve core biopsies, two with cancerous cell. One was 2%, the other 10%. The gleasons were both 3s. PSA jumped from 1.5 to 9. He is 67 and otherwise in relatively good health.
Unfortunately additional questions have arrised from bone and CT scans. More biopsies to come in two areas to hopefully rule out other caner sites. I am trying to help him deal with and sort through it all.
BTW, I am a 20 year breast cancer survivor and scheduled to do my fourth 3-Day 60 Mile Breast Cancer Walk this summer.
- Website:
- http://the3day.org/goto/Bonnie.S
Comment Wall (7 comments)
- At 9:33pm on September 13, 2009,
tom rowland said…
- Bonnie,
Please check our in box. Thank.
Tom
- At 8:59pm on March 20, 2009,
E. Michael D. ("Mike") Scott said… - Dear Bonnie: Please tell Alan that if I put all of his data into the Kattan nomogram for newly diagnosed men, I get the following predictions:
Probability of indolent cancer: 12%
Probability of organ-confined cancer: 81%
Probability of extracapsular extension: 11%
Probability of seminal vesicles invasion: 4%
Probability of positive lymph nodes: 2%
Probability of 5-year progression-free survival after surgery: 97%
Probability of 10-year progression-free survival after surgery: 96%
Probability of 5-year progression-free survival after brachytherapy: 82%
Looks pretty good to me ... and from the probability of the lynph node involvement you can see why the likelihood of metastatic disease is so small.
If your urologist is putting ALL his patients through CT and bone scans, I think it's because he's making money by doing it!
:O)
- At 6:14pm on March 20, 2009,
George A. Brown said… - And we are watching your back. You da best Bonnie.
George
- At 4:24pm on March 20, 2009,
George A. Brown said…
- And you are here and you are one of us too.
George
- At 5:47am on March 20, 2009,
E. Michael D. ("Mike") Scott said…
- Dear Bonnie:
The hip and arm problems you describe sound to me like why the majority of prostate cancer specialists don't usually give bone or CT scans to men with PSA levels as low as Alan's. It would be very unusual to find a metastatic site on the arm of someone with a PSA this low, or even on the hip (although that is one of the common early sites of metastasis). Did the doctor(s) tell you why they had ordered these tests?
My best guess would be that both sites will be negative (if they even bother to biopsy the arm): sounds like arthritis or similar to me, but then I'm not a doctor and I haven't seen the scans.
I am assuming that Alan was diagnosed as clinical stage T1c. Yes? In other words, his digital rectal exam was negative and the only reason for the biopsy was the elevated PSA.
- At 8:17pm on March 19, 2009,
George A. Brown said…
- Hi Bonnie,
Welcome to the site. Glad you found us and we found you. Appreciate your help to your friend. Lots of Info, support and friends here. 3 Day 60 mile walk? I would need a 60 day 3 mile walk. Love to have you as a PCa supporter.
George
- At 5:32pm on March 19, 2009,
E. Michael D. ("Mike") Scott said…
- Hi there Bonnie Savage. Nice T-shirt!
When you say other questions have come up after bone scans and CT scans, can you tell us a little more? Was the bone scan potentially positive? Was the CT scan potentially positive outside the prostate?
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