The "New" Prostate Cancer InfoLink Social Network
A Service of Prostate Cancer International
-
Charles (Chuck) Maack
- 76, Male
- Wichita, Kansas
- United States
- Share
- Blog Posts (3)
- Discussions (19)
- Events
- Groups (10)
- Photos
- Photo Albums
- Videos
Charles (Chuck) Maack's Groups
-
THE AFFECT OF AGENT OR...
3 members
-
PCa Under 40
4 members
-
Patients and researchers
24 members
-
Surgery
145 members
-
Coping with Prostate C...
43 members
Charles (Chuck) Maack's Discussions
Stopping Hormone Therapy
Replied Jun 25
PROSTATE CANCER ADVOCATE
Gifts Received
Charles (Chuck) Maack has not received any gifts yet
Latest Activity
The culprit is not so much testosterone, but more so dihydrotestosterone.
From renowned Medical Oncologist Charles E. “Snuffy” Myers, who also specializes specifically in the treatment of prostate cancer:
http://www.prostateforum.com/article-03-...
Sorry Semirade, I wasn't aware of the extent of your disability. And also not aware of your location, where getting around is likely more difficult. My hope was that I cdould encourage some interest where you could get out and with others, includi...
Hello Semirade,
You explain well your several issues that cause your depression. It is good that you are visiting with a psychologist to help resolve your concerns. And I am sorry to learn of the loss of your wife. That can be a terrible loss when...
Richard: addressing your issue of pain. The information at http://tinyurl.com/mzvoqw may help determine your issue.
Yours appears to be a very unusual case, Dr. Roy. Likely one most surgeons hope doesn't come their way. (grin). However, as noted, it also appears you had fatty tissue not usually found in abundance in the area of the prostate. And, of course, the...
I don't like to get into religious debate, but permit me to say I certainly don't blame my God for what I have likely brought on myself with my lifestyle as well as those of my ancestors, since prostate cancer has affected my father and all his se...
Be well my friend. I'll pray that good things continue for you.
Profile Information
- Have you been diagnosed with prostate cancer?
- yes
- What brings you to the New Prostate Cancer InfoLink social network?
- I am a PC advocate
- Would you help us grow the network? Would you tell others about it?
- I already have
- About Me:
- See:
http://www.ustoowichita.org/leaders.cfm?content=bio&id=1
PROSTATE CANCER BIOGRAPHY OF CHARLES (CHUCK) MAACK
8201 E. Harry #1804, Wichita, KS 67207 Tel: (316) 651-0646 Email: maack1@cox.net
I advanced to the top of the enlisted ranks as a Master Chief Cryptologic Technician and retired after 27 ½ years in the United States Navy and 18 years civilian employment in management. Following military service and already in a management position, I studied to an Associate in Arts degree (summa cum laude) to satisfy myself I could do so. My wife Ann and I have been married since April 6, 1954 and have four children, six grandchildren, and one great-grandchild.
Since 1996 I have been an active participant in the Wichita, Kansas Chapter, Us TOO Intl., Inc., and was instrumental in its incorporation in the State of Kansas as a 501(c)(3) Not-for-Profit Charitable Corporation as a chapter of the Us TOO Intl., Inc. Prostate Cancer Education and Support Network. I served for 12 years as Program Director and currently serve on the chapter Board of Directors as Treasurer and on the Coordinating Committee as Treasurer and Website Manager.
I was diagnosed with Prostate Cancer in December 1992 with subsequent treatment over the years of radical prostatectomy followed by external beam radiation, 3 years apparent remission with PSA 0.1ng/ml, then return of slow rise PSA to 0.81ng/ml. After 5 ½ years Androgen Deprivation Therapy (ADT1/2) with PSA <0.01ng/ml, began 2 years off-phase (Intermittent Androgen Deprivation Therapy – IADT). After another return of slow rise PSA to 0.13ng/ml, returned to ADT but this time ADT3 (Lupron/Casodex/Avodart). With November 2003 to February 2005 continuous fifteen month <0.01ng/ml PSA, have since been on second off-phase from ADT but with continued Avodart maintenance. My intention is to remain in this second off-phase until my PSA reaches 2.0ng/ml. Unless there is an update to the foregoing diagnostics, I continue in this second off-phase.
I am an aggressive student in the biology, methodology, and treatment of Prostate Cancer by means of the internet, medical books and periodicals dealing with Prostate Cancer, Emails with physicians who specialize in the treatment of Prostate Cancer, other physicians, other survivors, attending annual conferences on Prostate Cancer, and just about any reliable source in order to be aware of the latest advances in Prostate Cancer research and treatment with which to make intelligent health care decisions with physicians and knowledgeable discussion and direction to patient empowerment when asked for counsel.
I have written several articles in advocacy for men and their caregivers regarding Prostate Cancer and the many issues involved in the treatment of this disease (see “Observations” at www.ustoowichita.org to support, educate, empower, and hopefully ease their concerns. I speak and volunteer at seminars, health fairs, and other groups, large and small and provide advocacy/counsel to patients and caregivers worldwide via the internet.
In association with a son who is Special Projects Manager for Computer Training Systems and Network Applications in Wichita, I provided the input material and my son provided the expertise to develop and program – and the computer company sponsor – a website, www.ustoowichita.org for the Wichita chapter.
I served on the Chapters Advisory Panel of Us TOO Intl., Inc., and currently serve on the Patient Advisory Council of the Prostate Cancer Research and Education Foundation (PAC-PCREF), and as an on-call counselor for the Wichita branch of the American Cancer Society and the Victory-in-the-Valley Cancer Patient Support organization on matters relating to Prostate Cancer. I was selected and participated as a Consumer Reviewer regarding Cell Biology in Reston, Virginia as part of the Prostate Cancer Research Program (PCRP) sponsored by the Department of Defense, United States Army Medical Research and Materiel Command, 2006 Congressionally Directed Medical Research Program (CDMRP). I was invited again in 2007 and served as a Consumer Reviewer-Mentor regarding Physical Imaging. I was also invited to participate in IMPaCT (Innovative Minds in Prostate Cancer Today) in September 2007 at a gathering in Atlanta of over 600 Prostate Cancer Research Scientists and 100 other Consumer Reviewers/PC survivors/Advocates. In June 2008 I was among six other advocate/leader members of Us TOO Intl., Inc. who had been nominated by their peers, then selected to receive the prestigious “First Annual Edward C. Kaps Hope Award” presented to (as quoted from the Us TOO website www.ustoo.org) “An Outstanding Leader in an Us TOO Support Group Who Has Shown Unselfish, Dedicated Service to Prostate Cancer Survivors and their Families.” I am very humbled by nomination for this award from patients and caregivers to whom I have provided advocacy and counsel to ease their burden of concern. My thanks to all who took the time to nominate me.
I am an active advocate for increasing extremely necessary Prostate Cancer research funding, awareness of the disease by all men, annual examinations, early detection, time for education and empowerment while appropriate initial testing is performed to determine where the cancer is located as well as obtaining biomarkers to evaluate along with the PSA level any other increasing levels or abnormalities, early treatment as the result of educated choice, hopeful cure, and the advent of affordable cost of cancer medications that can inhibit or kill cancer cell growth and prolong life.
I encourage all who read this biography to follow the special words that are etched on the "SEA" blue wristbands worn by Us TOO members – “Support-Educate-Advocate.”
- Website:
- http://www.ustoowichita.org
Charles (Chuck) Maack's Blog
Could Agent Orange effects be passed down to off-spring of Vietnam Veterans?
Has anyone read of studies to determine if the off-spring of Vietnam Veterans exposed to Agent Orange now being diagnosed with prostate cancer in their 40's or younger may have contracted this cancer as the result of DNA or gene disruption from Agent Orange to their father's that has been genetically passed down to those off-spring?
Posted on June 25, 2009 at 9:16pm — 2 Comments
FLOMAX - IMPORTANT - BE AWARE!
FLOMAX – IMPORTANT - BE AWARE!
Information compiled by Charles (Chuck) Maack – Prostate Cancer Advocate
Wichita, Kansas Chapter, Us TOO, Intl., Inc. Prostate Cancer Education and Support Network
Many men dealing with prostate cancer or Benign Prostatic Hyperplasia (BPH) - and in this case continence/incontinence issues - are prescribed the alpha blocker Flomax (tamsulosin hydrochloride). And among these men are those who find they require cataract surgery and have the procedure performed. Come… Continue
Information compiled by Charles (Chuck) Maack – Prostate Cancer Advocate
Wichita, Kansas Chapter, Us TOO, Intl., Inc. Prostate Cancer Education and Support Network
Many men dealing with prostate cancer or Benign Prostatic Hyperplasia (BPH) - and in this case continence/incontinence issues - are prescribed the alpha blocker Flomax (tamsulosin hydrochloride). And among these men are those who find they require cataract surgery and have the procedure performed. Come… Continue
Posted on October 23, 2008 at 11:24am — 5 Comments
Prostate Cancer Research Institute (PCRI) 2008 Prostate Cancer Conference - Register Now!
Though some of you are aware, I suspect many of you are not, of this years Prostate Cancer Research Institute 2008 Prostate Cancer Conference to be held in Los Angeles the weekend of September 6th and 7th. If you have about $1000.00 in your savings that you could spare, this would be one of the more rewarding experiences for which to make use of that money. I will be attending as representative of our Wichita, Kansas Chapter, Us TOO Intl., Inc. and would look forward to meeting many of you with… Continue
Posted on July 22, 2008 at 8:01pm —
Comment Wall (75 comments)
- At 8:56pm on September 20, 2009,
Angela Jenkins said…
- Chuck,
Just wanted you to know it was a pleasure to meet you last week at the PCRI conference. I'll let you know as soon as the videos are edited and posted.
Look forward to meeting you again in the future. Thanks for all you.
- At 12:47pm on March 13, 2009,
Anne said… - Hello Chuck
Thank you for inviting me to join this group. I have only now been able to check my email after a few days, and was surprised to see welcome notes from you and a few others.
I have yet to work out how to follow threads and to post, but hope to do this over the weekend.
Thanks again.
Anne
- At 9:17pm on March 8, 2009,
George A. Brown said… - Hi Chuck,
We need you on the site. Please help before I misquote you again.See my posting on Hormone Therapy.
George
- At 10:39pm on January 25, 2009,
George A. Brown said…
- Chuck,
I just looked at my spelling, really bad.
Discussion: Look on Main Page, Prostate Cancer and T
P.S. I just got kicked out of my Us Too Group - Can you Believe That - Me a survivor, kicked out - George
- At 9:27pm on January 25, 2009,
George A. Brown said…
- Where are you? Need you on that Hypothisis Discussion
George
- At 9:26pm on January 25, 2009,
George A. Brown said…
- I knew I could count on you for some hope.
Thanks
George
- At 9:00pm on January 25, 2009,
George A. Brown said…
- 30 days to 76
What is it like? Chuck
George
- At 3:32pm on January 25, 2009,
Gregory B said… - Thanks, Chuck. gregbmusic@gmail.com
- At 4:49pm on January 23, 2009,
Hope Estevez said… - Hi Chuck,
I't's my pleasure that you added me as your friend .
I have ot been active on the site for a few months busy in the office helping
Men, wifes anfd family members deal with CAP.
Best regards,
Hope/The Krongrad Institute
- At 8:26pm on January 21, 2009,
Arnon Krongrad, MD said…
- Chuck, this is the internet. People copy and paste. We do not limit how that is done and we are happy that the content is useful and is propagated. I think what Mike meant is that since we so rapidly produce new content it is useful to inform readers that we have additional content, such as what Mike suggested. Links to the Tips and Tools page would serve those readers who want more than what anyone else can reasonably copy and paste. AK
About
Selected Papers
Need InfoLink cards?
GENERAL DISCLAIMER
The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.
Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.
Information provided on this site should not be used for diagnosing or treating any health problem or disease.
The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.
Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.
Information provided on this site should not be used for diagnosing or treating any health problem or disease.
The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.
Events
© 2009 Created by Arnon Krongrad, MD on Ning. Create a Ning Network!
