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Cosmina Morar
- 33, Female
- Bucharest
- Romania
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Cosmina Morar's Discussions
Maitake, Cordiceps, Neurooptimizer,.. Boswellia- Are they helping?
1 Reply
Started this discussion. Last reply by Jo Wright Nov 12.
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stop the flax seed oil. there is sufficient information about it promoting prostate cancer that I am keeping it away from my husband. Whole flax seed is a different story - beneficial because of the lignans. Jo
Dear friends,
I haven't started a new discussion for a long time. I've been a little quite, but still accessing the network and reading the messages.
I wish everyone good health and hope for the best for everyone.
I'd like to know your opinion a...
Profile Information
- Have you been diagnosed with prostate cancer?
- No
- What brings you to the New Prostate Cancer InfoLink social network?
- The eager to find out more about persons facing far-advanced prostate cancer.
- Would you help us grow the network? Would you tell others about it?
- Yes, no doubt.I see wonderful people here willing to help.
- About Me:
- It's not me who counts here, my father has a far-advanced PC with multiple bone metastases and I'd like to learn more about this terrible disease.
Cosmina Morar's Photos
Comment Wall (35 comments)
- At 5:20am on November 24, 2009,
Mariana Slovinkova said…
- Dear Cosmina,
Thank you for your message, to tell you the truth, I was surprised to find it this morning ;-). But happy you wrote. You know, I can talk about it and if you need any advise also please don't hesitate !!! I have quite "good" experience with all this treatments !!!!
How I feel, hum, very difficult to say you know or in fact no it's not difficult to say, I just avoid to think about it because I CANNOT believe my dad is not here anymore. You know as I live in Paris, I am used not to see him every day so I just go on ...and try to understand why it happened, but there's no explanation. I know, I need to accept it but for the moment it's not a case and more the time goes on and more it's difficult. I am scared also for christmass, it will be very difficult for me and for us, for all my familly. I love my dad and I just cannot stand he is not here, especially because he really wanted to live !!!
What more we have also some very good news, I am pregnant, you know I realised it when my dad was leaving us exactly the same day and it was very difficult for me because you have a lots of feelings really mixed !!! But I am very happy, our baby will come at the end of march and I have another veeeeery good news, my sister after few years of try and desesperate is pregnant as well and waiting the twins !!!! ;-) ;-)
So these are the news which help us to go on and at the same time I feel so sad about it because my dad would be SO HAPPY !!!!!!!!!!!!!!!!!!!!!!!!! He was waiting for it for such a long time !!!! and not even one year after he left us we will have 3 babies born. You know sometimes I think it's a present from him !!! It's something from him continuing ....
So, so how I and my family is doing. And what about you ??? And your dad, how he is doing ??
really nice regards Cosmina, Mariana
- At 2:21pm on November 17, 2009,
Mitu S. said…
- Thanks Cosima. It seems that your dad and my dad are a similar stage. Everything you describe applies to him as well, so I know that it is very hard. I am here for you as well, Take care, Mitu
- At 8:59pm on November 16, 2009,
Mitu S. said…
- Dear Cosmina, How are you, and how's your dad? My dad is getting so weak, it is scary. He had palliative radiation a few weeks ago, and will now go to chemotherapy with Taxotere. I am not sure how things will go. Anyway, I thought I would say hello as I have been thinking of you. Mitu.
- At 1:32pm on November 13, 2009,
Leah said…
- Cosmina,
I hope you and your father have had a good few days. I was having a bit of a headache, but I'm fine now.
About your question re "palliative radiation": my non-professional understanding of this is that "Palliative" means that the treatment is for the purpose of relieving pain rather than curing the underlying illness. So for example, with early-stage cancer that is confined to the prostate, you might deliver targeted doses to that organ in the hope of eliminating the disease altogether.. However, if the cancer has spread to other parts of the body, e.g., the bones, the disease is not considered curable. So then the goal is to eliminate pain by irradiating those areas where specific tumors are causing trouble, e.g., destroying growths which are putting pressure on the spine or the hip. So yes, I would think what your father is receiving *is* palliative rad.
About the various "alternative "treatmentss you mentioned: I'm not a big believer in acupuncture personally, but I think it's well worth trying, if only for the placebo effect., which can be very powerful. I'm not familiar with the herbal/nutritional supplements you mentioned. I would just be very careful that whatever your father ingests is not contaminated with any other ingredients and that these preparations do not interfere with any medications he's taking. Otherwise, I get a picture of a caring oncologist who is trying very hard make to things better for his patient.
Since your father started the radiation, have you or he noticed any differences? Sometimes with this treatment it takes time. Rad destroys tissue slowly.
Since you are dealing with advanced cancer which I don't know that much about, I would suggest that you look at the yahoo Advanced PC newsgroup (go to yahoo groups and google "advanced prostate cancer") run my my colleague, Joel Nowak. He also writes an excellent blog on advanced PC (advancedprostatecancer.net) on behalf of our sponsoring organization, Malecare. I did a search there on "bone pain" and a number of things came up. You can also contact Joel through the blog.
Other than that I think your father should be allowed to do the things he likes best, including eating his favorite foods if he's able to. He should not be deprived of the sensual pleasures of life. just because he is sick. I assume your dad gets great pleasure from just being in your company and having you fuss over him like a mother hen :-))
My husband and I am thinking of you and wishing you all the best. Remember to take care of yourself, also, Cosmina.. Maybe you can treat yourself to a massage or get something something special..
Take care,
Leah
prostatecancerblog.nt
- At 1:46pm on November 10, 2009,
Leah said…
- Cosmina,
I am sorry that your father is so sick. It is really hard, almost impossible, to bear seeing that.
I want to tell you that my friend in Scotland, Hugh Kearnley, wrote me that he got almost complete relief from pain (for advanced PC) with palliative radiation. He told me he might as well throw out his morphine pills because he didn't need them anymore. The radiation meant everything to Hughie because he needed 2 things in order to go on living and that was fishing and playing the organ. The radiotherapy took away the tremors that came with the morphine.
There are so few resources for children in your situation but I do have a couple of references on my blog. One is simply called, "Resources for Grieving Children". It quotes from a letter from Abraham Lincoln sent to a young girl who had just lost her father in the Civil War. The other thing that might interest you is a beautiful essay by my friend's 18-year-old son who took care of his father at the end. He writes about the "new reality" of having a father with PC. (It's funnty and sad at the same time.)
http://prostatecancerblog.net/?p=59
"Caring for Pops: Trying to Be a Son and and a Friend at the Same Time"
http://prostatecancerblog.net/wp-admin/post.php?action=edit&post=1125
"Resources for Grieving Children"
I wish I had told my father when he was alive that I loved and admired him. Even after he was sick and had cognitive damage from a stroke, I did say to him one day, "I love you", and he replied, "I love, you, too. I really knew my Pa loved me when he said that he like my singing and would I record something for him. Between me and you, he would have been better off with chalk on a blackboard.
Hang in there. You can also e-mail me @ leah@malecare.com
Leah
prostatecancerblog.net
PS: Just saw your pictures. They're gorgeous, especially the one with the flowers.
- At 4:29pm on November 2, 2009,
Blossom Rabinowitz said…
- I promise to be here always for whatever you need. Just say the word and I'm here for you. Hang in there, Blossom
- At 9:14pm on October 31, 2009,
Blossom Rabinowitz said…
- Dear Cosmina,
Thank you so much for your kind and thoughtful email. Thank you for caring 'about me. In general i suppose you could say I'm fine. I left Israel in mid October and retuned to Canada after almost 3 months.I've been busy with the kids and getting them settled in school since they started the school year late.This past week i went back to work(for my husband) and am taking on some new clients( I'm a doula).it sounds pretty ok on paper anyway.I also cry every day. It doesn't take much to get me going, a thought a picture the wind blowing anything really.I also still feel the need to talk a great deal,sometimes to anyone (even the cashier in the supermarket). Of course then i feel like an idiot but its still so raw and on the surface.i miss my father terrribly, i would give anything to be able to talk to him one more time. The more I think about what an amazing man he was and all that he accomplished and what a special father he was i wish that i had one last chance to tell him how proud I am of him and so grateful that he was my father.My heart is broken and I have a hugh gaping hole in it , and yet Cosmina life does go on. One foot after the other one day after the other. I should tell you that mixed with the crying and the business of life their is also laughter.The truth is my father wouldn't have wanted it any other way. He loved life so much. My parents raised us to treasure every day and every minute of this short life that G-d gives us on this earth. You never get today back, treasure each day. So thats what i try to do, I have my cry and then wipe my tears and put that smile back on my face.There is no choice.
Enough about me, how are you holding up? This whole cancer thing sucks doesn't it?I'm sorry that your dad isn't feeling good. Try and find somethng that will make him more comfortable and help deal with the pain.My father was very stubborn. His idea even 10 days before he died was to take acetaminophin and to try homeopathic things to help sleep.As for taxotere please don't be so afraid of it. In general my father did pretty well with it. The first week was the hardest and then it got easier and his quality of life was pretty darn good. It was day 5 and 6 that were the worst after a treatment and then he got back to his life. Sometimes he even worked on those days( a dentist) and took something called "stop it" just to deal with diharrea.Of course everyone deals with the chemo differently but my point is don't assume the worst. It may not be as bad as you anticpate. My fathers psa went down from 500 to 75 so from that standpoint it was succsessful,the problem was it didn't work for all that long about 5 months before the psa started rising againe time. Mike had told me about a trial for a drug called MDV3100. It would be for after the chemo. Perhaps the vaccine Provenge will be approved soon mid 2010 they hope. You pursue all the options (which aren't many or great) andyou treasure every day with your father EVERY DAY! I wish I could tell you this was going to be all right and your father is going to be just fine, but you know none of us can do that. I hope that your fathers cancer isn't so aggressive and that he responds well to all the treatments that he tries. don't forget to live and love despite the cancer. You don't know when your fathers last day or yours will be but don't let cancer take him away from you now when you are still together to LIVE now.One foot in front of the other my dear day by day there is no choice! I have walked this same walk over the past year and I know how very hard it is and how badly you want to runaway from it all sometimes. Please know that i am here for you always and I am happy to give you my phone number too if you think it would help you to talk. just say the word. you are not alone.
good thoughts and prayers,
Blossom
I
- At 4:09pm on October 27, 2009,
Angela Jenkins said… - And Cosmina, that is perfectly fine....not to be okay. None of us are at the stage of this disease that you now find your family. When my father got down to the last couple of months, I could see him failing so quickly. Although it was real, I too just tried to believe he would be okay, like he had been so many times before. I know deep inside I knew the end could be any time, but you are never prepared.
We are here for you. You can talk if you want - or not. I'll send you my personal e-mail if you'd rather talk off line. There will be hard days ahead. Just know that we care and want you to know that you a "family" of friends here. We will be in touch. You and your family are in our thoughts and prayers.
- At 3:03pm on October 27, 2009,
Angela Jenkins said…
- Cosmina - though I'd check on you. How is your Dad doing? I love the current pictures you posted. Is he still feeling relatively good? How about you? How are you doing? Update us when you can.
- At 6:57am on September 1, 2009,
Mariana Slovinkova said…
- Dear Cosmina,
It's been a long time now, I didn't write here. I just wanted to tell my dad is not with us any more. He died 24th of july and it's very very difficult. He was 55 and fighting till the end. We and he tried everything and we were with him till the end, we took him at home and he died at home. very difficult really very difficult. Please don't hesitate if you need any advice because I thing after all what my dad did and tried even if it didn't help him it can help somebody else.
Hope everything is ok for you and your dad!
brgds, Mariana
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