The "New" Prostate Cancer InfoLink Social Network
A Service of Prostate Cancer International
Jade's Page
Latest Activity
Stay as open as possible in communication consistently! Even if he feels uncomfortable keep bringing it up. Go to a couples workshop ie Hedy and Yumi Schiffler to learn how to communicate effectively.
Talk talk and talk!
Vicki
I appreciate your "venting" as what else do we do with all these feelings, the sudden change on the couple, the myths of society and the sense of aloneness even with friends?! At 68 I am considered an odd ball for missing sex and his libido is…
Kathy
I agree with you completely. I have tried at times desperately to get some face to face support, get a group going etc. some women even told me their husbands would not "LET" them talk about these things. In this day and age I find this quite…
I loved reading this. I actually went to my doctor and questioned why I would be having hot flashes again and he had no explanation! I had not had them for years so was surprised when they started again but never connected it to the fact that my par…
this is just too funny!! I even went to my doctor recently and said I could not understand why I was having hot flashes again after years! He had no answer. I was away on vacation for two weeks, no problem. I just got home today and started having w…
Comment Wall (12 comments)
- At 10:37pm on August 12, 2009,
Angela Jenkins said…
- Jade - how are you doing? How's your partner doing?
- At 3:18pm on June 30, 2009,
Jean said…
- Jade, the study is under http://www.nahbr.nursing.ubc.ca
It's interesting reading and makes perfect sense. Let me know what your trhoughts are on this. P.S. Have you considered joining the "sex + sexuality" group on this site?
- At 1:25pm on June 30, 2009,
Jean said…
- Oh I believe that Jade. I will send you the link once I find it. Unfortunately I have to leave for the airport in about 15 minutes. My husband finally got a consultation at the University of Washington regarding whether to have "hormone" treatment or not. So can you wait for a couple of days? In the meantime, have you checked into Us TOO as a support group? There might be a local one for you. They also have something called "Circles of Love" which is for partners of prostate cancer victims. You sound like a "doer", have you considered starting a support group yourself? Let me know.
I live in an area which is culturally "stoic" and if your friends are not comfortable talking of sex you also may live in such an area. They probably don't realize just how lonely it can be not being able to share what is going on in one's life. Well don't forget that you have us. We need to talk about these things too. Jean
- At 1:16pm on June 30, 2009,
Jean said…
- Hello Jade:
There is a study that has been recently published by a fellow at the School of Nursing at the University of British Columbia and it is on Support Groups and Prostate Cancer. In this study he also studies the role that women in support groups play. He talks of the women who are mainly in the background doing much of the work and support for their husbands and partners. You sound like such a woman and I bet your husband is very proud and appreciative. Keep it up, we all need to do this even if it is hard to face.
- At 9:47am on April 6, 2009,
Kathy Meade said… - Can you help VPCC by making a call today?
This Wednesday, April 8th, the Virginia General Assembly reconvenes to process Governor Kaine's amendments to the bills passed in February. A pair of bills gave small businesses the option of offering their employees health insurance that did not have to include coverage for some of Virginia's current mandated benefits such as screening for cancers, including PSA test and DRE for prostate cancer.
The Governor is presenting a substitute. Below is a description of this substitute and its rationale.
Please read this and consider contacting your Virginia Delegate and Senator today or tomorrow. Voting takes Wednesday.
To contact your Virginia Delegate or Senator you can get information at this website:
http://legis.state.va.us/1_cit_guide/contacting_my.html
or call(804) 698-1500 and 804-698-7410
SUPPORT GOVERNORS AMENDMENTS TO SB1411 AND HB 2024
HEALTH INSURANCE FOR WORKERS IN SMALL BUSINESSES
Governor Kaine has proposed important amendments to two bills that passed the General Assembly. The General Assembly will vote on these amendments on April 8th.
Both SB 1411 (Sen. Watkins) and SB 2024 (Del. Daniel Marshall) allow small businesses (with fewer than 50 employees) to buy health insurance that does not cover all the specific medical services that would usually be required by Virginia law. Supporters hope that by eliminating mandates, insurance would be more affordable to small businesses and their employees.
Amend SB 1411 to Require Coverage of Important Basic & Preventive Health Care
The Governor wants to make sure that every policy sold under this new provision would at least have coverage for the following basic and preventive health care services:
o Cancer screenings for breast, cervical, prostate and colorectal cancers
o Well-child visits and childhood immunizations
o Mental health and substance abuse services
o Diabetes
Another proposed amendment to SB 1411 would make sure that employees getting these policies know exactly what is and isnt covered.
Amend HB 2024 to Help Workers Laid Off from Small Businesses
Congress has provided new funding to help certain workers who lose their jobs keep their group health insurance. The funding pays for 65% of the cost of up to nine months of COBRA coverage after an involuntary lay-off. COBRA premiums can easily cost over $1,000 per month. The federal payments can help unemployed workers and their families keep their health insurance.
The Governors amendments are necessary to make sure that workers who lose their jobs at small businesses with fewer than 20 employees can also get this federal money to help keep their group health coverage for up to nine months.
Every day, more and more Virginians are losing their jobs. Laid off workers from businesses of any size should be able to get the same federal help to keep their health insurance during these very hard economic times.
HELP SMALL BUSINESS EMPLOYEES GET AND KEEP HEALTH INSURANCE!
SUPPORT THE GOVERNORS AMENDMENTS TO SB 1114 AND HB 2024!
CALL your Virginia Senator and Delegate TODAY!
Prepared by Jill Hanken, Attorney, Virginia Poverty Law Center, 804-782-9430 x13, jill@vplc.org
- At 9:54am on March 24, 2009,
Anne Katz said…
- You may not be able to share it in a way that you hope. This may be difficult for you.... you may have to support him and love him but find other ways to mourn for yourself.
- At 9:10am on March 24, 2009,
Anne Katz said…
- This is so hard for both of you Jade. I know how some men try to "fix" everything and so seeing you upset is just one more thing for them to fix.
- At 8:04pm on March 18, 2009,
Jade said…
- thank you so much for thinking of me. We will both be there. Maybe we can meet.
Jade
- At 5:09pm on March 18, 2009,
Kathy Meade said…
- You or your partner may be interested.
You may be interested in this meeting that is being done in conjunction with the VPCC this Saturday. Please respond directly to Dick. Contact info below. Kathy
Hi To All,
This is a reminder of our UsTOO chapter meeting this coming Saturday, March 21 here at Westminster at Lake Ridge (12191 Clipper Drive, Woodbridge, VA 22192) from 9:30 am until 12:30 pm. This event will be held in Westminster's renovated Potomac Room. Westminster's FREE heart healthy bufet will be available at 9:30 am.
Dr Charles Snuffy Myers, our speaker, will talk about recent developments and their impact on prostate cancer.
The annual meeting of co-sponsor Virginia Prostate Cancer Coalition is scheduled right after the morning meeting here at Westminster, from 12:30 pm until 2:30 pm. We invite interested attendee to stay for this event.
Here are Directions to the Westminster at Lake Ridge Continuing Care Retirement Community:
Take Exit 160 North from I95. Take left onto Old Bridge Rd.; right onto
Clipper Dr after 1.1 miles. After passing the Westminster stone sign (0.4 miles), angle left down into Westminster. Turn left, then right into the parking lot of the apartment bldg. Enter the building via the green awning. Go down the stairs into the Potomac Room. Questions en route, call Westminster's receptionist at 703/496-3400.
Please come if you can. If possible, call or email me beforehand. This will help in our planning.
See you all on Saturday,
Dick Gillespie,
Leader, UsTOO chapter, co-sponsored by Westminster & Potomac Hospital
Chairman, Virginia Prostate Cancer Coalition.
Tel: 703/497-0628
Email: chesterii@aol.com
703-497-0628.
- At 10:21pm on March 12, 2009,
Angela Jenkins said…
- Jade - I'm glad you've joined us here on the network and in the wives and partners group. There are many emotions that take place once our men are diagnosed. Each man is different and they react to this life changing reality differently. One of the great things about our groups is that nothing is too uncomfortable to talk about (well, almost nothing). If you'd like to just talk some time, please e-mail me at ajenkins56@cox.net and I'll be glad to give you a call or give you my number. When my husband was diagnosed, I found the wife of a prostate cancer survivor and it helped me work through my feelings at the time and understand his a little better. We're here to help you and your partner on this journey. Who better to join you than those who have been there already? Thanks for joining us and, please, contact me anytime.
Profile Information
- Have you been diagnosed with prostate cancer?
- no
- What brings you to the New Prostate Cancer InfoLink social network?
- My partners diagnosis
- Would you help us grow the network? Would you tell others about it?
- Yes,
- About Me:
- I am 68 yrs old and have been single most of my adult life. The last 8 years with my partner have been not always easy but also like the dream I have waited for all my life. Now he is often self adsorbed and I feel I have no one to talk to especially as my friends say "talking about sex is too uncomfortable"
About
Selected Papers
Need InfoLink cards?
GENERAL DISCLAIMER
The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.
Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.
Information provided on this site should not be used for diagnosing or treating any health problem or disease.
The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.
Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.
Information provided on this site should not be used for diagnosing or treating any health problem or disease.
The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.
Events
© 2009 Created by Arnon Krongrad, MD on Ning. Create a Ning Network!
