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Jean-Jacques MERMOD
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Jean-Jacques MERMOD's Groups
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Vizualization Techniques
6 members
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Let's Talk About Survivo…
30 members
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exercise
11 members
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Biopsy and Other Tests
61 members
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Hormone Suppression
73 members
Jean-Jacques MERMOD's Discussions
I Have A Dilemma (Part 2)
Replied Dec 12
Everolimus (Afinitor) trial
1 Reply
Started this discussion. Last reply by E. Michael D. ("Mike") Scott Nov 11.
Jean-Jacques MERMOD's Page
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Latest Activity
Midnight fishing:
I used to bleed a lot from the bladder (due to a bruising pig tail). At times it would coagulate and clog. I would then call my urologits in the middle of the night for an emergency 'poissons rouges' fishing party.
After a few nig…
Hi Rick
thanks for the advice and th einterestung information on Alpharadin I hadn't seen this and will follow up
I am now under Texatere 2nd cycle and responding very well:
pain is gone, lyph node has schrunk, 4 more cycles to go.
cheers jj
Bone metastasis and physical execise:
A few months back, I had looked for advice on this site concerning what I thought were muscle tears during physical exercise. Being under ADT I thought a muscle mass reduction and my too high expectations were t…
Dear John
I have been thinkimg about your (our) dilemna and reading the testimonials illustrating it so well.
Here is another angle to think about: the desire and courage to know versus the fear to know.
Early in my story, 7 years ago; I went to in…
Dear Jon
I understand from your discussion that a biopsy comes with a very small risk of cells escaping.
It seems to me that the risk of not knowing where the cancer cells are and at what Gleason score they are is much larger.
I would opt for biop…
Tomorrow I start chemo:
Aftrer 7 years of gentle cohabittion with PCa and 3 years of silencing with ADT. PCa has changed drastically: it moved into lymph nodes, bladder, vertebrae and a few ribs. It set our dialogue on the tone of pain. It gave me n…
Jena-Jacques:
See the following:
-- http://www.ncbi.nlm.nih.gov/pubmed/18361409
-- Approved US product web site for Afinitor
Clinical data on the use of everolimus in prostate cancer is very limited at this time. However, there are about a dozen…
I just read Getting Well Again for Carl Simonton et al..
This book written in the 80's leaves you on a high.
Its great to feel the enthusiasm of oncologists and psychologists when they were first discovering the mind over body relationships.
More re…
thank you for your warm support
I will look for a skilled trainer in my area (Geneva Switzerland)
jj
Profile Information
- Have you been diagnosed with prostate cancer?
- Yes
- What brings you to the New Prostate Cancer InfoLink social network?
- wish to get the most of the life I have through discussins and reflections with you all
- Would you help us grow the network? Would you tell others about it?
- yes
- About Me:
- In learning and development of pharma industry:
diagnosed 7 years ago with a gleason at 9 and invasion of the nerves. Then over the years: radical prostatectomy; followed by radiotetherapy; ADT Zoladex implants; then Casodex with Zoldaex; PSA rising gradually to over 500: metastasis in many lymph nodes but not in bones; one lymph node blocked the outlet from the kidney,this was resolved by a pig tail (tube) and further radiotherapy of enlarged lymph nodes, PSA now down to 175; now metastasis have been found in bladder, liver, vertebrae, ribs:
So I am starting chermotherapy with Texatere and hopr fopr the best with the help of lots of mindfullness meditation and friends
Comment Wall (22 comments)
- At 5:55pm on November 24, 2009,
Jim Skrypek said…
- Jean-Jacques,
Thanks for your reply. As Keith suggested your images are truly inspirational .. keep them coming. I had a Gleason 9 and 2 positive nodes but no evidence of distant mets in my pathology report after my RRP. These numbers were my ticket into this trial.
Basically the protocal calls for an infusion of a radiopharmaceutical which battles bone mets followed 12 weeks later by conventional radiation to the prostate bed. I've had the infusion and my PSA did not retreat so the thinking is that the cancer is somewhat still confined to the bed. I have no idea at this point what twists my story will take Jean-Jacques. I truly hope that you do not fall victim to despair. New roads abound here.
Keep in touch
- At 10:46am on October 7, 2009,
E. Michael D. ("Mike") Scott said…
- Jean-Jacques:
"Resistance training" is just another terms for things like weight lifting. In other words it is strength and flexibility training rather than aerobic exercise like bicycling or running>
- At 1:43pm on September 15, 2009,
Gary D said…
- JJ....Thank you so much for your comments. The doctors office called today, wanting to know what treatment I wanted. I will call them back later today or tomorrow as not only will it take me awhile to decide. I do have someone to talk to and will see him tomorrow. Take Care, Gary
- At 8:20am on September 7, 2009,
Keith Hammerbeck said… - Your images speak volumes! I am inspired.
- At 11:53pm on August 11, 2009,
Craig Pynn said… - Hi J-J: The advice was resistance and weight training, so my only cardio at the moment is riding my bike 2 miles each way to the gym. The trainer taught me lots of different low impact stretches on a 65 cm exercise ball--do about 20 minutes of core ab & glutes stuff. Usually its 2X 15 reps of each exercise. Then 20 minutes of arms (biceps/ triceps), shoulders & legs (quads, mostly) on the machines. Finish up with 3X static 'bridge' on my elbows --have worked up from 15 seconds to almost 40 seconds. I vary the sequence thru the week. I am not a fan of free weights although I should probably start adding some stuff. So far, not too much muscle loss and of course it's a struggle to not gain weight on ADT, although I need to lose at least 20 lbs--& should lose more.
- At 1:51pm on August 5, 2009,
Rick D. said… - j-j
you just inspired me to create and exercise group ... please do join!
rick
- At 6:10am on May 19, 2009,
Jim Skrypek said…
- Jean-Jaques
My own artistic abilities I'm afraid are sadly lacking. i leave those endeavors to men with the proper tools. i would be happy to share experiences with you on any subject.
Hope you stay in good health.
Jim
- At 10:27pm on May 17, 2009,
Laura Gillette said… - Of course...For myself, the emotions I went through initially at time of the "news" was Fear, Hopelessness, Confusion, Lonlines, Mad, Scared, Guilt...etc. After researching and talking to my husband about my emotions, I felt relieved that he was including me in all of the doctor appointments, his emotions, and most important we stayed close as husband and wife and our friendship as well grew stronger. The guilt came due to marital issues we were having and we were going through marriage counseling to deal with those issues....I believe in my heart that this was God's way of opeining up our eyes...I don't blame God for any health issues or crisis, My belief is that God doesn't give more than we can handle and with him by our side all will work itself out. I am not sure if you agree with me on this, but I my beliefs is what got me through it all and I am still going through an emotional time. I do have my days where I can't believe all of this is going on and I just cry myself to sanity and keep on going.
- At 10:31am on May 16, 2009,
George A. Brown said… - Sometimes I would like you to look at the psycosocial presentation of Eric Erickson and see if you could illustrate his Trust vs Mistrust, etc. Contact me if You can't find his scales. Thanks George
- At 10:25am on May 16, 2009,
George A. Brown said…
- Hi Jean-Jacques,
I need to work on hope now more than ever also, thanks
George
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