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Joe McCleskey
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- Honokaa, HI
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Joe McCleskey's Groups
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Information Sources on P…
11 members
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Wives and Partners
88 members
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Hormone Suppression
73 members
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Primary Issues
97 members
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Coping with Prostate Can…
43 members
Joe McCleskey's Discussions
IGRT colorectal burn
Replied Oct 28
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Aloha Kevin,
My semen production is very small, like if we go for more than a week, you feel/see just a little, more often & you don't feel anything.
After a cysto, the painful spasms last a couple of days and it takes about 2 weeks to get back to w…
Aloha Phil,
This past few days, my experience indicates that even though my prostate got a high radiation dose, the prostate sphincter is working as designed. So, 25 months after EBRT, it is possible that part of the prostate is returning. I know, a…
Aloha Dr. Peters,
I did take the survey. I think that your study did cover a lot of before PCa and after, ground. As with PCa, my rough calculation of over 1,700 starting points makes this study even more difficult. As such, I know you can not cover…
Aloha,
I'm 24 months post EBRT/IMRT.
Saw the uro doc for a cysto to determine where a very dark red urine came from a couple of months ago. There was a perneum stricture which she dilated on the way into the bladder. Inside the bladder we saw what l…
Aloha Dr. Baldwin Peters,
I have not tried your survey yet. From my own experience, there are many different ways the man & wife can have problems before PCa becomes a constraint on the sexual relationship. You would need to consider some set of sta…
Aloha Harvey & John,
I'm over 2 years from EBRT/IMRT ultra sound guided and have had two Ag laser treatments to stop the bleeding from the rectum. My anus was also damaged and still need a toilet close by unless I stop eating. It is getting better,…
Aloha,
The following source has a list of info sites;
Not sure how to link it to this page, and there appears to be a part 2.
Date: Fri, 22 May 2009 05:34:54 -0400
Reply-To: The Prostate Problems Mailing List
Sender: The Prostate Problems Mailing L…
A member asked if we could start a group where we could share knowledge about access to information resources. So here it is!
Joe:
I have written nothing about my experience with ADT, not a word. It is irrelevant.
I have recommended two excellent sources of information.
Regards,
Steve J
Aloha Kevin D. Cooper,
I think this is your choice. After talking to my wife, she wants me alive, to spend time with me and I with her. So, my choice would be to live. Wish you the best,
Joe 68 Hamakua Coast
Steve J,
We've been through this before. You may have just been lucky not to experience the bad side of chemical ADT. For those of us that felt that our quality of life on ADT was not acceptable and especially taking more chemicals to "help" our qua…
There are methods of alleviating side effects of ADT (androgen derivation therapy). Unfortunately, they seem not to be widely known to some medics.
Here are links to two excellent sources of reliable information:
http://www.prostate-cancer.org/edu…
Greetings,
I don't think that I could handle orchiectomy, even knowing that the chemicals I take accomplish precisely the same thing, have been for over a year and presuming that I will never be able to safely stop taking them. I would be the first…
Profile Information
- Have you been diagnosed with prostate cancer?
- Yes
- What brings you to the New Prostate Cancer InfoLink social network?
- Link from yananow.net
- About Me:
- Biopsy 5/07, 5 to 70% all 12 cores, Gleson=9, PSA 14
Lupron Depot 3 month shots, June 07 to April 08
EBRT/IMRT ultra-sound guidance 09/10 2007
Comment Wall (9 comments)
- At 6:36pm on November 14, 2009,
Ralph Valle said…
- No Joe, I am suggesting that there is little difference in side effects and those from an orchiectomy are irreversible.
The decision to go back on hormone suppression is yours. Depending on your general health, suppression with estradiol is an option that might have less side effects. All this you need to consult with your doctors.
Ralph
- At 11:51am on November 13, 2009,
Ralph Valle said…
- Hello Joe,
Side effects of hormone suppression with LHRH can be reversed by stopping therapy. Orchiectomy is irreversible. Side effects are the same. If you had problems with Lupron, I think that having an orchiectomy would be a major mistake.
Best regards,
RalphV
- At 12:54pm on November 5, 2009,
Rick D. said… - hello joe -
are you exercising? a new study by roann segal out of u. of ottowa suggests resistance exercise is more important than aerobic,and you should be doing it three times a week. either write me or take a look at the exercise group.
i had treatment around the same time as you and am just finishing up 27 months of lupron - last shot next wednesday ... yeah!! the HT has been hard this year. i'm still suffering intermottent bleeding too.
onwards and upwwards, rick
- At 8:32am on April 29, 2009,
E. Michael D. ("Mike") Scott said… - Joe:
Here is the question you left on "Ask Arnon" with Dr. Krongrad's response.
Aloha Dr. Arnon,
I know that my prostate cancer will return. (G = 8 & 9; 12 of 12 cores, 4 to 70%; PSA = 8 and 6 months later PSA = 14; started ADT 5/07; EBRT/IMRT 9/07 and 10/07; last shot 4/08; PSA = 0.72 on 01/09; testosterone 1.7.)
My doc says he wants to start ADT again when PSA is 1 to 2. The side effects of ADT were and are still very bad: continuous pain at shot sites, teeth worn down, weak split nails. I do not want ADT again unless there is a clear indication of PCa. Finding the PCa does not seem to be achievable or within the realm of modern medicine. Is this correct?
As I understand it, we cannot detect the returning PCa until it is sufficiently large to be seen on a scan. So there is no location that could be determined for biopsy. So, it is ADT again or wait until the PCa is detectable.
I do not like this position.
Joe
****
Aloha back to you, Joe, and mahalo for writing.
I don’t like the limitations of our technology either. You are quite right that there are limits on what we can know. The PSA is sure sensitive and it does pick up recurrence before a CT, bone scan, or other test can validate it and this is its problem: it does not tell us where the recurrence is and does not tell us about options for localized treatments such as radiation. Which leaves us with generalized approaches, such as the hormone treatments that you do not like.
If you do not go on with the recommendation for ADT, be sure to stay in close contact with your doctor and to stay compliant with protocols for surveillance.
Arnon
- At 8:26am on April 29, 2009,
E. Michael D. ("Mike") Scott said…
- Joe: I am pretty sure it was. You have to go back to the page where you asked it. I will check for you.
- At 3:39pm on March 24, 2009,
E. Michael D. ("Mike") Scott said…
- Hey Joe ... Don't worry about it. I don't take any of this personally (well, VERY little of it: I'm human!).
Being male is not nearly as easy as we tend to think. We are as enslaved by our hormones as women are. It's just that our hormonal responses don't change significantly on a monthly basis ... so we have no frames of reference when they do, and we are completely unsympathetic to our own situations.
Fell free to vent at me any time ... I've had lost of practice, so I am pretty good at "taking it."
And hang in there. You recognize what is going on, and that is 90% of the battle.
:O)
- At 3:29pm on March 22, 2009,
E. Michael D. ("Mike") Scott said…
- Joe ... Re the comment you left on my page (as opposed to the e-mail you left me, which I have also answered) ...
The problem with life is that it is the only spitball pitcher left playing the game! And none of us have ever seen one before! It tends to make us think that life "has it in for" each of us specifically. But that's not it ... It's just that every new day is a new spitball!
:O)
- At 7:53am on March 12, 2009,
E. Michael D. ("Mike") Scott said…
- Welcome Joe. You seem to be "finding your way around" already with little problem. Let us know if there are specific ways we can help you.
- At 11:11pm on March 11, 2009,
George A. Brown said… - Hi Joe,
Welcome to the site. I almosed missed the little fella sitting on the seat. Glad you are here and have already found a group to join. I also had IMRT about 4 months ago. Tell me how you are doing today following radiation. George
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