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Kathy Meade
- Tappahannock, Virginia
- United States
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Kathy Meade's Groups
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AFRICAN-AMERICAN PROST...
8 members
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Let's Talk About Survi...
29 members
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HIFU
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Advocacy Action Group
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Low Risk PCa Treatment...
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You need to be careful to assume other targeted therapies will work in Prostate. Two critical reasons, 1) most PCa is androgen receptor driven which is unique to oncogenesis, 2) most other theraputics are late stage proliferation markers, for whic...
So what can you control? Your attitude and your approach to living a full life. As a survivor, this can make all the difference in your experience. The following are some basic guidelines designed to
create a framework that can help you develop y...
ED and incontinence ARE much more apparent than depression, but what often fuels depression is lack of libido, especially in men who have undergone Androgen Deprivation by itself or in combo with radiation or surgery. I find that men--including ma...
Stay as open as possible in communication consistently! Even if he feels uncomfortable keep bringing it up. Go to a couples workshop ie Hedy and Yumi Schiffler to learn how to communicate effectively.
Talk talk and talk!
Vicki
I appreciate your "venting" as what else do we do with all these feelings, the sudden change on the couple, the myths of society and the sense of aloneness even with friends?! At 68 I am considered an odd ball for missing sex and his libido ...
Kathy
I agree with you completely. I have tried at times desperately to get some face to face support, get a group going etc. some women even told me their husbands would not "LET" them talk about these things. In this day and age I find this quit...
This is the way things work on how to get medication into the approved basket. It should be life saving as the budget is limited. Even then there is no gaurantee that it will be passed. It took us at least two years to have Taxoterre added. Up til...
I want to thank both of you for your support. I contacted Malecare and will attend a meeting of theirs next week. I apologize for my selfish attitude, and find that I have become socially inept because of my feelings of emasculation and isolation....
Profile Information
- Have you been diagnosed with prostate cancer?
- Yes
- About Me:
- Kathy began her experience as a cancer advocate after her husband’s death in 1998. She has been active on prostate cancer internet support groups throughout his disease and continues active on the lists today. In 1999 she began working for National Prostate Cancer Coalition first as editor for their electronic newsletter. She expanded to include survivors’ relations and in this role developed a program to set up state prostate cancer coalitions. In 2004 she became independent and currently works as a contractor. Her largest contract has been working with the PART program, to educate research advocates who participate as research advocates with the NCI SPORE program along with numerous other contracting opportunities. Kathy is on the board of the Virginia Prostate Cancer Coalition and has served as the Vice Chairperson since its inception. She is also on the board of the National Alliance of State Prostate Cancer Coalitions. For both groups she serves on the advocacy committee and also on the website/Communications committee. She is currently active on the Virginia Cancer Plan Action Committee serving on the survivorship committee. She is active with the Summit on Clinical Trials. Kathy lives in rural Tappahannock, Virginia. Because of her location she has become sensitized to the needs of rural and under served cancer patients.
Kathy would like to invite any individuals who live in Virginia to become involved in the activities of the Virginia Prostate Cancer Coalition. We need people to do outreach through awareness programs in their community.
- Website:
- http://vapcacoalition.org/
Kathy Meade's Photos
Comment Wall (134 comments)
- At 12:41pm on September 30, 2009,
Gary D said…
- Kathy,
Dana has written a very powerful discussion on cancer and depression. It is 12:17 in the afternoon and I am at home writting this. Why am I home in the afternoon? Because I am on disability retirement due to major depressive disorder, posttramatic stress disorder(my sister was killed in a car accident and my brother was killed in a house explosion), and general anxiety disorder.
Now, I have prostate cancer....in the very early stages. Luckly, I went went to the Cleveland Clinic for a second opinion. I feel I have been robbed of a normal life, I feel like I am in the grieving process. And that's what it is when a tramaic event happens in our live's. We grieve. We grieve for we want things back the way they were. But, they can't be.
We all know the stages of grief. You just have to give in and allow yourself time to go through the stages.
However, I love life and all it has to offer, both the good and the bad. What has helped me get through all of this?
1. I am on medication and have found it really helps me keep on an even-keel...it takes the edge off the depression.
2. I have gone to a phycologist for many years....that has REALLY helped as I get get everything talked out and even cry.
3. I listen to contemporary Christen music. I have found many songs talk not only of the glory of God and how great it will be in Heaven, but also of the sorrows and darkness of life.
4. Exercise(even walking) does help.
God Bless you as you or your loved one goes through this journey we call life.
- At 1:03pm on August 15, 2009,
E. Michael D. ("Mike") Scott said… - I gave up trying to look at anything except the most simple web sites on a Palm or Blackberry years ago.
- At 4:13pm on July 17, 2009,
Jean said… - Wonderful! I would love to have a chance to thank you in person for all of the hard work you do on behalf of people like my husband and I. See you there.
- At 12:24pm on July 17, 2009,
Jean said…
- Hello Kathy:
I just want to say thanks for leaving the comment on the "Activist & Advocate" page. I am hoping to be able to make it to Washington DC to join the Summit To End Prostate Cancer and I have no idea how to make effective points on this topic. I have tons of passion when I speak about how prostate cancer has affected my family life but not really any direction. I am lucky enough that Sen. Crapo is one of my respresentatives so that should make it a little easier. Preaching to the converted etcetera.
If you have any other suggestions, please keep them coming.
- At 8:19am on July 11, 2009,
gregory williams said… - Thanks! I will try to make a meeting.
Greg
- At 11:50pm on May 26, 2009,
Jean said…
- I agree about the body language. I tried long distance counseling via telephone many years ago and it did not work out just for that reason. But hearing the other's voices today reinforced the feeling that I was not alone. I suppose it is much like the isolation the deaf feel towards others when you can only read other's feeling and thoughts.
I was just explaining to my husband how the doctor said that we must teach the men to start thinking like women and how women must start thinking more like men. It would be very difficult to change a lifetime of conditioning under such stressful circumstances don't you think?
I will be very interested to see what comes from this. I am hopeful to have a door open to women sharing their intimate thoughts on this journey. If they can help to build a network of cancer mentors I will gladly do what needs to be done for the state that I live in.
- At 11:20pm on May 26, 2009,
Jean said…
- Hello Kathy:
Was that you that was involved in the conference call with Dr. Alicia Saunders? If so I enjoyed your comments. What did you think of the conference call? Jean
- At 11:02pm on April 28, 2009,
Norine Elliott said… - PS 'happy times' was supposed to go after 'changed it to my wedding pic'. I am not very good at this internet stuff!
- At 10:59pm on April 28, 2009,
Norine Elliott said…
- Hi Kathy,
I have written on different forums before (wives and partners, I think, rising psa, etc). Anyway, I came back tonihgt b/c my husband John has now turned a corner and is 'hormone refractory', been through surgery, chemo, zoladex? etc. and unfortunately has missed the dedline for the abiraterone trial. His md gave him 12-18 months. It is funny, we just married this past July. I know it was kind of crazy but I knew I adored him (we had been together for 7 years) and there was always the possibility of the miracle out there. I guess we didn't get it. Anyway, I came back to this site tonight looking for more guidance about 'end of life' and found your responses to another member very helpful. I am sorry for your loss but feel happy that you were with your man right through the end, just as I want to be. I am warning you that I may call on you at some time in the future. You seem to be a wealth of information to us all.
I remember that you made me feel better when I first joined and you seem to reach out to everyone on the site. Thank you for that.
I may not look familiar with my pic b/c I changed it tonight to my wedding pic : )
Again thanks!
Norine
Happy times!
- At 9:24pm on April 15, 2009,
E. Michael D. ("Mike") Scott said…
- How to delete "Kathy"
1. Go to the "Kathy" page and click on the "Edit" button at the top right of the "Profile Information" section. This will take you to "Mt Settings -- Profile"
2. Scroll to the very bottom of this page, where you will see a link that says "Leave The "New" Prostate Cancer InfoLink Social Network"
3. Click on this link, and then confirm that you want to delete "Kathy" in the pop-up box.
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