The "New" Prostate Cancer InfoLink Social Network

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Laura McClellan
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At 1:00pm on June 15, 2009, E. Michael D. ("Mike") Scott said…
Hi again Laura.

So when you meet with the urologist after dealing with "the Irish disease," he is probably going to want to talk to you about the possibility of either radiation or hormone therapy. However, I would suggest that you be very conservative in thinking about these options. The problem is that they both come with significant risks of side effects. If the PSA doubling time should start to shorten, they ARE both future possible options.
At 8:20am on June 15, 2009, E. Michael D. ("Mike") Scott said…
Dear Laura:

Thanks for adding the information. This is VERY helpful.

So the first question I would have is whether any of the doctors think that there is an association between the hematochromatosis/anemia and the prior prostate cancer. I have to say that I think it is unlikely, but that's entirely a layman's personal opinion.

With respect to the rising PSA ... The good news in that this is a VERY slow PSA doubling time (of well over 3 years). Since the risk associated with the return of prostate cancer appears to correlate VERY strongly with the speed at which the PSA rises, and since recent data on risk for men with a rising PSA after radical prostatectomy seems to show that almost no men at all with a PSA doubling time of > 15 months ever die from their prostate cancer, I would think twice before having additional treatment. Your husband's PSA might easily reach 100 or much more before he ever showed any clinical (as opposed to biochemical) signs or symptoms of prostate cancer, and if we assume that his current PSA doubling time is even 3 years, that's at least 21 years away. By then I would sincerely hope we have significantly better treatment options than we have today!
At 10:56pm on June 12, 2009, Dana said…
Welcome Laura (although I'm so sorry you have to be here). I've walked in your shoes and know how discouraging it can feel when the cancer returns. My husband is almost 2 years post Lupron/radiation and PSA is still undectable. If I can help in any way, please let me know.
At 10:20pm on June 12, 2009, Angela Jenkins said…
Laura - I'm sorry to hear your husband's PCa is active post RP. As Mike said, please tell us more details. This site is an excellent place for current, valid information about PCa and recurrence, as well as a place for tremendous support and hope from other members. When my husband was diagnosed, I looked, to no avail, for a site like this - where I could talk to others and find out the "truth" about PCa and what the future would hold for us. Please let us know if you have specific questions. We're here for you!!
At 6:26pm on June 12, 2009, E. Michael D. ("Mike") Scott said…
Dear Laura:

I am so sorry to hear that your husband's prostate cancer wasn't put into remission by the RP. How can we help you?

It would help us to understand the full situation if you could add a little more information into your Profile above. The easiest wayo to do this would be by piosting answers to the following questions:

-- How old is your husband?
-- What were his clinical stage, his Gleason score, and his PSA level before he had his RP?
-- When he had his biopsy, how many cores were taken and how many were positive?
-- How long ago did your husband have his RP?
-- What were his pathological Gleason score and his pathological stage after his RP?
-- How low did his PSA go after the RP?
-- What is his PSA now?
-- Has he had any additional treatment yet?

Answers to these questions would help us to help you and your husband as best we can. I see you have already found the Wives and Partners group, and people there will be able to offer you some personal help and support too.

Profile Information

Have you been diagnosed with prostate cancer?
No
What brings you to the New Prostate Cancer InfoLink social network?
My husband has pc after rp
I guess this needs more information. It was 12 years ago that my now 67 yo husband had a radical prostatectomy. I'm afraid most of the particulars have been forgotten but his psa was 9.4, stage T2c/B2, grade 2/3, Gleason 9/10 (?). I'm really not sure any of those make sense anymore as my notes are rather scribbled. I do remember the surgeon saying that the glands were clear and that the cancer was contained within the capsule. We are now dealing with another issue first, hemocromotosis and anemia. So the rounds to the specialists and labs begins anew.
Oh yeah, his psa in 2006 was 0.6 (I wasn't told) and now is 0.9.
 
 

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