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Lenny Hirsch
- 69, Male
- Katzir
- Israel
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Lenny Hirsch's Groups
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Let's Talk About Survi...
29 members
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Low Risk PCa Treatment...
28 members
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Biopsy and Other Tests
61 members
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Coping with Prostate C...
43 members
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PSA Persists After RP
70 members
Lenny Hirsch's Discussions
Chronic Fatigue Syndrome
2 Replies
Started this discussion. Last reply by E. Michael D. ("Mike") Scott Oct 19.
Dr. Chodak's video web site -- what do you think?
Replied Dec. 6, 2008
Lenny Hirsch's Page
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Latest Activity
This is the way things work on how to get medication into the approved basket. It should be life saving as the budget is limited. Even then there is no gaurantee that it will be passed. It took us at least two years to have Taxoterre added. Up til...
It has long been suspected that chronic fatigue syndrome (CFS, a condition that my father suffered from in the 1970s and early 1980s after a visit to the West Indies) was caused by an unknown virus.
Whether the XMVR virus is the causative agent f...
After reading the article, I too find it fascinating that some of my own symptoms may be attributed to this virus as well. I have been suffering from a variety of problems, fatigue, joint pain diagnosed as osteo and rheumatoid arthritis, as well a...
Chronic Fatigue Symptom
In the last week or so there have been reports linking pca with Chronic Fatigue Symptom. At last I could label the sometimes hell that I have experiencing for the last six months.
It started towards the end of April. Fatig...
The Jerusalem workshop dealing with problems after primary treatment went extremely well . More than 200 people attended. I was thrilled that almost half the people attending were wives or partners. It was very rewarding to us,the Foundation, how ...
Profile Information
- Have you been diagnosed with prostate cancer?
- yes
- What brings you to the New Prostate Cancer InfoLink social network?
- A link from Kathy Meade
- Would you help us grow the network? Would you tell others about it?
- Yes
- About Me:
- Dxed twelve years ago. RP seven years ago. Am very active in Israel in bringing an Awareness of PCa and creating some form of support structure for men and their families. At the moment we are establishing a non profit organisation for this purpose.
- Website:
- http://www.Shalomprostate.co.il
Comment Wall (41 comments)
- At 12:57pm on July 4, 2009,
Rick D. said… - hello lenny -
i see you've been pretty active - great job! there's an outside chance i may be in ra'anana on 8/18 or there for your english meeting ... would have thought the ra'anana meeting could be held in english! my cousin lives in kiryat sharet in ra'nana, and i'm sure to stay with them for a while. my trip depends on when i visit turkey, that now seems to be towards the end of august. for sure i'll be in touch with you.
shabbat shalom, rick
- At 5:55pm on June 29, 2009,
William R. Stevens said… - Lenny, I really appreciate your input and I will mention to Dr. at next visit. At this moment I think I will forgo any radiation without being sure where it needs to be focused.
Bill
- At 3:26am on May 5, 2009,
dave bloomfield said…
- hi lenny,the leading oncologist in new zealand is chris atkinson.he is based in christchurchbut travels to nelson (and possably to other areas) i had several consultations with him ,both pre and post treatment.he is highly regarded in his field and is a very understanding and compassionate.if you google his name im sure you would find out lots about him.he is a very approachable an easy person to deal with,but he is very busy and appointments can take awhile......best of luck
- At 3:02am on April 28, 2009,
Nick Dragicevich said… - Hi Lenny
Been a while since you posted your comment on my page. Sorry it's taken a while for me to get back to you but I've just had some more results today and they have confirmed that my PSA is still around 0.1 which is nearly 4 years after my operation and 2 years after my radiotherapy treatment and 3 years after a major heart attack which was caused by a clot from the op for cancer. How have you been travelling? I have been following your story since you first posted - it seems like years ago now - and I was interested in your fishing exploits - been a hobby of mine since I was a child. I currently have something like 35 fishing rods (some I've made myself) and 30 reels to match. The hardest decision I have to make these days is which rod do I take out with me. I'm going out with my son and some friends on a boat which is 40 foot cruiser and we hope to get out to 100 metres depth and catch some big snapper off Rottnest (about 20 miles from Fremantle Western Australia).
I'd be interested in knowing what your PSA is now and what treatments you've been having for it recently and how you feel in general.
I've been following a diet that was quoted by Mark Moyad MD "Promoting Wellness for Prostrate Cancer Patients" and it's been a very interesting book. It was also recommended to me by my oncologist who I see from time to time down here where I live (about 75 kilometres from Perth) as he visits the local hospital in Mandurah.
I have also been taking a lot of selenium tablets and dried pawpaw leaves which another friend of mine has said that his father has had good results with (he's in his late 80's).
Look forward to hearing you're doing okay - Nick
- At 11:56am on March 27, 2009,
Rick D. said…
- hello lennie - good to hear from you!
the trip got postponed for four weeks or so; our turkey biz must wait until after their election. for sure I will contact you. let me have you e-mail too - my address is otisbd@comcast.net.
how have the studies results released last week been playing out in eretz?
if we are not in touch before, chag sameach v'kasher
shalom, rd
- At 7:12am on March 5, 2009,
Robert Kanser said…
- Hi Lenny
I read everything a lot. My sailboats been up for sale. Living it, it does not seem so bad. I have just not commented too much ... especially since I have had been battling a different cancer.
Good news, if it is good news, another CT scan yesterday shows that it may not be bone mets, just massive degeneration of bone matter due to years of Lupron causing osteoperosis type indications on bone scans.
So maybe I am still beating beast No. 1. It ain't easy with type 4 N1 prostate cancer and type 2 ureter cancer.
Spoke to Meyers once. He asked me who my doctors were, and then said with that excellent team, I did not need him ... though he is more aggressive I think.
Bob
- At 9:32pm on February 18, 2009,
Arnon Krongrad, MD said…
- Five in one day? Amazing!
- At 4:03pm on February 18, 2009,
E. Michael D. ("Mike") Scott said…
- Just read your "Israel update." Good job Lenny!
- At 6:40pm on January 26, 2009,
Rick D. said…
- hello again lenny - i am hoping to be in israel in early april. it looks like i have to be in turkey for biz so i will head on after and most likely spend pesach there! i will contact you - i'll stay in different locations ..... ra'anana, binyamina, and probably a few days in jerusalem.
shalom, rd
- At 2:02am on December 26, 2008,
Rick D. said…
- Curious to see what's going on in Eretz re PrCa; I'm also in Israel from time to time but likely to be more of a lurker with a fair amount of knowledge!
I do a fair amount of work here with UsTOO nationally and the local support group and am very interested in diet and exercise. I'm pushing a 'national spokesperson' agenda with UsTOO.
Happy hanuka & shalom, rd
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