The "New" Prostate Cancer InfoLink Social Network
A Service of Prostate Cancer International
Replied Jun. 27, 2008
Michael Burke, MD has not received any gifts yet
© 2009 Created by Arnon Krongrad, MD on Ning. Create a Ning Network!
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The thought of not being there for my wife and son is unbelievable. I have found myself online looking for information to the point of obsession. My whole life style has changed and every thing seems to have taken on a new perspective. I hope this is a normal and look forward to life becoming more stable again all though I'm not sure it ever will be .
I would appreciate to hear your opinions.
Dr. Krongrad suggested I make contact with you as a medical professional who may on occasion provide information of interest to me and who may find interest in my research, study, and advocacy regarding prostate cancer. You can learn more about my prostate cancer and advocacy background by accessing
http://www.ustoowichita.org/leaders.cfm?content=bio&id=1. Subjects of interest that I have authored, compiled, or saved can be viewed at http://www.ustoowichita.org/observations.cfm. My personal email address is
maack1@cox.net
I would like to add you as a "friend" on "My Page."
The group is growing. We're gonna consider some pages in Hindi, with the help of Drs. Shukla and Khan. How do you say "anhedonia" in Hindi?
As a psychiatrist I will tell you from my own experience is that once you have the surg you become more sexually focused. Obviously 60 plus patients havent been playing honey mooners for a while but still do enjoy the ultimate extreme act of love. The drugs are frustrating because they create the anxiety of no knowing what days they will work and at what timiming point will they work. I have a feeling Levitra etc have a refractory effect, meaning that it seems like they work faster after a while and therefore the trick is to be ready or you pass the maximum effectiveness for the drug. I once told Arnon he probably didnt think he would have all these old (60's) men worrying about their sex lives when he went into this.
I find the key to not get depressed is to see the humorous side of all the ups and mostly downs, pardon the expression, following prostate surgery. Most of us do realize healthy life is primary anyway, and those of us in the professional field realize prostate cancer is not the life threatening horror of pancreatic cancer, so I kept reminding myself that I am much better off than a lot of other diseases would have left me.
Thanks for joinng the group.
Burt Becker, DDS
I once published an article on why periodontal patients drop out of dental care and used the HBP literature about why men stop taking BP drugs because of the ED effects. Anytime we give patients diffictult to follow patient regimes that have bad side effects compliance is a problem
I am very happy to see you in this group. Depression and prostate cancer I believe is greatly underaddressed. Heck depression in men is greatly under addressed. That said, it seems that I have been doing a great deal of discussion about the issue. I am part of a group of cancer advocates attempting to educate patients about the recent IOM report and encouraging them to use the resources that were part of the report.
There is a beginning discussion on depression and reaction to side effect on Wives and Partners. Could you read the material there and help us by contributing your thoughts please?
I would appreciate your personal opinions on the IOM report. Problems? Ways to disseminate, etc.
Thank you.
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