The "New" Prostate Cancer InfoLink Social Network

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E. Michael D. ("Mike") Scott
  • Male
  • Philadelphia, PA
  • United States
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Prostate Cancer and sexuality issues

Replied Nov 18

Prostate Treatment how can you make the right decison

Replied Nov 17

Radiation or Not?

Replied Nov 17

 

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E. Michael D. ("Mike") Scott replied to Arnon Krongrad, MD's discussion 'Son and Father' in the group Surgery
Okay ... So with respect to the son, I am not sure that I have a specific recommendation to make, but I would think you would want to explain to him that he has a series of options. OPTION 1: Do nothing more immediately but (after about 6-8 weeks...
4 hours ago
E. Michael D. ("Mike") Scott left a comment for Jerry Baljeu
4 hours ago
E. Michael D. ("Mike") Scott replied to Arnon Krongrad, MD's discussion 'Son and Father' in the group Surgery
Assumptions, please confirm: 1. You did NOT do a lymph node dissection on the son at the time of LRP. 2. You did NOT have any imaging studies such as CT or MRI or bone scans done on the son. 3. The son has received no other treatment before or ...
yesterday
E. Michael D. ("Mike") Scott left a comment for Kenneth Stokes
yesterday

Profile Information

Have you been diagnosed with prostate cancer?
No
What brings you to the New Prostate Cancer InfoLink social network?
I let Arnon Krongrad talk me back into doing this all again -- 14 years after I did it the first time!
Would you help us grow the network? Would you tell others about it?
In the immortal words of Veep "Wanna Be" and ex-Alaska Gov. Sarah Palin ... "You betcha!" :O)
About Me:
I am an owner of an independent group of health care communications companies. See my brief bio.

I have, in the past, worked on the following products used to treat prostate cancer: flutamide (Eulexin/Schering Oncology), goserelin acetate (Zoladex/Zeneca, now AstraZeneca), bicalutamide (Casodex/Zeneca, now AstraZeneca), abarelix (Plenaxis/Praecis and Amgen), and atrasentan (Xinlay/Abbott Oncology).
Website:
http://pcainternational.org

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At 3:59pm on November 19, 2009, luc sierens said…
Thank you Mike. Had RP end of 2000. Gleason upgraded to 8. Clinical T1c, path T2bN0. PSA less than 0.03 during the first 5 years. Then a few detectable, but not higher than 0.05. The last one undetectable again. Feeling fine, but watching PSA.
At 11:23am on November 19, 2009, richard said…
thank you mike..this is truly an amazing site for people that are in this community..
God Bless,
Richard
At 10:09pm on November 18, 2009, richard said…
what other factors should be considered..i believe i was told that hormone therapy would be my only course of action...i also thought that 4 was the danger zone on the p.s.a..any input you have would be appreciated...
rick
At 6:03pm on November 18, 2009, Mitu S. said…
Thanks Mike. Quick question: does radiation lower the PSA? Can it have that effect?
At 1:25pm on November 18, 2009, Bill Manning said…
Hi

FYI Dr. Scher's office confirmed the doubling time calculation. Same uptick for the November test yikes! This is going to get interesting.

Best regards,

Bill
At 2:19pm on November 17, 2009, Mitu S. said…
Mike, thanks very much for the reassuring words. He had the first infusion yesterday. So far so good it seems. They also gave him blood as his hemoglobin levels have dropped a bit (to 9?). Fingers crossed that he responds to this treatment and remains strong. I will keep you updated. I do appreciate your support, Best, Mitu
p.s. I have passed on the info about the chilled toenails to my mum (I'm in Canada at the moment, working as a university prof).
At 8:51pm on November 16, 2009, Mitu S. said…
Mike, it's Mitu again. How are you? My dad's about to start Taxotere. His docs think there is no other way now, given the clear indications of disease progression. He is much weaker than he used to be, and his hemoglobin level has dropped considerably in the last few months. I am so scared about the Taxotere. At one point his doctors said that Taxotere is not as severe as Estramustine in terms of side-effects. Could this be true? I think I am more nervous than I've ever been about him. What should we expect. Will the Taxotere's effects be lasting? Thanks for listening Mike, All best, Mitu
At 7:12pm on November 16, 2009, Ryan Dittamore said…
Thank you for the feedback. I think it will take a while for a urine or blood test to tell us these things. What may be more likely is a test on the biopsy that can give you more faith than the D'Amico does. There are a number of new markers in the urine/blood world that will likely improve on PSA and provide better metrics of who should get biopsies, which is obviously needed.
At 5:47pm on November 16, 2009, Chuck Jones said…
I'm 61. DRE wasn't anything to worry about--doc said he felt a "hard spot", but that was about alll he said. I had 7 out of 12 positive. 2 8s, 3 7s, and 3 6s. I know this ain't good! My PSA was 3.7 in last year's physical and jumped to 6.5 this year, so I am sure the doc was right that this is agressive.

I am trying to decided on treatment right now so I can get this bad boy killed off. I think that brachy and IMRT is my best bet (and maybe the hormones). Florida Regional Oncology Group (FROG), Radiology Centers of Georpgia (RCOG), and Datolli's seem like the three best options and since I live in jacksonville part time I am leaning towards FROG. They specialize in PC--the center is next door to my urologist--so I am pretty sure they are up to the task.

One thing is for sure, this thing has my attention. Both of my parents died of cancer as did all of my mother's siblings. So I'm betting cancer is going to play a part in my "demise" one way or the other. But I'm sure not ready to let this bad-boy get me now!

Thanks for the feed back. Any suggestions on treatment and my 3 options are appreciated.
At 12:20pm on November 16, 2009, Ryan Dittamore said…
Mike,

You hit the nail on the head. Understanding indolent from significant PCa is certainly the holy grail of prostate cancer diagnostics. I guess ultimately I'm curious as to what level of evidence from a patients perspective would be needed to convince someone that therapy isn't needed. I realize much of it is an age/co-morbidity call, but what does the data need to tell them. As is right now, 75% of newly diagnosed men who undergo a prostatectomy have a 6 fold higher chance of dying from something other than PCa in 10 years. How far do we need to push it. Does it have to be a guarentee of no death from PCa in 10 years???

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Arnon Krongrad, MD Arnon Krongrad, MD created this social network on Ning.

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Selected Papers

A History of Orchiectomy 2006
From the Other Side 2006
A Global Epidemic (video) 2007
Searching for Health 2008
The Wisdom of Patients 2008
Medicine Meets Mouse 2008

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