The "New" Prostate Cancer InfoLink Social Network

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E. Michael D. ("Mike") Scott
  • Male
  • Philadelphia, PA
  • United States
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Radiation or Not?

Replied Dec 1

Now that I'm on ADT, what should I do at the gym ?

Replied Nov 28

Prostate surgery with hernia repair mesh.

Replied Nov 24

 

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E. Michael D. ("Mike") Scott replied to David Mohr's discussion 'New to the Group - about me' in the group Younger Men
David: Here are some others: -- Do you expect to try to save the nerves on just one or on both sides of the prostate? -- How soon after surgery are the pathology reports normally available, and how can I get a copy? -- How soon after surgery wo...
yesterday
E. Michael D. ("Mike") Scott left a comment for Tony Crispino
on Thursday
E. Michael D. ("Mike") Scott replied to David Mohr's discussion 'New to the Group - about me' in the group Younger Men
David: Surgery IS still possible ... and subsequent "mop up" would depend on (a) exactly what the post-surgical pathology report showed and (b) whether your PSA dropped to < 0.1 ng/ml following the surgery. The thing you really need to grill the...
on Thursday
Tony Crispino left a comment for E. Michael D. ("Mike") Scott
on Wednesday

Profile Information

Have you been diagnosed with prostate cancer?
No
What brings you to the New Prostate Cancer InfoLink social network?
I let Arnon Krongrad talk me back into doing this all again -- 14 years after I did it the first time!
Would you help us grow the network? Would you tell others about it?
In the immortal words of Veep "Wanna Be" and ex-Alaska Gov. Sarah Palin ... "You betcha!" :O)
About Me:
I am an owner of an independent group of health care communications companies. See my brief bio.

I have, in the past, worked on the following products used to treat prostate cancer: flutamide (Eulexin/Schering Oncology), goserelin acetate (Zoladex/Zeneca, now AstraZeneca), bicalutamide (Casodex/Zeneca, now AstraZeneca), abarelix (Plenaxis/Praecis and Amgen), and atrasentan (Xinlay/Abbott Oncology).
Website:
http://pcainternational.org

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At 4:25pm on December 2, 2009, Tony Crispino said…
It's snowing on my InfoLink page again!
At 9:13pm on December 1, 2009, David Mohr said…
They took 6 cores, and all were 7's. I forgot to mention that I did have a bone scan - it came back negative. That was a real answer to prayer.

I guess I have to take this one step at a time.
At 5:20pm on November 30, 2009, Steve Timmons said…
My pre-surgery PSA was 7.1. Gleason was 3+4 and staging was T2c. Excellent Path report with clean margins and nothing in lymph or seminal vessicles. My surgeop uses Ultra-senstive PSA as you can tell. Thanks.
At 12:58pm on November 30, 2009, Ron said…
Mike - thanks for your response. It's very hard to put these things in
proper context, unless you have people with expertise and experience
guiding you. My institution (Univ. of Chicago), certainly doesn't
fill the bill in this respect, from my viewpoint. Thanks again. ron.
At 8:37am on November 30, 2009, Steve Deutsch said…
Mike, thanks for your input. I agree completely with your comments. My job is to find the surgeon that gives me a good comfort level both in his ability as well as bedside manner. The tools that he or she choses to perform the surgery have to be those that he or she feels most comfortable with to achieve the best final results.
At 11:05pm on November 29, 2009, Ron said…
Mike - thanks for the note. As for erections, etc, I'm 7 weeks out; have used Viagra every other day recently (100mg) without any success. Bought a VED, and am using it, although I hate it. Get partial erections from it, but actually use it for the "exercised" aspect of it. I'm going to the alleged "best guy around" in Chicago tomorrow, so I'm hopeful about his imput. I also went to the Boston Med'l Grp., regarding their imput - injections. Seems like that may be the way to go, even if not with them. They gave me a "test" injection (a 60% dose), allegedly, and it had more effect than anything I've tried to date. So, that's where I am. Any comments would be appreciated. Ron.
At 7:24pm on November 25, 2009, compiler said…
Mike:
Some calculators require a free to total PSA ratio. Do you know how to calculate that. My total PSA is 4.19 and my free PSA is 24%. Is the ratio just .24 or is it .24/4.19 or what? I know the number is supposed to end up between 0 and 0.99

Mel
At 6:42pm on November 25, 2009, compiler said…
Mike:

That is VERY helpful. Of course, the results will either be yes or no, but the probability is substantially less than I thought.

I notice it does not discuss the risk of aggressive cancers. But this is the first calculator I've seen that incorporates the new PCA-3 test.

One other quick question: we keep reading about the fact that biopsies can certainly miss cancers. Is there data regarding the probability of that happening (I'm sure it depends on the # of cores taken and the size of the prostate).

Mel
At 12:00pm on November 25, 2009, compiler said…
Mike:

Thanks for the response. First a question: is there a calculator that includes a PCA-3 score? The ones I saw only allowed for the PSA scores?

My main fear is not just cancer, but the advanced/aggressive kind.
That PCA-3 score has really stoked that fear. I would think the PSA score indicates a non-aggressive situation. Does that make sense?

Mel
At 10:48am on November 25, 2009, J.R. said…
Mike: Had surgery in March '05 only to have a reoccurance 3 years later and then went through radiation which ended a year ago this past August, however PSA still on the rise. Many radiation issues right now i,e, not being able to urinate ending up in the ER 2 times. Now I am cautiuusly optimistic with daily self catheraterization (sp). From what my oncologist tells me with PSA of .38 not ready yet for any other treatment however he mentioned a trial at National Institute of Health he is looking into for those patients between treatments, i.e., pre ADT, etc. Jack (JR)

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Arnon Krongrad, MD Arnon Krongrad, MD created this Ning Network.

Selected Papers

A History of Orchiectomy 2006
From the Other Side 2006
A Global Epidemic (video) 2007
Searching for Health 2008
The Wisdom of Patients 2008
Medicine Meets Mouse 2008

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