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Pam McMahon
- Currituck, NC
- United States
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Pam McMahon's Discussions
Lymphedema or the "new normal?"
Thanks Mike, We have an appt Wed with the doctor so we can ask him then, but I didn't know if something like this was normal or not. I still believe it is some form of lymphedema because it feels so…
Replied Nov 17
Lymphedema or the "new normal?"
3 Replies
My husband had RRP on 9/22/09. Before his surgery, his pelvic and inguinal area were completely flat and muscular. Now he has a flabby, somewhat painful to touch "pouch", much like someone who is mil…
Started this discussion. Last reply by E. Michael D. ("Mike") Scott Nov 17.
Newly Diagnosed with PC at 51 - Be Aggessive or Passive?
I realize that this posting is from June 09, but you mentioned Johns Hopkins, so I decided to reply and give you some further info. My husband, who is 50, was diagnosed in 7/09 with gleason 6 T1c on…
Replied Oct 6
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Pam: Thanks for the kind words, and good luck tomorrow.
Thanks Mike,
We have an appt Wed with the doctor so we can ask him then, but I didn't know if something like this was normal or not. I still believe it is some form of lymphedema because it feels so much like fluid there. A lot like the edema some w…
Pam ... This does not sound like a normal response to surgery or lymph node dissection. Whether it is lymphedema or some other problem needs to be clearly identified, and I would suggest soon.
If the surgeon who did the operation isn't concerned ab…
My husband had RRP on 9/22/09. Before his surgery, his pelvic and inguinal area were completely flat and muscular. Now he has a flabby, somewhat painful to touch "pouch", much like someone who is mildly obese, which he is not. It even folds over and…
Barbara,
I would ask your surgeon where and with whom he trained and also if he has done the open prior to learning the DaVinci. How many per year, and does he have any patients that he could refer you to talk to about their experience and or side e…
Barbara,
I totally understand your confusion and frustration! It is very overwhelming! I know of no other cancer where, once you are given the diagnosis, told to read a book, told to research your options and decide what you want to do! However, I a…
I realize that this posting is from June 09, but you mentioned Johns Hopkins, so I decided to reply and give you some further info. My husband, who is 50, was diagnosed in 7/09 with gleason 6 T1c on biopsy. After researching MDs and options, he deci…
Profile Information
- Have you been diagnosed with prostate cancer?
- No
- What brings you to the New Prostate Cancer InfoLink social network?
- my husband has prostate cancer and I need the wives and partners social support group
- Would you help us grow the network? Would you tell others about it?
- yes
- About Me:
- I am 51 years old and my husband was diagnosed with prostate cancer 7/14/09. He is 50. As a registered nurse, he turned to me to find out what to do so I researched all I could find out, he made a decision for surgery and he underwent RP 9/22/09.
Comment Wall (8 comments)
- At 3:22pm on October 27, 2009,
Angela Jenkins said…
- Pam - The support group here at the beach meets the 3rd Thursday of each month. Their next meeting is Nov. 19. Send me an e-mail in the next week or so and let's work our schedules out. Southland sounds good!
- At 10:30pm on September 29, 2009,
Angela Jenkins said…
- Pam- would love to have your help in future activities. We'll be in touch. Let me know the next time you're in town. Maybe we can meet for a cup of coffee. Give me a call anytime.
- At 9:35pm on September 29, 2009,
martha heffner said…
- From reading a bit of what you wrote it seems that I was in your shoes almost 10 years ago. My husband is still fighting the devil but HE IS STILL FIGHTING! They found his cancer when he was 49 and he had that terrible surgery four months after his 50th birthday. But, to everyones amazement, it had already spread to seminal vesticles and lymph nodes. Been a tough time but he has not missed a day of work except when in hospital one time and for doctor visits or treatments!!! I think probably his recovery from the surgery was the worse time WE have had but also the best - the intimacy that developed during that time has kept us going in this fight together!
- At 1:36pm on September 29, 2009,
Jean said…
- Welcome Pam. PCa is a disease that really affects couples. If you have any questions or want to make a point, please speak up. There will be somebody who needs to read what you have to say.
- At 10:58pm on September 28, 2009,
Angela Jenkins said…
- Pam - I see Bryan has already welcomed you to the network. You've come to the right place for support and good information. You've already joined us in the Wives and Partners group - read through some of the discussions in that group - I think you'll find it very helpful. We're here to support each other on this journey that none of us were prepared for. If you have a particular subject you'd like to discuss, just start a discussion in the group, and send a note to the group members - you'll get great feedback from everyone. Just let us know if you have questions and we'll be glad to help any way possible. Thanks for joining us! We're all in this together.
- At 9:23pm on September 28, 2009,
Bryan Caldwell said…
- God bless you for saving him from "the curse" your insight is commendable. If you go on my page you can read my profile it has alot of the details you were asking about. I look forward to talking to your husband.
I believe it was the Lord for sure that got you into the Dr. you were wanting. It was so great to read how quickly you were able to get in. He had the open procedure correct?? What is the recovery time on that?
Also if you go on the group "the younger men's group" you can read alot of posts on what to expect post op ect. Was his procedure "nerve sparing"?
Talk to you later
Bryan
- At 4:49pm on September 28, 2009,
Bryan Caldwell said…
- Pam,
One thing for sure you are not alone!!
Sounds like you all went to an excellent hospital and your results should be great! One additional thing to watch for...constipation. It hit me real hard and it is to be avoided at all costs. Go easy on the pain meds. as you well know and TAKE stool softeners and prunes and Musliex ANYTHING. Have loose bowels even if it comes to that. I thought I had done everything right....soft foods,lots of water ect. At about 7-8 days out things hadnt really moved yet and by that time it was to late to aviod the HORROR. Dont read this to your husband I dont want to scare him but save him from this fate. It truly was the worst physical trama I have ever gone through.(combined at the same time with a catheter and your belly sliced open) Prayerfully he is OK in this area but I needed to pass the warning on. Sorry so dramatic but as I write about it I remember it again....:( Take care. Bryan
- At 2:31pm on September 28, 2009,
Bryan Caldwell said…
- Pam,
Not a wife.....:).......but wanted to welcome you to the site. Im 46 had a RLRP 8/19/09. So about a month apart from your husband. Did he have the Robotic assisted or traditional surgery? I have found this site to be an amazing resource for support and info. Many knowledgeable, understanding people. Understand you needing a female perspective on dealing with us stubborn men but if there are any questions you might have about anything please feel free to ask.
This cancer effects deeply not only the one who has it but ALL those around him. The side effects of this surgery strike at the very thing that we men hold very dear and it is sometimes difficult to deal with them or explain what is going in our heads.
You took on alot as your husband "turned" to you to find the right treatment. I assume HE took the responsibility,consulting with you and made his final choice of treatment. Of course I dont know the details...pray you will find the support you are looking for.
Take care, Bryan
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