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Steve J
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- Scottsdale, Arizona
- United States
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Steve J's Groups
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Diet
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ED and incontinence po...
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Steve J's Discussions
Radiation or Not?
Replied 2 hours ago
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The positive margin raises the possibility that the PCa is systemic, which is not the same as metastatic.
If that is the case, radiation therpy (RT), being a local treatment, would not be curative and the PCa must be treated as a chronic conditio...
I'm sorry to say that radiation is a local treatment, and with Gleason 9 in the entire gland, it is very likely that the PCa was systemic from the start and RT was most unlikely to be curative.
I most urgently recommend that Dave consult a genuin...
Hello, Tom. Welcome to the club no one wants to join.
You wrote that, "Urologist recommended surgery, dismissed seed implant as replacing surgery with another surgical procedure that has the same recovery risks as a prostateoctmy without the insu...
Joe:
I have written nothing about my experience with ADT, not a word. It is irrelevant.
I have recommended two excellent sources of information.
Regards,
Steve J
There are methods of alleviating side effects of ADT (androgen derivation therapy). Unfortunately, they seem not to be widely known to some medics.
Here are links to two excellent sources of reliable information:
http://www.prostate-cancer.org/e...
go to http://www.medications.com/se/levaquin to see more than 2,500 reports of levaquin toxicity and adverse drug reactions. The reports are mind-blowing and will dispell any doubt about the riskiness of taking flouroquinolone antibiotics includin...
I think Bob T refers to Physician to Patient (P2P), one of the Prostate Pointers groups sponsored by Us Too.
The starting point is http://www.prostatepointers.org/mlist/mlist.html
Click on P2P.
Regards,
Steve J
A biopsy is the only means of determining whether L5 has metastatic PCa.
I don't understand why Bill is consulting a urologist about this. Seems to me that a medical oncologist would be appropriate.
Profile Information
- Have you been diagnosed with prostate cancer?
- yes
- About Me:
- Dx mid 2003 with 5 of 6 specimens on one side Gleason 9. PSA 5.7 ng/mL. Stage T2b.
Tx: cryosurgery. Failed, PSA rising.
2004 biopsy confirmed small Gleason 8 in other lobe, equivocal on side previously dxd with Gleason 9.
IMRT 76gy with adjuvant ADT.
Fired rad onc, who had no interest in SEs, refused to read case review by world-renowned med onc.
Hired local med onc.
Knew nothing at all, especially where to find advice and guidance, until RT nearly finished. Then discovered Ralph Valle. The rest is, as they say, history.
Now hope to be of service to brothers and sisters affected by this disease.
Steve J's Photos
Comment Wall (11 comments)
- At 3:54pm on September 6, 2009,
Arnon Krongrad, MD said…
- Thanks, Steve. A few people have written from this network and also another to which I belong. This is a rogue operation, apparently hand directed, which attacks from new and varying email addresses. Because I can only ban members using the email address as the identifier, it's impossible to ban all future variations. The only solution for now is to ban them as soon as they arrive, which I have done, and to hope they become tired of us, as many have.
Thanks. Please keep me notified of all such attacks.
Arnon
- At 3:48pm on August 23, 2009,
E. Michael D. ("Mike") Scott said… - Sorry Steve! If I'd known you were about to "weigh in" ... Simple and accurate communication does NOT appear to be a skill that Mr. Hartnagel has acquired in his 25 years of study!
:O)
- At 10:24am on April 8, 2009,
George A. Brown said… - Hi Steve,
We have a new member who joined the site, Ron Willocks. He had a failed Cryo and I know he would appreciate communicating with you who had a similar situation. Appreciate any help. Thanks Steve.
George
- At 8:26pm on August 15, 2008,
E. Michael D. ("Mike") Scott said…
- I suppose "disenable" would have been grammatically more accurate, but supposedly my countryman W. Shakespeare Esq. contributed thousands of words to the English (and American) languages. I'm just trying to keep up! "Unenable" just "felt right" in that particular context! :O)
- At 6:38pm on August 14, 2008,
E. Michael D. ("Mike") Scott said…
- Steve: Re the software "deciding that you would attend the event." It will do that unless you explicitly tell it that you aren't going to. It just assumes that if you are psoting the evnmt you are going to be there, but you can unenable that decision.
- At 6:12am on July 26, 2008,
DominicM said… - I haven't been on the Google Group for a while, you always provided alot of good feedback on the group . If I recall you worked through the challenges of ADT etc which help me deal with the anxiety regarding treatment.
- At 5:12pm on July 25, 2008,
DominicM said…
- Is the the Steve Jordan from the Google Group?
- At 8:32pm on July 7, 2008,
Martin Blackwell said… - Thank you so much! That info and that link has been very useful to me.
- At 8:50pm on May 6, 2008,
PaulC said… - Hi Steve,
Thanks for responding to my concern about side effects (SEs) of androgen deprivation therapy (ADT). You recommended that I should read the posts on the "Hormone Suppression" group, and I have done so with interest; but I'm not at all reassured. :-(
From what I can tell from the reliable information and references in that group and from other sources, ADT is strongly associated with symptoms such as these:
- acute (with short-term therapy): Diminution or loss of libido; erections diminished or lost; aches and pains; loss of energy; hot flushes; mood swings and emotional changes; breast tenderness; anemia; decline in cognition and memory; urinary hesitancy; increased tendency towards diabetes; and diarrhea.
- chronic (with long-term therapy): Diminished bone density; decreased strength and endurance; muscle atrophy; weight gain; gynecomastia; penile and testicular atrophy; osteoporosis; chronic fatigue; depression; and increased cardiac problems, up to and including death.
- At 10:08am on April 7, 2008,
Ralph Valle said… - I see that you made it to the site. I am learning how to navigate the site since it is a different format to what we are used. Glad to see you here!
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