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Ditto. Ditto. Ditto. From one "miserable bitch" to another. lol
Thank God! Finally someone who isn't just content with just "cuddling" and minds having her sex life with the man she loves a thing of the past! I have felt awkward and awful about bringing it up and have stayed away from the postings here because o…
Profile Information
- Have you been diagnosed with prostate cancer?
- no
- What brings you to the New Prostate Cancer InfoLink social network?
- Ran into your site.....and decided to visit awhile.
- Would you help us grow the network? Would you tell others about it?
- Certainly - I'll share it at the PC support group we started.
- About Me:
- A "newlywed" of less than 3 years, we had a crash course of "sickness and health" when my now-husband was diagnosed with a relapse of cancer 3 months before our wedding. His first bout was 9 years before when he had radiation and seeds - but, as a divorced guy, forgot to get subsequent PSA's —until his fiancee nagged him. We spent those 3 months planning wedding appetizers along with cancer therapy while consulting at Johns Hopkins, Columbia Pres and Sloan Kettering. My husband decided on cryotherapy at Hackensack Hospital April of 2006, a week after our honeymoon and when it recurred again last year, he made a return trip for a second cryo last October. Roller coaster PSA's since made us ignor the doc who was then trying to push for HIFU and we returned to Sloan Kettering, after meeting with additional oncologists and other surgeons. He had RSP 4 weeks ago and is now midpoint in the 4-8 week recup period with the attendant overwhelming side effects. Since someone with his history - 1 failed radiation, 2 failed cryos - had never been operated on before, his was a landmark case and the regular expectancies didn't apply. The path report showed a small carcinoma in one lymph node but otherwise everything else clear. Right now, we're hangin' in, he's pretty uncomfortable, the prostate support group we founded is cheering him on and the future's, well, the future.
Comment Wall (10 comments)
- At 8:51pm on June 5, 2009,
Sherrie G. Ellenburg said…
- I can relate to you in many ways. I was married at 29 years old. Three years later, my husband was diagnosed with Prostate Cancer. While it sounds simple to say, it was a long process to get to the diagnosis because of other health problems he had been dealing with. He had a hip replacement in the first six weeks we were married so I think doctors looked at his hip pain as related to the hip and not as a potential symptom of prostate issues. After his diagnosis, I felt that I was so alone. I was facing being a widow! How do you do that at only 32?? I was still on my honeymoon. The next 20 months were a series of ups and downs of which I don't regret one momement. Treasure every day. I miss him every day. I've had my own battle with cancer (two months after his death I was diagnosed with Ovarian Cancer). It has been hard to fight without him by my side. It will be 4 years on August 3. But my life has been good. It's been a long road back. If you would like to talk with me more, please email Angela and she will get you in touch with me. I wish you and your husband the very best. Sherrie Ellenburg
- At 8:25am on March 14, 2009,
RON CANNON said…
- Your husbands and my journey are just about the same in every way. Best of luck to the both of you ..Ron
- At 10:29pm on January 14, 2009,
Dana said… - Hey artsy... was wondering how things are going with you and your loved one?
Best regards,
Dana
- At 1:57am on December 4, 2008,
burhan said… - hello,
sorry to hear that.
but pray for his good health.
any help that i can offer!
thanks.
- At 12:18am on December 3, 2008,
FairRider said… - Hello - I am sorry to say I have not visited the Info link group site in quite awhile. I guess we have taken a breather from all the intensity of the cancer treatment. My husband is intense into bicycling and we seem to avoiding the rest - the cancer the treatment, the side effects, and what is now missing from our intimate lives. It was nice to get your post - do stay in touch.
DPF
- At 6:14pm on December 2, 2008,
Angela Jenkins said… - Artsychick - welcome to the network. As you can see, this a great group of members who support each other and provide great information from their own experiences. As Arnon said there are lots of groups and discussions that may interest you. We're glad you're here and look forward to hearing more of your story. Thanks for joining us!
- At 6:02pm on December 2, 2008,
Leah said… - Nice to see you hear (love your handle!) Methinks it was I who invited you.
I'm glad at least that you chose a treatment. That should take a load off your mind. If you ended up choosing Dr. Eastham, I can tell you I have only heard sterling things about him. And I do like Sloan.
I must warn you, though, that a lot of men in the weeks after surgery get grumpy or worse (post-RP psychosis?): my sweet, even-tempered husband turned into Attila the Hun for about 10 days. But, as the body heals, the man realizes things won't ALWAYS be like this, and he usually starts to feel better (and acts more normal). Encourage your husband to go out and do some walking. That helps.
I also remember there were a lot of happy things going on in your life, like marriages and new grandchildren, and I hope you have time to enjoy them as well.
Leah
prostatecancerblog.net
- At 4:26pm on December 2, 2008,
Norine Elliott said… - Hi Artsychick,
Welcome! I too am a newlywed! Just 41/2 months : ) I met John 6 years ago, he was diagnosed two years later. I am sure some people thought we were crazy getting married but we love eachother, a lot! It just feels right. To complicate matters more, we live apart...one week on , one week off. He still has school age children and has half custody. Luckily, he works from home and I have an office at my home so he can work here too. John has had eveything....radical prostatectomy, chemo, 3 rounds of hormones...on and off. Believe it or not he feels the best he's ever felt b/c he is off the hormones now; he had a lot of side effects. The unfortunate thing is that his PSA is over 300! and I am sure he will probably going back on hormones soon which he is not looking forward to. It has been up and down, as I am sure you know well. I try to be thankful for all the good days knowing that they may not last and takeit one day at a time. I do often find that the things I worry about most never come to pass and other things blindside me. Last year I lost my dear 45 year old friend to breast cancer, so young. Well, I have a couple of meetings tonight so I will write more later. Welcome to the site. It has helped me a lot to have a place to come to for support and with questions.
Norine
- At 3:51pm on December 2, 2008,
Dana said…
- Welcome artsy chick. My hubby had surgery, a recurrence, and radiation. So I can relate to the "roller coaster" effect. But we had the advantage of being married for 10 years by then, even if he was only 49 when diagnosed.
We take it one day at a time and are "cautiously optimistic." Only because after surgery we thought we'd beat this thing. If I can support you in any way, please let me know. Dana
- At 2:36pm on December 2, 2008,
Arnon Krongrad, MD said…
- Westwood? I baked bagels in Westwood in around 1975. I tell you this in the strictest of confidence, of course. Shhhhhhhh.
Artsychick, you may want to join other groups too. For example, Surgery might make sense if he is having "overwhelming" physical side effects in the early recovery. If you want to start discussion and need help please do not hesitate to ask. And please have a look at our Main Site too.
Arnon
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