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A group for younger women who often have pressing concerns about sexuality, intimacy and the issues that are changing our lives.
He has to talk to his Doctor about it . My husband had his RP at the Henry Ford clinic in Detroit and they have a whole sexual functioning component to it. They have a MUSE representative on site, which is who we contact. Also, you may be able to" G…
Hi Bonnie: MUSE is not an injection; it is a small pellet that is inserted into the penis. This worked for my husband. The only down side is that it is experienced as "burny". But, it is less scary to administer than the injection. I think the effec…
My husband underwent RP on 7/14. Although he had a high Gleason score (not caught early) they did do nerve sparing surgery. He is having success with injections already, at a fairly low dose. Also, there is something called Muse, which seems to work…
He is camping in our RV and because of the distance he is off work for 7 weeks. would be so much better for him emotionally I think if he could work part of the day. boredom is a problem but he is walking alot around the park so that is great
That doesn't sound too convenient for him. Does he stay at the hospital , or does he have to live in a hotel? Does he have to commute to work every day?
We live in a small city where RT is not available and therefore he has to live away from home during the week and comes home for the weekend.
Hi Maureen --
You say in your post "When I call him everynight, he talks about other patients he meets who go to radiation..."
Is you husband being treated at a facility distant from your home?
Reason I ask, my partner is probably going to be rec…
Thanks Dana--I really respect Richard W.'s work a lot, so I was thrilled to see his name at the end of the article.
If by "some day" you mean you might want to share your story by writing it, I'd love to read it!
Glad to help, Victoria. By all means, please feel free to include a link from your site to the article! By the way, congratulations on your fine book.
No one has mentioned the possibility of hormone treatment to my husband. When /why is this normally used? although nothing is normal is it?. I find him shutting down a little again. I know he is really anxious for the treatment to be finished. He is…
Dana,
Thanks for the article in your reply! It really hits many nails squarely on the head, and I'm going to see about including it on my website which is, at this point, mostly dedicated to prostate cancer survival issues (victoriahallerman.com).
W…
Profile Information
- Have you been diagnosed with prostate cancer?
- No
- What brings you to the New Prostate Cancer InfoLink social network?
- my husband was diagnosed with Prostate Cancer
- Would you help us grow the network? Would you tell others about it?
- Yes
- About Me:
- After husbands diagnosis on 5/29/09 began to do research on PC. Found Dr Mani Menon, highly recommended. Husband had radical prosectomy on 7/14. Pathology report complicated. I have many questions
Comment Wall (9 comments)
- At 2:32pm on September 25, 2009,
victoria hallerman said…
- I'm so pleased, Claire, to hear that you're also someone for whom poetry resonates! I know there was a lot of the poet that went into my prostate cancer book...
I look forward to anything you have to say...
- At 12:28am on July 30, 2009,
Angela Jenkins said… - Claire - check your inbox (top right). I sent you a note last night with my phone number if you'd ever just like to talk.
- At 12:10pm on July 29, 2009,
E. Michael D. ("Mike") Scott said… - Claire:
There are two types of PSA test -- the standard one (which will measure PSA levels down to 0.1 ng/ml and report anything lower as either <0.1 ng/ml or "undetectable") and the ultrasensitive PSA test (which will measure PSA levels down to 0.03 ng/ml and report anything lower as either <0.03 ng/ml or "undetectable").
To all intents and purposes, any stable PSA level lower than 0.1 ng/ml after a radical prostatectomy is what you are looking for. I really don't think that whether your husband is taking Propecia or not will affect this result by comparison with the surgery.
- At 8:35am on July 29, 2009,
E. Michael D. ("Mike") Scott said…
- Claire:
After surgery your hubbie's PSA should go to < 0.1 ng/ml, and that's where it will stay for good if Dr. Menon was able to get all of the cancer out. Using Propecia will not affect than one way or another. I am assuming that you have a post-surgical PSA test scheduled for some time in September or early October to find out what it is after the surgery. Yes?
However, if Dr. Menon wasn't able to remove all of the cancer, and hubbie's PSA either hasn't gone down to < 0.1 ng/ml, or starts to rise again, Propecia won't be strong enough to stop that happening.
- At 10:41pm on July 28, 2009,
Angela Jenkins said…
- Clarie - welcome to the network. Take a look around at the various groups and discussions - they're quite informative. If you have questions, just join the appropriate group and start a discussion. You'll get great input from other members. I see you've joined the Wives and Partners group - great group for support and information about this journey we're on. If you have any questions, just let us know and we'll be glad to help. Thanks for joining us!
- At 6:28pm on July 28, 2009,
E. Michael D. ("Mike") Scott said…
- Oh, and I am glad to hear that that Gleason score was only 7 in the pathology report. That's good. It is actually relatively uncommon for the Gleason score to be lower in the prostatectomy pathology report than it was in the biopsy report.
- At 6:26pm on July 28, 2009,
E. Michael D. ("Mike") Scott said…
- Claire:
I am not aware of any detailed info on the post-prostatectomy use of Propecia, but I can't imaging it would do any harm since it is only a low dose of finasteride (one fifth of the standard daily dose used in the Prostate Cancer Prevention Trial).
Just make absolutely sure that your husband's doc knows that he is taking it.
- At 11:14pm on July 27, 2009,
E. Michael D. ("Mike") Scott said…
- Hi Claire.
The Gleason 8 is not so good. Was it still Gleason 8 in the pathology report or had it gone up to Gleason 9? Also, I suspect that the clinical stage of T2b may have turned into a pathological stage of T3a or T3b. On the other hand, at least the PSA was still on the low side, which is promising. Let me know if you want to talk through the pathology report together.
Mike
- At 9:42pm on July 26, 2009,
E. Michael D. ("Mike") Scott said…
- Just fire away with the questions OR ... if you prefer, go to my page, click on the "Send a Message" link (under my photograph) and leave me a private message with a phone number and a couple of times when I can call you. We will do our very best to answer all of your questions for you! Here is some other information we are going to need to know (in addition to whatever is in the pathology report):
-- What was your husband's PSA at the time of diagnosis?
-- Does he have any other health issues (diabetes, cardiovascular problems, etc.)?
-- What was his original clinical stage (prior to treatment)? T1c?
-- What was his original biopsy-based Gleason score (e.g., 3 + 3 = 6)?
-- How many positive biopsy cores did he have (out of the total number taken)?
-- How old is he?
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