The "New" Prostate Cancer InfoLink Social Network
A Service of Prostate Cancer International
-
turner
- Male
- United States
- Share
- Blog Posts
- Discussions (1)
- Events
- Groups (6)
- Photos (1)
- Photo Albums
- Videos
turner's Groups
-
PSA Persists After RP
71 members
-
ED and incontinence post…
137 members
-
Surgery
146 members
-
Primary Issues
97 members
-
Biopsy and Other Tests
61 members
turner's Page
Gifts Received
turner has not received any gifts yet
Latest Activity
Iam scheduled for bone scan & ProstaScint scan next wend. due to my post op 6 mo. psa failure(0.5). My limited reasearch has led me to believe that they are not commonly used due to un- reliable(false neg-false pos).Is that why my ins. only covers a…
Iam a bit nervous as to what my dr has to say about my 3 month post-op psa of .10 :( I am not looking forward to injections or radiation just yet. Viagra is bringing things back to life(somewhat) &continence just now getting much better. However, i…
When PSA stays high after RP
Nothing like that "warm fuzzy feeling" of a wet diaper to remind me how important kegals are. Only after the cath comes out does all this really set in....
Optimizing functional recovery and what to do if there are problems
...and then i would have to then post a picture of my "purple p#*%s". I think we'll stop this vicious cycle before it gets out of hand George :)
If these outlandish pictures continue, I warn you guys, I shall post a picture of my Belly showing my radiation burns. George
HELP!!
I just noticed that my penis and scrotum are now turning black and blue. Is this normal post op? Feeling fine otherwise. Dont recall reading or hearing about this.Thanks...turner
Hell of a way to lose weight hahahaa good luck with your future i am yet to get to that stage.
Profile Information
- Have you been diagnosed with prostate cancer?
- Yes
- What brings you to the New Prostate Cancer InfoLink social network?
- web search
- Would you help us grow the network? Would you tell others about it?
- absolutely
- About Me:
- recently diagnosed psa 4.5 and lump on dre. w/ stage b2 prostate cancer.Biopsy positive in 5 of six sextants in 12 core biopsy. Gleason7 ( 3+4) a month before 50th b day and 2nd wedding :( Looking at radical prostractomy after scans and wedding . I know am in for a long and bumpy ride
4-20-09 ralrp.Surgery went fine. released following night.Aside from some stomach aches and bruising getting along fine.
4-30-09 Met with dr for cath removal.Oh what a relief! The cath really wasnt as bad as i had invisioned. I wasnt prepared though for the actual removal procedure. After the nurse poured what felt something like 5 gal. of steril solution down my cath and into my bladder i thought it was going to burst.I told her i felt quite full and was fearful of 'blowing out"my new plumbing.Everything came out as expected
Path report...The best possible.Everything came back negitive..sem.ves,lymph,etc. Appears to have been contained. Still 3+4=7I guess now we get a 3 month vacation from this journey till late july for first post-op psa. Between the cath. removal and path report i feel so very blessed and thankful this part of the journey is behind us. Now on to continence issues.I cant express enough what this site has meant to us.Great people,information and support. Thanks to all of you!
7-23-09 3 month psa test. Well.......here we go again. Was disappointed with my results today.psa @ months post op .10. Meet with dr. next week. And on it goes....
12/03/09 Here we go again :(
7-22-09 psa .1
10-20-09 psa .3(different lab)
11-24-09 psa.5
Met w/ dr yesterday. Wants to start HT possibly RT asap.
Scheduling scans( Bone and ProstaScint.)
We are leaving for family vacation 12/5-12/10. Dr said go ahead it will b the lst one for some time. Goingto try and wait till returning to break the bad news to everyone. Will keep updateing.....
12/03/09 Here we go again :(
7-22-09 psa .1
10-20-09 psa .3(different lab)
11-24-09 psa.5
Met w/ dr yesterday. Wants to start HT possibly RT asap.
Scheduling scans( Bone and ProstaScint.)
We are leaving for family vacation 12/5-12/10. Dr said go ahead it will b the lst one for some time. Goingto try and wait till returning to break the bad news to everyone. Will keep updateing.....
turner's Photos
Comment Wall (12 comments)
- At 8:19pm on April 23, 2009,
E. Michael D. ("Mike") Scott said…
- Turner: Some things start to give one a very different perspective on the word "normal."
:O)
- At 3:21pm on April 23, 2009,
E. Michael D. ("Mike") Scott said…
- Turner ... It may be nothing (the black and blue issue) but call your doctor and tell him anyway (if you haven't already). Better safe than sorry!
- At 10:50am on April 22, 2009,
E. Michael D. ("Mike") Scott said…
- I am sorry ... CORRECTION ...
Walking to the fridge for certain TYPES of beer may be classified as LITE exercise (and is indulged in only by those who don't understand what beer is meant to taste like!)
:O)
- At 10:15am on April 22, 2009,
E. Michael D. ("Mike") Scott said…
- Hey Turner ... Glad to hear you are back home and things went well. What on EARTH did you find to eat in a hospital that allowed you to put on 10 lb? Did someone leave an entire suite of surgical instruments in your abdomen?
Good luck when you have your follow-up meeting. And start light exercise as soon as you feel up to it. (NO! Walking to the fridge for a beer is NOT light exercise!)
Mike
- At 4:14pm on March 4, 2009,
Guy75 said… - Great to hear you had a good time! In terms of telling people, I personally found it helpful as I got lots of support from people, as well as to hear other people's stories which helped put my own in to perspective. But then again, this is a very personal decision and privacy can help preserve emotional space and energy. But what ever you do, I hope it goes well for you.
- At 7:16am on March 4, 2009,
Guy75 said…
- As a follow-up to your comment about "emotional-mental issues" on the young men group page, I found a bunch of interesting stuff which you can find bookmarked at http://delicious.com/guy75/cancer+psychology
- At 6:03am on March 4, 2009,
Guy75 said…
- Hi Turner
just like to add another welcome and comment on the choice of treatment.
I found the nomograms Mike mentioned interesting, although as Mike has said elsewhere, the decision on treatment is as much about your individual choice of physician rather than the general effectiveness of treatment (i.e. surgery vs radiation vs HIFU etc).
Related to that, you also need to consider your individual case and how that impacts on likely outcomes. For example, the stats used in the original comparison of survival outcomes had not been validated for men under 55 (I don't know whether this is true for the current model they have).
Anyway, hope scans go well, and even more importantly that the wedding does too! While the PCa can throw you a curve ball, life goes on (even if as you imply the mental side of things can sneak up on you). For me, its made me think about working harder at staying healthy and maintaining my personal relationships.
- At 12:57pm on February 21, 2009,
George A. Brown said…
- Hi Turner,
Thanks for the complement. I have learned more from this site than I have from reading about 6-7 books on PCa.When you are diagnosed with PCa it changes your life. Its very devastating, however, some how you learn to focus on the things that really mean something to you and when you hear other's stories it toughens your resolve to fight back. You can survive! And you will begin to see it as a badge of honor among your fellow survivors. We all lean on each other here and like Mike said,'find a great surgeon" they are out there. George
- At 8:01pm on February 20, 2009,
George A. Brown said…
- Hi Turner,
Very happy to see you found us. Welcome to the site. There are lots of friends, support and assistance here. Mike is the guru, along with others, that can give you the straight scoop. Regardless of treatment, go for the best you can find, its out there. It may be a bumpy ride but you will be a survivor. Hang in there! George
- At 1:54pm on February 20, 2009,
E. Michael D. ("Mike") Scott said…
- You might want to add the PSA data and the family history to your "About Me" above. Also how many biopsy cores were positive out of how many taken? It will help to give people perspective (and save you from having to answer the same question multiple times!) Hang in there. You'll be fine. Just get yourself a damn good surgeon!
Do you know how to use the Kattan nomograms?
Think of your prostate like a Lamborghini. You don't want to get it serviced by Dave's Garage down on the corner. It needs to be cared for by a really expert!
:O)
About
Selected Papers
Need InfoLink cards?
GENERAL DISCLAIMER
The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.
Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.
Information provided on this site should not be used for diagnosing or treating any health problem or disease.
The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.
Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.
Information provided on this site should not be used for diagnosing or treating any health problem or disease.
The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.
Events
© 2009 Created by Arnon Krongrad, MD on Ning. Create a Ning Network!
