A Not-for-Profit Production of the Krongrad Institute and Vox Medica

Virgil Simons's Page

Virgil Simons: 2b23vh64z9tdm; Share

Virgil Simons's Friends

View All

Virgil Simons's Groups

Primary Issues (39 members)
Activists and Advocates (16 members)

View All

Latest Activity

Virgil Simons replied to the discussion Teary Response to a PSA of 5 ng/ml May 31

Virgil Simons joined the group Primary Issues May 31

Dan Newman / PCA Racing left a comment for Virgil Simons May 29

Darryl left a comment for Virgil Simons May 24

Virgil Simons left a comment for Darryl May 24

Darryl left a comment for Virgil Simons May 23

Virgil Simons left a comment for Darryl May 23

Darryl left a comment for Virgil Simons May 23

Profile

Have you been diagnosed with prostate cancer?: yes

What brings you to the New Prostate Cancer InfoLink social network?: Sharing information

Would you help us grow the network? Would you tell others about it?: Yes

About Me:: 13 year prostate cancer survivor; patient advocate, Founder & President of The Prostate Net, a non-profit patient education and advocacy organization

Website:: http://www.theprostatenet.org

Comment Wall (11 comments)

You need to be a member of The New Prostate Cancer InfoLink to add comments!

Join this network

At 5:08pm on May 29th, 2008, Dan Newman / PCA Racing said…: Hi Virgil. Thanks to you and Diane for the article. I hope we can make a difference.

Dan Newman
PCA Racing

At 12:12pm on May 24th, 2008, Darryl said…: thanks! I am just now leaving on a three week vacation (first in a long time)...I will write and email 300 words by June 20. Darryl

At 8:20am on May 23rd, 2008, Darryl said…: Hi Virgil. I will look forward to seeing you at the In The Know awards...always a nice morning for that. Also, would you please help our Prostate Cancer Petition with a boost, by mentioning it in your next newsletter.... something like, "Please Learn more about the Petition to Increase Prostate Cancer Research Funding, at http://www.prostatecancerpetition.org " would be helpful. Thanks...and, Happy Weekend, to you, too. D

At 11:12pm on May 22nd, 2008, Darryl said…: Hi Virgil....just thought to say, hi. Darryl

At 10:23pm on April 15th, 2008, Mike said…: Virgil: I hear you but ...

Here's the case I laid on Arnon to think about.

"Look, you're a urologic oncologist. I'm a 46-year-old Black male merchant banker. I'm worth millions. My grandfather died of prostate cancer and my father had his prostate out in 1995 at 62 with a PSA of 2.7, T1c disease, and Gleason 3 + 4 which was confirmed post surgery. He's still alive but he gripes daily about the fact that they couldn't spare his nerve bundles (or rather they did but it didn't make a damn bit of difference).

"My PSA has been stable at 0.5 to 0.7 ng/ml for 6 years. So I'm asking you. Why wouldn't I take finasteride and monitor my PSA? Gimme an answer for heaven's sake! i live in a world where people have to make decisions and take risks ... fast!"

He's still thinking about it two days later!

If I actually meet this fictitious character, I'll let him know you need a big donation for The Prostate Net! :O)

At 1:52pm on April 15th, 2008, Mike said…: Virgil: When you have a few momemnts, please have a look at the Primary Issues forum and see what you think about the finasteride discussion I have started. I would reeally value your input on this one because of the high risk in the African American community.

Mike

At 12:47pm on April 14th, 2008, Mike said…: Virgil:

I just put up a couple of "links pages" on The "New" Prostate Cancer InfoLink that include a link to your new site. Click here.

At 2:12pm on April 11th, 2008, Mike said…: Thanks Virgil. Will look tonight!

At 5:21pm on April 10th, 2008, Mike said…: Hi Virgil. How are you? I am DE-lighted to see you join this group. You will bring an oustanding amount of knowledge and experience that will benefit all of us.

Mike

At 5:50pm on April 9th, 2008, Kathy Meade said…: Virgil,

Welcome.

Did you attend the ICC meeting?How did it go? Sorry I could not make it.

Kathy Meade

View All Comments

Sign Up

or Sign In

About The New Prostate Cancer InfoLink

Arnon Krongrad, MD created this social network on Ning.

Create your own social network!

Featured Members

View All

Selected Papers (pdf)

A History of Castration 2006
From the Other Side 2006
A Global Epidemic (video) 2007
Searching for Health 2008
The Wisdom of Patients 2008

Oh, Canada ...

The Canadian Prostate Cancer Network is hosting its 5th annual conference in Calgary this August. Check it out. And for more information, contact Bob Shiell.

Need InfoLink cards??

Send an email to Hope at hope@laprp.com

Report an Issue | Feedback | Privacy | Terms of Service