Terry Herbert's Friends

Terry Herbert's Groups

Terry Herbert replied to the discussion My husband is newly diagnosed... Sep 12

Terry Herbert left a comment for Tony Crispino Sep 3

Tony Crispino left a comment for Terry Herbert Sep 3

Terry Herbert replied to the discussion Are there "best practices" in active surveillance? Sep 3

Terry Herbert replied to the discussion A Wonderful Suggestion To Help Patients and Physicians Sep 3

Terry Herbert replied to the discussion Honors to Ralph Valle Sep 3

Terry Herbert replied to the discussion Where did all those friends go? Sep 2

What brings you to the New Prostate Cancer InfoLink social network?: Looks an excellent idea

Would you help us grow the network? Would you tell others about it?: I am posting lnks on my sites

About Me:: I was diagnosed in 1996 when i was 'young - aged 54. I was clinically staged T2b. My PSA was 7.2: and the highest Gleason Score was 7. I chose not to have conventional treatment. By June 2007 my PSA was 42.0 - and there was ev idence to suggest Bony Metastasis. I started ADT in August 2007 and my PSA was 0.20 in February '08

At 11:15pm on September 2nd, 2008, Tony Crispino said…: Hi Terry,
Saw you posting tonight and thought to send warm wishes. I also spoke to another YANA guy today and we thought to mention your name. Thank you again for all you do.

At 4:09pm on July 13th, 2008, Charles (Chuck) Maack said…: Hah, Terry! I really enjoy your humor! I admire men and women like you who took the time to develop websites that both educate as well as support others while at the same time providing them a forum in which to add input or seek answers to concerns. I consider you an "advocate colleague" and a friend. Our concerns are the same in that in addition to our wanting to research and study to improve our own knowledge and understanding of our disease, we also do so to provide reasonable counsel to others in order to hopefully ease their concerns.

At 1:18am on July 10th, 2008, Tony Miera said…: You've helped me more than you realize. Thanks again!

At 12:55am on July 10th, 2008, Tony Miera said…: Hi Terry;
My name is Tony, and I have been a "fan" of your YANA site for the last year, it helped me understand my disease and come to a treatment decision based on information that I did not receive from my Urologist. Thanks for what you are doing to inform people about options in the treatment of PCa.

Tony

At 9:41pm on June 30th, 2008, Samuel A. (Sam) Cox said…: Hi Terry, You might be interested to read my page and compare my approach. I had a 20.5PSA at discovery and a Gleason of 9, so I had to take action.

You did pretty well on "watchful waiting" for all that time! By the way, there are old guys running around out there with a PSA of 45,000! The main chance you are taking by waiting is that the cancer will not go to a vital spot. If it doesn't, and it seems in your case, it so far hasn't, I think the steps you recently took are appropriate!

You clearly are NOT a "worry wort".

Best Wishes, Sam Cox

At 12:53pm on June 29th, 2008, san said…: Terry,

I was asked to contact you by Mike.

I'm 48 was diagnosed this month through a 40 core saturated biopsy where they found 1 core to be < 5% T1a GS=3+3.

I would very much like to network with people who have followed AS versus the mainstream treatment methods in the hope that you have come across things that helped to keep the PCa at bay.

Thanks

At 10:39pm on June 27th, 2008, Mike said…: Re navigation on that site ...

1. For Blog items, simply click on any item in the right-hand column. You can see older items by clicking on the months. This is "standard" blog navigation. At the bottom of 95% of blog items is a "comments" box where you can agree, disagree, or (in your case only) feel free to call me a raving US-based pom! :O)

2. For "major articles" click on any green tab at the very top of the page. This will give you a detailed content list for any section OR (if you click on "Site Map") for the entire site with the exception of the Blog items.

It's real easy once you get the hang of it.

:O)

At 8:16am on June 27th, 2008, Mike said…: Terry: If you go to the sister site you can can comment on ANY of the daily blog items listed on the right. Just scroll to the bottom of the individual stories. Some people are already doing exactly what you describe. The content always links to the abstracts or a full copy of the source material where it is available

At 5:54am on June 18th, 2008, Molly said…: Please let me know if you are planning on doing anything down here, I would love the opportunity to meet you and others :) Please also let me know if I can be of any assistance in any way.

At 12:10am on June 15th, 2008, Molly said…: Hi Terry, I am very grateful for all the information you have provided through your YANOW website, which ultimately led me here :)