Steve J's Page - The New Prostate Cancer InfoLink

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Steve J Male Scottsdale, Arizona, United States: Share

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Steve J's Groups

Radiation

27 members
Biopsy and Other Tests

31 members

Primary Issues

47 members
Patients and researchers

13 members

PSA Persists After RP

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Steve J's discussions

Latest Activity

Steve J replied to the discussion OK, I have heard much made of IHT. Tell me your experiences! Oct 9

Steve J replied to the discussion OK, I have heard much made of IHT. Tell me your experiences! Oct 8

Steve J replied to the discussion Botched Prostate Surgery, Yes/No? Oct 8

Steve J commented on the group Radiation Oct 6

Steve J commented on the group Hormone Suppression Oct 6

Steve J commented on the group Hormone Suppression Sep 28

Steve J replied to the discussion Next Step With Rising PSA Sep 27

Profile Information

Have you been diagnosed with prostate cancer?: yes

About Me:: Dx mid 2003 with 5 of 6 specimens on one side Gleason 9. PSA 5.7 ng/mL. Stage T2b.

Tx: cryosurgery. Failed, PSA rising.

2004 biopsy confirmed small Gleason 8 in other lobe, equivocal on side previously dxd with Gleason 9.

IMRT 76gy with adjuvant ADT.

Fired rad onc, who had no interest in SEs, refused to read case review by world-renowned med onc.

Hired local med onc.

Knew nothing at all, especially where to find advice and guidance, until RT nearly finished. Then discovered Ralph Valle. The rest is, as they say, history.

Now hope to be of service to brothers and sisters affected by this disease.

Comment Wall (8 comments)

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At 8:26pm on August 15th, 2008, Mike said…: I suppose "disenable" would have been grammatically more accurate, but supposedly my countryman W. Shakespeare Esq. contributed thousands of words to the English (and American) languages. I'm just trying to keep up! "Unenable" just "felt right" in that particular context! :O)

At 6:38pm on August 14th, 2008, Mike said…: Steve: Re the software "deciding that you would attend the event." It will do that unless you explicitly tell it that you aren't going to. It just assumes that if you are psoting the evnmt you are going to be there, but you can unenable that decision.

At 6:12am on July 26th, 2008, DominicM said…: I haven't been on the Google Group for a while, you always provided alot of good feedback on the group . If I recall you worked through the challenges of ADT etc which help me deal with the anxiety regarding treatment.

At 5:12pm on July 25th, 2008, DominicM said…: Is the the Steve Jordan from the Google Group?

At 8:32pm on July 7th, 2008, Martin Blackwell said…: Thank you so much! That info and that link has been very useful to me.

At 8:50pm on May 6th, 2008, PaulC said…

Hi Steve,

Thanks for responding to my concern about side effects (SEs) of androgen deprivation therapy (ADT). You recommended that I should read the posts on the "Hormone Suppression" group, and I have done so with interest; but I'm not at all reassured. :-(

From what I can tell from the reliable information and references in that group and from other sources, ADT is strongly associated with symptoms such as these:

acute (with short-term therapy): Diminution or loss of libido; erections diminished or lost; aches and pains; loss of energy; hot flushes; mood swings and emotional changes; breast tenderness; anemia; decline in cognition and memory; urinary hesitancy; increased tendency towards diabetes; and diarrhea.
chronic (with long-term therapy): Diminished bone density; decreased strength and endurance; muscle atrophy; weight gain; gynecomastia; penile and testicular atrophy; osteoporosis; chronic fatigue; depression; and increased cardiac problems, up to and including death.

I agree that ADT does not doom a person to a miserable existence any more than an amputation or a prolonged institutionalization would do. I am reminded of the saying, "pain is inevitable; suffering is optional." If ADT is inevitable, I'll do my best to find ways to compensate, mentally and emotionally. But if it's not inevitable, I'd really rather not.

At 10:08am on April 7th, 2008, Ralph Valle said…: I see that you made it to the site. I am learning how to navigate the site since it is a different format to what we are used. Glad to see you here!

At 9:29pm on April 5th, 2008, Arnon Krongrad, MD said…: Hi Steve.

It's good to see you here. As we grow, please let me know if you have suggestions.

By the way, what is SE?

AK