The New Prostate Cancer InfoLink
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Herb Skovronek's Page
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Herb Skovronek replied to the discussion The "off-label" use of 5-alpha reductase inhibitors for PCa Jun 10
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Profile
- Have you been diagnosed with prostate cancer?
- yes
- What brings you to the New Prostate Cancer InfoLink social network?
- Always looking for more information about my disease and its control
- Would you help us grow the network? Would you tell others about it?
- sure, but it will primarily for internet "friends".
- About Me:
- Diagnosed in 97 at 61. GS6, DRE+. Pd + XBRT failed to get it all (MD amazed, me too!) Been on IAD3 since with a very good first cycle (36 mo off). Second round of ADT3 has been very slow in decreasing PSA; latest after 2.5 yrs 0.07. But I'm going "off" after a year <0.1. We'll see.
I stay active walking dogs, playing racketball. I feel my biggest problem is not having a good personal support system. Divorced, two sons who should be concerned but seem unconcerned-for me or themselves.
About The New Prostate Cancer InfoLink
Arnon Krongrad, MD
created this social network on Ning.
Selected Papers (pdf)
Oh, Canada ...
The Canadian Prostate Cancer Network is hosting its 5th annual conference in Calgary this August. Check it out. And for more information, contact Bob Shiell.
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Send an email to Hope at hope@laprp.com
© 2008 Created by Arnon Krongrad, MD on Ning. Create your own social network
Comment Wall (10 comments)
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We do get into technical, if that's your thing, but the style is more social than an emailing list. See the discussion about atypia and the epidemiology of prostate cancer in Jamaica (with attached article) as more technical examples.
Still, if it's the totally dry technical you want, check out our main site and sign up for the blog. Be sure to browse the Site Map and keep up with content as it goes up (we're building, adding advisors).
I'd be interested in hearing more about your decade-plus of IADT. I'm weighing the pluses and minuses for myself and am looking for as much input as possible, both statistically and personally.
I might also have some useful reflections on being a dad through the teen and young-adult years. My daughter is 26 now, and very much her own woman.
Divorce is just plain hard. You don't have anyone to just care about you. And to top it all off you feel like your sons don't care about what is happening with you. My guess is your sons have some denial going on. Perhaps if they don't think about your diagnosis then they don't have to think about their health. By staying active like you do, they may just feel that you are "cured". When my husband was diagnosed, I wouldn't talk to anyone for weeks about it. Once he made his decision to see Dr. Krongrad it was top priority. He had his surgery in 2004 and I "fretted about it" for probably 2 years post-op. He has done well so naturally, it is not a top priority any longer. You are 11 years out from the original diagnosis and it you can still swing that racket playing racketball then you are doing something right! You will have an amazing support group on this web site. As I said, divorce is hard but marriage with the right partner is heaven. Perhaps someone will come your way soon. Please continue to post on this web site and we will all help in any way we can.
Take care,
Judy
I thought of this upon reading your comment, Herb. Your photo suggests a physically fit man. Is it the social element that has your attention? If so, is an online network in a position to help you?