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Rick Johnson left a comment for Burt Sep 29

Burt left a comment for Rick Johnson Sep 26

Rick Johnson left a comment for Burt Sep 26

Rick Johnson replied to the discussion psa recurrence Sep 25

Rick Johnson left a comment for bob g Sep 23

bob g left a comment for Rick Johnson Sep 22

Rick Johnson replied to the discussion psa recurrence Sep 22

Rick Johnson replied to the discussion My husband is newly diagnosed... Sep 12

What brings you to the New Prostate Cancer InfoLink social network?: Information and support

Would you help us grow the network? Would you tell others about it?: To those who have a stake in prostate cancer

About Me:: Coming up on one year since my Robotic Laprascopic Prostatectomy and doing well. I found out last March of 07. My Urologist failed to let me know but my GP told me when I called him for a prescription refill. I am a 59 year old white male.

At 11:41am on September 26th, 2008, Burt said…: One of my contacts on another network says after reading everything on the topic nerve sparing is prbably only 40% sucessful. I am 0.2 from original <0.1 but my docs say dont worry just watch it. I have had some occsasional sucessful responses to Levitra and Cialis regular and now am trying the 5mg Cialis 3 nights before the weekend and one on the moring of an attempt and have a 50% success rate.

At 1:06pm on September 22nd, 2008, bob g said…: Hi Rick,
What have your drs. been saying about your psa results? What have all your psas been?
My Uro is very conservative and she also wants to see what my psa is in Dec. Where are you located and where did you have your surgery? What was your pathology?
Im in Louisiana and had surgery at Oschner hospital in New Orleans.

bob (psa recurrence)

At 9:55pm on May 27th, 2008, Burt said…: Dear Rick,
I would have suspected at age 59 you should have some kind of response by now from Viagra or Levitra. However, now the docs are realizing it may take 2 - 3 years for the nerves to heal. As a dental surgeon working with nerves that doesnt surprise me. Nerves heal terribly slow anyway
Leaving for an Alakan cruise so if you dont hear back Ill be gone till June 12

At 9:29pm on May 27th, 2008, Arnon Krongrad, MD said…: Rick, Your questions are perfect fodder for a new discussion in the ED group. You might want to join, find "+Start Discussion" on the left, and start one. You'll get all kinds on input that way. It will also help all of us relate to you if you load in a photo. You'll get better comments.

At 12:39pm on May 25th, 2008, Burt said…: Hi. I had my surg almost 4 years ago. It took me a little over 3 to respond the the drugs. However even now they are not predictable. I have had some success with Levitra and once or 2x with Cialis but it seems like it is a timing issue. If you try to soon it does not work and if you wait too long the same thing. I am going on vacation and when I come back my wife suggested I try the once a day Cialis routine for a while. We have had successul days which makes the unsuccessful days more frustration and they say emotion plays a role and I do feel I get a little uptight waiting to see if it will work. Ill keep you posted.
Burt age 67, wife age 66 Tucson

At 7:05am on May 12th, 2008, Rick Johnson said…: Just had my one year anniversary and felt happy (lucky) that my PSA is still low. The biggest problem for me was the incontinence which is just about gone now. I also seemed to have a loss of energy and I have to really push myself to work out. The ED I still am waiting on according to my doctor. He stated I might recover or I might not but I am just happy to be alive. The other part of all of this is that the cancer stuff is always playing on your mind. I feel I'm moving on and it's a thing of the past. Prostate cancer is a wakeup call too live life to it's fullest and don't wait. Stay in touch - Rick

At 8:54pm on May 11th, 2008, PaulC said…: Hi Rick,
Have you had your one-year surgery anniversary yet?
I'd be interested in knowing more about your post-treatment story thus far, if you feel comfortable sharing it.
/Paul in Los Angeles

At 2:06pm on April 17th, 2008, Hope Estevez said…: Hi Rick Welcome,

How are your PSA levels?

Hope

At 8:54am on April 17th, 2008, Mike said…: Hi Mr. Johnson. Welcome to the network. We look forward to your input. Glad to hear you're doing well.

At 7:03am on April 17th, 2008, Rick Johnson said…: I have gone through it so for those of you who want information about what to look forward to, please ask me.