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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

John Hanly posted a discussion

PET CT Scan Sensitivity

I had a radical prostatectomy in 2014. Gleason 4+3 = 7. Margins negative.  Since then I have had a PSA test every 6 months. My PSA has gradually risen to 0.17 today.  In speaking with my Dr he suggested a PET CT scan last year but my insurance rejected it because my PSA was below 0.5.Questions:Is there a level of PSA below which the PET CT scan cannot detect anything?Can the scan distinguish healthy prostate tissue from cancerous tissue?Is it worth my while to pursue and potentially pay for…See More
Jan 5
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Howard Ross posted a status
"Hello"
Nov 2, 2025
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James R posted a status
"Marc Milsten"
Oct 30, 2025
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Joe Simanek updated their profile
Sep 17, 2025
Howard Ross posted a status
"Anyone here"
Jul 27, 2025
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Trevor Jefferies updated their profile
Jun 14, 2025
Jan Manarite updated their profile
Jun 12, 2025
Howard Ross posted a status
"Looks like it’s gone"
Feb 24, 2025
0 Comments
jeff updated their profile
Feb 2, 2025
Ronald Lux joined Ralph Valle's group
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Androgen Deprivation Therapy / Hormone Suppression

What is ADT? How to manage side effects. Is there a survival benefit to early suppression versus delayed? Discussion about the latest research on intermittent deprivation and testosterone replacement therapy in the treatment of prostate cancer.See More
Oct 7, 2024
105 Comments
Ronald Lux posted a status
"Androgen therapy"
Oct 1, 2024
0 Comments
Ken posted a discussion

How long should I use a pump?

My doctor prescribed a pump after my surgery to "maintain penile health".  Since I have not regained the ability to have an erection, should I continue to use a pump forever? See More
Mar 23, 2024
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RobC updated their profile
Mar 5, 2024
Ramon Leopold Garcia updated their profile
Jan 24, 2024
James P posted a status
"Is this site active anymore?"
Jan 7, 2024
0 Comments
Tom Full updated their profile
Dec 23, 2023

Forum

PET CT Scan Sensitivity

I had a radical prostatectomy in 2014. Gleason 4+3 = 7. Margins negative.  Since then I have had a PSA test every 6 months. My PSA has gradually risen to 0.17 today.  In speaking with my Dr he suggested a PET CT scan last year but my insurance…Continue

Started by John Hanly Jan 5.

How long should I use a pump?

My doctor prescribed a pump after my surgery to "maintain penile health".  Since I have not regained the ability to have an erection, should I continue to use a pump forever? Continue

Started by Ken Mar 23, 2024.

Does one wait for cancer to present itself or begin Androgen therapy 67 Replies

Please see my stats for details on my recurrent cancer.  After more than 4 PET scans at the Mayo in 2017, my oncologist said I should wait until my PSA has risen to 8 before getting another scan because the cancer remained undetectable.  Then in…Continue

Started by Tom Full. Last reply by Tom Full Oct 17, 2023.

irreversible electroporation

Is irreversible electroporation effective? An article Journal of Urology by Dr Bernardino Miñana López suggests 85% of patients treated this had good success with no incontinence or impotence. Would it work for Gleason 4+3Continue

Started by Laurent Huber Feb 22, 2023.

Artificial urinary Sphincter 2 Replies

Hi all, it's been awhile and I continue to have negative PSA's. However, my incontinence persists and an Artificial urinary sphincter procedure has been suggested. Anyone have experience with this surgery and how were the results?ThanksContinue

Started by Tom Graybill. Last reply by Tom Graybill Jan 12, 2023.

Has this happen to you during IMRT? 1 Reply

I'm halfway through salvage IMRT about four years after having a RP.  The IMRT also involves using CT imaging (IGRT) everyday to adjust the daily treatment area based on my particular body position and bladder size for that day.  I have tattoos the…Continue

Started by Steve L. Last reply by E. Michael D. ("Mike") Scott Dec 29, 2022.

 
 
 

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