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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

Brad replied to Stephen Norris's discussion Sexual function after prostatectomy - my experience so far in the group Sex after prostate cancer treatment - what to expect
"Well, we found the difference by experience.  The $50 device is for enhancing an already present erection ( couldn't get the rings on in a timely manner).  The medical device comes with complete instructions, a better design and a…"
1 hour ago
Brad updated their profile
1 hour ago
E. Michael D. ("Mike") Scott left a comment for Anthony P.
"Good. ... Let's hope that the PSA is still at that level in another 3 months' time ... but don't panic if it rises a little as any lingering effect of the Lupron treatment wears off over the next 3 months."
2 hours ago
Anthony P. left a comment for E. Michael D. ("Mike") Scott
"Mike, On 3/3 my PSA results were  0.028 Looks good so far... Thanks for your support. Anhony P. "
9 hours ago
Brian Watts replied to Eric Weinstein's discussion No PCa, but Rising PSA
"G'day Eric, A mate of mine had three negative transrectal biopsies over a period of about 4 years, and during that time his PSA steadily rose from about 6 up to 13 point something.  His free PSAs decreased also and his last free PSA was…"
10 hours ago
E. Michael D. ("Mike") Scott left a comment for Craig Hilbert
"Hey Craig ... I'm pleased to see that your bone and CT scans were negative (as everyone seemed to be expecting)."
10 hours ago
Craig Hilbert updated their profile
10 hours ago
gerry left a comment for E. Michael D. ("Mike") Scott
"thank you mike .I will talk to you again soon."
13 hours ago
E. Michael D. ("Mike") Scott left a comment for Ron Birtch
"Ron: That article (which I wrote) is nearly 2 years old. There have been vast improvements in the use of MRI over the past 2 years. Your look to me like a prime candidate for an mpMRI today."
17 hours ago
E. Michael D. ("Mike") Scott left a comment for patricia elmore
"Patty Ann: Ignore my last question. I re-read your message and I see that you weren't sure about whether Greg had positive lymph nodes or not. This should be on his post-surgical pathology report, but Greg may never have asked for a copy."
17 hours ago
Bob Rodberg posted a status
"Well I'm scheduled for surgery in Aug. Bone scan and all pretests came back good... now just to wait."
17 hours ago
E. Michael D. ("Mike") Scott left a comment for patricia elmore
"Patricia: So with a PSA of 43 before he ever had surgery and a Gleason score of 8 at surgery, there was always a very high probability that surgery might not be able to cure your friend's cancer. ... Sorry, ... but I think you need me to be…"
17 hours ago
E. Michael D. ("Mike") Scott left a comment for gerry
"Gerry: You have a series of options that you can discuss with people. I cannot tell you what is right or wrong (because there is no "right" or "wrong"). I'm not your doctor. The options include: -- Talking to your doctors…"
18 hours ago
patricia elmore left a comment for E. Michael D. ("Mike") Scott
"Hi Mike, Thank you for the warm welcome.  What I know is that Greg's Gleason # is 8 and he had a PSA of 43 prior to his surgery on Oct, 9 last year.  He is 63 years old and in excellent health.  His father  had prostate…"
18 hours ago
Ron Birtch left a comment for E. Michael D. ("Mike") Scott
"Hi mike and thanks for the feedback......have you read this article: http://prostatecancerinfolink.net/2012/08/12/are-mri-targeted-biopsies-better-than-standard-12-core-trus-guided-biopsies/ It appears to me there are little result differences? I…"
19 hours ago
Rick D. commented on Ralph Valle's group Androgen Deprivation Therapy / Hormone Suppression
"Thanks Rob - reading your post below, my first observation is that you should be under the care of a medical oncologist at this point rather than a urologist. Urologisits are surgeons - your issues are now physiological since it appears the PCa is…"
20 hours ago
gerry left a comment for E. Michael D. ("Mike") Scott
"Hello Mike I had a call from the urologist office : the results were fine ,both c.t scan and bones scan were neg. Now ,should the next step be a 3d scan of the prostate with  appropriate biopsy ,or start treatment of the   .My  doctor…"
21 hours ago
E. Michael D. ("Mike") Scott left a comment for Ferdinand Trufant
"Welcome Ferdinand.  When you say that you "had a check-up in January disease is still present", can you be a little more specific? For example: -- What is your PSA level now? -- Do you know your PSA doubling time (i.e., how fast your…"
yesterday
Profile IconFerdinand Trufant, Ron Birtch, john math elly and 1 more joined The "New" Prostate Cancer InfoLink Social Network
yesterday
E. Michael D. ("Mike") Scott left a comment for Donald Stewart
"Ah ... That makes more sense! Thanks. :O)"
yesterday

Forum

No PCa, but Rising PSA 2 Replies

After my last PSA of 6.1, urologist wants another biopsy. He refused to entertain any discussion of alternative testing or waiting. I decided to get a second opinion from a world renowned urologist…Continue

Started by Eric Weinstein. Last reply by Brian Watts 10 hours ago.

First URO APPT TODAY 1 Reply

DRE today and said everything was smooth On the ultrasound images he saw a " slight" difference of the right and left side. He decided to order the biopsy as a precaution. Does this sound like…Continue

Started by Ray baumann. Last reply by John L on Friday.

newly diagnosed with PC 17 Replies

I am 54 years old. I was diagnosed last week with PC. T2C. Gleason score of 3+3 =6. 12 cores, 5 positive, three cores at 2-5% and 2 around 10%.PSA at time of diagnosis was 3.5. I was diagnosed with…Continue

Started by Mark M. Last reply by E. Michael D. ("Mike") Scott Apr 16.

Friend with prostate cancer 4 Replies

I have a 78 year old friend who was recently diagnosed with prostate cancer.  Gleason score was 7, PSA had jumped to 7.5, and he was presented with his options by his urologist after the biopsy.  He…Continue

Started by Ed Roman. Last reply by E. Michael D. ("Mike") Scott Apr 12.

PSA increasing one year after operation 9 Replies

Hi, I'm back, 16 months ago I had a lot of help on this forum, it helped me a lot when I learned that I had a very serious prostate cancer.12 months ago my prostate was removed. It turned out to be…Continue

Started by Delhasse. Last reply by E. Michael D. ("Mike") Scott Apr 10.

artificial sphincter 1 Reply

Hi Mike and all,My husband is going to need radiation but he is also going to have an atrificial spinciter devise implanted.  I am wondering what you can tell me about it and what experience others…Continue

Started by patty a. Last reply by E. Michael D. ("Mike") Scott Apr 5.

Correction on biopsy results 22 Replies

Mike, for what it is worth on my biopsy they pulled 15 samples not 12 as 2 cores each were pulled from 3 areas. Results were positive in one of areas where 2 cores taken at gleasson 3+3=6 .my concern…Continue

Started by GD. Last reply by E. Michael D. ("Mike") Scott Apr 4.

decision 7 Replies

Guys,I am presently 64 years old and in good health.  12/2010 I was diagnosed with Prostate Cancer.  I told my story on this site.  My Gleason was 6, with cancer only on right lower quadrant.  I went…Continue

Started by Joseph York. Last reply by E. Michael D. ("Mike") Scott Apr 2.

Anal wound post surgery

My husband has and anal wound from endoscopic surgery that removed prostate, bladder, rectum, muscle etc. Apparently the surgery removed nerve and blood supply to area and the result was an anal…Continue

Started by DES Mar 30.

Incontinence and PT after surgery 19 Replies

Hello Mike and all,My husnand is now 4 months post-op.  His incontinence is absolutely no better... even after starting PT over 3 weeks ago.  He is going thru about 14 padd a day and soaking them. …Continue

Started by patty a. Last reply by patty a Mar 27.

 
 
 

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