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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

Jules Simons left a comment for E. Michael D. ("Mike") Scott
"Yes all treatments free over here. I did ask the Oncologist that very question but he wasn't forthcoming. I have been waiting for approval of Apalutamide in England for 3 years and am loath to go for any of the others. It's a one shot…"
16 hours ago
E. Michael D. ("Mike") Scott left a comment for Jules Simons
"Jules: I apologize for not getting back to you earlier. In all truth, I don't think there is any really meaningful difference between the three drugs that you refer to. The marketers of darolumatide do make a strong argument that -- on average…"
23 hours ago
Jules Simons left a comment for E. Michael D. ("Mike") Scott
"Going to have to make choice soon between ADT treatments. Darolutamide is option only if no spread. Apalutamide in either case and Enzalutamide if spread confirmed. Oncologist said he is onboard with prescribing any of the three, my choice. I have…"
Saturday
Peter Eidolon left a comment for E. Michael D. ("Mike") Scott
"Thanks again for all your help! Greatly appreciated."
Friday
Jules Simons left a comment for E. Michael D. ("Mike") Scott
"My current PSA is 15. I have come off Bicalutamide as no longer working but still on Zoladex.  Original PSA 61 Gleason 3+4 in 2012. Had RadioTherapy  PSA nadir 0.02. Doubling time about 3months. Delay with procedure on bladder to determine…"
Thursday
E. Michael D. ("Mike") Scott left a comment for Jules Simons
"Jules: What is your current PSA level and can you tell me what your PSA doubling time is? If you can't tell me your PSA doubling time, can you tell me your last four PSA test results and exactly when blood was drawn for those tests?"
Thursday
Jules Simons left a comment for E. Michael D. ("Mike") Scott
"I am on Zoladex and have been since 2012. Topped up with Bicalutamide in 2016. Bicalutamide now failing and looking at Darolutamide if non metastatic or Enzalutamide otherwise. I had PET scan Bone Scan and CT Scan recently and no sign of mets apart…"
Wednesday
E. Michael D. ("Mike") Scott left a comment for Jules Simons
"Dear Jules: So if you were diagnosed nearly 10 years ago, when I think you must have been abot 60 years of age, did you receive any forms of treatment? I assume you must have done at that time. What is you current status? How can we be of…"
Wednesday
Jules Simons is now a member of The "New" Prostate Cancer InfoLink Social Network
Wednesday
E. Michael D. ("Mike") Scott left a comment for Peter Eidolon
"Peter: The Oncotype or Decipher tests can still be used to help to clarify your current situation if carried out on your original biopsy material because these tests can distinguish types of risk that have probably not changed since March 21. With…"
Wednesday
Peter Eidolon left a comment for E. Michael D. ("Mike") Scott
"Mr Mike…I asked my Urologist about the tests you noted to further assess my risk level for prostate cancer progression and received the answer below from the head nurse. Confusing, as how would the biopsy done on March 21 be used to evaluate…"
Wednesday
E. Michael D. ("Mike") Scott left a comment for Sam Meyer
"Welcome Sam. I see you are 67 years of age. Have you just been diagnosed with T2c disease or have you already been treated for this in some manner?"
Sep 15
Sam Meyer is now a member of The "New" Prostate Cancer InfoLink Social Network
Sep 15
Peter Eidolon left a comment for E. Michael D. ("Mike") Scott
"Yup! Confirmed my early decision that two years of hormones and Radiation was a non starter. Those results, plus the certainty of incontinence put all in perspective. My warranty may be running out but I am betting on the Final 16! Thanks for all…"
Sep 15
E. Michael D. ("Mike") Scott left a comment for Peter Eidolon
"Peter: And do those data from the nomogram help you to think about what you may want to do?"
Sep 14
Peter Eidolon left a comment for E. Michael D. ("Mike") Scott
"WebCore results. At 10 years,16 would be alive and 3 men would have died of untreated prostate cancer. At 15 years, 0 men would be alive and 3 men would have died of untreated prostate cancer."
Sep 14

Forum

PLARIFY - An Imaging Agent 2 Replies

PLARIFY is a newly-approved agent to use with PET scans. It is available in some areas of the country now and is rolling out to many others.My doc at MDA says they will have trials with it in September, and he will put me in.My PSA has been ticking…Continue

Started by Mike Simmons. Last reply by Mike Simmons Aug 1.

Liquid Radiation

Anyone on this site have any knowledge of liquid radiation for the treatment of PCa? If so please share your information with the rest of us.Don O.Continue

Started by Don Oberlin Jun 4.

IMRT vs Cyberknife vs Proton vs Seeds 2 Replies

Continue

Started by Jan Manarite. Last reply by Tom May 13.

Experiences at Cleveland clinic Weston FL or U of Miami Sylvester Cancer center

Hi all:Considering treatment here in South Florida and wondering if anyone has any experience or input with either of these facilities and/or doctors:Cleveland Clinic Weston FL:Dr Alok Shrivastava or Dr Nicolas Muruve. (Surgeons)U of Miami Sylvester…Continue

Started by Tom Lyman Apr 22.

ADT (Lupron after surgery, then radiation) followed by watchful waiting

After a 5 1/2 year "vacation" from Lupron injections, my PSA has made it back from 0 to 5.20. 3 months ago it was  3.24, so the rate of increase is speeding up a bit. My oncologist and I of course have expected this would happen, and we are probably…Continue

Started by Reed Anderson Apr 21.

Anyone here down-staged by pathologist after RP 10 Replies

How many people have been down-staged after RP?Back in April, mpMRI suggested that I had some extraprostatic extension (EPE).After my RP, the pathologist didn't see any EPE, so I was down-staged (cT3a to pT2c).From my reading of the literature, it…Continue

Started by Tom Wimberly. Last reply by Baiba Hughes Mar 27.

 
 
 

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The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

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