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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

E. Michael D. ("Mike") Scott left a comment for Jdevlin268@comcast.net
"Dear J: I am not a doctor, but surgical treatment for most men of 74 years of age is not exactly standard therapy unless that man is in excellent health otherwise. The risk for significant side effects (and particularly for long-term urinary…"
19 hours ago
Jdevlin268@comcast.net left a comment for E. Michael D. ("Mike") Scott
"Mike, thank you again for your comments on April 27, 11:43, to up date, subsequent scans from original, show doubtful spread outside gland, nor thrombus issue likely. Have TEE to rule out any clot near left ventricle. Urologist says stage 2Tc,…"
20 hours ago
E. Michael D. ("Mike") Scott left a comment for Mark Johnson
"Good morning Mark, and welcome. I note that you are 54 years of age, and I have a few questions to help us understand your situation more precisely: -- Have you received any type of treatment yet? I would think you might have, but you don't…"
yesterday
Profile IconMark Johnson, Robert K Sullivan, Fred Barone and 4 more joined The "New" Prostate Cancer InfoLink Social Network
yesterday
E. Michael D. ("Mike") Scott replied to Tom F's discussion Finding my way around this site
"Oh ... and by the way ... sic ne there is no reason to believe that you might not be around for quite a while yet otherwise ... No more walking in front of cars! This is not conducive to a long life! :O)"
yesterday
Tom F was featured
yesterday
E. Michael D. ("Mike") Scott replied to Tom F's discussion Finding my way around this site
"Hi Tom. OK. Well I am glad to hear you are in the STAMPEDE trial ... even if you did get randomized to the control arm. What I THINK that means is that when your PSA gets up to 2 ng/ml above the nadir level, your medical oncologist can take you off…"
yesterday
E. Michael D. ("Mike") Scott replied to Michael Moppert's discussion "New" Zytiga - less cross resistance?
"I have absolutely no idea, but it doesn't seem very likely to me."
yesterday
Alan Kousen replied to Randy Wood's discussion First biopsy experience...
"Hi Randy My treatment plan includes 6 months of ADT to lower testosterone, a radionucleide seed implant with Pd 103, done on Mar 8 and my current external beam radiation of 25 treatments. I started it on May 11 and it ends mid June. The ADT ends in…"
Wednesday
Tom F posted a status
"PS At diagnosis, 2 years ago, my bone scan was clear. My MRI showed 1 pelvic lymph node enlarged."
Wednesday
Tom F joined Arnon Krongrad, MD's group
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PSA Persists After First-Line Treatment

When your PSA stays high after RP or radiation or other first-line treatments, here's the place to chat with others.
Wednesday
Tom F updated their profile
Wednesday
Tom F posted a photo
Wednesday
Randy Wood replied to Randy Wood's discussion First biopsy experience...
"Hi Alan,Good luck with your cancer.  You're fortunate to be close to your Urologist.  I live about 4 hours away from UCSF, so meeting with my doctor is somewhat reserved for procedures/treatments.  Have you decided on a treatment…"
Wednesday
Randy Wood replied to Randy Wood's discussion First biopsy experience...
"Thank you, Mike!"
Wednesday
Tom F posted a discussion

Finding my way around this site

Hi Mike.  Thanks for the add.  I was T3b N1, Gleason 8, PSA  26 on diagnosis.  I wasn't offered a RP.  I had a TURP Then, after 6 month of HT I had RT x 40 sessions. It finished in April 2016.  My HT finishes in September 2018.I attach a snap shot of my results to date and have copied and pasted the following extract to a friend to update you."My own health has been variable, especially after I was knocked down by a car on April Fool's day.  My fault.  Jaywalking.I'm making a good recovery from…See More
Wednesday

Forum

Finding my way around this site 2 Replies

Hi Mike.  Thanks for the add.  I was T3b N1, Gleason 8, PSA  26 on diagnosis.  I wasn't offered a RP.  I had a TURP Then, after 6 month of HT I had RT x 40 sessions. It finished in April 2016.  My HT finishes in September 2018.I attach a snap shot…Continue

Started by Tom F. Last reply by E. Michael D. ("Mike") Scott yesterday.

"New" Zytiga - less cross resistance? 1 Reply

Hi Mikejust read this info about this new “submicron” formulation of abiraterone acetate (…Continue

Started by Michael Moppert. Last reply by E. Michael D. ("Mike") Scott yesterday.

First biopsy experience... 18 Replies

First biopsy scheduled for May 19, and feeling some anxiety.  What should I expect afterwards?  Soreness, unable to sit for long periods, unable to walk long distances?  Since I'm traveling a considerable distance to San Francisco, and staying for…Continue

Started by Randy Wood. Last reply by Alan Kousen on Wednesday.

Now Started the EBRT- after Brachy 2 Replies

The final steps in my treatment has begun with the first of 28 radiation treatments via external beam. very easy, low key, and again the staff were attentive and explained every detail of the therapy.A therapist explained what was going to…Continue

Started by Alan Kousen. Last reply by Alan Kousen May 19.

My husband was newly diagosed 87 Replies

My husband has been diagnosed with PC Gleason score 3+4 7 psa 5.6.Small area on right side. We are waiting for results from nuclear report and then start to make decisions about treatment (surgery, radiation), etc. This is all the information we…Continue

Started by Lynn Boccia. Last reply by E. Michael D. ("Mike") Scott May 19.

Multivitamin and PSA Reading 2 Replies

Mike,I recently saw a short mention about multivitamins affecting PSA readings. What are your thoughts on this?Arthur Continue

Started by Arthur Rollins. Last reply by Arthur Rollins May 15.

 
 
 

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The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.

Information provided on this site should not be used for diagnosing or treating any health problem or disease.

The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.

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