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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

E. Michael D. ("Mike") Scott left a comment for Arist Engelmann
"Dear Arist: Even patient groups can set up registry studies with relatively small amounts of money and some good advice. They aren't perfect but at least they can offer some guidance."
Thursday
Arist Engelmann left a comment for Arist Engelmann
"Dear Mike.. The problem .. Pharma can only make money with a patent.. but plants you cannot have a patent .. so no big trials .. it is sad Regards ARIST"
Thursday
E. Michael D. ("Mike") Scott left a comment for Arist Engelmann
"Dear Arist: It is certainly true that there is some evidence of anticancer activity of artemisinin in vivo and in vitro (see here). My point was only that there is no evidence (that I am aware of) of clinical efficacy of this and similar agents in…"
Thursday
E. Michael D. ("Mike") Scott left a comment for Phillip f
"Dear Phillip: First and foremost, no single PSA test 6 weeks after surgery is going to be able to give you an absolute indication that you still have or don't have cancer. That can only be determined over time. In fact, Many urologists…"
Thursday
Arist Engelmann left a comment for E. Michael D. ("Mike") Scott
Thursday
Phillip f left a comment for E. Michael D. ("Mike") Scott
"56 is my age 12 out of 14 cores positive Phone cord 3+4 all the rest 3+3 margin showed clear tesla three MRI showed clear one tumour 0.9 cm x 0.9 encapsulated bone scan clear CT scan clear had surgery in October robotic final results on pathology…"
Thursday
E. Michael D. ("Mike") Scott left a comment for Phillip f
"Dear Phillip: When it comes to a new diagnosis of prostate cancer, the Devil is always in the details. If you can tell us some or (best of all) all of the following, then we will be able to give you some much better input on what your options are in…"
Thursday
Profile IconPhillip f and Thomas T joined The "New" Prostate Cancer InfoLink Social Network
Thursday
E. Michael D. ("Mike") Scott left a comment for Thomas T
"Hi Thomas. I note that you are 68 years of age. What was your PSA level prior to your surgery? And what was your Gleason score based on your post-surgical pathology report? If you can tell use this information, the first thing we can offer you is…"
Thursday
E. Michael D. ("Mike") Scott left a comment for Pete C
"Hi Pete. Thanks for your feedback. Obviously every patient has to come to his own decisions about appropriate treatment -- with relevant guidance from his doctor(s), and I am certainly not criticizing yours. Just wanted to make sure you were well…"
Thursday
E. Michael D. ("Mike") Scott left a comment for Arist Engelmann
"For readers of your comment about Artemisia annua (sometimes known here in America as "sweet wormwood" and its extracts, see here on Wikipedia. I know of no definitive scientific evidence (at this time) that use of this herb or its…"
Thursday
Pete C left a comment for E. Michael D. ("Mike") Scott
"Mike - thanks for your input.  FYI - my Gleason score is 8 - no cancer in lymph nodes.  I've consulted with radiation (IMRT & Proton).  My Urologist recommended IMRT or surgery - equal outcomes.  I'm over 70 but in…"
Wednesday
Arist Engelmann left a comment for Arist Engelmann
"I will post your link in my facebook group : "ARTEMISIA ANNUA und..""
Nov 23
Arist Engelmann left a comment for Arist Engelmann
"Hi .. I'm fine .. and very critic to the schoolmedcin - treatments. But a few like the surgery are helplng. I try to inhibit the growth of my cancer cells with an ethanolic extract of AREMISIA ANNUA. I am eager to read a lot in your…"
Nov 23
Mike B replied to Mike B's discussion BCR with slightly lower PSA after 7 Weeks radiation
"I think he meant there was a possibility the cancer had already moved out of the treated area (i.e. that's why the radiation hadn't reduced the number to below detectable levels.)  Thanks! I'll heed your advice on the Lupron."
Nov 23
E. Michael D. ("Mike") Scott left a comment for Arist Engelmann
"Wilkommen Arist. Wie getz? Ich kann leider nur ein bisschen Deutsch. Are your doctors planning for you to have additional treatment after the surgery, such as radiation therapy?"
Nov 23

Forum

BCR with slightly lower PSA after 7 Weeks radiation 7 Replies

Hi guys, just looking for some advice. Had robotic removal in June 2018. PSA undetectable til Feb 2020 when it peaked at 0.22. Had seven weeks of radiation an 2 Luperon (?) injections. PSA now at 0.10 but still there. Just looking for any experience…Continue

Started by Mike B. Last reply by Mike B Nov 23.

Does one wait for cancer to present itself or begin Androgen therapy 53 Replies

Please see my stats for details on my recurrent cancer.  After more than 4 PET scans at the Mayo in 2017, my oncologist said I should wait until my PSA has risen to 8 before getting another scan because the cancer remained undetectable.  Then in…Continue

Started by Tom Full. Last reply by E. Michael D. ("Mike") Scott Nov 16.

Does Infolink notify participants of new posts/discussions and new comments on older posts? 4 Replies

I belong to another forum that sends me daily updates of new questions/posts. Does infolink do the same?Continue

Started by dale maley. Last reply by dale maley Oct 18.

psa 8 Replies

MIKE,it's been just over 2 years since I completed salvage radiation.My PSA has been. <0.01 until yesterday it was 0.01 I assume to be cancer free the PSA number should. zero out to 0.00?What's your opinion on the small increase? ShareContinue

Started by randy hoft. Last reply by E. Michael D. ("Mike") Scott Sep 29.

Salvestrols Against Hormone Refractory Prostate Cancer 490 Replies

Salvestrols have been discovered by the same scientists that discovered Abiraterone, hailed as the new wonder drug for the treatment of advanced metastatic castrate resistant prostate cancer. Salvestrols work beyond Abiraterone to treat cancer by a…Continue

Started by Prof Gerry Potter. Last reply by Paul Puleo Sep 28.

Lupron withdrawal? 2 Replies

Does anyone know whether there are lupron withdrawal symptoms?  I'm at end of a six month treatment and getting the impression that I'm getting more symptoms, particularly hot flashes, than usual.  Will there be uncomfortable endocrine system…Continue

Started by Guy B. Meredith. Last reply by Guy B. Meredith Sep 7.

 
 
 

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