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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

Raul Miranda replied to Raul Miranda's discussion 5th Biopsy
"Hello Byard My diagnosis is different for a higher Gleason score and the seminal vesicle is compromised as well. Any way, I will consult a second opinion. Regards. Raul"
20 hours ago
Ellen Balaban left a comment for Graydon Griffin
"welcome Graydon, my husband was diagnosed with Gleason 9(4+5) two and a half years ago and had 9 months of ADT and radiation and is doing well now.  best of luck, ellen b"
yesterday
Bjorn Pettersson left a comment for Jan Manarite
"Hi! Many thanks' for your reply. I also find it strange that it should affect one leg only. I did bring this up with my Eurologist but he had no clue. Just that it could be a side effect so wait and see. I will bring this up with my GP to check…"
yesterday
Jan Manarite left a comment for Graydon Griffin
"Hi Graydon.  Sorry to hear about your diagnosis, but we can help you.  And a lot of men do really well with a Gleason 9, believe it or not.  Everyone's different.  Can you tell us - - How many cores were cancerous on…"
yesterday
Profile IconGraydon Griffin and Bjorn Pettersson joined The "New" Prostate Cancer InfoLink Social Network
yesterday
Jan Manarite left a comment for Bjorn Pettersson
"With a PSA of 31 before hormone therapy, I would ask my doctor - (1) How low do you want to PSA to be before we start radiation?  Should we take another PSA test? (2) What is my prostate size/volume?  Does it need to shrink more before…"
yesterday
Jan Manarite left a comment for Bjorn Pettersson
"Hi Bjorn.  Enantone is Leuprorelin acetate, which is equivalent to Lupron, a common hormone therapy shot in the USA.  I have definitely heard of muscle aches as a side effect from hormone therapy, and my husband certainly had…"
yesterday
Bjorn Pettersson posted a discussion

Pain in right leg only

Hi friends.I am new both here and to my cancer but already have a question.Started hormone treatment with one Bicalutamide pill a day and after 10 days I also got an injection in the fat of my belly. The injection was Enanton and will last 6 months. It was given to me on Oct. 10 this year. Radiation will start on Dec.12 and go on for 38 days.On Nov. 15th. I started to get mild pain in the right leg. Both in muscles and joints. Different muscles and joints but always there in the leg. During the…See More
yesterday
Bjorn Pettersson left a comment for Jan Manarite
"Many thanks' for your kind note. I will certainly do my best to be of use. I was diagnosed with cancer to the prostate in September this year and started a hormone treatment early november. As you can see, I am quite new to this. My cancer is…"
yesterday
Jan Manarite left a comment for Bjorn Pettersson
"HI Bjorn.  Welcome to our Social Network.  I'm sorry to hear about your Gleason 9 diagnosis, but some men do very very well for a long time, even with a high Gleason score.  I have a caller that I've worked with off and on…"
yesterday
byard f edwards replied to Tung Sol's discussion Hernia repair?
"Hello The hernias and radiation therapy have no direct relationship but depending on type of planned radiation of external beam vs brachytherapy ( seed implantation) the hernia tissues could be affected by having radiation exposure and the success…"
Sunday
byard f edwards replied to Tung Sol's discussion Newly diagnosed, wondering about time-frame for treatment
"Hello, The PSA free to total ratios gave you a 24 to 34% chance of having prostate cancer ( the lower the ratio, the higher the risk). The last biopsy tells the story : bilateral prostatic cancer involving both apex and middle regions with up to 4+3…"
Sunday
byard f edwards replied to CRAWDAD's discussion Rising after removal
"Hello, Expect to hear of options to treat metastatic cancer once completely staged. You may want to bring  blocks of surgical tissue from the pathology lab  to Duke should they want to do immunostaining studies and confirm the mitotic…"
Sunday
Geoff B replied to Geoff B's discussion Spike In PSA with no other symptoms at all
"Hi Byard, Urologist mentioned that he liked the PSA Free ratios and the PHI very much. He said his problem with the PSA Free ratios for me was my PSA was over 10, and the ratios go statistically haywire above 10. The PHI also requires PSA less than…"
Sunday
byard f edwards replied to Robert Nicholson's discussion Willing to help with frank discussion of your sexual experiences post treatment?
" Hello, Sorry, but I do not see any professional state license documentation as a therapist on her web site. "
Saturday
byard f edwards replied to David Le's discussion Rapid Rise in PSA Levels
"Hello, Ask if you have obtained a free to total PSA ratio and if not then request one to stratify your risk for having prostatic cancer.  My dre was normal, my U/S of prostate was normal, my prostate was normal 30 gm, my psa free to total was…"
Saturday

Forum

5th Biopsy 4 Replies

I am 58, good shape, PSA at 40, having gone up from under 2.9 over the last 5 years. Four negative TRUS biopsies and 2 negative MRIs; PCA3 37; 4KScore 31; prostate size 29-30 grs.I finally have my results from the 5th biopsy and I share them to you…Continue

Started by Raul Miranda. Last reply by Raul Miranda 20 hours ago.

Pain in right leg only

Hi friends.I am new both here and to my cancer but already have a question.Started hormone treatment with one Bicalutamide pill a day and after 10 days I also got an injection in the fat of my belly. The injection was Enanton and will last 6 months.…Continue

Started by Bjorn Pettersson yesterday.

Hernia repair? 3 Replies

Think I ran into a snag and wondering if anyone knows about inguinal hernia impact on radiation options. My MRI mentions bilateral hernias and I thought nothing of it. I had no clue! Am I going to find radiation oncologists will want them repaired…Continue

Started by Tung Sol. Last reply by byard f edwards on Sunday.

Newly diagnosed, wondering about time-frame for treatment 10 Replies

Hi all, my first post so please bear with me as I'm sure this is either TMI or not enough! I have been lurking for about three months as it has taken that long from my reg uro's recommendation to have a 4th biopsy.  PSA rising consistently and PCA3…Continue

Started by Tung Sol. Last reply by byard f edwards on Sunday.

Rising after removal 3 Replies

Background:  DH diagnosed at 46, DaVinci surgery 20 months ago, Gleason 4+3, positive margin, left SVI, extensive perineural invasion, angiolymphatic invasion present, nodes negative.  PSA undetectable after surgery.  Until last month.  Had second…Continue

Started by CRAWDAD. Last reply by byard f edwards on Sunday.

Spike In PSA with no other symptoms at all 6 Replies

I am 67. For the last 15 years or so my PSA has been 2.4. After my first ever UTI, which laid me up for two weeks. A month later I had my annual blood tests and was surprised to see my PSA at 8.4...Ummm, had some cipro for 2 weeks, then a new PSA…Continue

Started by Geoff B. Last reply by Geoff B on Sunday.

 
 
 

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The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

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