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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

E. Michael D. ("Mike") Scott left a comment for Gary
"Gary: We can insert the data you have provided into the Kattan pre-treatment nomogram to project the following output if you were to have surgery carried out by an appropriately skilled and experienced surgical team: -- Probability of organ-confined…"
10 minutes ago
E. Michael D. ("Mike") Scott commented on Arthur Rollins's status
"Arthur: One step at a time. Let's see what your PSA is in 3 months time. Could it be an anomaly? Yes, it could. Is it likely to be an anomaly? Unfortunately. no, I don't think it is, but 3 months is a reasonable time to wait until you get…"
29 minutes ago
Gary left a comment for E. Michael D. ("Mike") Scott
"No other health issues....5ft10inches tall172pounds....staget1c"
56 minutes ago
Arthur Rollins commented on Arthur Rollins's status
"I am getting tested again in three months instead of six. My doctor said that .2 is still considered below the level of recurrence, but we do want to monitor. Could it be an anomaly in the testing at this level? Although I would hope for that I…"
1 hour ago
E. Michael D. ("Mike") Scott left a comment for Gary
"Gary: I note that, in addition to the information you give above, you are 61 years of age. However, there are two other pieces of information that would really help us to best help you: (a) Your clinical stage at diagnosis (e.g., T1c, T2a, T2b) (b)…"
1 hour ago
Profile IconGary, Ron Esslinger, Terry Hall and 3 more joined The "New" Prostate Cancer InfoLink Social Network
1 hour ago
E. Michael D. ("Mike") Scott left a comment for Ron Esslinger
"Ron: I note that you are 76 years of age. However, it would help us to better understand your situation if you could tell us the following: -- Your PSA level at the time of diagnosis -- Your PSA level now -- Your clinical stage at diagnosis (e.g.,…"
1 hour ago
E. Michael D. ("Mike") Scott left a comment for Terry Hall
"Terry: With a PSA of 29 and an evident mass in your prostate detectable by DRE and by ultrasound, you certainly appear to be at high risk for localized prostate cancer. Unfortunately, without data from a prostate biopsy, there is really little…"
1 hour ago
E. Michael D. ("Mike") Scott left a comment for jaime perez lopez
"Jaime: This web site is really focused entirely on prostate cancer, whereas you have melanoma. Unfortunately, I don't think we are going to be able to help you."
1 hour ago
E. Michael D. ("Mike") Scott left a comment for Laurie Masters
"Dear Laurie: It sounds like you might be signing up looking for information because your Dad or some other family member has been diagnosed, is that correct?"
2 hours ago
E. Michael D. ("Mike") Scott left a comment for Richard Behrens
"Richard: Is your PSA still dropping or does it seem to have pretty much stabilized at around 6 ng/ml? Has your urologist or oncologist ever assayed your serum testosterone level since you started on the Lupron + Casodex? Ideally your serum T level…"
2 hours ago
Arthur Rollins posted a status
"My PSA has gone from less than .1 to less than .2. Is this a big concern?"
2 hours ago
Frank joined E. Michael D. ("Mike") Scott's group
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The CyberKnife Therapy Forum

CyberKnife therapy is a form of radiation treatment that is becoming more popular for the treatment of low- and intermediate-risk prostate cancer. Here's a space to share experiences and gain information -- along with physicians who use it.
4 hours ago
E. Michael D. ("Mike") Scott left a comment for greg fisher
"Greg: (1) There are all sorts of reasons why a PSA level might rise from about 2.2 to about 3.2 in a man of your age. Most of them are not related to prostate cancer. (2) You mention that you have been "having symptoms for a while." Can…"
4 hours ago
Frank joined Rick D.'s group
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Exercise Central

A support space for men who want and need to exercise after diagnosis or treatment -- either to maintain or modify their existing regime or start a new one.
4 hours ago
E. Michael D. ("Mike") Scott replied to E. Michael D. ("Mike") Scott's discussion The National Proactive Surveillance Network (NPSN) in the group Active Surveillance / Expectant Management
"Terry: Do you know Dan Zenka at the Prostate Cancer Foundation? He would know."
4 hours ago
Frank updated their profile
4 hours ago
E. Michael D. ("Mike") Scott left a comment for neil langford
"Neil: The data on non-treatment of men like you is a great deal less sophisticated than the data on treatment because -- for the past 20 years or so -- it would never have been considered normal to not treat a man like you. If we assume that you do…"
4 hours ago
E. Michael D. ("Mike") Scott replied to E. Michael D. ("Mike") Scott's discussion The National Proactive Surveillance Network (NPSN) in the group Active Surveillance / Expectant Management
"Sorry Terry ... Haven't got a clue."
5 hours ago
E. Michael D. ("Mike") Scott left a comment for jack
"Jack: There are very limited data on the efficacy and safety of HIFU as a second line treatment for men with prostate cancer. Furthermore, HIFU is not an approved form of therapy in the USA, so the chances are that -- to get treated this way --…"
5 hours ago

Forum

Salvestrols Against Hormone Refractory Prostate Cancer 24 Replies

Salvestrols have been discovered by the same scientists that discovered Abiraterone, hailed as the new wonder drug for the treatment of advanced metastatic castrate resistant prostate cancer.…Continue

Started by Prof Gerry Potter. Last reply by E. Michael D. ("Mike") Scott on Monday.

still working on determining if cancer metastacized to bone 5 Replies

Hello - I thought I would update on my husband's situation.  This is now 6 weeks and they still  can't decide if he's got prostate cancer spread to bone and elsewhere, or if what's on scans is…Continue

Started by Susan Akers. Last reply by Susan Akers on Saturday.

Zytiga (Abiraterone Acetate) 19 Replies

As the inventor of Abiraterone Acetate (Zytiga) I would love to hear from people who are taking this treatment option.For example what was your prognosis before Zytiga and what are the effects…Continue

Started by Prof Gerry Potter. Last reply by Prof Gerry Potter May 18.

Cryo-Ablation & Impotence Experiences 4 Replies

Hello All,I have been away for over two months as I did all of my medical tests and visits, etc.I initially signed up in mid Feb this year after a Jan 2012 Diagnosis of 3+3=6, 2 core positive of 12,…Continue

Started by Ed Nollmann. Last reply by Ed Nollmann May 9.

Whats to come 3 Replies

My dad is 62 years old.  He went for blood work in March and his PSA was a 17.  They gave hime meds in case of an infection.  He went back and it was a 27!!!  His Gleason score and it is a(4+4)= 8. …Continue

Started by AmyAcevedo. Last reply by E. Michael D. ("Mike") Scott May 5.

Question for Mike re brother-in-law newly diagnosed 3 Replies

My brother-in-law is 71 years old, in excellent health for his age, recently diagnosed.March 19, 2012 biopsy: Gleason 7 (4+3) involving 1 (left) lobe of prostateProstatic adenocarcinoma of…Continue

Started by Hector. Last reply by E. Michael D. ("Mike") Scott May 3.

prostate biospy 3 Replies

i am interested in other's input on absence of perineural invasion on my biopsy..radical prostatectomy scheduled for may 1...is this a clear indication of no matastis...i frankly feel weak and have…Continue

Started by john r gillett. Last reply by E. Michael D. ("Mike") Scott Apr 27.

arthritis versus metastacized prostate cancer to bone? 5 Replies

Hello - I was trying to find "Mike" and maybe this is where I found him originally?Since I posted last, my husband has heard from his urologist that he is not sure if lesions appearing on recent bone…Continue

Started by Susan Akers. Last reply by Joe McCleskey Apr 23.

Just given a prognosis....anyone been where I am? 3 Replies

Hello,I am new to this forum. A little background on me.I am 68 and in August 2011, I had my first PSA done after the doctor noticed I had pain while palpating my groin. The PSA came back as a…Continue

Started by J. W.. Last reply by Ron Apr 23.

Nutrition and Prostate Cancer 2 Replies

I just finished Mukherjee's wonderful book, Emperor of All Maladies, A Biography of Cancer.  It reads like a novel, and covers the history of cancer's discovery, treatments, and hopes for the future.…Continue

Tags: of, all, maladies, emperor, mukherjeee

Started by William Eberwein. Last reply by Prof Gerry Potter Apr 22.

 
 
 

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The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.

Information provided on this site should not be used for diagnosing or treating any health problem or disease.

The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.

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