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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

John Cosgrove left a comment for Jan Manarite
"Thank you Jan, Going to fill out and send to Penn, Hopkins, and Northwestern teams"
42 minutes ago
Gary eichenlaub posted a discussion

Laetrile

Been reading how latetril might help fight cancer. Is this an alternative treatment to use instead of ADT and Radiation. Plus latetril is not FDA approved. Any thoughts about those?Gary eSee More
3 hours ago
JULIAN left a comment for Jan Manarite
"Thanks"
7 hours ago
Jan Manarite left a comment for John Cosgrove
"Medical Records Speak.  With a little help, you can understand so much more about what they are saying...It looks to me like BPH is a bigger problem for you than your PC?  That's what I hear from the medical records.  Talk to…"
10 hours ago
John Cosgrove left a comment for Jan Manarite
"Thanks Jan, No one has ever. Have had MRI and Fusion Needle Biopsies at both Hopkins and Penn"
10 hours ago
Jan Manarite left a comment for JULIAN
"OK - got it.  Make sure you have the actual written report for the PSA.  I've seen more than once where someone has read it wrong over the phone. The next thing I would do is ask to re-run the PSA.  You never know when…"
10 hours ago
JULIAN left a comment for Jan Manarite
"Thanks . My first reading taken as a part of my physical . My first physical in 10 years It is 27.2. All my other physical  specs are excellent . I thought I was in good condition . I have been jogging 4-5 miles every other day and weight…"
11 hours ago
Jan Manarite left a comment for JULIAN
"Hi Julian - welcome.  Don't panic too much over a high PSA score, all by itself.  Here are a few questions that might help with context: - What does your PSA pattern look like over the years?  Is this your first PSA? - Do you…"
11 hours ago
Profile IconJULIAN and Elaine W Smith joined The "New" Prostate Cancer InfoLink Social Network
11 hours ago
Jan Manarite left a comment for John Cosgrove
"OK - that urinary symptom score is really high.  This is at least PART of your high PSA. As you probably know, there are 3 conditions of the prostate, and they all produce PSA, and all might produce urinary symptoms. (1) Prostate Cancer…"
12 hours ago
John Cosgrove left a comment for Jan Manarite
"Thank you Jan, I scored between 28 to 32 on the urinary form"
15 hours ago
E. Michael D. ("Mike") Scott replied to george's discussion Can being on lupron for one month possibly affect dexa test ?
"Dear George: I do not think that 3 weeks on Lupron is going to have any significant effect on the results of a dexa test, but you should really ask your doctor about this."
15 hours ago
Jan Manarite left a comment for John Cosgrove
"Thanks for the reports.  It's interesting - you seem to have a few things that don't match up.  The PSA of 18 is the most curious to me.  The prostate size per MRI is 44.9, which is not horribly enlarged, so the PSA of 18…"
15 hours ago
John Cosgrove left a comment for Jan Manarite
"PI-RADS Assessment Category: 2, Low (clinically significant cancer unlikely). Extra-prostatic extension (EPE): Does not abut capsule.   Seminal vesicle invasion: Not present.   URINARY BLADDER: Mildly trabeculated bladder wall likely on…"
16 hours ago
John Cosgrove left a comment for Jan Manarite
"  Age: 59 years PSA: 18.17 on 5/12/2017, 13.79 on 10/20/2016  Biopsy results: Outside prostate biopsy in 11/24/2015 demonstrated atypical glands suspicious for carcinoma.  Elevated PSA.  MRI of the pelvis with special…"
16 hours ago
Itzy Be'er replied to Als1234's discussion Reason for continuing Lupron after PSA is low
"Hi Al Deciding whether or not to stop ADT is significant regarding the course of your disease.You and your oncologist should consider the aggression of the disease (the GS score... - did you undergo a biopsy?)and other parameters like age and how…"
17 hours ago

Forum

Laetrile

Been reading how latetril might help fight cancer. Is this an alternative treatment to use instead of ADT and Radiation. Plus latetril is not FDA approved. Any thoughts about those?Gary eContinue

Started by Gary eichenlaub 3 hours ago.

Can being on lupron for one month possibly affect dexa test ? 1 Reply

Perhaps this is a foolish question but feel the need to ask.Wanted to have a dexa test as a baseline before adt started, but the machine broke and they needed to reschedule me, but did need to start the adt - had waited far too long after recurrence…Continue

Started by george. Last reply by E. Michael D. ("Mike") Scott 15 hours ago.

Reason for continuing Lupron after PSA is low 8 Replies

Hi,    I started Lupron treatment a little over two months ago and had my third injection earlier this week. My question is about the future but I'll give some background info first. I had Cyberknife in March 2015 and subsequently the PSA began…Continue

Started by Als1234. Last reply by Itzy Be'er 17 hours ago.

Biopsy Gleason 4 plus 4 after 10 years on AS 4 Replies

I have been on active surveillance for 10 years. I had acute prostatitis. then 2  months later had a biopsy; Sixteen samples taken, 15 were negative one positive Gleason of 4 plus 4.  First time in ten years that I have had a Gleason score above 3…Continue

Started by Rich Landi. Last reply by Rich Landi on Thursday.

Status 3 Replies

When bone and Axumin scans did not show anything that is causing my PSA to rise, I consulted a general oncologist in Gainesville. He explained that while the cancer probably is present in my body, it may be in micro forms, too small for the scan to…Continue

Started by Paul Burns. Last reply by Gary eichenlaub on Wednesday.

Time for a Change? 1 Reply

 "My latest journal entry titled "Wouldn't It Be Nice; A Whimsical Diversion" appears below: An extremely frustrating aspect of a PCa diagnosis has been the lack of consensus among the recognized experts. Most all practitioners including urologists,…Continue

Started by Don Oberlin. Last reply by Gary middleton on Tuesday.

 
 
 

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