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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

Thomas D. Wood updated their profile
3 hours ago
Thomas D. Wood left a comment for E. Michael D. ("Mike") Scott
"Hey Mike, i haven't written anything on this forum since 2012 but am needing a little advise as to what to do about my prostate condition. My old profile is under my name Thomas D. Wood if you can pull it up. My most recent psa has been April…"
3 hours ago
Randall Hanson left a comment for Jan Manarite
"Thank you Jan still trying to figure out how to navigate here. Doing well after the Surgery a month ago except for a UTI in the bladder. Final Diagnosis Prostate, transurethral resection: Adenocarcinoma, Gleason score 3 + 4 = 7 (Grade group 2),…"
6 hours ago
Jan Manarite left a comment for Randall Hanson
"Hi Randall - welcome.  One thing about finding prostate cancer on a TURP, is that it's found in the very center of the prostate called the transition zone, which is probably the best place to have prostate cancer.  Read more here -…"
6 hours ago
Randall Hanson is now a member of The "New" Prostate Cancer InfoLink Social Network
6 hours ago
E. Michael D. ("Mike") Scott replied to Jimmy Papas's discussion Update
"Dear Jimmy: Very few men get a significantly good response to abiraterone (Zytiga) + prednisone if their PSA has been rising when they were being treated on enzalutamide (Xtandi). There are very recent data to suggest that chemotherapy using…"
23 hours ago
Jimmy Papas posted a discussion

Update

Hi ,Update on my heath and need some guidance.Started Xtandi on the 15 th of March 2019 and  my PSA was 19 on July I also did my Lupron injection  and my doctor allowed me to go for summer vacation.Now that I am back I had another test and my PSA  now is 54. My scans showed less activity in the leg were I had radiation, the head spot is gone, sth behind the neck -new but less of concern . However,  the mass on the lower left lung doubled in size 2.8 cm .We decided to try a new pill. Abiraterone…See More
yesterday
E. Michael D. ("Mike") Scott left a comment for Jens A Jensen
"Hi Jens. So I note that your PSA seems to be creeping up slowly (now at 0.08 ng/ml) on the combination of Lupron + enzalutamide + tamoxifen. On the other hand, it is good to see that you are continuing to exercise hard and regularly (even if not at…"
yesterday
Jens A Jensen left a comment for E. Michael D. ("Mike") Scott
"I'm 61. Peak PSA was 29. Been on Lupron since the beginning. Extensive mets in pelvis, 1 rib, under lung. Don't know total count. CR is a guess as I went straight to docetaxel (6) and then enzalutamide. Had 8 months undetectable PSA but…"
Monday
E. Michael D. ("Mike") Scott left a comment for Jens A Jensen
"Welcome Jens. So what was your PSA level when you were diagnosed with mCRPC in 2018? Can you tell me the following: -- How many metastases were evident on your bone scan and CT scan at that time? -- How were you initially treated once you had become…"
Monday
Jens A Jensen is now a member of The "New" Prostate Cancer InfoLink Social Network
Monday
E. Michael D. ("Mike") Scott commented on Lynn Boccia's status
"Lynn: I see you have left three different status reports since Thursday, so I am going to deal with all of these here. OK? So first of all, the fact that the biopsy still showed some Gleason 3 + 4 = 7 is a little worrisome, BUT ... On the other…"
Monday
Don Oberlin left a comment for Jim Harshman
"Jim: You are in good hands with Mike and Jan both of whom are suggesting futher reseach before you proceed with surgery.  As part this effort you may find the following book by Bob Marckini  helpful: "You Can Beat Prostate…"
Monday
Lynn Boccia posted a status
"Dr said there was severe damage from treatment (radiation) As long as psa does not start to rise he is good. Next appt is Feb. ??"
Monday
E. Michael D. ("Mike") Scott left a comment for Jim Harshman
"Dear Jim: You APPEAR to have what is known as "favorable" intermediate-risk prostate cancer, and this would suggest you can take some time in coming to a good decision about what you want to do. Jan has already asked about your prostate…"
Monday
Ken replied to Ken's discussion PSA increase following surgery.
"Thanks for the encouraging words."
Sunday

Forum

Update 1 Reply

Hi ,Update on my heath and need some guidance.Started Xtandi on the 15 th of March 2019 and  my PSA was 19 on July I also did my Lupron injection  and my doctor allowed me to go for summer vacation.Now that I am back I had another test and my PSA…Continue

Started by Jimmy Papas. Last reply by E. Michael D. ("Mike") Scott 23 hours ago.

PSA increase following surgery. 2 Replies

I had prostate surgery 10 years ago.  For the first few years after surgery my PSA was "undetectable".  For the last couple of years, it has basically been on a slow increase.  In 12/17 my PSA was .16; in 4/18 it was .13; in 7/18 it was <.13; in…Continue

Started by Ken. Last reply by Ken on Sunday.

Does one wait for cancer to present itself or begin Androgen therapy 28 Replies

Please see my stats for details on my recurrent cancer.  After more than 4 PET scans at the Mayo in 2017, my oncologist said I should wait until my PSA has risen to 8 before getting another scan because the cancer remained undetectable.  Then in…Continue

Started by Tom Full. Last reply by Kate O'Hara Sep 30.

13 months Post OP 2 Replies

Hi I had my prostrate removed at MSK by Dr Eastham 8/16/18 He saw no spread of the disease My pre surgery PSA 4.6 f My Post Surgery PSA on 9/28/18 and 2/1/19 below .05 ng/ml. or non detectable. The only other PSA was recently for some reason 9/18/19…Continue

Started by keith gerety. Last reply by keith gerety Sep 27.

Treatment option for mCNPC - "ADT+ either Chemo or Zytiga"... Also, " Firmagon vs. Lupron" 2 Replies

Hi all, I hope you are well, or at least hanging in there!   My husband, age 67, has been recently diagnosed mCNPC, with metastasis to various areas of the skeleton.  He was advised to start on ADT, and eventually decide whether to do the chemo…Continue

Started by Kate O'Hara. Last reply by Kate O'Hara Sep 23.

newly diagnosed: This is where Im at after my second opinion 14 Replies

I was diagnosed after a truss biopsy done June 19th 2019 with the following findings : Intermediate pca, tc2, Gleason 7 favorable ( 3plus 4)12 cores were taken;  6 cores  were low  Gleason 6 (3 plus 3 ) One core was the Gleason 7 favorable (3 plus…Continue

Started by mark rettman. Last reply by mark rettman Aug 22.

 
 
 

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