"I started on ADT (Lupron) in August of 2018, being told that it would last two or three years. I learned that the standard of care in places other than the USA is often eighteen months, and engaged my medical oncologist in a conversation about…"
The "New" Prostate Cancer InfoLink Social Network
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Groups
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Nearing the End / Living…
28 members
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Exercise Central
37 members
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Androgen Deprivation The…
159 members
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For African-American Men
28 members
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Active Surveillance / Ex…
106 members
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WHAT'S THE POINT OF THIS SOCIAL NETWORK?
The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.
If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.
One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.
Latest Activity
"Hi Kathy - welcome. How long ago was your husband diagnosed? What can you tell us about your situation? We're here to help..."
John S. Farnsworth, PhD left a comment for E. Michael D. ("Mike") Scott"My PSA at diagnosis was 12, and my Gleason score was 8. I had 15 biopsies, 12 of which were positive. My diagnoses were T2B from radiation oncologist and T2C from urologist. I began hormone therapy in August of 2018, and radiation…"
"Welcome Dr. Farnsworth:
So it would help us to help you understand all your options and to talk to your options about these if you could answer some questions for us, as follows:
-- What is your age?
-- What was your PSA level at diagnosis?
-- What…"
"Hi Allen - I hear you. If you're in Sacramento, I would keep an eye on NASPCC or the CA PC Coalition. They did a conference in San Francisco in June, and may be planning another?
Also - UsTOO has some recorded events on their…"
Allen Green commented on Jan Manarite's event PCaI FREE Conf, (#4) for Patients & Caregivers"Just too far and too many such gatherings. Please look into how to present this information electronically so distance isn't such a problem.
Thanks. Allen"
"Hi Denny - welcome. How are you feeling overall? How is your PSA doing?"
"Understandable. Message me any time if you want to connect. If something changes by Nov 2, let us know..."
"Thank you for the invitation to the conference, but it is too far for us to travel. We have not yet seen a doctor to go over the Mri and Biopsy results. The waiting is so hard. Such is life. Take care, and thank…"
PCaI FREE Conf, (#4) for Patients & Caregivers at The Founders Inn (by Hilton)
November 2, 2019 from 8am to 5pm
"John:
The multiparametric MRI is what, in my opinion, as I have said, you should be asking about having before you have the biopsy, so that you can have an MRI/TRUS fusion-guided biopsy. The MRI can make the biopsy a great deal more accurate, but it…"
john wilson left a comment for E. Michael D. ("Mike") Scott"Thanks Mike.
Totally appreciate your wide and extensive knowledge on this matter, and therefor able to look at the situation from different perspectives. It takes so much time, to get a grasp of the situation, and weigh up all the factors.
I'm…"
Forum
newly diagnosed: This is where Im at after my second opinion 14 Replies
I was diagnosed after a truss biopsy done June 19th 2019 with the following findings : Intermediate pca, tc2, Gleason 7 favorable ( 3plus 4)12 cores were taken; 6 cores were low Gleason 6 (3 plus 3 ) One core was the Gleason 7 favorable (3 plus…Continue
Started by mark rettman. Last reply by mark rettman Aug 22.
Olaparib 3 Replies
A genetic analysis last summer showed that my PC had the BRCA2 genetic marker. Starting in the next 10 days or so I will be trying a course of Olaparib. Results of the TOPARP clinical trial are quite encouraging for those of us with this genetic…Continue
Started by David Grothe. Last reply by Steven Hess Aug 19.
Back to square one 5 Replies
Back to square one now. Feeling disappointed. After initial diagnosis in 2009 and subsequent Proton treatment, things were okay until 2016 when I chose HIFU to battle bio recurrence. Now in 2019 PSA is 5.5 again.I hardly know where to start now. The…Continue
Started by George. Last reply by E. Michael D. ("Mike") Scott Aug 19.
coming off testosterone therapy due to pca 1 Reply
I was diagnosed recently with Gleason 7 favorable... New doc at sloan kettering, he suggested a second mri and biopsy scheduled for early October and we can re assess re possible Active surveillanceafter l I get those results in oct... I was on…Continue
Started by mark rettman. Last reply by E. Michael D. ("Mike") Scott Aug 7.
Does one wait for cancer to present itself or begin Androgen therapy 27 Replies
Please see my stats for details on my recurrent cancer. After more than 4 PET scans at the Mayo in 2017, my oncologist said I should wait until my PSA has risen to 8 before getting another scan because the cancer remained undetectable. Then in…Continue
Started by Tom Full. Last reply by Tom Full Jul 11.
My rant on clinical trials 7 Replies
Any of us who've attempted to gain access to clinical trials are often surprised at the difficulty. I'm personally not qualified for almost all of them because I have hypothyroidism. Hypothyroidism is an auto immune disease. Most trials I've…Continue
Started by Tom Full. Last reply by Tom Full Jul 11.
About
Events
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ZERO PC Run/Walk Virginia
November 17, 2019 from 7am to 10am – 24th Street Park
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The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.
Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.
Information provided on this site should not be used for diagnosing or treating any health problem or disease.
The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.
Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.
Information provided on this site should not be used for diagnosing or treating any health problem or disease.
The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.
© 2019 Created by Arnon Krongrad, MD.
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