The "New" Prostate Cancer InfoLink Social Network

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The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.


Latest Activity

Jan Manarite left a comment for Kevin
"Hi Kevin and welcome.  Your surgery experience was really tough - so sorry to hear that.  These smaller sub-groups might be most helpful to you.  I know there are lots of other patients here you can connect with - either by posting on…"
14 minutes ago
Profile IconKevin, r hyman and William joined The "New" Prostate Cancer InfoLink Social Network
53 minutes ago
Jan Manarite left a comment for r hyman
"Hi r hyman - and welcome.... - How long ago were you diagnosed? - What are your main concerns about treatment? - What is your age?  How is your overall health?"
11 hours ago
Alan Kousen replied to Robert Nicholson's discussion Attended a 'survivors' meeting last week
"Thanks for the post. I have been fortunate to have doctors that DO talk about ED and sexual functionality. Recovery from ADT, I was told, is at least 3 months, could be longer depending how quickly the testicles start producing testosterone. …"
19 hours ago
Jan Manarite left a comment for William
"Hi William and welcome.  How can we help you?  What are your questions? What was your Gleason Score after RP?"
20 hours ago
Jan Manarite's event was featured

Prostate Cancer TODAY - Living Well; Choosing Wisely at Charlotte Harbor Event & Conference Center

March 4, 2017 from 9am to 5pm
In FLORIDA - A  1-Day Conference for PATIENTS & CAREGIVERS.  Come interact with Mike Scott, Jan Manarite, Dr Krongrad, and a full list of speakers and experts.Small Workshops, Large Sessions, and plenty of Q&A will make this conference a fun and positive learning experience.  The focus will be simply to serve…See More
20 hours ago
kenneth lippold replied to kenneth lippold's discussion info on xtandi
"thank you mike you always come throught ken"
Don Oberlin left a comment for Tom Streffel
"Tom: As part of your research effort you may find the following book by Bob Marckini  helpful: "You Can Beat Prostate Cancer..." His chapter on the advantages and disadvantages of several methods for treating PCa is usually of…"
Robert E. updated their profile
Jan Manarite left a comment for E. Michael D. ("Mike") Scott
"Tom - Good to talk to you.  Here are some next steps that might help you: (1) Gleason 6 is the best.  Read more here - (2) A Step By Step Program -…"
Tom Streffel left a comment for E. Michael D. ("Mike") Scott
"Are u still on site, Mike?"
Tom Streffel left a comment for E. Michael D. ("Mike") Scott
"T1c, two sixes and a seven. I'd have to go check my papers. 3 of 12 biopsies tested positive. The other nine were said to be precancerous."
Tom Streffel posted a status
"this is all a bit overwhelming at the moment. was diagnosed early Feb."
Tom Streffel posted a status
"I am not sure."
E. Michael D. ("Mike") Scott left a comment for Tom Streffel
"Welcome Tom. I see you are 61 years young (in addition to the info in your Profile above). It would acrtually jelp us to help you if you could answer just a few more questions, as follows: -- What was your PSA level at diagnosis? -- What was you…"
Profile IconTom Streffel and Robert E. joined The "New" Prostate Cancer InfoLink Social Network


Attended a 'survivors' meeting last week 1 Reply

I went to a presentation at Sutter Health last week.  There were about 40 people there, and I understand that this was the third time they've given this talk.The focus was on healthy lifestyle to minimize chances of recurrence, as well as ongoing…Continue

Started by Robert Nicholson. Last reply by Alan Kousen 19 hours ago.

info on xtandi 2 Replies

had my bone scan and body scan last wk cpsa went from .02 to today 3.2 psa, scan spot on lower right has doubled in size from 2014 to 1.2 in size everthing was all right, any info on XTANDI which he is starting me on when insur oks it.  the nurse…Continue

Started by kenneth lippold. Last reply by kenneth lippold yesterday.


I  stopped HT in May 2014 .I had my PSA tested on Sept 2016 and was 2. something I can't recall the exact number and now it is 16 .It has never gotten so high.I had seed implants followed from  radiation in 2006 and on Feb 2013 I started HT.What do…Continue

Started by Jimmy Papas. Last reply by E. Michael D. ("Mike") Scott on Tuesday.

My husband was newly diagosed 45 Replies

My husband has been diagnosed with PC Gleason score 3+4 7 psa 5.6.Small area on right side. We are waiting for results from nuclear report and then start to make decisions about treatment (surgery, radiation), etc. This is all the information we…Continue

Started by Lynn Boccia. Last reply by Lynn Boccia on Monday.

short-term ADT 24 Replies

What are side effects of SHORT-TERM ADT? I'll be on one three-month shot followed by radiation. Dr. says to expect hot flashes, loss of libido, and ED, which reverse at end of three months. Is this accurate? Any other side effects/risks I should be…Continue

Started by VLH. Last reply by Alan Kousen Feb 19.

Newly diagnosed need help PLEASE 4 Replies

My husband has just been diagnosed and we need all the information we can get. He is stage 4 we know it is in his lymph node and they are scanning his bones on the 23rd Doctor started him on Casonex and will have Eligard injection on the 23rd.we are…Continue

Started by Becky Livingston. Last reply by Becky Livingston Feb 15.





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