"Okie dokie. Only so much one has control over, but glad to hear you will be getting the monthly PSA tests."
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Agent Orange, Prostate C…
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Sexual Function, Penile …
94 members
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Prostate Biopsy and Othe…
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Androgen Deprivation The…
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WHAT'S THE POINT OF THIS SOCIAL NETWORK?
The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.
If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.
One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.
Latest Activity
"Morning Mike.
As predicted a decent frost here.......re P/Alex, unfortunately they had an Easter covid attack, nursing staff and a dr. Not taking any interstate patients for the immediate future but my name is on their books. My oncologist is with…"
"Michael:
1. With regard to the 64-year-old Croatian gentleman, I have no answer. All I ever saw was a case report of his diagnosis with the PSA level of 21,380 ng/ml. However, he also had a Gleason score of 9, multiple liver metastases, and multiple…"
"Hi Mike.
Update of recent activities: On 29/3, due to a developing skin rash, oncologist advised to stop taking the daily 50mg. Calutex pill. On 5/4th. I had blood tests, result, all pathology now within accepted limits however PSA has increased…"
"Ah ... Well that kinda depends on the following:
-- What is your current age?
-- What's your most recent PSA level?
-- How many biopsy cores were taken at that recent biopsy?
-- How many of those core were positive for cancer?
-- How many of…"
"Have been in active surveillance for two years. Recent biopsy shows area of Gleason 8. What are treatment otions available"
"Welcome Frank.
I see that you are 73 years young; that you have been treated for some form of prostate cancer with a combination of radiation therapy and andrpgen deprivation therapy (ADT, also known as hormone therapy); and that your PSA level is…"
"Welcome mnji.
So you don't mention either your PSA level at diagnosis or the number of positive biopsy cores relative to the total number of cores taken by your urologist, but it does sound as though you have unfavorable intermediate-risk…"
"Dee (and Bert):
Sounds like a plan to me!
Mike"
"We are grateful for your replies to our queries. We both feel lessening of anxiety. Bert used the Kaiser second opinion venue to lead to treatment out of Kaiser in 1997. I used it sometime ago for cancer treatment at Stanford. We will use it again…"
"Dee ... Given that you have Kaiser insurance, it may well be that your primary care physician can refer you to one of the doctors at UCSF for a second opinion and that it would be covered by Kaiser. You might want to call Kaiser to see if that is a…"
"Welcome Max.
I am not sure why you would be interested in treatments for prostate cancer if you don't have the disorder, but then I don't have the disorder either and I have been interested in it for 30+ years now.
The question that is…"
"Hi Dee ... We're here to help, but thank you for the feedback. I hope you and your husband can have many more years of happy life together.
If your husband is now 87 and his PSA has taken 10 years to rise from about 10 to about 21-23 ng/ml,…"
Forum
Anyone here down-staged by pathologist after RP 10 Replies
How many people have been down-staged after RP?Back in April, mpMRI suggested that I had some extraprostatic extension (EPE).After my RP, the pathologist didn't see any EPE, so I was down-staged (cT3a to pT2c).From my reading of the literature, it…Continue
Started by Tom Wimberly. Last reply by Baiba Hughes Mar 27.
Possibility of symptomatic bone metastasis with very low PSA 3 Replies
Had prostatectomy in 10/19. Post op pathology was PT3a, 4+3,EPE and PSM. PSA was 0.01 3 months after surgery. Urologist ordered Decipher because of adverse pathology, it came bask high risk. At 6 months post RP MY PSA was .03. Although still low we…Continue
Started by James R. Last reply by Baiba Hughes Mar 26.
Biopsy protocol -AS 12 Replies
Is there any consensus regarding the timing of biopsies for patients undergoing AS? I have been on AS since 2013. I’ve had 3 biopsies during that time, the first in 2012 showing only HGPIN, the second in 2013 showing 2/14 cores Gleason 3+3=6, and…Continue
Started by Don S.. Last reply by E. Michael D. ("Mike") Scott Mar 12.
Does one wait for cancer to present itself or begin Androgen therapy 55 Replies
Please see my stats for details on my recurrent cancer. After more than 4 PET scans at the Mayo in 2017, my oncologist said I should wait until my PSA has risen to 8 before getting another scan because the cancer remained undetectable. Then in…Continue
Started by Tom Full. Last reply by E. Michael D. ("Mike") Scott Mar 10.
EBRT and ADT 1 Reply
Are there any circumstances where external radiation could be used as mono therapy for PCa, without use of adjuvant or neo-adjuvant ADT?
Started by Don S.. Last reply by E. Michael D. ("Mike") Scott Mar 1.
Newly Diagnosed 3 Replies
Hi I am Char, my husband Mike age 75 was recently diagnosed with Prostate cancer, his psa is 81 Gleason score is 8 and stage 4 from what I understand. The Urologist put him on generic for Casodex for a month and ordered a complete bone scan which…Continue
Started by Mike Green. Last reply by E. Michael D. ("Mike") Scott Feb 6.
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Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.
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The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.
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