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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

E. Michael D. ("Mike") Scott left a comment for Jimmy mccumber
"No problem Jimmy ... Glad to be of help."
21 hours ago
E. Michael D. ("Mike") Scott left a comment for Don Oberlin
"Don: Just go to my page and then click on "Send a message" in the left-hand column under my photo."
21 hours ago
Jimmy mccumber left a comment for E. Michael D. ("Mike") Scott
"Thank you for your imput. It helps hearing I'm on the right track. I have a cat scan on Monday. Will keep you updated."
23 hours ago
E. Michael D. ("Mike") Scott left a comment for PATRICK PRENTICE
"Welcome Patrick. I believe you said that you were 70 years of age when you logged in. Is that correct? When it comes to the diagnosis and treatment of localized prostate cancer (which is what you are most likely to have been diagnosed with), it is…"
yesterday
Don Oberlin left a comment for E. Michael D. ("Mike") Scott
"Mike: Would you be kind enough to reinstruct me on how to communicate with  you privately?"
yesterday
Profile IconPATRICK PRENTICE and Jimmy mccumber joined The "New" Prostate Cancer InfoLink Social Network
yesterday
E. Michael D. ("Mike") Scott left a comment for Jimmy mccumber
"Jimmy: Thank you for the correction about your age being 73 and not 63. My mistake. So your low PSA level may be a signal of more aggressive prostate cancer, but the Gleason score of 9 in two biopsy cores does indicate this already. I understand you…"
yesterday
Jimmy mccumber left a comment for E. Michael D. ("Mike") Scott
"I had a 22cm dedifferianted liposarcoma removed in March of this year. The doctors are not soure if the lesions in mt spine are from the prostrate, sarcoma, or just artheritis so plan to do another biopsy. I was referred to MD Anderson where they…"
yesterday
SCOTT STEPHENSON left a comment for E. Michael D. ("Mike") Scott
"yes, I do hope the urologist was perhaps exaggerating a bit :)"
yesterday
Todd left a comment for E. Michael D. ("Mike") Scott
"Oh I agree with you certainly.  I think he is being very careful and very thorough.  I'm just impatient to have the biopsy over with.  Looking forward to having a plan to deal with whatever's wrong!  This has been …"
yesterday
E. Michael D. ("Mike") Scott left a comment for SCOTT STEPHENSON
"Hmmm ... Well at a rough estimate (because the shape of the prostate doesn't really approximate to a sphere -- or anything like), that suggests that your prostate is probably of the order of 90 cc. It's hard to know whether a prostate of…"
yesterday
E. Michael D. ("Mike") Scott left a comment for Todd
" I understand about the "delay" in getting the biopsy done, but try to be patient. If you are having such significant problems emptying your bladder, it is very possible that there is a small amount of non-aggressive cancer…"
yesterday
RobC updated their profile
yesterday
SCOTT STEPHENSON left a comment for E. Michael D. ("Mike") Scott
"Mike, I copied this report on the size of my prostate from my CT scan report: PELVIS: Enlarged, irregular prostate gland measures 5.6 x 6.1 x 5.1 cm (AP by LR by SI) with resultant mass effect on the urinary bladder base. No pelvic lymphadenopathy.…"
yesterday
Todd left a comment for E. Michael D. ("Mike") Scott
"I agree with you, Mike.  I would have preferred an MRI Guided biopsy but it's either insurance or the fact that this was my first biopsy with him.  I'm just glad he mentioned it as a possibility the next time.  I am also…"
yesterday
E. Michael D. ("Mike") Scott left a comment for Judy Marchand
"Hi Judy ... Good ... That sounds like a plan!"
Tuesday
E. Michael D. ("Mike") Scott left a comment for rb
"RB: OK. Thanks for the additional info. So we can plug all of these data into the Kattan post surgical nomogram, which than spits out the following projections: -- Probability of biochemical progression-free survival at 2 years, 95% -- Probability…"
Tuesday
E. Michael D. ("Mike") Scott left a comment for SCOTT STEPHENSON
"Scott: That kinda depends on how big the prostate is to begin with, and on other factors (because men tend to demonstrate a range of responses to LHRH agonist therapy). A "normal" prostate is about the size of a walnut and is around 45 cc…"
Tuesday
E. Michael D. ("Mike") Scott left a comment for Todd
"Hmmm ... Seems kinda weird to me not to just do the MRI-guided one immediately ... but that may present insurance coverage problems."
Tuesday
E. Michael D. ("Mike") Scott left a comment for Jimmy mccumber
"Welcome Jim. I note that you are 63 years of age (in addition to the info provided in your profile above). I think things will come into much greater focus once there is some certainty about whether your possible bone metastases are or are not…"
Tuesday

Forum

My Husband's journey with prostate cancer 5 Replies

He was diagnosed at the age of 51 - 12 years ago.  Radical ProstatectomyRadiation TherapyLupron Injections for 8 yearsExtensive bone mets found on bone scanHas had nearly every treatment possible…Continue

Started by Hollis Derrick. Last reply by E. Michael D. ("Mike") Scott on Sunday.

Cyber knife vrs RPT 1 Reply

Been a while since I posted. Last week my brother was found to have prostate cancer gleason 3+4 same as me and the same age as when I found out 65. He is thinking about cyber knife radiation, is…Continue

Started by george wilson. Last reply by E. Michael D. ("Mike") Scott Jul 23.

newly diagnosed with PC 22 Replies

I am 54 years old. I was diagnosed last week with PC. T2C. Gleason score of 3+3 =6. 12 cores, 5 positive, three cores at 2-5% and 2 around 10%.PSA at time of diagnosis was 3.5. I was diagnosed with…Continue

Started by Mark M. Last reply by E. Michael D. ("Mike") Scott Jul 21.

Petition to test Salvestrols

I have started a petition on WhiteHouse.gov for conducting clinical trials on Salvestrols, a potential cure for cancer. The link to the petition is here…Continue

Started by David Grothe Jul 18.

Cancer Forums . Net 25 Replies

Hi all,My husband was diagnosed last week and we have our first post-biopsy doctor's appt today. We'd like to go to the appt as prepared as possible. To that end I posted a question about low-PSA…Continue

Started by Melaine. Last reply by E. Michael D. ("Mike") Scott Jul 15.

Salvestrols Against Hormone Refractory Prostate Cancer 482 Replies

Salvestrols have been discovered by the same scientists that discovered Abiraterone, hailed as the new wonder drug for the treatment of advanced metastatic castrate resistant prostate cancer.…Continue

Started by Prof Gerry Potter. Last reply by Don Cave Jul 14.

endorectal mri 13 Replies

Anybody know anything about the endorectal MRI and its utility as a diagnostic tool?   Friend of mine had prostate cancer twelve years and went to St. Louis to have that procedure.   I read something…Continue

Started by Cliff Forbes. Last reply by Melaine Jul 14.

Reading the Pathology Report 1 Reply

Hi all,At our first post-diagnosis consult, DH's urologist told us that the one cancerous core sample was 50% cancer. When we look at the actual pathology report, however, we see two different…Continue

Started by Melaine. Last reply by Melaine Jul 14.

Is cancer in the prostate ever NOT prostate cancer? 2 Replies

After I told a dear friend (who is a nurse) about my DH's prostate cancer diagnosis, she asked whether there was any discussion that this was not the primary site. We've all just been talking about…Continue

Started by Melaine. Last reply by Melaine Jul 12.

Low PSA (1.7) with Gleason 7 6 Replies

Hi.  This is my first post and am hoping someone out there has info or insight to share regarding my husband's numbers, which seem unusual.  Here is the impt info:Diagnosed several days ago, age…Continue

Tags: low-PSA

Started by Melaine. Last reply by Melaine Jul 9.

 
 
 

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