The "New" Prostate Cancer InfoLink Social Network

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The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.


Latest Activity

Alan Kousen replied to LovingWife's discussion Im a pissed selfish wife. I don't want to be but I am.
"All options should be thoroughly discussed, especially when there are quite a few side effects which make recovery a challenge. I agree with your "barbaric" comment of surgery- too often the default. Im now 5 months since my last radiation…"
44 minutes ago
Lalo61 replied to LovingWife's discussion Im a pissed selfish wife. I don't want to be but I am.
"As a man, 11- years post RP surgery, I welcome the wives and significant others who can be as honest as you. It is not selfish, it is being real and that is the only way you can have a chance for a possible solution."
14 hours ago
E. Michael D. ("Mike") Scott left a comment for Tony Crispino
"Tony: Would you do me a favor and look at the page for Aaron Hummel when you get a chance. He's just been diagnosed at age 42 and needs to talk to someone else who got diagnosed at an early age -- inevitably I thought of you! (Sorry!) :O) Mike"
16 hours ago
E. Michael D. ("Mike") Scott left a comment for Aaron Hummel
"Aaron: People who get diagnosed at your age are not common, but they are far from unheard of. I suggest you get in touch with Tony Crispino in Nevada. He was diagnosed in his mid 40s with a similar situation to yours ... and he is now the patient…"
17 hours ago
Jan Manarite left a comment for Shelly Atakan
"Hi Shelly, and welcome.  How can we help you?  What questions do you have?..."
17 hours ago
Profile IconShelly Atakan and Aaron Hummel joined The "New" Prostate Cancer InfoLink Social Network
17 hours ago
Aaron Hummel left a comment for Aaron Hummel
"Hi Mike, Yes, you are exactly right. I'm 1 week into my first Lupron shot, and ended up useless on the couch all day yesterday with a migraine, even to the point of mausea. I don't ever get migraines. I'm trying to figure out if…"
21 hours ago
E. Michael D. ("Mike") Scott left a comment for Aaron Hummel
"Welcome Aaron. I see you are just 42 years of age. Am I correct that you have been diagnosed with an  aggressive form of prostate cancer and that, post-surgery, the ADT is being given in advance of adjuvant radiation therapy? How can we be of…"
Donna joined Kathy Meade's group

Nearing the End / Living with Grace

We all want to have a quality death. It is something that everyone will face some day. Often it is a topic that is difficult to discuss. Studies have shown that education makes the transition easier. This is a place to discuss those difficult issues
Jan Manarite left a comment for Bob Woodard
"Hi Bob - welcome.  There are lots of other men in this network who have dealt with side effects from surgery.  You might try searching the network (top right), or joining one of these smaller subgroups which you can find on the Left…"
Bob Woodard is now a member of The "New" Prostate Cancer InfoLink Social Network
Don Oberlin left a comment for Larry Lehr
"Larry: I suspect you are a good candidate for AS, nevertheless, based on my experience, I suggest you: --Closely monitor your PSA, i. e., minimum blood draws every three months or better yet monthly until you establish a clear record of…"
Jan Manarite left a comment for Larry Lehr
"Hi Larry - welcome.  You may be interested in our Active Surveillance Support Group.  We're doing conference calls or webinars, connecting men who are new to AS or have questions about AS, with mentors who have been on AS for years -…"
Larry Lehr is now a member of The "New" Prostate Cancer InfoLink Social Network
lyn mckee posted a status
"Thanks Jan for your great information on specialty pharmacies. Eric would not have Zytia without that information."
lyn mckee updated their profile


Im a pissed selfish wife. I don't want to be but I am. 12 Replies

Well I should just rename myself angry pissy wife. I don't want my husband to just go into the treatment of standard medicine. Frankly I'm viewing it as barbaric. He is 64 (I'm 54) with a Gleason 9 tc2 we are waiting on MRI so could move to t3. PSA…Continue

Started by LovingWife. Last reply by Alan Kousen 44 minutes ago.

Radiation treatments 6 Replies

Greetings all, I am a male, 67 years old, diagnosed with prostate cancer in August 2012, psa 29, gleason 7, confined to the prostate, and in December 2012 completed 45 treatments of EBRT. PSA remained low (.5 with slight variations up and down…Continue

Started by Douglas Moore. Last reply by Douglas Moore Nov 28.

My husband was newly diagosed 100 Replies

My husband has been diagnosed with PC Gleason score 3+4 7 psa 5.6.Small area on right side. We are waiting for results from nuclear report and then start to make decisions about treatment (surgery, radiation), etc. This is all the information we…Continue

Started by Lynn Boccia. Last reply by E. Michael D. ("Mike") Scott Nov 22.

Comprehensive Erectile Dysfunction Survey

If you are a man, suffering from Erectile Dysfunction, we would sincerely appreciate 10-15 minutes of your time. We are conducting a comprehensive study of how erectile dysfunction impacts men and their partners.This is an important study that we…Continue

Started by Robert Nicholson Nov 2.

Cyberknife treatments 2 Replies

Hi AllI begin my 5 days of cyberknife next month. How should I expect to feel after day 3 ? Will I have enough energy to work a 8 hour desk job plus commute by train .. I'm healthy and 61 years oldbestDanContinue

Started by dan dwyer. Last reply by Robert Nicholson Oct 26.

PSA 5 Replies

Well, I could not wait until April so I took my PSA test last week. I was mentally prepared to see a rise in the PSA from .07 in Jan (0.05 in Oct 15) but lo and behold it remained the same, 0.07, so the next test is in July. I guess Mike may be…Continue

Started by Howard Ross. Last reply by E. Michael D. ("Mike") Scott Oct 18.






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