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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

Guy B. Meredith replied to Guy B. Meredith's discussion Short course ADT side effects?
"The injection was Lupron, no preceding treatment.  As far as I know I haven't had any symptom of testosterone flare, but if I understand correctly that may not be for another week yet.  I haven't seen symptoms described anywhere.…"
yesterday
E. Michael D. ("Mike") Scott left a comment for Sara E
"Welcome Sara. I am sorry to hear about your father's diagnosis. Do you know the degree of metastasis that your father has? For example, does he have a single metastatic site or multiple sites? Are they all in his bones or does he have some…"
yesterday
Profile IconSara E and David Bunker joined The "New" Prostate Cancer InfoLink Social Network
yesterday
E. Michael D. ("Mike") Scott left a comment for David Bunker
"Welcome David. So what is your PSA level now, nearly 6 months after the RP? Has your doctor talked to you about the potential need for follow0up radiation therapy to minimize risk for recurrence?"
yesterday
E. Michael D. ("Mike") Scott replied to Guy B. Meredith's discussion Short course ADT side effects?
"Guy: One thing that you can do to keep reminding your penis what it is like to have an erection is use a vacuum erectile device (VED) to stimulate "erections" while you are on the ADT. The VED can help to lower the risk for loss of…"
yesterday
Guy B. Meredith replied to Guy B. Meredith's discussion Short course ADT side effects?
"I had my first injection last Wednesday and am dithering over whether I am feeling any effects or just tired, etc. Does anyone actually have symptoms during the testosterone flash? Just a bit off subject, one concern I have is that I understand the…"
Tuesday
E. Michael D. ("Mike") Scott replied to Guy B. Meredith's discussion Short course ADT side effects?
"Hi Guy. Unfortunately there is no one good anser to your question. I know og men who -- over the course of 6 months -- never suffered a single side effect that could be specifically tied to their being on ADT. Conversely, I know of men who had hot…"
Tuesday
E. Michael D. ("Mike") Scott left a comment for DB
"Hi Jude ... and Dan: No I am not specifically familiar with the "How to Starve Cancer" protocol that you mention (which I understand is based on a book by a patient called Jane McLelland). The problem is that there are literally thousands…"
Tuesday
Guy B. Meredith posted a discussion

Short course ADT side effects?

New question. I am doing 1 month + 1 month + 4 month Lupron with 5 1/2 (?) weeks high dose IMRT beginning at 8 weeks into ADT.For those who experience side effects of ADT in the short course, what is the timing and sequence of the side effects. That is when does loss of libido, hot flashes, ED show up?See More
Tuesday
Kate O'Hara commented on Kate O'Hara's status
"Hi Mike,   Thank you for your comment.  It was reassuring to know that his PSA at 11, if stable, is good.  It is also helpful to understand that it will eventually rise and that is when other treatments will be make available.…"
Monday
DB left a comment for E. Michael D. ("Mike") Scott
"Thanks so much Mike--and yes, 2019 was a crazy time that has left us all with some PTSD.  I will ask about SpaceOar.  Are you familiar with the "How To Starve Cancer" off-label drug protocol for Prostate Cancer? It is very…"
Sunday
E. Michael D. ("Mike") Scott left a comment for Dave G
"Welcome Dave. I see that -- in addition to the information in your profile above -- you are 69 years young. Everything you have itemized above would seem to suggest that, if your PSA level is less than 10 ng/ml, you are a very good candidate for…"
Sunday
Profile IconDave G and DB joined The "New" Prostate Cancer InfoLink Social Network
Sunday
E. Michael D. ("Mike") Scott left a comment for DB
"Hi Jude ... and Dan. So the weight loss is undoubtedly a good thing ... although the previous 9 months seems to have been a little unnerving for all concerned. On a formal basis, Dan actually has high-risk (but not very high-risk) prostate cancer…"
Sunday
DB left a comment for E. Michael D. ("Mike") Scott
"Hi Mike--thank you for reaching out. This is Jude, Dan's wife. Dan's PS is aggressive, med/high risk. Gleason score is 8. He had his prostate biopsy May 17, 2019, and developed an infection with sepsis, was hospitalized for 8 days, left…"
Saturday
E. Michael D. ("Mike") Scott left a comment for DB
"Welcome DB. I see you are relatively young at just 57 years and you appear to have been diagnosed with either intermediate- or high-risk prostate cancer (although you don't mention your Gleason score, which would help to clarify your risk…"
Saturday

Forum

Short course ADT side effects? 4 Replies

New question. I am doing 1 month + 1 month + 4 month Lupron with 5 1/2 (?) weeks high dose IMRT beginning at 8 weeks into ADT.For those who experience side effects of ADT in the short course, what is the timing and sequence of the side effects. That…Continue

Started by Guy B. Meredith. Last reply by Guy B. Meredith yesterday.

Anyone having to continue self-cathing after RP?

I have to self-cath 4-5 times per day due to a back injury that caused nerve damage and shut down my bladder. Scheduled for RP in 3 weeks. Dr. says after RP, I will keep cath in for 4 weeks to ensure all is healed because I will be poking my urethra…Continue

Started by Lee Feb 20.

How aggressive are these numbers? 21 Replies

My PSA was <0.1 in March 2011, <0.1 in September 2011, 0.1 in March 2012, <0.2 in May 2012 (tested by GP), and 0.3 in August 2012 (again tested by the same GP).  How aggressive is that increase?Continue

Started by Arthur Rollins. Last reply by MARY MCCANN Feb 13.

Salvage radiation after salvage radiation 3 Replies

Has anyone had a second bite of the cherry with radiation?Continue

Started by Greg Rutherford. Last reply by E. Michael D. ("Mike") Scott Feb 12.

Does one wait for cancer to present itself or begin Androgen therapy 36 Replies

Please see my stats for details on my recurrent cancer.  After more than 4 PET scans at the Mayo in 2017, my oncologist said I should wait until my PSA has risen to 8 before getting another scan because the cancer remained undetectable.  Then in…Continue

Started by Tom Full. Last reply by E. Michael D. ("Mike") Scott Feb 7.

Lupron shots 2 Replies

Yesterday was 2 yrs since my RP; I had 39 Radiation treatments & 4 Lupron (6 month versions) shots. I'll have my last in a few weeks. My PSA<.1 I'm curious if there is any information on someone being on lupron for more than 2 yrs

Started by Ricky Scott. Last reply by Diane Winston Jan 24.

 
 
 

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