The "New" Prostate Cancer InfoLink Social Network

A Service of Prostate Cancer International

NOW ON TWITTER / FACEBOOK

Follow The "New" Prostate Cancer InfoLink news blog with TWITTER or FACEBOOK.

CHECK OUT OTHER WEB SITES

Visit these links on other Prostate Cancer International web sites:

"LET'S TALK ..." VIDEO SERIES
THE DAILY NEWS BLOG
CORE PROSTATE CANCER ARTICLES
ASK ARTHUR or ASK AMY

Photos

Loading…
  • Add Photos
  • View All

Videos

  • Add Videos
  • View All
 

WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

Jan Manarite replied to george's discussion Is getting second opinions on scans recommended - related to recurrent situations ?
"George - I believe insurance covers 2nd opinions for re-reading imaging (or "over-reading"), but I'm not completely sure, and things do change from time to time.  But a CT scan is one of the most familiar types of imaging…"
12 hours ago
george posted a discussion

Is getting second opinions on scans recommended - related to recurrent situations ?

Have any of you found it helpful or important to get second opinionson imaging results of  bone scans or ct scans, especially related to those with recurrent or advanced pca ?I realize that any imaging or analysis of those images  can be wrong, giving  false negatives or positives, and  know there are thousands of stories in general about people who started treatments who did not need to or people who did not start treatment who should have, in the case where the scan results were wrong (as…See More
13 hours ago
E. Michael D. ("Mike") Scott commented on Howard Ross's status
"Bien!"
16 hours ago
Howard Ross posted a status
"PSA test results for July 19 is .06, down from .07 in March, and .07 in January. Next test day is November."
yesterday
E. Michael D. ("Mike") Scott left a comment for Gary Barker
"Dear Gary: While I entirely understand your desire to find a form of treatment that is less likely to have significant side effects that "orthodox" therapies, I have to tell you that there is no evidence whatsoever that such treatments (on…"
yesterday
Gary Barker left a comment for E. Michael D. ("Mike") Scott
"Surgery, Radiation, Chemo, Hormone Therapy are all  "orthodox" medicine. What are your thoughts on alternative treatment such as  Cesium Chloride Protocol, Proton Therapy, or  High RF Frequency Protocol?"
yesterday
E. Michael D. ("Mike") Scott left a comment for Judson Carpenter
"Judson: You need to understand that an elevated PSA level is caused only by the leakage of PSA out of the prostate and into the bloodstream, and almost any disorder of the prostate can cause this to happen. The two other most obvious things that…"
Thursday
Gary Barker left a comment for E. Michael D. ("Mike") Scott
"Thank you for the quick response and the helpful info.  I will get back with you after results of PET scan for further evaluation and expertise.  Thanks again for all you do!"
Thursday
Judson Carpenter left a comment for E. Michael D. ("Mike") Scott
"Thank you so much for the response. Can you tell me what would cause PSA level to climb and free PSA to be low if no infection and no BPH?"
Thursday
E. Michael D. ("Mike") Scott replied to Clifton Simpler's discussion Not sure
"Dear Tory: I am so very sorry to hear that this has happened to you ... and to your husband too. Prostate cancer can do horrible things to men's minds because some of us are so biologically tied to a self-perception as sexual animals that is…"
Thursday
E. Michael D. ("Mike") Scott left a comment for Gary Barker
"Dear Gary: With a Gleason score of 4 + 4 = 8 in 85% of one of your biopsy cores, 10 other positive biopsy cores, and a PSA level of 12.9, I am sorry to have to tell you that you have high-risk prostate cancer which, at your age, is going to need…"
Thursday
E. Michael D. ("Mike") Scott left a comment for Judson Carpenter
"Welcome Judson. So there are many possible reasons why a man of your age might have an elevated PSA level like this. Prostate cancer is far from being the most common  of these reasons. Having said that, any man with a family history of…"
Thursday
Judson Carpenter is now a member of The "New" Prostate Cancer InfoLink Social Network
Thursday
Gary Barker left a comment for E. Michael D. ("Mike") Scott
"Biopsy Results: *51 *T1C *12 cores with 11 positive *L Lat Base 4+3=7...95% *L Lat Mid 4+4=8...85% *L Lat Apex 4+3=7..70% * LBase 4+3=7...50% *L Mid 4+3=7..45% *LApex 4+3=7...78% *R Mid 4+3=7...70% *R Apex 3+3=6...12% *R Lat Base 3+4=7...40% *R Lat…"
Thursday
Shaun Smith left a comment for Greg H
"Hi Greg,              Sorry to see you joining our ranks, but this is a great site for information and Mike has been a great help to myself with advice and a listening ear when I was 1st…"
Thursday
Don Oberlin left a comment for Ken
"Ken: As part of your research effort you may find the following book by Bob Marckini  helpful: "You Can Beat Prostate Cancer..." His chapter on the advantages and disadvantages of several methods for treating PCa is usually of…"
Wednesday
Tory replied to Clifton Simpler's discussion Not sure
"He left me and we are getting divorced. Said he doesn't know why but after 31 years I am devasted"
Wednesday
E. Michael D. ("Mike") Scott left a comment for Greg H
"Greg: Shaun's in England so he's at least 5 hours ahead of you. I should have mentioned that. He'll probably get back to you in "his" morning tomorrow."
Wednesday
E. Michael D. ("Mike") Scott left a comment for Ken
"Hi Ken. So surgeons are always going to tell young men like you that they need to have surgery immediately. Whether you really do or not (because you certainly appear to have low-risk prostate cancer) is very debatable. And before you actually…"
Wednesday
Ken left a comment for E. Michael D. ("Mike") Scott
"Hi Mike, A little more information that you asked about: Age 44 PSA - 3.7 in Jan 2016 and jumped to 4.7 in June 2016 My father was diagnosed with prostate cancer at age 65 DRE found nothing, but the rising PSA was the clue to go to Urologist (same…"
Wednesday

Forum

Is getting second opinions on scans recommended - related to recurrent situations ? 1 Reply

Have any of you found it helpful or important to get second opinionson imaging results of  bone scans or ct scans, especially related to those with recurrent or advanced pca ?I realize that any…Continue

Started by george. Last reply by Jan Manarite 12 hours ago.

Not sure 9 Replies

Not sure that with the surgery being a failure that the radiation will be any different. Just putting my body through more hell with the same results seems pointless to me. Need good trusting advice…Continue

Started by Clifton Simpler. Last reply by E. Michael D. ("Mike") Scott on Thursday.

Update 4 Replies

So a few months in to treatment and wanted to give an update. Had a Lupron injection on 5-16...so my PSA has declined from 658 on 3-23, started Casodex on 4-11 and by 4-25 had dropped to 110, by 5-16…Continue

Started by Greg H. Last reply by E. Michael D. ("Mike") Scott on Wednesday.

SBRT finished. PSA up 5 Replies

I finished Cyberknife on January 14, 2016.  PSA at start of treatment (1/4/16) was 4.2.  PSA in August 2015 was 4.0. My Gleason scores are as follows: one core left-Gleason 3+3 @ 7%, and one core…Continue

Started by Mark Harnet. Last reply by Mark Harnet on Monday.

Labs 2 Replies

Got the results from 7/15/2016 labs.Total PSA dropped to 8.68 from 10 and Free PSA% increased. Last July the Free PSA% was 13.6%, in January it was 16.1% and now it is 18%.Not sure of the reason. I…Continue

Started by JWRHN. Last reply by JWRHN on Monday.

Biopsy 2 Replies

Some info for those who may be apprehensive about a biopsy without being "put to sleep."  The first one I had was under anesthesia.   I just had a confirmatory TRUS biopsy but was awake for the…Continue

Started by Cliff Forbes. Last reply by Cliff Forbes Jul 11.

PSA Doubling Time 1 Reply

Last radiation treatment for Prostate cancer completed April, 2008.  No hormone therapy received.  Gleason 6 - tumor on both lobes of prostate.PSA gradually went down with exception of one bounce…Continue

Started by A. Taylor. Last reply by E. Michael D. ("Mike") Scott Jul 2.

How to post anonymously 1 Reply

How can I ask question without revealing my name?Continue

Started by A. Taylor. Last reply by E. Michael D. ("Mike") Scott Jul 2.

Brachytherapy Vs Removal Outcomes 3 Replies

Mike, I fired my first Urologist. My Gleason is 6 in 4 areas/both sides/2b. I have a new doctor. I am only 53, recommendation was removal, best chance for long term health.  I am referred to a…Continue

Started by John Kiraly. Last reply by Francis X. Talbot Jun 19.

should he avoid treatment? 4 Replies

Husband is scheduled for ADT & radiation treatments. After following a plant based diet for 3 months, the last PSA test showed a 1.1 point decrease. Can this go lower with diet choices and can it…Continue

Started by Concerned. Last reply by E. Michael D. ("Mike") Scott Jun 19.

 
 
 

About

Top Rated

Prostate Cancer International is a non-profit for 2012 as rated by Great NonProfits.

Need InfoLink cards?

GENERAL DISCLAIMER

The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.

Information provided on this site should not be used for diagnosing or treating any health problem or disease.

The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.

Events

© 2016   Created by Arnon Krongrad, MD.   Powered by

Badges  |  Report an Issue  |  Terms of Service