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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

Jan Manarite posted an event
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ZERO Run/Walk-Virginia (Hampton Roads) at 24th Street Park

November 18, 2018 all day
Check Race website for hours (starts at 7:00 am).  Email races@zerocancer.org with any questions.https://support.zerocancer.org/site/TR?pg=informational&fr_id=1643&sid=1022#race-day-faqSee More
13 hours ago
JorD replied to JorD's discussion PNI in otherwise very favorable RP Path Report
"Thanks Mike!  "
20 hours ago
Alvin John Ernst updated their profile
yesterday
Jan Manarite's event was featured
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Register Now! PCaI Conf in VA Bch, VA at Holiday Inn VA Bch-Norfolk

October 13, 2018 from 8am to 5pm
Register Now!!   at - www.tinyurl.com/Oct13conf                  Saturday, Oct 13th at the Holiday Inn VA Bch-Norfolk …See More
yesterday
E. Michael D. ("Mike") Scott replied to JorD's discussion PNI in otherwise very favorable RP Path Report
"Dear JorD: The presence of a small amount of PNI in a tumor like this which is otherwise favorable and has not extended into the surrounding tissue or into the seminal vesicles is probably no big deal at all swince it is likley that all of the…"
yesterday
E. Michael D. ("Mike") Scott left a comment for Scot Tob
"Dear Scot: Let me see if I can make what I am saying a little clearer for you. (1) I understand that you had one out of 12 biopsy cores that contained Gleason 3 + 4 = 7 prostate cancer and that there was 16 mm of tumor in that core. (2) Your other…"
yesterday
E. Michael D. ("Mike") Scott replied to Alan Kousen's discussion Why do doctors recommend surgery when biopsy is 3+3 in only 1 of 12 samples?
"You are duly forgiven! :O)"
yesterday
JorD posted a discussion

PNI in otherwise very favorable RP Path Report

John ultimately opted for radical prostatectomy surgery- "just cut it out" - after considering radiation or active surveillance ( as an Agent Orange exposed Vietnam Veteran which is sometimes indicative of more aggressive PC, didn't embrace that course) , - and had it robotic assisted lap method 2 weeks ago. Good new in verbal from Dr 4 days post op was that "margins clear, negative for cancer in dissected lymph nodes" I recently got my hands on printed Path report and note that Gleason score…See More
Wednesday
Jan Manarite left a comment for Teri
"Hi Teri - welcome.  We're here to help.  Has anyone told you yet that every prostate cancer is different?  If you can answer some of these questions, it will help us to help you: - What was the Gleason score from biopsy? - How…"
Wednesday
Teri is now a member of The "New" Prostate Cancer InfoLink Social Network
Wednesday
Scot Tob left a comment for E. Michael D. ("Mike") Scott
"I'm not sure I fully understood the question about the binding percent on the Gleason 4 score (here is 3+4=7) and not sure the doctor last night fully answered the question.  He iterated that the tumor involvement was in 4 of the 5 cores…"
Wednesday
Alan Kousen replied to Alan Kousen's discussion Why do doctors recommend surgery when biopsy is 3+3 in only 1 of 12 samples?
"OOOPS- Not this site..... Its the facebook page called "Prostate Cancer Support Group'.....that is responsible for my negative attention!  THIS is is an excellent resource which I enjoy and mention to others. Alan"
Monday
E. Michael D. ("Mike") Scott left a comment for Ciara RAGINEL
"OK. ... Just remember that if you have any questions that we might be able to help with, that's what we are here for."
Monday
E. Michael D. ("Mike") Scott left a comment for Scot Tob
"Scot: do make sure to ask your urologist what percentage of your single core of Gleason 3 + 4 is actually Gleason pattern 4. It is bound to be less than 50%, but if it is only 5% as opposed to 45% that might have an effect on your decision aboyt…"
Monday
E. Michael D. ("Mike") Scott replied to Alan Kousen's discussion Why do doctors recommend surgery when biopsy is 3+3 in only 1 of 12 samples?
"Hi Alan. So I am sorry you feel that our "main function" is to "post horror stories". The way we see it is that or main function is to help people from experiencing poor care in the first place by helping them to understand that…"
Monday
E. Michael D. ("Mike") Scott left a comment for Danny Hall
"OK. That sounds appropriate given your specific diagnosis. How are you doing with recovery post-radiation?"
Monday

Forum

PNI in otherwise very favorable RP Path Report 2 Replies

John ultimately opted for radical prostatectomy surgery- "just cut it out" - after considering radiation or active surveillance ( as an Agent Orange exposed Vietnam Veteran which is sometimes indicative of more aggressive PC, didn't embrace that…Continue

Started by JorD. Last reply by JorD 20 hours ago.

Why do doctors recommend surgery when biopsy is 3+3 in only 1 of 12 samples? 5 Replies

I belong to a facebook group called "Prostate Cancer Support Group" and it is very discouraging to see most posts come from men who have been told to have surgery even though the PSA is less than 10 and GL is 6. What is going on? The new…Continue

Started by Alan Kousen. Last reply by E. Michael D. ("Mike") Scott yesterday.

Hello 58 Replies

I am new to site after being recommended by a friend. I was diagnosed with prostate cancer from my biopsy results from yesterday. All of them had some % of cancer in them. All were 3+4=7 except 1 which was 4+3=7 and a couple had some nerve…Continue

Started by Kevin Tepper. Last reply by E. Michael D. ("Mike") Scott May 19.

Update on My Choice of Treatment 12 Replies

(I tried to put this post as an update, but the 140 character limit made it impossible, thus it's here as a new discussion)Fellow PCa patients, the waiting is the hardest part, right? Finally, I've gone from diagnosis (1-3-18)  through MRI guided…Continue

Started by John Paul Jones. Last reply by John Paul Jones Apr 6.

Comprehensive Erectile Dysfunction Survey 2 Replies

If you are a man, suffering from Erectile Dysfunction, we would sincerely appreciate 10-15 minutes of your time. We are conducting a comprehensive study of how erectile dysfunction impacts men and their partners.This is an important study that we…Continue

Started by Robert Nicholson. Last reply by Alan Kousen Apr 1.

Erectile Dysfunction has a Profound Negative Impact on Men’s Lives and Relationships, Survey Shows

Guys with ED, you are not alone! Our new survey results that show the impact of ED on men and their partners.Erectile Dysfunction has a Profound Negative Impact on Men’s Lives and Relationships, Survey ShowsThe ED Treatment Information Center has…Continue

Started by Robert Nicholson Mar 30.

 
 
 

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The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

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