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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

george wilson posted a discussion

Cyber knife vrs RPT

Been a while since I posted. Last week my brother was found to have prostate cancer gleason 3+4 same as me and the same age as when I found out 65. He is thinking about cyber knife radiation, is there any real un-biased comparisons of RPT (daVinchi) vrs cyber knife. The only ones I can find are on radiation web sites and the're biased. They only show results out to 5 years.See More
1 hour ago
Mark Loofburrow left a comment for E. Michael D. ("Mike") Scott
"While these are rather old some things have not changed all that much. prostate_monograph.pdf Hormone_theropy_outlook_2002_520154_ftp.pdf There are new 'anti-antigens' available which can delay progression to Chemo. There are also new…"
7 hours ago
E. Michael D. ("Mike") Scott left a comment for Mark Loofburrow
"Mark: One more question ... How are the " a hellish bladder/bowel movement symptoms"? Has treatment helped to resolve these or are they still continuing?"
17 hours ago
E. Michael D. ("Mike") Scott left a comment for Mark Loofburrow
"So ... to continue ... The critical question that you need to address with someone ... and preferably someone who really knows what the heck he or she is doing ... is what to do if (a) your PSA does drop into the undetectable range and stays there…"
17 hours ago
E. Michael D. ("Mike") Scott left a comment for Mark Loofburrow
"Hi Mark. Thanks for the additional information. This (obviously) is helpful. So. Let's see if I can make sure I can get all my facts right first and then try to give you some perspective ... (1) You clearly do have at least micrometastatic and…"
17 hours ago
Mark Loofburrow left a comment for E. Michael D. ("Mike") Scott
"Greetings, This all started with a hellish bladder/bowel movement symptoms that were nearly (to mostly) unbearable. The 1st PSA was nearly 400 and a second follow up registered 340. After biopsy tests (100% of 16 samples positive), MRI and CAT scans…"
18 hours ago
jit posted a status
"Hello Mike..my latest PSA is 0.002.. And well stable at this level since last 3 results.. 11 month is over for surgery.."
yesterday
E. Michael D. ("Mike") Scott left a comment for g
"Welcome G. When it comes to the diagnosis and treatment of localized prostate cancer (which is what you may well have been diagnosed with), it is important to understand that "the Devil is in the details". It would help us to help you…"
yesterday
Profile Icong, Mark Anthony StCyr and Mark Loofburrow joined The "New" Prostate Cancer InfoLink Social Network
yesterday
E. Michael D. ("Mike") Scott left a comment for Mark Anthony StCyr
"Welcome Mark. And how have you been doing since your treatment?"
yesterday
E. Michael D. ("Mike") Scott left a comment for Mark Loofburrow
"Mark: If you were diagnosed in March with Gleason 4 + 5 and T3c disease, I sincerely hope that no one is suggesting that androgen deprivation therapy (ADT, i.e., the Lupron) alone should be your core first-line treatment. There are really good…"
yesterday
Mark Loofburrow left a comment for E. Michael D. ("Mike") Scott
"Greetings Mike, thanks for the friendly welcome! I was looking for an active site of other PC inflicted folk to share with. Now that I can access the site maybe I can find others in like situations. I was diagnosed in March 14' and I had my 1st…"
yesterday
Janelle Cardinal left a comment for E. Michael D. ("Mike") Scott
"Thank you, Mike. I'll give her a call or email her later today when I'm off for lunch."
yesterday
E. Michael D. ("Mike") Scott left a comment for Janelle Cardinal
"Janelle: You have a couple of personal e-mails from me that you should have a look at (just in case they went into your junk e-mail folder). I have given you the contact info for someone who (I think) can really help you ... and she is expecting you…"
yesterday
Janelle Cardinal left a comment for E. Michael D. ("Mike") Scott
"Thank you, Mike, I'll try both of those. Please keep my email address for future use. If you come across someone who might benefit from my story, please feel free to have them contact me. It's Janelle.cardinal@yahoo.com. Thank you and God…"
yesterday
Steven Williams posted a status
"TY Mike, very helpful"
yesterday
E. Michael D. ("Mike") Scott left a comment for Grant allen
"Oh and Grant ... One other thing ... The Lupron therapy can impact bone density, so if you want to be able to continue to exercise regularly with minimal risk of fractures, you should talk to your doctors (most probably the medical oncologist) about…"
yesterday
E. Michael D. ("Mike") Scott replied to Mark M's discussion newly diagnosed with PC
"Okie dokie. When you see your urologist in a couple of weeks, ask him specifically about whether he can make sure you get an ultrasensitive PSA test done, so that you know just how low your PSA has gone."
yesterday
E. Michael D. ("Mike") Scott left a comment for Grant allen
"Hi Grant. Thanks for all the additional info. This is helpful. So first and foremost, yes, a good Mediterranean-type diet and continued exercise like running will help you to minimize some of the side effects associated with androgen deprivation…"
yesterday
E. Michael D. ("Mike") Scott left a comment for Mark Loofburrow
"Welcome Mark. I see that you are 55 years young. How have you been doing on the Lupron, and how long have you been on this? Have you had any other forms of treatment?"
yesterday

Forum

Cyber knife vrs RPT

Been a while since I posted. Last week my brother was found to have prostate cancer gleason 3+4 same as me and the same age as when I found out 65. He is thinking about cyber knife radiation, is…Continue

Started by george wilson 1 hour ago.

newly diagnosed with PC 22 Replies

I am 54 years old. I was diagnosed last week with PC. T2C. Gleason score of 3+3 =6. 12 cores, 5 positive, three cores at 2-5% and 2 around 10%.PSA at time of diagnosis was 3.5. I was diagnosed with…Continue

Started by Mark M. Last reply by E. Michael D. ("Mike") Scott yesterday.

Petition to test Salvestrols

I have started a petition on WhiteHouse.gov for conducting clinical trials on Salvestrols, a potential cure for cancer. The link to the petition is here…Continue

Started by David Grothe on Friday.

Cancer Forums . Net 25 Replies

Hi all,My husband was diagnosed last week and we have our first post-biopsy doctor's appt today. We'd like to go to the appt as prepared as possible. To that end I posted a question about low-PSA…Continue

Started by Melaine. Last reply by E. Michael D. ("Mike") Scott Jul 15.

Salvestrols Against Hormone Refractory Prostate Cancer 482 Replies

Salvestrols have been discovered by the same scientists that discovered Abiraterone, hailed as the new wonder drug for the treatment of advanced metastatic castrate resistant prostate cancer.…Continue

Started by Prof Gerry Potter. Last reply by Don Cave Jul 14.

endorectal mri 13 Replies

Anybody know anything about the endorectal MRI and its utility as a diagnostic tool?   Friend of mine had prostate cancer twelve years and went to St. Louis to have that procedure.   I read something…Continue

Started by Cliff Forbes. Last reply by Melaine Jul 14.

Reading the Pathology Report 1 Reply

Hi all,At our first post-diagnosis consult, DH's urologist told us that the one cancerous core sample was 50% cancer. When we look at the actual pathology report, however, we see two different…Continue

Started by Melaine. Last reply by Melaine Jul 14.

Is cancer in the prostate ever NOT prostate cancer? 2 Replies

After I told a dear friend (who is a nurse) about my DH's prostate cancer diagnosis, she asked whether there was any discussion that this was not the primary site. We've all just been talking about…Continue

Started by Melaine. Last reply by Melaine Jul 12.

Low PSA (1.7) with Gleason 7 6 Replies

Hi.  This is my first post and am hoping someone out there has info or insight to share regarding my husband's numbers, which seem unusual.  Here is the impt info:Diagnosed several days ago, age…Continue

Tags: low-PSA

Started by Melaine. Last reply by Melaine Jul 9.

Rising PSA! 10 Replies

Thought I would reach out to forum, as I continue dialogue with Mike as well.  Am 70 years old and was diagnosed 10 years ago, with gleason 9. Had surgery which was not curative, an started on Lupron…Continue

Started by robert troy. Last reply by Don Oberlin Jul 4.

 
 
 

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