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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

Danny Baker left a comment for E. Michael D. ("Mike") Scott
"Hi Mike.....that's probably true about Dr. Welchs book and what he was implying reference elevated PSA in that area.....My cancer was treated as aggressive even though the Gleason was 3 plus 4 ...My urologist at the time kept talking about the…"
42 minutes ago
phillip plowright left a comment for E. Michael D. ("Mike") Scott
"Hello Mike Many thanks for the very detailed information. Interesting and sobering at the same time. always believe that I need to know everything, even if it's not that comforting. We went to see the anaesthetist today for the possible…"
1 hour ago
E. Michael D. ("Mike") Scott replied to Mike S.'s discussion Obtaining Continence Both In and Out of the "Mainstream" in the group ED and Incontinence Post-treatment
"I'd be surprised if it was a stricture that was causing the problem at night. It may be that what is happening is that your musculature is become more relaxed at night while you are sleeping and that this is allowing the urine to leak at a rate…"
1 hour ago
E. Michael D. ("Mike") Scott left a comment for Danny Baker
"Hi Danny. So actually endorectal coils have been used for something like 15 years, but it has only been in the past few years that the technique became sufficiently sophisticated to make enough difference that it started to become more commonly used…"
2 hours ago
Patrick replied to Mike S.'s discussion Obtaining Continence Both In and Out of the "Mainstream" in the group ED and Incontinence Post-treatment
"I have read up on the Stem cell injections with varying degrees of results. I am going to go to see my Urologist and see what he has to say. I have had so many cystoscopy's for various issues and my Urologist had said there may be a stricture…"
2 hours ago
Danny Baker left a comment for E. Michael D. ("Mike") Scott
"Hi Mike Thanks for your comments. ...yes it was unusual. ...mu urologist would always say that the DRE was normal....After he retired his replacement also did a DRE and said prostate felt normal...PSA still rising biopsies normal....He said it was…"
4 hours ago
E. Michael D. ("Mike") Scott left a comment for Danny Baker
"Welcome Danny. So the very small rise in your PSA level since you stopped the androgen deprivation therapy (ADT, also known as "hormone" therapy) is perfectly normal ... so long as it doesn't go on rising. And if your PSA does go on…"
5 hours ago
Profile IconDanny Baker, Ramon L Garcia-Lazcano, Melanie and 2 more joined The "New" Prostate Cancer InfoLink Social Network
5 hours ago
E. Michael D. ("Mike") Scott left a comment for Ramon L Garcia-Lazcano
"Welcome Ramon. So if I am understanding all your information correctly, you are 72 years of age; you were diagnosed last December with what seems to have been 1 of 12 biopsy cores containing less than 10% cancer which might be either Gleason 3 + 3 =…"
5 hours ago
E. Michael D. ("Mike") Scott left a comment for Melanie
"Welcome Melanie. Has your husband just been diagnosed with prostate cancer or was he diagnosed and treated a while ago. How is he doing? ... And equally importantly, how are YOU doing? How can we be of assistance?"
5 hours ago
E. Michael D. ("Mike") Scott left a comment for jules
"Welcome Jules. How long ago did your husband have his prostatectomy? How has he been doing since the operation? And just as importantly ... how are YOU doing?"
5 hours ago
E. Michael D. ("Mike") Scott left a comment for Suzette Broomfield
"Welcome Suzette. Since you don't have the Internet at home, I hope you are getting this response through a work computer or similar. Has your husband just been diagnosed with metastatic prostate cancer or was he diagnosed with prostate cancer a…"
5 hours ago
E. Michael D. ("Mike") Scott replied to Mike S.'s discussion Obtaining Continence Both In and Out of the "Mainstream" in the group ED and Incontinence Post-treatment
"Patrick: I have no idea whether there is such an animal in Winnipeg, but you probably need to go and get evaluated by a urologist who specializes in male incontinence and who can walk you through the various possible treatment options for…"
5 hours ago
Patrick replied to Mike S.'s discussion Obtaining Continence Both In and Out of the "Mainstream" in the group ED and Incontinence Post-treatment
"Been a while since I have been on here but things have not been going well with continence. I robotic surgery in July 2010 followed by radiation treatment and up till now hormone shots. In the last year I have become incontinent at night time..…"
12 hours ago
E. Michael D. ("Mike") Scott replied to Rick's discussion Penile Implants in the group Sexual Function, Penile Rehabilitation, and Quality of Life
"Hi Rick. So I am sorry to hear you are having problems with recovery. Hopefully these will resolve soon."
14 hours ago
E. Michael D. ("Mike") Scott left a comment for phillip plowright
"Phillip: So here is why I think your doctors are probably recommending the laparoscopic lymphadenectomy (now that I know your clinical stage is T2NxM0). If I assume that your clinical stage is T2cNxM0 (which the the worst possible case scenario…"
14 hours ago
phillip plowright left a comment for E. Michael D. ("Mike") Scott
"We are now having serious doubts about this op "
22 hours ago
phillip plowright left a comment for E. Michael D. ("Mike") Scott
"Hi Mike they said T2NXM0 phillip"
22 hours ago
Rick replied to Rick's discussion Penile Implants in the group Sexual Function, Penile Rehabilitation, and Quality of Life
"Chuck According to all the research on treatments for ED, penile implants have the highest satisfaction rate. Oddly its the least chosen option. I know I made the right decision."
22 hours ago
Chuck Grim replied to Rick's discussion Penile Implants in the group Sexual Function, Penile Rehabilitation, and Quality of Life
"Rick, A fellow came to my prostate cancer support group and told us about his experience with a penile implant. When he first went to the doctor he asked for references to other men that had the procedure. He got 6 references that he called. He said…"
22 hours ago

Forum

Life Insurance with PCa 9 Replies

Is it possible to get life insurance while on Active Surveillance?  If anyone had success getting life insurance I would be interested in knowing with which company?Continue

Started by Bob. Last reply by Jesse Sallak on Monday.

Rising PSA after prostatectomy, 8 Replies

This is my history to date: Left side of prostate felt firm on a DRE done by my primary care physician during a PE in 2010. PSA was 2.0. Referred to a local urologist who did another DRE and didn't…Continue

Started by Alan James. Last reply by E. Michael D. ("Mike") Scott Jan 21.

Side Effects VS. Life Effects- The daily struggles 2 Replies

I am writing to talk about the side effects over the course of the past 7 years from all the medications being given to try to control this advanced disease. It is getting so old. I am beginning to…Continue

Started by Pam H. Last reply by brian mcgarry Jan 16.

Anyone interested in performing a clinical trial on Salvestrols? 6 Replies

Would any of the researchers in the group be interested in submitting a proposal to NIH/NCI CAM to perform a clinical trial on Salvestrols. They have funding and this is just the kind of study that…Continue

Started by David Grothe. Last reply by David Grothe Jan 15.

Provenge

Does anyone have any experience with Provenge?Continue

Started by David Grothe Jan 15.

Post op pathology 7 Replies

Catheter out today.Greatful for this as the last 2days were tough as I had inflammation at the tip from catheter.Post op pathology was the same as the 2nd biopsy,gleeson 3+4.My. Specialist said that…Continue

Started by Kingsley. Last reply by E. Michael D. ("Mike") Scott Jan 15.

Cancer Treatement Centers of America

Has anyone had any experience with Cancer Treatement Centers of America?Continue

Started by David Grothe Jan 13.

Lupron 8 Replies

I am about to journey down the path of Proton Therapy for my Pca.  The oncologist at the Proton Center (Warrenville, IL) stated that I would improve my odds of successful treatment by 10 percentage…Continue

Started by Sam DuPont. Last reply by Steve Thomas Jan 6.

PSA down, Alk. Phosphatase up? 1 Reply

38 days into Zytiga-Prednasone treatment.PSA dropped from 85 to 50Alk Phos rose from 255 to 590 !!!Receiving Xgeva (Demunosub) monthly already 4 times.Looks like the bone mets are growing rapidly,…Continue

Started by Eitan. Last reply by E. Michael D. ("Mike") Scott Jan 6.

what to do when the drs don't agree? 12 Replies

Hi Mike,It's been a half year since I have checked in.  My husband had the artificial sphincter surgery and is doing GREAT!  He only needs a liner when he plays golf.  It has changed his life. Now on…Continue

Started by patty a. Last reply by E. Michael D. ("Mike") Scott Jan 1.

 
 
 

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