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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

Randy Wood replied to Randy Wood's discussion 2nd Biopsy - New Gleason Score 3+4
"Thank you, Mike.  This is very helpful.  There are many options, and it's easy to feel overwhelmed with all of the information out there.  "
1 hour ago
E. Michael D. ("Mike") Scott replied to Randy Wood's discussion 2nd Biopsy - New Gleason Score 3+4
"Dear Randy: (1) Yes. It is perfectly possible that the original biopsy just "missed" the Gleason 3 + 4 tumor or tumors. However, it is also possible that this is a new tumor. (2) You could ask the doctor about a new genomic test. However,…"
2 hours ago
Randy Wood posted a discussion

2nd Biopsy - New Gleason Score 3+4

So I'm not sure what to make of this.  I recently had my second mpMRI and subsequent 1 year follow up biopsy.  The original biopsy was determined to be GS 3+3.  It was sent for genomic testing that essentially confirmed the results and prognosis was good.  This new biopsy revealed GS3+4 and my doctor at UCSF is recommending I get treatment sooner than later.  PSA in March was 6.0, slightly lower than prior PSA tests (7.0, 6.4, and 6.7).  He has asked me to meet with the radiologist within the…See More
10 hours ago
E. Michael D. ("Mike") Scott left a comment for Tony Geisler
"Welcome Tony. I see you are 56 years young. It is very important for you to understand immediately that prostate cancer comes in four basic "flavors": very low risk (which may never need treatment at all; low risk (which also may never…"
yesterday
Tony Geisler is now a member of The "New" Prostate Cancer InfoLink Social Network
yesterday
Don Oberlin left a comment for Jan Manarite
"Jan: I much appreciate your thoughtful, compassionate response to CJ.  I suspect he will be equally appreciative. Well done. Regards   Don O."
Saturday
Jan Manarite left a comment for Don Oberlin
"Thanks, Don.  I replied on YANA."
Saturday
Don Oberlin left a comment for Jan Manarite
"Jan: I know you are one busy lady, but there is a fellow on YANA that could really use your help. If you are interested and it would expedite matters I could forward his message  and serve as an intermediary. The title of his entry is…"
Saturday
Paul Curs left a comment for Don Oberlin
"Don, Thanks Much for the book recommendation.   Paul"
Friday
Norman Wellen shared Ralph Valle's group on Facebook
Friday
E. Michael D. ("Mike") Scott commented on Two Hawks's status
"Two Hawks: You might want to have a look at this study by Hansen et al. published in 2013. They claim to have been able to show a clear association between exposure to TCE and risk for liver cancer and cervical cancer, but they don't seem to…"
Friday
E. Michael D. ("Mike") Scott commented on Two Hawks's status
"Dear Two Hawks: I am not specifically aware of information on exposure to TCE and risk for prostate cancer, but I will do a litt;e research later today and see what I can find for you."
Friday
Two Hawks updated their profile
Friday
Two Hawks posted a status
"Looking for information on effects of exposure to TriChloroEthylene (TCE) and Prostate Cancer. Anyone have information about this?"
Friday
Two Hawks joined Ralph Valle's group
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Androgen Deprivation Therapy / Hormone Suppression

What is ADT? How to manage side effects. Is there a survival benefit to early suppression versus delayed? Discussion about the latest research on intermittent deprivation and testosterone replacement therapy in the treatment of prostate cancer.See More
Friday
Jan Manarite updated an event
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Register Now! PCaI Conf in VIRGINIA at Holiday Inn VA Bch-Norfolk

October 13, 2018 from 8am to 5pm
Register Now!!   at - www.tinyurl.com/Oct13conf                  Saturday, Oct 13th at the Holiday Inn VA Bch-Norfolk …See More
Thursday

Forum

2nd Biopsy - New Gleason Score 3+4 2 Replies

So I'm not sure what to make of this.  I recently had my second mpMRI and subsequent 1 year follow up biopsy.  The original biopsy was determined to be GS 3+3.  It was sent for genomic testing that essentially confirmed the results and prognosis was…Continue

Started by Randy Wood. Last reply by Randy Wood 1 hour ago.

Why do doctors recommend surgery when biopsy is 3+3 in only 1 of 12 samples? 7 Replies

I belong to a facebook group called "Prostate Cancer Support Group" and it is very discouraging to see most posts come from men who have been told to have surgery even though the PSA is less than 10 and GL is 6. What is going on? The new…Continue

Started by Alan Kousen. Last reply by DJ Jul 5.

African American & Other High Risk Men - October Conference

Don't Miss Charlie Hill's session called "Straight Talk: African American…Continue

Started by Jan Manarite Jul 5.

9 months out ... 5 Replies

Hi  Mike and y'all, it's been a while since I've visited here. Had my robotic surgery last December to remove my prostate. Have had two PSA tests since - January & June (with next one scheduled in December) - both of them were "undetectable". I…Continue

Started by Sam. Last reply by E. Michael D. ("Mike") Scott Jun 30.

Can bone markers be elevated whether from ADT or Metastases ? 3 Replies

My background/history at end of this post.Was given some labs to check bone markers -Bone Alkaline Phosphatase (different test than regular ALP)andN-telopeptidebesides the regular ALPAnd they are high and out of range - tests done 2 mos ago so am…Continue

Started by george. Last reply by E. Michael D. ("Mike") Scott Jun 29.

How aggressive are these numbers? 17 Replies

My PSA was <0.1 in March 2011, <0.1 in September 2011, 0.1 in March 2012, <0.2 in May 2012 (tested by GP), and 0.3 in August 2012 (again tested by the same GP).  How aggressive is that increase?Continue

Started by Arthur Rollins. Last reply by E. Michael D. ("Mike") Scott Jun 16.

 
 
 

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The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.

Information provided on this site should not be used for diagnosing or treating any health problem or disease.

The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.

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