"Could you make any recommendations of a good doctor in the Denver area for a second opinion in order to better help me make a good decision?"
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Sex after prostate cance…
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Gay / Bisexual Men and …
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Androgen Deprivation The…
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WHAT'S THE POINT OF THIS SOCIAL NETWORK?
The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.
If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.
One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.
Latest Activity
Dave S left a comment for E. Michael D. ("Mike") Scott"March 2017 PSA was .9, 2018 was 1.4 and 2019 was 2.1. Each of the past two years has seen a 50% increase. PCP suggests we wait and see another score in 6 months. "
"Dear Dave:
So can you tell me your last three PSA levels and the exact dates on which you had bllod drawn for the tests?
It is not at all unusual for a man of your age to have a rising PSA. Whether it is actually cancer or not, and whether it needs…"
"So if you only had 2 out of 12 cores cancerous, and they were both Gleason 6, Active Surveillance would either be the preferable or recommended option for you.
I would seriously consider waiting the 6+ weeks (longer is better), and getting the…"
Eric Latta left a comment for Jan Manarite"Thank you for the welcome. it has only been about a week and a half since the biopsy. Guess just hearing the word 'cancer' is a bit overwhelming. Among other things the Dr did recommend educating myself through this and other…"
"Hi Robert - welcome. Here's a few things I would look at, that might be helpful:
(1) Is this "PSA/cancer recurrence"? Or is this "PSA bounce/bump", which is NOT cancer recurrence? I would make sure I asked…"
"Dear George:
Have you sought your cardiologist's opinion about the risks associated with being on Lupron in your case? His/her opinion may be more relevant than a med/onc's!
However, I see your point about finding out what your care team…"
"Hi Eric - welcome. How long ago was your biopsy? Has it been explained to you that a Gleason Score of 3+3=6 is the best (least aggressive) cancer you can have? Read more here - Should pure Gleason 6 disease still be called cancer…"
George rae left a comment for E. Michael D. ("Mike") Scott"Sorry for the long time to respond, my Uro and RO are not in agreement about stopping Lupron. My heart issues are the sticking point, it took care team a month to sign off on Lupron last year. I had hypofractionated RT 28 treatments with SpaceOar…"
"If you are able to work at it and manage your diet, you may find you can dump that 30 lbs and get back off the diabetes train too. It takes determination and patience, but some men are able to do it."
"Hi Bob - yes, I remember our conversation. I am still intrigued by your ability to get insurance to pay for PROVENGE even though you didn't have suppressed testosterone. That still amazes me, as I've never heard that before -…"
Bob Hannon joined Peter Stahl MD's group
Sex after prostate cancer treatment - what to expect
Forum moderated by me (Assistant Professor of Urology and Director of Male Sexual Medicine at Columbia University in NY) to discuss the sexual side effects of prostate cancer treatment, strategies to optimize sexual outcomes after treatment, and treatments for common sexual side effects such as erectile dysfunction and urine leakage during sexual activitySee More
Bob Hannon left a comment for Jan Manarite"Hi Jan. I was at the conference and we did speak (I am the one who got Provenge covered by private insurance without any ADT). I had the gene testing done by Foundation about 3 or 4 years or so ago when I was doing the Inovio…"
"Hi Bob - welcome. I work from my home in Ft Myers, and we just did a free conference on March 2nd at FGCU. Were you there?
I appreciate how you've made your treatment decisions, and thought outside the box on several things. …"
"Hi Richard - welcome. How long have you been doing "Watchful Waiting?" Do you know the difference between that and "Active Surveillance"? We actually run an Active Surveillance Virtual Support Group, where guys…"
Forum
PSA rising almost immediately after IMRT/IGRT external beam radiation 3 Replies
My 16 core biopsy on my 93cc prostate showed one core with Gleason 6 (<10%) and one core with ASAP cells. I completed 39 radiation treatments (no surgery) at the end of July 2018. Pre-treatment my PSA was 7.0. My first PSA test was at 7 weeks was…Continue
Started by Wayne Farris. Last reply by E. Michael D. ("Mike") Scott Mar 16.
Husband diagnosed last week 6 Replies
Hi all - my husband, at age 37, was diagnosed. It started off with the lab ordering a PSA because they hadn't received the lab slip from the dr, so they ordered what he "usually" orders. It came back at 5, which was investigated because of husband's…Continue
Started by Tammy. Last reply by ASAdvocate Mar 15.
Side effects of radiation treatment 5 Replies
I am almost 74 in good health and fairly active. I was recently diagnosed as having prostate cancer. I have had a MRI and a biopsy and waiting on the results of a bone scan. A rectal examination revealed a smooth fairly small prostate without…Continue
Started by James Crowe. Last reply by ASAdvocate Mar 15.
Salvestrols Against Hormone Refractory Prostate Cancer 487 Replies
Salvestrols have been discovered by the same scientists that discovered Abiraterone, hailed as the new wonder drug for the treatment of advanced metastatic castrate resistant prostate cancer. Salvestrols work beyond Abiraterone to treat cancer by a…Continue
Started by Prof Gerry Potter. Last reply by E. Michael D. ("Mike") Scott Mar 14.
PSA Rising after 8 years on Lupron 1 Reply
My oncologist tells me to change nothing until it reaches ,2.0. Any one experienced this.
Started by Michael Petrizzo. Last reply by E. Michael D. ("Mike") Scott Mar 14.
Xtandi 8 Replies
I have all my history of my prostate cancer on my home page if you want to read.My PSA was 2 around fall 2016 and then in February 2017 it jumped to 16 .I asked to take antibiotics and it dropped. My doctor was surprised and then he decided to take…Continue
Started by Jimmy Papas. Last reply by E. Michael D. ("Mike") Scott Mar 13.
About
Events
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PCRI's Mid-year Conf - Los Angeles
March 30, 2019 from 9am to 4pm – Los Angeles
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CPCC/UCSF: 2019 Patient Conference on Prostate Cancer
June 8, 2019 from 7am to 5pm – San Francisco
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The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.
Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.
Information provided on this site should not be used for diagnosing or treating any health problem or disease.
The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.
Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.
Information provided on this site should not be used for diagnosing or treating any health problem or disease.
The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.
© 2019 Created by Arnon Krongrad, MD.
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