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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

E. Michael D. ("Mike") Scott left a comment for Michael Hayes
"Okie dokie. Only so much one has control over, but glad to hear you will be getting the monthly PSA tests."
yesterday
Michael Hayes left a comment for E. Michael D. ("Mike") Scott
"Morning Mike. As predicted a decent frost here.......re P/Alex, unfortunately they had an Easter covid attack, nursing staff and a dr. Not taking any interstate patients for the immediate future but my name is on their books. My oncologist is with…"
Sunday
E. Michael D. ("Mike") Scott left a comment for Michael Hayes
"Michael: 1. With regard to the 64-year-old Croatian gentleman, I have no answer. All I ever saw was a case report of his diagnosis with the PSA level of 21,380 ng/ml. However, he also had a Gleason score of 9, multiple liver metastases, and multiple…"
Sunday
Michael Hayes left a comment for E. Michael D. ("Mike") Scott
"Hi Mike. Update of recent activities: On 29/3, due to a developing skin rash, oncologist advised to stop taking the daily 50mg. Calutex pill. On 5/4th. I had blood tests, result, all pathology now within accepted limits however PSA has increased…"
Sunday
E. Michael D. ("Mike") Scott commented on Wesley J Tanac's status
"Ah ... Well that kinda depends on the following: -- What is your current age? -- What's your most recent PSA level? -- How many biopsy cores were taken at that recent biopsy? -- How many of those core were positive for cancer? -- How many of…"
Saturday
Wesley J Tanac posted a status
"Have been in active surveillance for two years. Recent biopsy shows area of Gleason 8. What are treatment otions available"
Friday
E. Michael D. ("Mike") Scott left a comment for Frank Alberti
"Welcome Frank. I see that you are 73 years young; that you have been treated for some form of prostate cancer with a combination of radiation therapy and andrpgen deprivation therapy (ADT, also known as hormone therapy); and that your PSA level is…"
Friday
Frank Alberti is now a member of The "New" Prostate Cancer InfoLink Social Network
Friday
E. Michael D. ("Mike") Scott left a comment for mnji
"Welcome mnji. So you don't mention either your PSA level at diagnosis or the number of positive biopsy cores relative to the total number of cores taken by your urologist, but it does sound as though you have unfavorable intermediate-risk…"
Apr 7
mnji is now a member of The "New" Prostate Cancer InfoLink Social Network
Apr 7
E. Michael D. ("Mike") Scott left a comment for Dee L Howard
"Dee (and Bert): Sounds like a plan to me! Mike"
Apr 4
Dee L Howard left a comment for E. Michael D. ("Mike") Scott
"We are grateful for your replies to our queries. We both feel lessening of anxiety. Bert used the Kaiser second opinion venue to lead to treatment out of Kaiser in 1997. I used it sometime ago for cancer treatment at Stanford. We will use it again…"
Apr 2
E. Michael D. ("Mike") Scott left a comment for Dee L Howard
"Dee ... Given that you have Kaiser insurance, it may well be that your primary care physician can refer you to one of the doctors at UCSF for a second opinion and that it would be covered by Kaiser. You might want to call Kaiser to see if that is a…"
Apr 2
E. Michael D. ("Mike") Scott left a comment for Max
"Welcome Max. I am not sure why you would be interested in treatments for prostate cancer if you don't have the disorder, but then I don't have the disorder either and I have been interested in it for 30+ years now. The question that is…"
Apr 2
Profile IconMax and Dee L Howard joined The "New" Prostate Cancer InfoLink Social Network
Apr 2
E. Michael D. ("Mike") Scott left a comment for Dee L Howard
"Hi Dee ... We're here to help, but thank you for the feedback. I hope you and your husband can have many more years of happy life together. If your husband is now 87 and his PSA has taken 10 years to rise from about 10 to about 21-23 ng/ml,…"
Apr 2

Forum

Anyone here down-staged by pathologist after RP 10 Replies

How many people have been down-staged after RP?Back in April, mpMRI suggested that I had some extraprostatic extension (EPE).After my RP, the pathologist didn't see any EPE, so I was down-staged (cT3a to pT2c).From my reading of the literature, it…Continue

Started by Tom Wimberly. Last reply by Baiba Hughes Mar 27.

Possibility of symptomatic bone metastasis with very low PSA 3 Replies

Had prostatectomy in 10/19. Post op pathology was PT3a, 4+3,EPE and PSM. PSA was 0.01 3 months after surgery. Urologist ordered Decipher because of adverse pathology, it came bask high risk. At 6 months post RP MY PSA was .03. Although still low we…Continue

Started by James R. Last reply by Baiba Hughes Mar 26.

Biopsy protocol -AS 12 Replies

Is there any consensus regarding the timing of biopsies for patients undergoing AS? I have been on AS since 2013. I’ve had 3 biopsies during that time, the first in 2012 showing only HGPIN, the second in 2013 showing 2/14 cores Gleason 3+3=6, and…Continue

Started by Don S.. Last reply by E. Michael D. ("Mike") Scott Mar 12.

Does one wait for cancer to present itself or begin Androgen therapy 55 Replies

Please see my stats for details on my recurrent cancer.  After more than 4 PET scans at the Mayo in 2017, my oncologist said I should wait until my PSA has risen to 8 before getting another scan because the cancer remained undetectable.  Then in…Continue

Started by Tom Full. Last reply by E. Michael D. ("Mike") Scott Mar 10.

EBRT and ADT 1 Reply

Are there any circumstances where external radiation could be used as mono therapy for PCa, without use of adjuvant or neo-adjuvant ADT?

Started by Don S.. Last reply by E. Michael D. ("Mike") Scott Mar 1.

Newly Diagnosed 3 Replies

Hi I am Char, my husband Mike  age 75 was recently diagnosed with Prostate cancer, his psa is 81 Gleason score is 8 and stage 4 from what I understand.  The Urologist put him on generic for Casodex for a month and ordered a complete bone scan which…Continue

Started by Mike Green. Last reply by E. Michael D. ("Mike") Scott Feb 6.

 
 
 

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The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

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