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Groups
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The Surgical Treatment o…
203 members
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ED and Incontinence Post…
193 members
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For Younger Men
156 members
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Radiation Therapy for Pr…
138 members
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For Wives and Partners
137 members
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Of sex and sexuality
131 members
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Primary Issues and Newly…
116 members
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Androgen Deprivation The…
103 members
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PSA Persists After First…
93 members
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Diet, Exercise, Suppleme…
84 members
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Prostate Biopsy and Othe…
78 members
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Emotional Issues / Copin…
62 members
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Faith, Healing, and Pros…
58 members
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Active Surveillance / Ex…
54 members
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Let's Talk About Survivo…
52 members
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Treatment Options for Lo…
49 members
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HIFU or High-Intensity F…
49 members
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Activists, Advocates, Ac…
44 members
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Books and Blogs
42 members
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Erections, Erectile Reha…
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WHAT'S THIS SITE ALL ABOUT?
This site is a social network affiliated with The "New" Prostate Cancer InfoLink and Prostate Cancer International. Anyone with an interest in prostate cancer (patients, family members, physicians, other health care professionals, activists, and advocates) from all around the world is welcome here to share information; to seek, receive, and offer support; or just to monitor discussion and progress on Planet Prostate Cancer.
New members: Please note that only information on this home page is visible to non-members and to search engines. But if you wish to retain full control over your privacy, DO NOT use your real name or address or similar information on this site. Use a pseudonym.
Please note: This site does not permit any form of commercial messaging or advertising of commercial services by its individual members. If you wish to be a member of this site but have commercial interests in prostate cancer, please identify those commercial interests in your profile when you join.
New members: Please note that only information on this home page is visible to non-members and to search engines. But if you wish to retain full control over your privacy, DO NOT use your real name or address or similar information on this site. Use a pseudonym.
Please note: This site does not permit any form of commercial messaging or advertising of commercial services by its individual members. If you wish to be a member of this site but have commercial interests in prostate cancer, please identify those commercial interests in your profile when you join.
Latest Activity
RDB left a comment for E. Michael D. ("Mike") Scott
I'm happy to post more info. My situation is a little more complicated like most things seem to be in my life. Here goes. I am 63 and in Nov my family doctor found a lump (BB sized) on the RIGHT side of my prostrate. I went to the…
E. Michael D. ("Mike") Scott left a comment for Phil LaPorta
Hi Phil. Thanks for the feedback.
You should know that the men who got treated (with surgery, radiation, whatever) also go through exactly the same stress every time they need a PSA follow-up test as you do. Treatment doesn't releive one of…
Phil LaPorta left a comment for E. Michael D. ("Mike") Scott
yes, AS. age 57. diagnosed 2 yrs 3 mos. ago. PSA jump from 1 to 3. < 1% of 1 of 12 samples. gleason 3+3, tc1. Was all set for surgery when I was encouraged by a cousin/resercher at UCSF to 'take it…
E. Michael D. ("Mike") Scott left a comment for Jeanseville
Hi Jeanseville!
You will find daily news on our main site. This site is much more of a discussion site related to the needs of specific patients.
Just so you are clear, I am something of a skeptic with respect to the relative merits of proton…
Jeanseville, Jon Canty, Dean Commins and 4 more joined The "New" Prostate Cancer InfoLink Social Network
E. Michael D. ("Mike") Scott left a comment for Jon Canty
Welcome Jon.
Prostate cancer is extremely rare in men under 30 years of age. However, if you come from a family in which close relatives (father, brothers) have been diagnosed with prostate cancer (or have had metastatic prostate cancer), you…
E. Michael D. ("Mike") Scott left a comment for Dean Commins
Welcome Dean.
Please feel able to contribute and comment as you see fit.
If you like the system, it's pretty easy to set up ... so you could do something Oz-specific. We have at least a couple of newly diagnosed Aussies coming on board each…
E. Michael D. ("Mike") Scott left a comment for Stephen
Hi Stephen.
I don't know your age, which would be helpful. Clearly, with two close relatives with prostate cancer you do need to keep a careful eye on this situation. How high is your PSA now? Has anyone suggested it might be time for a second…
E. Michael D. ("Mike") Scott left a comment for Phil LaPorta
Phil:
I assume you have low-risk disease with a PSA lower than 10 ng/ml; only one or maybe two positive biopsy cores; and all cancer Gleason 6 or lower grade. Yes?
Are you actually doing "watchful waiting" or some form of "active…
E. Michael D. ("Mike") Scott left a comment for alastair Scott
Alastair:
It would help us to help you if you could give us just a little more information, as follows:
-- Can you confirm that your clinical stage at diagnosis was T1c (which is what it sounds like based on "no hardness…
E. Michael D. ("Mike") Scott left a comment for RDB
RDB:
So I think you said you were 63 years of age when you "signed up." Yes?
It would help us to help you if you could give us just a little more information, as follows:
-- Your PSA level at the time you were diagnosed
-- Your clinical…
E. Michael D. ("Mike") Scott left a comment for John Millet
Dear John:
So you didn't tell me your age, but for the purposes explained below I shall assume it is 60 years; your PSA is 4.1 ng/ml; your clinical stage is T1c; your Gleason score is 4 + 5 = 9; and you had 5/12 biopsy cores positive for…
E. Michael D. ("Mike") Scott left a comment for Ron
Ron:
I think Dr. Walsh's book is now somewhat out of date.
The best book for patients that I am aware of that really focuses on the ED issue is the one by John Mulhall, MD, called Saving Your Sex Life: A Guide for Men with Prostate Cancer. You…
Hugh W. Judd updated their profile
Rick Redner replied to Rick Redner's discussion 'Progression of nerve bundle healing' in the group ED and Incontinence Post-treatment
Ron,
When you see the Dr for your 3 year check up, ask if you could be tested for venous leak. Also, I suggest you listen to this Dr on YouTube.
http://www.youtube.com/watch?v=ie8NkOu2VNA
He's one of the few experts in the US on…
John Millet left a comment for E. Michael D. ("Mike") Scott
Hi Mike,
Thanks so much for your reply. We now have more information.
1. PSA - 4.1
2. T score - T1c
3. Bone scan and CT scan - mnegative
4. Gleason 6 disease in the left lateral base. 10% of the tissue. Gleason 7 in the right lateral base, 20%…
Ron left a comment for E. Michael D. ("Mike") Scott
Thanks Mike. I'll talk to the Dr next month on my 3rd yr check up. Whats your opinion on a book by Dr Patrick Walsh? Rick in the ED discussion mentioned his book and I was thinking of buying it if it would give me ideas, hope etc.....thanks.
Ron replied to Rick Redner's discussion 'Progression of nerve bundle healing' in the group ED and Incontinence Post-treatment
To Rick....4 years! Well maybe there is hope yet...gotta check that!
Ron replied to Rick Redner's discussion 'Progression of nerve bundle healing' in the group ED and Incontinence Post-treatment
Dave and Rick thanks for the reply. I dont feel alone in my frustration! My wife tries to make me feel ok with it saying " you're alive, thats what counts and I'm not really into sex much anymore anyway ". Rick I'm not ready…
Forum
Calypso <><> Radiation With Proper Diet. 1 Reply
(“Mike”) Thanks for welcoming to the Group <><><> Its been A Very Nervous Time three years of watching & waiting the doctors suggested because of my age & I Just turned 70…Continue
Started by Gary Dempsey. Last reply by E. Michael D. ("Mike") Scott on Thursday.
With Radiation Should You Take Antioxidants Or Not ? 4 Replies
Hello <><><> I Started Calypso Radiation treatments today Have 27 more to complete .There Is so mush information out there about Taking or Not taking Food Supplements and…Continue
Started by Gary Dempsey. Last reply by Mr. Bill on Wednesday.
MRI & PC 1 Reply
I have had a burning sensation in my buttocks now for over 2 yrs alsoI have had a sore back for ever most of my life.Well it is going on 2 years since my RP every thing is going well on 6 monthly PSA…Continue
Started by Tom Major. Last reply by E. Michael D. ("Mike") Scott on Wednesday.
Proton Beam Treatment & BPH symptoms 2 Replies
I have not seen much information on what actually happens to your prostate with Proton Beam Treatment. I’ve found conflicting information, some say the treatment is intended to kill all prostate…Continue
Started by Jim Hock. Last reply by jeff Jan 24.
Surgeon Experience 7 Replies
Dear friends, How can I find a surgeon with a high volume track record of radical prostatectomy or if possible the outcome of his radical prostatectomy? My HMO is not providing me their surgeons'…Continue
Started by John Brown. Last reply by David Stevens Jan 23.
Status update 4 Replies
I haven't posted in a long time... But I'm happy to report I'm doing pretty well, I go back into the doctor in January a year and a half after my RP surgery, but I'm feeling confident things will be…Continue
Started by Kevin Flowers. Last reply by Howard Katz Jan 16.
What to do for very young new diagnosis? 22 Replies
All,Perhaps it is not different than the rest but I just got biopsy confirmation that I have Stage T1C prostate cancer even though I am only 39!!! 7 out of 12 samples were cancerous. Most scores…Continue
Started by Jeffrey Dewolf. Last reply by Mr. Bill Jan 11.
Waiting on Biop results - what to ask (as the wife) at the appt? 3 Replies
Hubby was diagnosed with a "high" PSA and then an extremely large prostrate. Dr's words at exam (per hubby) that is was "very bad"? Hubby had Biop and we should get the call tomorrow. I am assuming…Continue
Started by kathleen. Last reply by kathleen Jan 3.
Wouldn't it be nice if men could share prices paid for urological care/lab services. 4 Replies
By making the cost of medical care more transparent, we can help the dysfuctional medical marketplace become more efficient and get better quality information and care.
Started by Jonathan Oppenheimer. Last reply by Sam Nathanson Dec 27, 2011.
What to do next with first Biopsy Negative? -- PSA 6.6 and DRE are positive 14 Replies
Hi All,I did published a question about 8 cores is enough for first biopsy test few days ago in this forum, Now, the test result come with all 8 cores are negative, Good news or bad news? Would…Continue
Started by Michael Yan. Last reply by Michael Yan Dec 26, 2011.
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The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.
Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.
Information provided on this site should not be used for diagnosing or treating any health problem or disease.
The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.
Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.
Information provided on this site should not be used for diagnosing or treating any health problem or disease.
The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.
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