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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

Rick D. commented on Ralph Valle's group Androgen Deprivation Therapy / Hormone Suppression
"Rob & others ..... you may well find this pamphlet helpful; it was prepared by docs and patients at UCSF for men on…"
2 hours ago
E. Michael D. ("Mike") Scott left a comment for greg smith
"Welcome Greg. So if you haven't been diagnosed with prostate cancer, what sort of information can we help you with?"
2 hours ago
Profile Icongreg smith, Holly Fuller, Bill Hutton and 2 more joined The "New" Prostate Cancer InfoLink Social Network
2 hours ago
E. Michael D. ("Mike") Scott left a comment for Holly Fuller
"Welcome Holly. So what can you tell us about your Dad and his "journey" to date? Has he just been diagnosed? When it comes to the management of early stage, localized prostate cancer (which is probably what your Dad has been diagnosed…"
2 hours ago
E. Michael D. ("Mike") Scott left a comment for Bill Hutton
"Welcome Bill. So there are lots of reasons why men can have elevated PSA levels, and prostate cancer is far from tbeing the most common. However, if you are unlucky and get a positive biopsy result, it would help us to help you if you could tell us…"
2 hours ago
E. Michael D. ("Mike") Scott left a comment for William Thomason
"Welcome William. I note that you are 72 years of age. How long have you been on active surveillance? You  mightb want to look at this group on this site, which is targeted particularly to those intereste in talking about active surveillance."
2 hours ago
E. Michael D. ("Mike") Scott left a comment for Clark Wadkins
"Welcome Clark. So when it comes to the management of intermediate-risk, early stage, localized prostate cancer (which is probably what you have been diagnosed with), the Devil is always in the details, and one of the most important things you need…"
2 hours ago
Robert Gambelunghe commented on Ralph Valle's group Androgen Deprivation Therapy / Hormone Suppression
"Just a repeat of my post to Charlie the other day....... Wondering if anyone had some thoughts to add.... Hi Charlie, I was diagnosed with PC in March 2012 I had a Gleason 8, 4/4, after various opinions I went on lupron in May '12. Then…"
3 hours ago
E. Michael D. ("Mike") Scott left a comment for Victor Krisman
"Hi Victor ... That sounds like an appropriate plan (if your insuance is going to cover the cost of the Provenge)"
3 hours ago
E. Michael D. ("Mike") Scott left a comment for Robert Williams
"Robert: If you hit the "Comment Back" link below this message and then look at the new "Comment" box on my page, you will see a little "paper clip-like" symbol in the symbols immediately at the top of the box. If you…"
3 hours ago
E. Michael D. ("Mike") Scott left a comment for Ray baumann
"Eric: Whether you need an immediate biopsy or not is between you and your doctor, He has examined you. None of us have! Having said that, if I was wearing you shoes, I would have said to him, "How about you give me another PSA test in a…"
3 hours ago
E. Michael D. ("Mike") Scott left a comment for Eric Desando
"Hi Eric. Sorry to hear about the PSA level. A combination of radiation therapy and a period of androgen deprivatiuion therapy (ADR, also known as "hormone" therapy) is the "standard of care" for someone like you whose PSA…"
3 hours ago
E. Michael D. ("Mike") Scott left a comment for kenneth neil fuller
"Kenneth: Sorry, I didn't "get" that you had the metastases to the ribs as well as to the pelvis. Actually, this suggests to me that you need to talk to a medical oncologist about combining early chemotherapy with the ADT. New data…"
4 hours ago
Victor Krisman left a comment for E. Michael D. ("Mike") Scott
"My testosterone is consistently  <20. I just got approved for Provenge treatment. After only a couple of days they got back to me with a schedule for treatment. I start treatments first week of May."
12 hours ago
jit posted a status
"Hi..Mike my latest PSA after doin 3 month is 0.002 and all blood,urine and bone scans is normal again.. Is it good news for me???"
13 hours ago
Robert Williams left a comment for E. Michael D. ("Mike") Scott
"Thank you for the reply Mike. I am looking at the data sent to my Urologist the lab finished their analysis. Needless to say, the medical jargon and data is difficult for me to grasp without any background or training in the subject. I am looking…"
13 hours ago
John L replied to Ray baumann's discussion First URO APPT TODAY
"From my understanding there isn't necessarily a standard practice.  Some urologists might try a course of antibiotics first to see if the PSA goes back down.  Others my want to use imagining technologies first, or redo the PSA in a…"
14 hours ago
Ellen Balaban left a comment for Blair Baldwin
"Our urologist used an anastheoligist so my husband was out for the 20 minute   procedure, much like what is done during a colonoscopy.  It was done in his office,   Hope this info helps.  it was covered by Medicare.  "
yesterday
Ray baumann posted a discussion

First URO APPT TODAY

DRE today and said everything was smooth On the ultrasound images he saw a " slight" difference of the right and left side. He decided to order the biopsy as a precaution. Does this sound like standard practice?
yesterday
Eric Desando left a comment for E. Michael D. ("Mike") Scott
"Well Mike, met with uro on Tues. PSA 1.7. Ugh. Having MRI and bone scan next week. Meeting with rad oncologist week after. Not sure if I should get second opinion. So much conflicting data on the web. Info overload. I'm sure there are many…"
yesterday

Forum

First URO APPT TODAY 1 Reply

DRE today and said everything was smooth On the ultrasound images he saw a " slight" difference of the right and left side. He decided to order the biopsy as a precaution. Does this sound like…Continue

Started by Ray baumann. Last reply by John L 14 hours ago.

newly diagnosed with PC 17 Replies

I am 54 years old. I was diagnosed last week with PC. T2C. Gleason score of 3+3 =6. 12 cores, 5 positive, three cores at 2-5% and 2 around 10%.PSA at time of diagnosis was 3.5. I was diagnosed with…Continue

Started by Mark M. Last reply by E. Michael D. ("Mike") Scott on Wednesday.

Friend with prostate cancer 4 Replies

I have a 78 year old friend who was recently diagnosed with prostate cancer.  Gleason score was 7, PSA had jumped to 7.5, and he was presented with his options by his urologist after the biopsy.  He…Continue

Started by Ed Roman. Last reply by E. Michael D. ("Mike") Scott Apr 12.

PSA increasing one year after operation 9 Replies

Hi, I'm back, 16 months ago I had a lot of help on this forum, it helped me a lot when I learned that I had a very serious prostate cancer.12 months ago my prostate was removed. It turned out to be…Continue

Started by Delhasse. Last reply by E. Michael D. ("Mike") Scott Apr 10.

artificial sphincter 1 Reply

Hi Mike and all,My husband is going to need radiation but he is also going to have an atrificial spinciter devise implanted.  I am wondering what you can tell me about it and what experience others…Continue

Started by patty a. Last reply by E. Michael D. ("Mike") Scott Apr 5.

Correction on biopsy results 22 Replies

Mike, for what it is worth on my biopsy they pulled 15 samples not 12 as 2 cores each were pulled from 3 areas. Results were positive in one of areas where 2 cores taken at gleasson 3+3=6 .my concern…Continue

Started by GD. Last reply by E. Michael D. ("Mike") Scott Apr 4.

decision 7 Replies

Guys,I am presently 64 years old and in good health.  12/2010 I was diagnosed with Prostate Cancer.  I told my story on this site.  My Gleason was 6, with cancer only on right lower quadrant.  I went…Continue

Started by Joseph York. Last reply by E. Michael D. ("Mike") Scott Apr 2.

Anal wound post surgery

My husband has and anal wound from endoscopic surgery that removed prostate, bladder, rectum, muscle etc. Apparently the surgery removed nerve and blood supply to area and the result was an anal…Continue

Started by DES Mar 30.

Incontinence and PT after surgery 19 Replies

Hello Mike and all,My husnand is now 4 months post-op.  His incontinence is absolutely no better... even after starting PT over 3 weeks ago.  He is going thru about 14 padd a day and soaking them. …Continue

Started by patty a. Last reply by patty a Mar 27.

Watchful waiting??? Can it be trusted? How risky is it? 2 Replies

I was diagnosed with prostate cancer this past Friday. Here are my particularsAge 55Health issues: afib, prediabetic, obesity ( have recently lost 45 pounds and going down, had a TIA (small stroke)…Continue

Started by Mike Bachman. Last reply by John L Mar 26.

 
 
 

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