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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

E. Michael D. ("Mike") Scott replied to Jody Gorran's discussion AAFP Recommends Against DREs for Prostate Cancer Screening
"Dr. Penson is a scholar and a gentleman, and I would have expected no less from him. :O)"
1 hour ago
Jody Gorran replied to Jody Gorran's discussion AAFP Recommends Against DREs for Prostate Cancer Screening
"I sent a copy of my original post to the AUA:  I just received their response below. Mr. Gorran-I hope this email finds you well.  I am writing today in my official role as the Chair of Public Policy and Practice Support for the American…"
5 hours ago
E. Michael D. ("Mike") Scott left a comment for Larry Harrah
"Welcome Larry. It would help us to help you if you could provide us with a little more detail about yourself and your diagnosis, particularly including the following: -- Your PSA level at diagnosis -- Your clinical stage at diagnosis (e.g., T1c,…"
5 hours ago
Profile IconLarry Harrah and Mark Thomas joined The "New" Prostate Cancer InfoLink Social Network
5 hours ago
E. Michael D. ("Mike") Scott replied to Jody Gorran's discussion AAFP Recommends Against DREs for Prostate Cancer Screening
"Jody ... No one is disputing the reason for your concern ... There are absolutely men like you every year who only get diagnosed because of a positive DRE. ... And I have little doubt that there are men like you who do not get diagnosed every year…"
5 hours ago
Jody Gorran replied to Jody Gorran's discussion AAFP Recommends Against DREs for Prostate Cancer Screening
"Mike, I hope you're right that most practitioners will not be affected by the AFFP statement on DREs, I'm still concerned that this is the position of a respected organization whose recommendations are followed by some percentage of its…"
10 hours ago
E. Michael D. ("Mike") Scott left a comment for Mark Thomas
"Welcome Mark. It sounds to me as though -- living in the UK -- what you need is a consultant urologist who really thinks that you would benefit from a penile implant ... and would at least discuss this possibility with you. If nothing has worked…"
10 hours ago
E. Michael D. ("Mike") Scott replied to Jody Gorran's discussion AAFP Recommends Against DREs for Prostate Cancer Screening
"Dear Jody: The average family practitioner in the USA isn't really very competent at carrying out DREs in the first place, so the AAFP's position is at least understandable -- if not ideal. Having said that, I think the AAFP would have…"
10 hours ago
Jody Gorran replied to Jody Gorran's discussion AAFP Recommends Against DREs for Prostate Cancer Screening
"I sent the above as an email to the American Academy of Family Physicians for comment on 7/29/15. The following is their response which I think is outrageous. What do you think?Thank you for reaching out to us about our Choosing Wisely…"
yesterday
Don Oberlin replied to Arnon Krongrad, MD's discussion Side Effects of Androgen Deprivation in the group Androgen Deprivation Therapy / Hormone Suppression
"Anthony: I was also diagnosed with recurrent cancer at Mayo Clinic by choline scan. Your diagnosis sounds more serious and complicated than mine, but I can fully appreciate the difficult decision which you are facing. I too was offered cryo.…"
Friday
robert troy replied to Arnon Krongrad, MD's discussion Side Effects of Androgen Deprivation in the group Androgen Deprivation Therapy / Hormone Suppression
"Hi Anthony,    Can't say if this is consistent practice within Sloan, but have confidence in my team for last 9 years.  That said, will be having another CT/Bone scan in August to determine next steps, if any.…"
Friday
Anthony Arnold replied to Arnon Krongrad, MD's discussion Side Effects of Androgen Deprivation in the group Androgen Deprivation Therapy / Hormone Suppression
"Rob, I am interested in the fact that they are stopping the lupron/casodex after 9 months. I thought they had discontinued intermittent ADT as being less effective.Is Sloan Kettering doing it? I am probably about to go on lupron/casodex, as well as…"
Friday
Anthony Arnold replied to Arnon Krongrad, MD's discussion Side Effects of Androgen Deprivation in the group Androgen Deprivation Therapy / Hormone Suppression
"I am back from Mayo Rochester MN with results of my Choline C-11 PET scan. My PSA of 5.4 was well above the threshold (PSA=1.5) for detection, and they found it. It is still at the prostatic bed (somehow it survived IMRT) between bladder and rectum,…"
Friday
Gary Smith posted a status
"Back from vacation, was a great trip. Need to get on an exercise program as I am losing muscle mass and gaining weight."
Thursday
Keith K left a comment for Carole Morgenstern
"Hi I am a big fan of the Pros T vac. It's about expensive for the electric one 188 thru amazon. Wife and I love it once you get the hang of using it. They don't teach this stuff in medical trainING so my doc wasn't helpful. It will…"
Thursday
Tony Redd replied to Jake Hannam's discussion My Journey to Focal Cryotherapy in the group Cryotherapy and Prostate Cancer
"This BS can wear on you.  Hang in there! Tony"
Thursday
Jake Hannam replied to Jake Hannam's discussion My Journey to Focal Cryotherapy in the group Cryotherapy and Prostate Cancer
"Tony, Thanks for the reply. Good luck next month! As for me, I am still on Lupron but my PSA continues to rise so I will be looking at the next step. With the exception of back, hip and occasional buttoock discomfort, I am doing okay.Not ready to…"
Thursday
Tony Redd replied to Jake Hannam's discussion My Journey to Focal Cryotherapy in the group Cryotherapy and Prostate Cancer
"Jake, Thanks for the detailed chronology of your cryo treatments.  I have recurrent PCa after Proton Therapy in 2011 and am scheduled for Cryo at Duke Cancer Center at the end of next month (August 2015).  I'm doing a bit of research…"
Thursday
Tony Redd joined Robert's group
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Cryotherapy and Prostate Cancer

A group to discuss the technology, treatments, and outcomes from whole gland and focal cryotherapy therapy.See More
Thursday
E. Michael D. ("Mike") Scott left a comment for Tracey longley
"Welcome Tracey. Obviously, I can understand why you are concerned. It will be a great deal easier to understand what is going on once the doctors have the results of the X-rays and perhaps other types of scan too. However, I am not a doctor, and so…"
Thursday

Forum

AAFP Recommends Against DREs for Prostate Cancer Screening 6 Replies

As a prostate cancer survivor, having undergone a robot assisted laparoscopic prostatectomy in 2013, I’ve developed a certain sensitivity and concern regarding the subject of screening for prostate…Continue

Tags: DRE, Exam, Rectal, Digital

Started by Jody Gorran. Last reply by E. Michael D. ("Mike") Scott 1 hour ago.

Pre surgery..$&@#% retention!! 3 Replies

Hello brothers. Sorry this is so long. I had an abnormal DRE and a PSA of 5.0 in May. I was biopsied June 15 and was positive in 5 cores, 3 cores were (3+3) at total 95% core involvement (right mid)…Continue

Started by DP. Last reply by Chuck Grim Jul 26.

3T MRI recent information/studies and recommendations in the northeast 29 Replies

Hi all,    My PSA has jumped yet again, and I am hoping to avoid a third biopsy (first two were negative). I have been looking into doing a 3T MRI. Most of the information I have found on the web is…Continue

Tags: MRI, 3T

Started by Rich. Last reply by Scott Jul 20.

PSA Rise 3 Replies

Just returned from getting my nearly 5 and half year PSA results,I was a bit concerned it seems to have upward trend was 0.07 today six months ago was 0.05.The only treatment I have have had was my…Continue

Started by Tony Williams. Last reply by E. Michael D. ("Mike") Scott Jul 9.

Triple P injection - premature orgasm 1 Reply

I had my non nerve sparing surgery in September 2007.   All has been great since. Nothing showing on my annual PSA tests.  I have been using the Triple P injections since the surgery and having had…Continue

Started by S Blackwell. Last reply by E. Michael D. ("Mike") Scott Jul 7.

Length after Prostecomy and Penile implant 1 Reply

I understand that pulling the urethra in once the prostate is removed to connect to the bladder.  After 5 years of impotence, having a penile implant found I lost more.  I am 2 inches shorter.  It…Continue

Started by David Zopfijordan. Last reply by Chuck Grim Jul 6.

report on the biopsy

hello Mike...hope you are fine...I got the report and it goes like this :67 years of age. PSA 5.7.  6 core needle biopsy, each with one core longest measuring 1.1cms.Primary pattern : Grade 3.…Continue

Started by Naina Vira Jun 30.

psa rising one year after Radical Prostatectomy 4 Replies

hi, I'm from Belgium. Here we say that cancer is back when PSA reaches 0.20 after radical Prostatectomy.In the States, is this the same or is it 0.4?Now my PSA is 0.30     18 months after…Continue

Started by Delhasse. Last reply by E. Michael D. ("Mike") Scott Jun 24.

Cancer Treatement Centers of America 6 Replies

Has anyone had any experience with Cancer Treatement Centers of America?Continue

Started by David Grothe. Last reply by William Gary Jun 17.

Catheter Removal 4 Replies

I want to know if pulling out a foley catheter without full deflation of the balloon would cause trama with the spincter muscle. This happened in the ER to my husband Scott and he says he can now…Continue

Started by Vicki T. Last reply by Vicki T Jun 8.

 
 
 

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