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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

E. Michael D. ("Mike") Scott left a comment for Rick Smith
"Dear Rick: Thanks for the additional information. So with three cores showing Gleason 3 + 4 = 7, many urologists are going to tell you that active surveillance (AS) is only going to be an option for the relatively short term and that you do not meet…"
1 hour ago
Don Oberlin added a discussion to the group Androgen Deprivation Therapy / Hormone Suppression
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Dry Mouth Syndrome; Who Woulda Thunk?

The subject of my latest journal entry deals with dry mouth, its cause (high level of medications to control the progression of my PCa), my mini-research effort and what I decided. For full detail see:http://protondon.blogspot.com/See More
3 hours ago
Rick Smith left a comment for E. Michael D. ("Mike") Scott
"Hello Mike: Thanks for reaching out.  My psa was 1.1 in 2017, rising to 3.4 8/31/19.  Diagnosed with stage t1c.  Total of 16 cores, 4 were 3+3 with 1 carcinoma each, and 3 were 3+4, with 1 carcinoma each for a total of 7 positive…"
16 hours ago
Rick Smith updated their profile
23 hours ago
E. Michael D. ("Mike") Scott left a comment for John Vranicar
"Welcome John. So I see that you are 58 years of age with a clear family history of prostate cancer. Has anyone talked to you yet about germline testing to see if they can determine specific genes that might be affecting you and other members of your…"
23 hours ago
Profile IconJohn Vranicar and MitchM joined The "New" Prostate Cancer InfoLink Social Network
yesterday
E. Michael D. ("Mike") Scott left a comment for MitchM
"Welcome Mitch. So I see you are now 74 years young and have been managing a small Gleason 3 + 4 = 7 prostate cancer on active surveillance for the past 11 years or so. Good for you. Has anything changed to make you concerned about your status?"
yesterday
E. Michael D. ("Mike") Scott left a comment for Virgil "Butch" House
"Hi Butch. Thanks for the additional info, but some of this has left me a little puzzled. In your profile info above you say you have Gleason 8 disease but in the message you left yesterday you say you have Gleason 7 in the left lobe but only Gleason…"
yesterday
E. Michael D. ("Mike") Scott left a comment for Ardie Dandino
"Dear Ardie: It sounds as though your clinical stage is T1c because the only apparent reason for your urologist giving you a biopsy is the PSA level. One of the things you should ask the urologist about when you see him on 12/10 is your PSA density,…"
yesterday
Virgil "Butch" House left a comment for E. Michael D. ("Mike") Scott
"Hi Mike Thanks for getting back to me.  My urologist took 12 cores during biopsy, six on the left and six on the right. On the left side 50% of the cores are positive for Adenocarcinoma, on the right 15% of the cores are positive.  On the…"
yesterday
Ardie Dandino left a comment for E. Michael D. ("Mike") Scott
"Hi Mike, Thank you for your comments. I have an appointment with my Urologist next week and will be discussing all my options at that time. I can answer some of you questions you presented to me . My initial PSA level was at 6.2. A subsequent…"
yesterday
E. Michael D. ("Mike") Scott left a comment for Virgil "Butch" House
"Welcome Butch. So I see that you are 73 years young and have been diagnosed with Gleason 8 prostate cancer. This means that you have high-risk form of prostate cancer and if you have a life expectancy of another 5 or 10 years of so you would be wise…"
Friday
Profile IconVirgil "Butch" House, Ardie Dandino and Rick Smith joined The "New" Prostate Cancer InfoLink Social Network
Friday
E. Michael D. ("Mike") Scott left a comment for Ardie Dandino
"Dear Ardie: If you have just been diagnosed with Gleason 3 + 3 = 6 prostate cancer at the age of 79 years, your chances of having clinically significant prostate cancer that might lead to your demise are going to be very low, and it may well be that…"
Friday
E. Michael D. ("Mike") Scott left a comment for Rick Smith
"Dear Rick: I see you are 67 years young and have been diagnosed with Gleason 3 + 4 = 7 prostate cancer. We can help you to get a better understanding of your options and ther questions you need to be discussing with your doctors if you can tell us…"
Friday
E. Michael D. ("Mike") Scott left a comment for mark rettman
"Mark: Fatigue associated with radiation therapy is very "individual specific". It is almost impossible to predict with a significant level of accuracy. Your best best is to talk to one of the rad/onc nurses or patient navigators at MSKCC…"
Friday

Forum

Dry Mouth Syndrome 3 Replies

I have fairly recently experienced dry mouth. Google say a common cause of this malady is medications.There can be little doubt but that I am now and have been on a protocol which contains a large number of anticancer agents and supplements ala Dr.…Continue

Started by Don Oberlin. Last reply by Don Oberlin on Monday.

Post RP Surgery feedback 3 Replies

SO, the Prostate has now been removed and I am in first week of recovery with a catheter. I have a question about how many other men have large swelling of the scrotum. It's now larger than a large grapefruit, and I am keep it on a towel stack and…Continue

Started by Jim Fink. Last reply by Tom Full Nov 22.

IMRT vs Cyberknife vs Proton vs Seeds 1 Reply

Continue

Started by Jan Manarite. Last reply by mark rettman Nov 18.

newly diagnosed: This is where Im at after my second opinion 20 Replies

I was diagnosed after a truss biopsy done June 19th 2019 with the following findings : Intermediate pca, tc2, Gleason 7 favorable ( 3plus 4)12 cores were taken;  6 cores  were low  Gleason 6 (3 plus 3 ) One core was the Gleason 7 favorable (3 plus…Continue

Started by mark rettman. Last reply by mark rettman Nov 12.

Help finding surgeon! 6 Replies

I've seen a radiation oncologist, my gastroenterologist, and 3 surgeons. Radiation ruled out due to high risk of damage to my colon/rectum. Open surgery recommended due to the prior surgeries and scarring. Recommended that I find a surgeon with "a…Continue

Started by Rob R. Last reply by E. Michael D. ("Mike") Scott Nov 11.

Kidney disease and Prostate Cx treatment options

Early 2019, had radical nephrectomy for renal cell carcinoma, with recent 6 mo follow up negative CT.  Result: one less kidney and about 50% of kidney clearance rate I had previously.  Nephrologist told to avoid advil or the like as well and be very…Continue

Started by Kauai Steve Michelob Nov 8.

 
 
 

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The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.

Information provided on this site should not be used for diagnosing or treating any health problem or disease.

The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.

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