The "New" Prostate Cancer InfoLink Social Network

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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

thomas todaro posted a status
"I had a 12--core prostate biopsy. My PSA is 5.9. 10 core showed benign tissue and 2 core showed ASAP. Can anyone shed light on this findng?"
6 hours ago
Bill Kincade left a comment for E. Michael D. ("Mike") Scott
"Hi Mike, I am responding to your email. Thank you for your reply. I am 68 years of age and have a clean bill of health other than my diagnosis of prostrate cancer.  My cancer was discovered last year after a biopsy was performed. I had a PSA…"
20 hours ago
E. Michael D. ("Mike") Scott left a comment for Paul Brogan
"Welcome Paul. So at age 74 years, the presence of precancerous cells on biopsy is not exactly surprising. The question that needs to be discussed with your doctors is whether there are any other signals suggesting that the precancerous cells present…"
Wednesday
Profile IconPaul Brogan and Louis M Isgur joined The "New" Prostate Cancer InfoLink Social Network
Wednesday
E. Michael D. ("Mike") Scott left a comment for Louis M Isgur
"Welcome Lewis. How can we help you to help your friend?"
Tuesday
E. Michael D. ("Mike") Scott left a comment for Boonpaw
"Dear Boonpaw: In all honesty, an increase in your PSA level from 11 to 13 ng/ml over the past 2 years is much more likely to be associated with age-related enlargement of your prostate (benign prostatic hyperplasia or BPH), which is very common,…"
Jun 10
Boonpaw is now a member of The "New" Prostate Cancer InfoLink Social Network
Jun 10
E. Michael D. ("Mike") Scott left a comment for Greg
"Hi Greg. So the combination of ADT + Firmagon seem to be working well for you at over 3 years since your diagnosis. This is NOT going to go one working for ever .... On the other hand, it is very difficult to predict -- on an individual basis --…"
Jun 10
Greg left a comment for E. Michael D. ("Mike") Scott
"Hi Mike  sep 2018 psa 109 GL 7.5 started adt firmagon. ct showed pelvis, L4 lumbar, Left rib cage mats. Had EBRT 44 shots, still on firmagon. PSA has ben <.02 from 4/2019  "
Jun 9
E. Michael D. ("Mike") Scott left a comment for Stella Abud
"Welcome Stella. How can we be of assistance to you?"
Jun 9
Don Oberlin posted a discussion

Liquid Radiation

Anyone on this site have any knowledge of liquid radiation for the treatment of PCa? If so please share your information with the rest of us.Don O.See More
Jun 4
E. Michael D. ("Mike") Scott left a comment for John Purdy
"Welcome John. So I think you said you were 64 years of age, Stage 2, and with a Gleason score of 7. Yes? In order to be able to give you the most helpful insight and info, it would help us to be able to get a little more information, as follows: --…"
Jun 3
John Purdy is now a member of The "New" Prostate Cancer InfoLink Social Network
Jun 3
John left a comment for E. Michael D. ("Mike") Scott
"Thanks!  Dr Lin wants me to take PSA tests at 6 weeks and 3 months after the surgery, then every 3 months for the next year.  After that, he wants one every 6 months for the next 5 years."
May 31
E. Michael D. ("Mike") Scott left a comment for John
"So John ... If all your cancer was Grade Group 4 you are going to want to have a serious conversation with Dr. Lin about the bests ways to monitor this over time. because this is potentially a slightly higher risk category of cancer than your…"
May 31
James Harrington joined Ken's group
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Sexual Function, Penile Rehabilitation, and Quality of Life

Recovery of good sexual function (particularly post-surgery) is important for many men (and their partners). Here's a place to share what you can do to optimize your chances of a high erectile and sexual QoL (albeit, normally, without the full capabilities of an 18-year-old).See More
May 31

Forum

Liquid Radiation

Anyone on this site have any knowledge of liquid radiation for the treatment of PCa? If so please share your information with the rest of us.Don O.Continue

Started by Don Oberlin Jun 4.

IMRT vs Cyberknife vs Proton vs Seeds 2 Replies

Continue

Started by Jan Manarite. Last reply by Tom May 13.

Experiences at Cleveland clinic Weston FL or U of Miami Sylvester Cancer center

Hi all:Considering treatment here in South Florida and wondering if anyone has any experience or input with either of these facilities and/or doctors:Cleveland Clinic Weston FL:Dr Alok Shrivastava or Dr Nicolas Muruve. (Surgeons)U of Miami Sylvester…Continue

Started by Tom Lyman Apr 22.

ADT (Lupron after surgery, then radiation) followed by watchful waiting

After a 5 1/2 year "vacation" from Lupron injections, my PSA has made it back from 0 to 5.20. 3 months ago it was  3.24, so the rate of increase is speeding up a bit. My oncologist and I of course have expected this would happen, and we are probably…Continue

Started by Reed Anderson Apr 21.

Anyone here down-staged by pathologist after RP 10 Replies

How many people have been down-staged after RP?Back in April, mpMRI suggested that I had some extraprostatic extension (EPE).After my RP, the pathologist didn't see any EPE, so I was down-staged (cT3a to pT2c).From my reading of the literature, it…Continue

Started by Tom Wimberly. Last reply by Baiba Hughes Mar 27.

Possibility of symptomatic bone metastasis with very low PSA 3 Replies

Had prostatectomy in 10/19. Post op pathology was PT3a, 4+3,EPE and PSM. PSA was 0.01 3 months after surgery. Urologist ordered Decipher because of adverse pathology, it came bask high risk. At 6 months post RP MY PSA was .03. Although still low we…Continue

Started by James R. Last reply by Baiba Hughes Mar 26.

 
 
 

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GENERAL DISCLAIMER

The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.

Information provided on this site should not be used for diagnosing or treating any health problem or disease.

The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.

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