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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

Michael Douglas commented on gregory williams's group For African-American Men
"Don't know since no one posted here in 6 years."
5 hours ago
Howard Ross commented on gregory williams's group For African-American Men
"Is this site still active?"
5 hours ago
Howard Ross joined gregory williams's group
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For African-American Men

A site for African-American men to understand and discuss risks and facts associated with Black men being diagnosed with prostate cancer and dying of prostate cancer at significantly higher rates than other ethnic groups.
5 hours ago
Howard Ross left a comment for E. Michael D. ("Mike") Scott
"I met with Dr. Ritter UW Madison today. He says that the PSA is still to low 07 to say conclusively that it is a recurrence so we will do another PSA exam in April and based decisions on it. If it continues to rise then radiation this summer. What…"
6 hours ago
E. Michael D. ("Mike") Scott left a comment for Howard Ross
"Howard: Actually this may not be a recurrence. It could be just that a small amount of non-cancerous prostatic tissue was left behind that the time of your surgery and has started to grow again. While you should clearly monitor your PSA with care,…"
23 hours ago
Howard Ross updated their profile
yesterday
Howard Ross replied to Delhasse's discussion psa rising one year after Radical Prostatectomy
"I don't know much about radiation except it may be where I am headed but I read that it takes a little while fir cancer cells to die."
yesterday
Howard Ross left a comment for E. Michael D. ("Mike") Scott
"Oops, forgot to add that I had surgery. PSA was .08 in Dec 2014 right after surgery then then in March it dropped to <.05 July <.05 then it climbed to .05 in Oct and .07 in Jan 2016. I guess this is a recurrence."
yesterday
Howard Ross left a comment for E. Michael D. ("Mike") Scott
"PSA at time of surgery was 5.64 Primary Tumor pt2a Percentage of prostate 5% From biopsy 6 pieces all cancerous by 90 percent I am in pretty good health"
yesterday
E. Michael D. ("Mike") Scott left a comment for Howard Ross
"Welcome Howard. So at 70 years of age with Gleason 3 + 4 = 7 prostate cancer, the first and most important question you need to be thinking about is whether you have "favorable" or "infavorable" intermediate risk disease. Why?…"
yesterday
Howard Ross is now a member of The "New" Prostate Cancer InfoLink Social Network
yesterday
John Simons updated their profile
yesterday
E. Michael D. ("Mike") Scott left a comment for James McHugh
"Hi James. So you have already worked out the most basic way to sue the system, which is by messages people leave for you on your home page (and by leavinf messages and questions for others). You can also join one of the various Groups (see the…"
Saturday
James McHugh left a comment for E. Michael D. ("Mike") Scott
"Hello Mike,    How do I participate in this site?  I am not very good on the computer.                                            Thank…"
Saturday
E. Michael D. ("Mike") Scott left a comment for Dr Al Pfadt
"Welcome Al. So a significant percentage of men initially diagnosed with Gleason 9 (high-risk) prostate cancer do indeed progress after both initial surgery and salvage radiation therapy. Why? Because they probably have micrometasatic disease at the…"
Saturday
Dr Al Pfadt is now a member of The "New" Prostate Cancer InfoLink Social Network
Saturday
Joaquin Ramos joined E. Michael D. ("Mike") Scott's group
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ED and Incontinence Post-treatment

Almost everyone has short-term problems immediately after treatment. Optimizing functional recovery is possible and there are things you can do if there are problems.
Friday
E. Michael D. ("Mike") Scott left a comment for Major
"Dear Major: There are all sorts of reasons why a man of 67 years of age might have a rising PSA -- among which prostate cancer is by no means the most likely. You can use this online tool to get an initial (and relatively accurate) estimate of…"
Friday
Major is now a member of The "New" Prostate Cancer InfoLink Social Network
Friday
E. Michael D. ("Mike") Scott left a comment for Ron Gaudreau
"Dear Ron: Re "How did you get involved ...?" That's a 20-year-long story now. Suffice it to say that the second web site I ever built (in 1995, just after the web became real, through Netscape) was a prostate cancer web site for…"
Thursday

Forum

psa rising one year after Radical Prostatectomy 7 Replies

hi, I'm from Belgium. Here we say that cancer is back when PSA reaches 0.20 after radical Prostatectomy.In the States, is this the same or is it 0.4?Now my PSA is 0.30     18 months after…Continue

Started by Delhasse. Last reply by Howard Ross yesterday.

Duke visit - 2nd opinion 9 Replies

Roy and I went to Duke today to meet with Dr Andrew Armstrong, medical oncologist. He recommended adjuvant radiation to the prostate bed plus 6 months ADT, with possible longer term ADT, even though…Continue

Started by Maria Ore. Last reply by Kingsley on Thursday.

how long should I wait before testing psa after salvage radiotherapy? 1 Reply

after removal of prostate I was all right during one year then psa began to rise again: 0.10 0.15 0.20....when it reached 0.38 I started salvage radiotherapydoctor said : after the salvage therapy…Continue

Started by Delhasse. Last reply by E. Michael D. ("Mike") Scott Feb 2.

Post-Salvage Radiation Therapy PSA Expectations?? 1 Reply

I am interested to know what experiences others have had regarding their PSA scores after completing Salvage Radiation. I finished 38 IMRT treatments at the end of June 2013.  The radiation…Continue

Started by Dave S.. Last reply by Delhasse Feb 2.

Leg pain and weakness after radiation 3 Replies

Two weeks ago I completed 7 weeks of radiation following a rise in my PSA.    I had a radical 1 1/2 years ago.  I have leg pains similar to the "Growing Pains" I experienced as a kid.  They are…Continue

Started by john schmidt. Last reply by Delhasse Feb 2.

Any heard of HOLEP laser treatment? 3 Replies

Did anyone hear of Holep? Why is it so rare? Why is not an option in case cancer has not been ruled out, if it in fact removes the entire prostate but is somewhat easier to the patient than TURP? Is…Continue

Started by Hull. Last reply by Richard L. Jan 31.

PSA 15 without enlarged prostate - what can it be? 1 Reply

Hi,A year after Holep (so no enlarged prostate), PSA rose from 10 after Holep to 15 now. What can explain such a high PSA other than prostate cancer (with such a high PSA I would expect somethin on a…Continue

Started by Hull. Last reply by Chuck Grim Jan 29.

Pls Recommendation in the San Francisco 1 Reply

Hi,Can anyone recommend someone who can do a good biopsy in the San Francisco area (without damage and the least false negative). After very smooth Holep, PSA went down to 10, but increased to 15 and…Continue

Started by Hull. Last reply by E. Michael D. ("Mike") Scott Jan 22.

PSA on the rise again. 1 Reply

Well, had PSA test again, a rise from 3.9 to 5.5 this time. It is bouncing a little up and down, retest in 2 months now if PSA rise, again MRI and biopsy's despite nothing found last time ( aug 2015)Continue

Started by Marc Stronken. Last reply by E. Michael D. ("Mike") Scott Jan 21.

Confused 1 Reply

Hi Mike went back to Dr. today for 2nd PSA result post surgery. My 1st came back 0.2 if you recall. My 2nd one came back 1.3 the two were taken 6 weeks apart. I was told that it decreased. I'm…Continue

Started by Clifton Simpler. Last reply by E. Michael D. ("Mike") Scott Jan 19.

 
 
 

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