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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

E. Michael D. ("Mike") Scott commented on Andrew's status
"Andrew: My bet would be that the feeling of nausea is, indeed, a stress response, bjut obviously I can't be sure. What is much more important is whether you are showing signs of bright red blood in your urine (as opposed to dark red), and…"
15 hours ago
E. Michael D. ("Mike") Scott left a comment for John Stamat
"John: The system cut off the last little bit of the message I tried to send you. so here is the last paragraph in full: This is all a lot to take in ... especially on Thanksgiving day ... so I am sorry to be the bearer of bad news. What I will tell…"
15 hours ago
E. Michael D. ("Mike") Scott left a comment for John Stamat
"Welcome John, and thank you for providing all of the relevant information that allows us to offer you some preliminary prognostic information. If we plug all of your data into the Kattan pre-treatment nomogram, using the highest PSA value of 13.3,…"
15 hours ago
John Stamat is now a member of The "New" Prostate Cancer InfoLink Social Network
16 hours ago
E. Michael D. ("Mike") Scott left a comment for STEVEN MCGUIRE
"Steven: It is very important that you have a serious conversation with your doctors so that you really understand why they are making the recommendations that they are making. Surgeons tend to recommend surgery as a treatment for prostate cancer in…"
16 hours ago
Andrew posted a status
"Help? Catheter came out (VERY painfully) today - now urinating blood and air...Is this to be expected? It hurts too."
yesterday
STEVEN MCGUIRE left a comment for E. Michael D. ("Mike") Scott
"thanks mike for getting in touch  all i know is 1st stage cancer and psa 6 my ono said to me at first maybe moniter me or surgery or radiotherapy that was 3weeks ago spoke to surgon last week and he advised surgery i  think it is because…"
yesterday
R. Parr left a comment for E. Michael D. ("Mike") Scott
"Thank you very much, Mike... I will be discussing all of your suggestions on Dec 3rd!!  Wishing you and your family a wonderful Thanksgiving!"
yesterday
E. Michael D. ("Mike") Scott left a comment for STEVEN MCGUIRE
"Oh, and Steven, I am sorry; I forgot to mention this before. It is utterly unsurprising that there was no clear evidence of prostate cancer on the imaging scans you were given, particularly if you have low-risk prostate cancer. Most scans really…"
yesterday
E. Michael D. ("Mike") Scott left a comment for R. Parr
"Mr. Parr: First, I am utterly unsurprised that your scans came back negative. Obviously this is good from your perspective, but it is exactly what I would have expected. With regard to waiting until March to start treatment, here are never any…"
yesterday
R. Parr left a comment for E. Michael D. ("Mike") Scott
"Just heard from my scans yesterday and they are clear!! My family doctor got the results for me...As I stated before we have rented a place in Ca. to be close to grandchildren for Jan and Feb.  I see my urologist on December 3rd.  My…"
yesterday
E. Michael D. ("Mike") Scott left a comment for STEVEN MCGUIRE
"Welcome Steven: I see that you are 50 years of age and that you were diagnosed last September with a PSA level of 6 ng/ml, but I have no idea what you mean when you write "gl 1" because there is no such thing as a Gleason score of 1. Is it…"
yesterday
Profile IconSTEVEN MCGUIRE and Dan Ruth joined The "New" Prostate Cancer InfoLink Social Network
yesterday
Andrew posted a status
"Wishing a happy, blessed and HEALTHY Thanksgiving to all of you in the United States."
yesterday
E. Michael D. ("Mike") Scott left a comment for Dan Ruth
"Welcome Dan. I note that you are 62 years of age. Because, when it comes to the management of early stage prostate cancer (which is very likely to be what you have been diagnosed with), the Devil is very much in the details, it would help us to help…"
yesterday
Andrew replied to Andrew's discussion Looking for advice on Kegel exercises
"Thanks, Mike."
Wednesday
purshotam left a comment for E. Michael D. ("Mike") Scott
"Mike My worry is that though my psa is declining it should, as you mention, have been in the undetecable range. The lead doctor is a radiation oncologist. Fortunately in my centre a team of doctors including a medical oncologist review each…"
Tuesday
E. Michael D. ("Mike") Scott replied to Andrew's discussion Looking for advice on Kegel exercises
"Andrew: Here is a link to a very well developed set of information about post-treatment incontinence, inclusive of instructions about Kegel exercises (at the end of the document). This document was written by patients and nursing personnel for…"
Tuesday
Andrew posted a discussion

Looking for advice on Kegel exercises

Hi all,There is very little information locally available on bladder control exercises etc.  Although I have read many US Hospital documents on the subject, I would value any experiential advice from fellow sufferers/practitioners?See More
Tuesday
purshotam left a comment for E. Michael D. ("Mike") Scott
" Hello! Mike  Yesterday I discussed with my onco your comment to switch to Firmagon. He agrees. My current 3 monthly Zoladex is due only in Fen 2015.He has suggested the switch at that time. My psa last month that is in Oct 2014 came down…"
Tuesday

Forum

Looking for advice on Kegel exercises 2 Replies

Hi all,There is very little information locally available on bladder control exercises etc.  Although I have read many US Hospital documents on the subject, I would value any experiential advice from…Continue

Started by Andrew. Last reply by Andrew on Wednesday.

My ultra-sensitive PSA test results at the 7 year mark shows jump 1 Reply

 I have a question for everyone on this thread:For five years following my Sept. 2007 RP (robotic), my PSA was zero.  At the fifth year anniversary it jumped to 0.01. Six month later, it went back to…Continue

Started by Mark Ragan. Last reply by E. Michael D. ("Mike") Scott on Monday.

Awaiting results 25 Replies

Waiting results or second biopsy. First was two years ago at that time PSA was 2.7. Showed one core of 14 with high-grade pin. since then six-month intervals PSA has been 2.9, 2.7, 3.1, AND NOW 4.3.…Continue

Started by Anon. Last reply by Anon on Sunday.

Back home from the RP with clinical pathology report... 3 Replies

Hi Mike and all,Back home with catheter, which is horribly uncomfortable in the perineum - is that normal?Clinical pathology report confirmed pT2c:Microscopy resection margins:Anterior: 3mm…Continue

Started by Andrew. Last reply by E. Michael D. ("Mike") Scott on Sunday.

use of cannabis oil to treat pc 1 Reply

Having read a lot of favorable information regarding the use of cannabis oil to treat pc as well as other cancers, I am wondering if anyone has tried this or knows someone who has.  As someone who is…Continue

Started by Mark Bartlett. Last reply by E. Michael D. ("Mike") Scott on Sunday.

Anyone interested in performing a clinical trial on Salvestrols? 5 Replies

Would any of the researchers in the group be interested in submitting a proposal to NIH/NCI CAM to perform a clinical trial on Salvestrols. They have funding and this is just the kind of study that…Continue

Started by David Grothe. Last reply by E. Michael D. ("Mike") Scott Nov 21.

Is there REALLY a monster in the closet? 11 Replies

I feel like a little kid holding the closet door closed - he's convinced that there's a monster in there, but is afraid to look inside to see.With undetectable PSA, when does it make sense to go off…Continue

Started by Robert Heavey. Last reply by E. Michael D. ("Mike") Scott Nov 16.

Robotic prostare surgery. 3 Replies

Hi I have a question.My robotic radical prostatectomy is booked for 8th Dec 2014.I also have a grade 2 spondylolithesis in my lower back.My question could this cause other complications with the…Continue

Started by Kingsley. Last reply by E. Michael D. ("Mike") Scott Nov 9.

Upgrade from gleeson 6 to 7.3+4 10 Replies

After 12mths on active surviellance received the news on repeat biopsy of another 4cores positive.One core 100 percent gleeson 3+4 another 75percent Gleeson 3+4.The other 2 cores gleeson 3+3.Over 2…Continue

Started by Kingsley. Last reply by Kingsley Nov 3.

RapidArc vs. CyberKnife 1 Reply

Hi All, My dad had a 12 needle biopsy on October 14th that came back positive for PCa in three cores on the right side of his prostate, 5%, 10% and 20%. He has been rated a Gleason 6 and has received…Continue

Started by sarah d. Last reply by E. Michael D. ("Mike") Scott Oct 31.

 
 
 

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