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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

Joe K shared jefferey W lew's discussion on Facebook
11 hours ago
Joe K shared Regalhank's discussion on Facebook
11 hours ago
denis michael finnegan left a comment for denis michael finnegan
"I had Hdr as a monotherapy."
12 hours ago
James Kell left a comment for E. Michael D. ("Mike") Scott
"Yes Mike, thanks for asking! I am T1c.12 cores-4 positive, 5.5 PSA, Neuroplastoma when I was 4 years old. There is perennial invasion shown in 1 core."
15 hours ago
David Johnson left a comment for E. Michael D. ("Mike") Scott
"Thank you Mike. I am doing well and gaining strength everyday. I did have some complications during surgery ending up with 6 hours and a temporary stent in my bladder. Anyway, that will be removed on 2/1/21. "
15 hours ago
John left a comment for E. Michael D. ("Mike") Scott
"thanks for that, Mike....I've been reading about the miR  test but I'd say it will be a while before it's available in Ireland... Hopefully the liquid biopsies will be become mainstream in general over the next few years..."
18 hours ago
Concerned wife left a comment for E. Michael D. ("Mike") Scott
"Yes,   Locally the MO said probable lifetime ADT. We heard NY RO say no one does that anymore. We have video call in Feb and will ask again. The literature sure seems to favor lifetime if you have bone Mets. Right now my husband is focused on…"
19 hours ago
Concerned wife left a comment for E. Michael D. ("Mike") Scott
"Mike, You are so nice.  It was horrendous at first. But we did our research,made decisions and now are back to appreciating our life.  I have learned from several posts it is best not to look back with regret or anger ( about husband not…"
19 hours ago
E. Michael D. ("Mike") Scott left a comment for Concerned wife
"Hi again Concerned wife. So my understanding (and please correct me if I am wrong) is that the radiation therapy was directed to both the prostate itself and to at least some of the surrounding pelvic anatomy, including the metastatic site in the…"
19 hours ago
E. Michael D. ("Mike") Scott left a comment for Concerned wife
"Dear Concerned Wife: I forgot to ask you something very important earlier. How are YOU doing?"
19 hours ago
Concerned wife left a comment for E. Michael D. ("Mike") Scott
"He is on lupron and abi with prednisone. No surgery. Just radiation described in other comment"
19 hours ago
E. Michael D. ("Mike") Scott left a comment for James Kell
"Welcome James. I see you are 59 years young. So it would help us to help you if you could answer just a few more questions for us that will help us to understand what risk category you fall into. This will help you to appreciate why you may or may…"
19 hours ago
Concerned wife left a comment for E. Michael D. ("Mike") Scott
"He had one met visible on pubic ramus on traditional scans at diagnosis. We asked about newer scans but the doctors said it wouldn’t change treatment. And with Covid restricting travel and being in shock,  we didn’t pursue this.…"
19 hours ago
Profile IconJames Kell, Joe K, David Johnson and 2 more joined The "New" Prostate Cancer InfoLink Social Network
19 hours ago
E. Michael D. ("Mike") Scott left a comment for Joe K
"Welcome Joe. And thanks for all the detailed information. That's very helpful So on the one hand you seem to meet most of the critical criteria for very low-risk prostate cancer, and if that is the case you would appear to be an excellent…"
19 hours ago
E. Michael D. ("Mike") Scott left a comment for David Johnson
"Welcome David. I hope we can "live up to" your friend's recommendation. How have you been doing since your surgery? Is your PSA still low and stable?"
20 hours ago

Forum

treatment of metastatic prostate cancer 1 Reply

Mike, thank you again for your comments.  I hae one more question,  Are you familiar with Proton Therapy?  My understading is this is radiation that targets a beam to each cancer cell.  Is this viable for my condition?Thanks again for your time and…Continue

Started by Thomas M. Drago. Last reply by E. Michael D. ("Mike") Scott Dec 11, 2020.

Treatment for metastatic prostate cancer 4 Replies

Mike, I hope these comments find you as I would really appreciate your input.  It's been a while since I have written.  Last time was in 2018.At that time I was diagnosed with metastatic prostate cancer.  I went thru a clinical trial at MUSC in…Continue

Started by Thomas M. Drago. Last reply by E. Michael D. ("Mike") Scott Dec 9, 2020.

BCR with slightly lower PSA after 7 Weeks radiation 7 Replies

Hi guys, just looking for some advice. Had robotic removal in June 2018. PSA undetectable til Feb 2020 when it peaked at 0.22. Had seven weeks of radiation an 2 Luperon (?) injections. PSA now at 0.10 but still there. Just looking for any experience…Continue

Started by Mike B. Last reply by Mike B Nov 23, 2020.

Does one wait for cancer to present itself or begin Androgen therapy 53 Replies

Please see my stats for details on my recurrent cancer.  After more than 4 PET scans at the Mayo in 2017, my oncologist said I should wait until my PSA has risen to 8 before getting another scan because the cancer remained undetectable.  Then in…Continue

Started by Tom Full. Last reply by E. Michael D. ("Mike") Scott Nov 16, 2020.

Does Infolink notify participants of new posts/discussions and new comments on older posts? 4 Replies

I belong to another forum that sends me daily updates of new questions/posts. Does infolink do the same?Continue

Started by dale maley. Last reply by dale maley Oct 18, 2020.

psa 8 Replies

MIKE,it's been just over 2 years since I completed salvage radiation.My PSA has been. <0.01 until yesterday it was 0.01 I assume to be cancer free the PSA number should. zero out to 0.00?What's your opinion on the small increase? ShareContinue

Started by randy hoft. Last reply by E. Michael D. ("Mike") Scott Sep 29, 2020.

 
 
 

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The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

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