The "New" Prostate Cancer InfoLink Social Network

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The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.


Latest Activity

E. Michael D. ("Mike") Scott left a comment for Nora
"Hi again Nora. How's your husband doing on the ADT? And, just as importantly, how are YOU doing?"
22 minutes ago
Howard Ross commented on Howard Ross's status
"Thanks Mike. Less than <. So my PSA <.09 means that the score is less than .09 perhaps .08 or so. These numbers are so confusing."
14 hours ago
Jan Manarite's event was featured

Prostate Cancer TODAY - Living Well; Choosing Wisely at Charlotte Harbor Event & Conference Center

March 4, 2017 from 9am to 5pm
In FLORIDA - A  1-Day Conference for PATIENTS & CAREGIVERS.  Come interact with Mike Scott, Jan Manarite, Dr Krongrad, and a full list of speakers and experts.Small Workshops, Large Sessions, and plenty of Q&A will make this conference a fun and positive learning experience.  The focus will be simply to serve…See More
17 hours ago
Jan Manarite left a comment for John holback
"Hi John and welcome.  Some prostate cancers are very slow growing and don't need treatment.  So with stage 4 kidney disease that seems like the most important thing to figure out - up front.  Here are some questions that will…"
17 hours ago
Profile IconJohn holback and Carrie joined The "New" Prostate Cancer InfoLink Social Network
17 hours ago
Nora updated their profile
21 hours ago
Howard Ross posted a status
"Thanks, so my recent PSA of <.09 means that it is less than .09. The next test is in April last Jan PSA was .07."
Howard Ross posted a status
"Do the < mean anything"
Howard Ross posted a status
"change providers. PSA in July was .06, increased to .10, I I changed from Dean to Group Health. Took a PSA and it was <.09. Is this correct"
Alan Kousen replied to patty a's discussion blood in urine
"Med student is way off base- he has NO evidence to suggest cancer is present. Your physician should be told about the poor advice."
Alan Kousen replied to Raul Miranda's discussion RPP Scheduled
"Please do keep us informed. Best of luck with your therapy."
E. Michael D. ("Mike") Scott left a comment for Joe Simanek
"Joe ... Sorry ... That sentence in my last message should have read as follows: "... a good deal of data to suggest that a rising ultrasensitive PSA that has gone from < 0.05 to 0.09 ng/ml over the past 3 to 4 months is highly indicative of…"
Joe Simanek is now a member of The "New" Prostate Cancer InfoLink Social Network
Jan Manarite left a comment for Peter R. Kafka
"Hi Peter, and welcome.  How are things in beautiful HI?  I worked with David Derris for years at PCRI - I know he's been active in HI, but I can never remember which island he's on.  He's a great advocate also. How are…"
Jan Manarite left a comment for Frank
"Hi Frank, and welcome.  How can we help you? What side effects concern you most about treatment choices? How many biopsy cores were cancerous?  (I assume 12 were taken?) Did you have a prostate MRI before the biopsy? Lots of people…"
Profile IconFrank and William Nixon joined The "New" Prostate Cancer InfoLink Social Network


blood in urine 5 Replies

My husband had radiation 2 years ago for PC, also 2 years of Lupron.  Doing great.  PSA still undectectable.  Last week he peed blood.  Only one. Yesterday  urine test showed RBC 11-50.  Dr will repeat in 2 weeks.  Med student says it's probably…Continue

Started by patty a. Last reply by Alan Kousen on Friday.

RPP Scheduled 2 Replies

Finally the D day or rather the RPP day is already here (in addition to a lymphadenectomy). Next tuesday I'm scheduled for the Sx; hopefully everything will go OK and by this means I will keep you informed of my progress in recovery. Wish me luck !…Continue

Started by Raul Miranda. Last reply by Alan Kousen on Friday.

New data regarding Sipuleucel-t / Provenge - relevance? 12 Replies

Going through the ASCO 2016 abstracts I came across this here: - the paper presents new data regarding Sipuleucel-t and concludes:…Continue

Started by Michael Moppert. Last reply by Michael Moppert on Monday.

my update till next time 4 Replies

ike ive had a bad couple of mos after 7yrs of low psa "s the last 3 times that every 3 mos I go to see my doctor snd get my Lupron shotmy psa has went up from a .2  to last 10/16 vist  a 1.2psa  to this wenday its now 2.4    there to order some…Continue

Started by kenneth lippold. Last reply by E. Michael D. ("Mike") Scott Jan 14.

Stent for urethar 3 Replies

in 2013 Jan. ( 3 years after prostatectomy )  I was unable to…Continue

Tags: stent

Started by Edmund Chiu. Last reply by E. Michael D. ("Mike") Scott Jan 14.

incontinence 8 Replies

Would like to know how many people out there still have incontinence after 2 years. Is this common? Is it caused by a botched surgery? What can be done about it? My doctor proposed a sling. Don't really want to go in there again. Any suggestions or…Continue

Started by joseph davis. Last reply by joseph davis Jan 13.





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