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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

David Grothe posted a discussion

Olaparib

A genetic analysis last summer showed that my PC had the BRCA2 genetic marker. Starting in the next 10 days or so I will be trying a course of Olaparib. Results of the TOPARP clinical trial are quite encouraging for those of us with this genetic marker.  I'm going to find out how it applies in my case.Anybody else have experience with this drug?See More
11 hours ago
Don Oberlin left a comment for William Hardy
"William: As part of your research effort you may find the following book by Bob Marckini  helpful: "You Can Beat Prostate Cancer..." His chapter on the advantages and disadvantages of several methods for treating PCa is usually…"
yesterday
E. Michael D. ("Mike") Scott left a comment for William Hardy
"Welcome William. I see that you are 63 years young. When it comes to the management of relatively early stage prostate cancer, which is likely to be what you have, the Devil is always in the details, so -- could you answer a few questions for us to…"
yesterday
Profile IconWilliam Hardy and Peggy Johnston joined The "New" Prostate Cancer InfoLink Social Network
yesterday
E. Michael D. ("Mike") Scott left a comment for Peggy Johnston
"Hi Peggy. Unfortunately your husband's delayed reaction to how he feels about his decision to have surgery is not uncommon ... a form of "buyer's remorse" (except that you can't return the "product"). On the other…"
yesterday
Peggy Johnston left a comment for E. Michael D. ("Mike") Scott
"Thank you Mike for your response. My husband is really depressed and has a lot of anxiety since the surgery. It's truly effected his quality of life. So much so that he wishes he would never have had the surgery primarily because he had no…"
yesterday
E. Michael D. ("Mike") Scott left a comment for Peggy Johnston
"Welcome Peggy. So how is your husband doing 12 months after his surgery ... and, just as importantly, how are YOU doing?"
Wednesday
E. Michael D. ("Mike") Scott left a comment for sap zeken
"Sap. Your really need to discuss this with your doctor as opposed to me. However, what I can tell you is that a Prolaris score of about 3.5% indicates a less aggressive form of cancer. For example, have a look at what the manufacturer of the…"
Tuesday
sap zeken left a comment for E. Michael D. ("Mike") Scott
"HI mike , i did prolaris test and result is 3.8  what do you advice for time of treatment?"
Tuesday
E. Michael D. ("Mike") Scott left a comment for Mel
"Welcome Mel. So how long ago did your husband have his surgery? How is he doing? ... And, just as importantly, how are YOU doing?"
Tuesday
Profile IconMel and Karl Bruun joined The "New" Prostate Cancer InfoLink Social Network
Tuesday
E. Michael D. ("Mike") Scott left a comment for Greg H
"Hi Greg. Thanks for your note. I am pleased to hear that you had a good first experience in San Antonio. First impressions are always important. I hope that your treatment goes well for you and that you continue to receive high quality care. I would…"
Tuesday
Greg H left a comment for E. Michael D. ("Mike") Scott
"Hey Mike thanks again on the CTRC info. Met Dr John S today- nice guy and very thorough. First Lupron in 4 weeks. On Bicalutamide now. Looks like 6 rounds of Chemo starting in June. All good. Thanks again."
Tuesday
E. Michael D. ("Mike") Scott left a comment for Karl Bruun
"Carl: So with a clinical stage of T2a and a PSA of < 6 ng/ml, there is a significant chance that a cancer like this is curable with early, aggressive therapy. The important thing is going to be making sure that you get treated by someone who…"
Monday
Ray joined Kathy Meade's group
Thumbnail

Let's Talk About Survivorship

Cancer survivors are people who have been diagnosed with cancer and those affected by the diagnosis, such as family, friends, and caregivers. This is a place to talk about the wide variety of issues that are part of the survivorship experience.See More
Monday
Karl Bruun left a comment for E. Michael D. ("Mike") Scott
"Hello Mike, My last PSA (march 2016) was 5.75 and from the biopsy I was staged at T2a...Karl Bruun "
Monday
E. Michael D. ("Mike") Scott left a comment for Karl Bruun
"Welcome Carl. So the bad news is that you clearly have a high-riusk form of prostate cancer that will need aggressive treatment. On the other hand, the good news is that you live within a boat-ride of one of the best prostate cancer treatments…"
Monday
E. Michael D. ("Mike") Scott left a comment for Gudisa Robi
"Gudisa: You are right. You are not a good candidate for AS. You certainly can go onto androgen deprivation therapy (ADT, also known as "hormone" therapy) for a while prior to finalizing any decisions about treatment. Indeed, if you are…"
Monday
Naina Vira replied to Naina Vira's discussion update on my husband's treatment
"Dear Mike Hello after a long time..I hope you are well... Well we have been keeping an eye on the PSA and it is raising steadily...it was 5.3 in Sept  went down to 5.1 in Dec approx. that was last year and then now it is raising from 6. in Feb…"
Monday
Gudisa Robi left a comment for E. Michael D. ("Mike") Scott
"Hi Mike, I don't believe I qualify for AS. I am wondering if I can go on hormone treatment for about six months to a year before deciding on RP or RT. It is my understanding HT stops cancer from spreading for a short time. How short a time?…"
Monday

Forum

Olaparib

A genetic analysis last summer showed that my PC had the BRCA2 genetic marker. Starting in the next 10 days or so I will be trying a course of Olaparib. Results of the TOPARP clinical trial are quite…Continue

Started by David Grothe 11 hours ago.

update on my husband's treatment 3 Replies

Hello MikeHope you had a good weekend!  Just thought I would share with you my husband's update.I think you remember that he underwent biopsy which showed 10% involvement in one of the 6 cores with…Continue

Started by Naina Vira. Last reply by Naina Vira on Monday.

Post Radiation shingles 3 Replies

Hi I just finished 33 treatments of IMRT before easter within a few days contracted shingles was wondering if this is a common problem post radiation?The radiation went well with only minor gastro…Continue

Started by Kingsley. Last reply by Kingsley Apr 20.

Salvage radiation 3 Replies

I am facing salvation radiation and I am worried about the side effects and what to expect during and after could someone please share their experience.ThankyouContinue

Started by Greg Nelson. Last reply by dave varez Apr 20.

Post-Salvage Radiation Therapy PSA Expectations?? 3 Replies

I am interested to know what experiences others have had regarding their PSA scores after completing Salvage Radiation. I finished 38 IMRT treatments at the end of June 2013.  The radiation…Continue

Started by Dave S.. Last reply by Murray Apr 20.

castration 1 Reply

need info about castration for prostate cancer after prostate surgery. hormone therapy is too costlyContinue

Started by Galen j. Last reply by E. Michael D. ("Mike") Scott Apr 20.

Blood in urin 5 Replies

Hi Just wondering if anyone has had this problem I'm 6 weeks out of surgery catheter has been out for 4 weeks . Everything seemed to be going well down to 1 pad a day . Two nights ago I got up to use…Continue

Started by Pete . Last reply by E. Michael D. ("Mike") Scott Apr 19.

Testicle pain nine weeks after open surgery 4 Replies

At times I am still experiencing testicular pain (mostly in left) when walking or upon contact. The Depend Guards in my boxer briefs actually help contain the scrotum so often the pain is manageable,…Continue

Started by Allen M. Last reply by Allen M Apr 12.

Active Surveillance 3 Replies

HelloI was diagnosed in December 2015 and, due to unusual circumstances, initially met with doctors in PA, Johns Hopkins and Moffitt Cancer Center, FL.  Only the last doctor, at Moffitt, suggested…Continue

Started by Rob. Last reply by E. Michael D. ("Mike") Scott Apr 7.

Nomogram? 2 Replies

This article mentions the development of a nomogram by Stephenson, et al. Have you ever seen this, or know of a link to it?Thanks, Mike!…Continue

Started by Maria Ore. Last reply by Maria Ore Apr 5.

 
 
 

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