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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

Ken Schuster posted a discussion

Male Breast Reduction Surgery for Gynecomastia - Experience?

If you've had enlarged breasts (gynecomastia) resulting from prostate cancer treatment and sought breast reduction surgery or other remedy, please share your experience here.See More
4 hours ago
Ken Schuster updated their profile
5 hours ago
E. Michael D. ("Mike") Scott left a comment for Steven buttles
"Welcome Steven: Pain in the penis after a radical prostatectomy is not normal, but there is no way for us to be able to tell you why you are having such pain. If you haven't already done this you would be wise to contact your surgeon's…"
10 hours ago
Steven buttles is now a member of The "New" Prostate Cancer InfoLink Social Network
10 hours ago
Carl V Peterson replied to Eduardo's discussion Real Talk
"I very much appreciate your honesty Eduardo.  In 1995 my PSA came in at just under 10.  They did a 12 random stick biopsy and found nothing.  A year later they did another 12 random stick biopsy and found nothing.  I read and…"
yesterday
E. Michael D. ("Mike") Scott left a comment for stephen raab
"Stephen: Here is a link to a nomogram on the Memorial Sloan-Kettering Cancer web site. This nomogram is specific to outcomes post-surgery in men whose PSA drops into the undetectable range (i.e., < 0.1 ng/ml) post-surgery. This can occur rapidly,…"
Wednesday
stephen raab left a comment for E. Michael D. ("Mike") Scott
"In Oct of 2018, PSA was 10.4, retested in 12/18 and was 17.2. Gleason score at 12/18 was 7: Gleason post surgery 5/19 was 9 No post surgical margins-At time of surgry there were no positive lymph nodes or seminal vesiclesW Since surgery was just 3…"
Wednesday
Steven Reid posted photos
Wednesday
E. Michael D. ("Mike") Scott left a comment for stephen raab
"Welcome Stephen. I see that you are now 73 years of age. Are you able to provide us with some detailed information about your original diagnosis and your post-surgical pathology, such as the following: -- Your PSA level at diagnosis -- Your…"
Wednesday
stephen raab is now a member of The "New" Prostate Cancer InfoLink Social Network
Wednesday
E. Michael D. ("Mike") Scott left a comment for Steven Reid
"Steven: I am not aware that there are any accurate tests currently available that can be used to project when a man with your diagnosis might become either metastatic or castration-resistant. However, ... Some guidelines now suggest that all men…"
Wednesday
Steven Reid left a comment for E. Michael D. ("Mike") Scott
"Hi Mike: The next issue I would like to address is the concern for metastatic castration-resistant prostate cancer (CRPC).  I understand that there are recent advances mostly using molecular gene or protein analysis to use for the purpose of…"
Wednesday
E. Michael D. ("Mike") Scott left a comment for Frank Barbarits
"Dear Frank: Like all tests, MRIs are not perfect. They come with risks for false positives and false negatives. Insurance companies don't want to pay for tests that don't come with "certainty" and they ignore the fact that the…"
Tuesday
Frank Barbarits left a comment for E. Michael D. ("Mike") Scott
"Mike, The insurance company refused to pay for the MRI until they could discuss it with the doctor.  They could not reach him in time so I cancelled the MRI scheduled for Friday (May 10).  They actually…"
Tuesday
E. Michael D. ("Mike") Scott commented on Terry Herbert's group Active Surveillance / Expectant Management
"Actually Carl there has been a major shift in the mindset of the urology cmmunity over the past decade once it became clear from the ProspecT trial in the UK than men with low-risk disease generally did just as well on active monitoring of various…"
May 13
Carl V Peterson commented on Terry Herbert's group Active Surveillance / Expectant Management
"Sounds like urology continues to tighten its' grip on men by recommending treatment.  I had a PSA of 9 when I turned 50 nearly 24 years ago!  With random stick biopsies they didn't discover the cancer, although I'm certain…"
May 13

Forum

Male Breast Reduction Surgery for Gynecomastia - Experience?

If you've had enlarged breasts (gynecomastia) resulting from prostate cancer treatment and sought breast reduction surgery or other remedy, please share your experience here.Continue

Tags: side-effect, PCa, gynecomastia

Started by Ken Schuster 4 hours ago.

Real Talk 7 Replies

I am 11 years post RP. I went through what could be described as a barbaric, disingenuous, and debilitating process. I have been in therapy for over 10 years. I've tried pill, shots, diet, pumps, etc. My marriage fell apart and all new attempts at…Continue

Started by Eduardo. Last reply by Carl V Peterson yesterday.

Does one wait for cancer to present itself or begin Androgen therapy 6 Replies

Please see my stats for details on my recurrent cancer.  After more than 4 PET scans at the Mayo in 2017, my oncologist said I should wait until my PSA has risen to 8 before getting another scan because the cancer remained undetectable.  Then in…Continue

Started by Tom Full. Last reply by E. Michael D. ("Mike") Scott May 7.

PSA rising almost immediately after IMRT/IGRT external beam radiation 6 Replies

My 16 core biopsy on my 93cc prostate showed one core with Gleason 6 (<10%) and one core with ASAP cells. I completed 39 radiation treatments (no surgery) at the end of July 2018. Pre-treatment my PSA was 7.0. My first PSA test was at 7 weeks was…Continue

Started by Wayne Farris. Last reply by Wayne Farris Apr 18.

Husband diagnosed last week 6 Replies

Hi all - my husband, at age 37, was diagnosed. It started off with the lab ordering a PSA because they hadn't received the lab slip from the dr, so they ordered what he "usually" orders. It came back at 5, which was investigated because of husband's…Continue

Started by Tammy. Last reply by ASAdvocate Mar 15.

Side effects of radiation treatment 5 Replies

I am almost 74 in good health and fairly active. I was recently diagnosed as having prostate cancer. I have had a MRI and a biopsy and waiting on the results of a bone scan. A rectal examination revealed a smooth fairly small prostate without…Continue

Started by James Crowe. Last reply by ASAdvocate Mar 15.

 
 
 

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The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

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