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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

Jan Manarite left a comment for Chuck DePriest
"Hi Chuck and welcome.  Chronic prostatitis can be difficult - sometimes even for urologists.  It can also make your PSA go up and down which is a little confusing. What are your main complaints?  Maybe some other men here can help…"
6 hours ago
Profile IconChuck DePriest and Will Pavers joined The "New" Prostate Cancer InfoLink Social Network
6 hours ago
Jan Manarite left a comment for Will Pavers
"Hi Will, and welcome.  How long ago were you diagnosed? Firs of all, the perineural invasion may or may not be important.  It is one of those things that has been studied and sometimes appears important - sometimes not important at…"
14 hours ago
Jan Manarite left a comment for Anne Pallister
"With that in mind, and everything else you've said, I would ask your urologist to send your biopsy pathology out for an expert 2nd opinion on the Gleason Score.  Johns Hopkins is the most well known, including by urologists. …"
yesterday
Jack Burns left a comment for Jan Manarite
"Thanks very much Jan, I'll have a look around. Jim"
yesterday
Anne Pallister left a comment for Jan Manarite
"e.d. plus anything else that would stop him living an active life style.  He bikes hundred of  miles a week and we do big hiking trips."
yesterday
Jan Manarite left a comment for Jack Burns
"Hi Jack, and welcome - lot of members here to share experiences with.  If you look at the left side of the Main Page, you will see some smaller groups you can join.  Or you can just share something on the Main Page itself. Let us know…"
yesterday
Jack Burns is now a member of The "New" Prostate Cancer InfoLink Social Network
yesterday
Jan Manarite left a comment for Anne Pallister
""The choices are still going to be the same" may not be a fair assumption.  I've been doing this for 15 years.  You may either find different options (there are MANY types of radiation), or you might find a better option at…"
yesterday
Anne Pallister left a comment for Jan Manarite
"And also, even if he waits to make a decision, the choices are still going to be the same"
yesterday
Anne Pallister left a comment for Jan Manarite
"We have spoken to a few people with prostate cancer but they have all been much worse than my husband so it was not really useful in terms of making a decision as to go with which treatment."
yesterday
Anne Pallister left a comment for Jan Manarite
"5.3 and it went up from 4.6 six months ago"
yesterday
Don Oberlin left a comment for Anne Pallister
"Anne: As part of your research effort you and your husband may find the following book by Bob Marckini  helpful: "You Can Beat Prostate Cancer..." His chapter on the advantages and disadvantages of several methods for treating…"
yesterday
Alan Kousen replied to JustReal999's discussion Proton Therapy or Brachytherapy: Which is best for sexual side effects?
"One factor not discussed here is the impact of ADT, often used in combination with radiation therapy. In my case, used only to weaken the cancer before brachytherapy and EBRT. ADT has its own issues related to ED. Here is a link for a study that may…"
Sunday
Jan Manarite left a comment for Anne Pallister
"OK, that helps.  With only 1 core, and more Gleason grade 3 than Gleason grade 4 (3+4), I would argue that you have plenty of time to make a treatment decision.  Gleason grade 3 is the least aggressive type of prostate cancer. -…"
Sunday
Anne Pallister left a comment for Jan Manarite
"HiJan Only one was cancerous (25% of the sample) and one was tagged as "suspicious""
Sunday

Forum

Proton Therapy or Brachytherapy: Which is best for sexual side effects? 4 Replies

I am considering either Proton Therapy (PT) or Low-Dose Rate Brachytherapy (LDR-BT). I've done a ton of research. Unfortunately, there are no studies that directly compare PT with BT.  And, it is difficult to compare the existing studies of PT with…Continue

Tags: Sexual, ED, Effects, Side, Brachytherapy

Started by JustReal999. Last reply by Alan Kousen on Sunday.

My husband was newly diagosed 58 Replies

My husband has been diagnosed with PC Gleason score 3+4 7 psa 5.6.Small area on right side. We are waiting for results from nuclear report and then start to make decisions about treatment (surgery, radiation), etc. This is all the information we…Continue

Started by Lynn Boccia. Last reply by Lynn Boccia on Friday.

Seeds are in; home and little discomfort 8 Replies

Its Day ONE.... Feel fineEverything went smoothly, by 1 pm we were on our way home. We were impressed by the staff and the professionalism and care provided. NO discomfort from the implants; but urination has some  burning and medication was…Continue

Tags: seeds, T2C, ADT, Brachytherapy

Started by Alan Kousen. Last reply by Alan Kousen on Thursday.

short-term ADT 29 Replies

What are side effects of SHORT-TERM ADT? I'll be on one three-month shot followed by radiation. Dr. says to expect hot flashes, loss of libido, and ED, which reverse at end of three months. Is this accurate? Any other side effects/risks I should be…Continue

Started by VLH. Last reply by Alan Kousen Mar 17.

Hypofractionated Proton Therapy and ED 2 Replies

I'm considering hypofractionated (19 treatments, 5 days/week) Proton Therapy (PT) because it seems to have a better cure rate than conventional (conformal) fractionation. Since the Proton Therapy (PT) studies don't really have much data beyond 5…Continue

Tags: FFBF, FFBP, BT, PT, IMRT

Started by JustReal999. Last reply by Alan Kousen Mar 7.

How aggressive are these numbers? 13 Replies

My PSA was <0.1 in March 2011, <0.1 in September 2011, 0.1 in March 2012, <0.2 in May 2012 (tested by GP), and 0.3 in August 2012 (again tested by the same GP).  How aggressive is that increase?Continue

Started by Arthur Rollins. Last reply by E. Michael D. ("Mike") Scott Mar 2.

 
 
 

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The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.

Information provided on this site should not be used for diagnosing or treating any health problem or disease.

The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.

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