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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

John Levine commented on John Levine's blog post Had genetic testing done on my biopsy, and results seem to move me out of AS
"Thanks Mike, I tend agree with your assessment which I respect, I do not think there is a lot of experience in this area, I think UC San Francisco Dr Peter Carroll is doing some work in this area, and I will take your advice and try to get a…"
2 hours ago
E. Michael D. ("Mike") Scott left a comment for Thomas R McMinn
"Thomas: I really don't understand physicians who get POed when patients diagnosed with prostate cancer say they are going to get a second opinion. In my mind it is commonly a wise thing to do from the patient's perspective and good…"
6 hours ago
E. Michael D. ("Mike") Scott commented on John Levine's blog post Had genetic testing done on my biopsy, and results seem to move me out of AS
"Dear John: Very few people have had significant experience of using tests like the Prolaris test prospectively to date (i.e., to actually make decisions about how to treat real patients), so it is extremely difficult to know how to advise…"
6 hours ago
E. Michael D. ("Mike") Scott left a comment for G. John Fleig
"Dear John: I certainly don't even pretend to be expert on the quality of the different radiation oncologists scattered across America. However, my guess would be that the people at Johns Hopkins would be among the best (given their relationship…"
6 hours ago
G. John Fleig left a comment for E. Michael D. ("Mike") Scott
"Hi Mike, 1)  Agree with your comment.  Added info:  Samadi agreed to do lymphnode biopsies during RP.  If found to be cancerous, remove them before closing.  When asked post op how were lymphnodes, he replied they biopsied…"
7 hours ago
John Levine posted a blog post

Had genetic testing done on my biopsy, and results seem to move me out of AS

I had 1 core out of 12 with 5% and a Gleason score of 3+3 show a Prolaris score of .5. My stage is T2a. slight firmness in right apex. Reference ranges are as follows:<-1.7. Considerably less aggressive-1.7 to -.7. Less aggressive-.7 to .3. Consistent.3 to 1.3 more aggressive> 1.3 considerably more aggressiveMy result of .5 has a mortality risk of 3% in the next 10 years from PCaAny thoughts on how much weight one should give to these genetic tests?I am thinking that active survalence…See More
7 hours ago
2 Comments
Thomas R McMinn posted a status
"Got a 2nd opinion scheduled for 6/24 with Urology Centers of Alabama. Will go from there."
8 hours ago
1 Comment
Thomas R McMinn left a comment for E. Michael D. ("Mike") Scott
"PSA of 5.8   The way the doctor explained it.  1 out of 3 on this part and 2 out of 3 on the next part, so you have 3 positive out of 12.  It is not the fast growing kind, but, also, not the slowest growing kind.…"
8 hours ago
E. Michael D. ("Mike") Scott left a comment for G. John Fleig
"Dear John: (1) Dr. Samadi is presumably working from the standard hypothesis that surgical failure is based on a PSA that rises to 0.2 ng/mk or higher. (2) The Dattoli center is Florida is certainly well known. Whether it is really…"
9 hours ago
G. John Fleig left a comment for E. Michael D. ("Mike") Scott
"Hi Mike,  Had Da Vinci prostatectomy in end of Feb of 2012 by Dr. David Samati in NYC.  My PSA since RP has risen from 0.06 to 0.17.  Live in MD.  Local Uro wanted to radiate 6 months ago.  Read Baltimore Sun Paper article…"
21 hours ago
E. Michael D. ("Mike") Scott left a comment for G. John Fleig
"Welcome John. How long ago was your RP? What are your questions?"
22 hours ago
Profile IconG. John Fleig and william seidel joined The "New" Prostate Cancer InfoLink Social Network
22 hours ago
E. Michael D. ("Mike") Scott left a comment for william seidel
"Welcome Bill. What was your PSA level when they found the metastasis and what is it now?"
yesterday
E. Michael D. ("Mike") Scott left a comment for Lynn Noah
"Lynn: So if I put your last four PSA levels into the doubling time calcualtor on the Memorial Sloan-Kettering web site, it tells me that your current PSA doubling time is actually nearly 4 years! At that rate, in 16 years time your PSA level will be…"
yesterday
Lynn Noah left a comment for E. Michael D. ("Mike") Scott
"Oops. I meant 0.055 in Jun '11."
yesterday
Mark teodoro posted a status
"I' m considering entering the MRI guided therapy clinical trial being conducted at NIH. Does anyone have any experience with this trial?"
yesterday
2 Comments
Lynn Noah left a comment for E. Michael D. ("Mike") Scott
"Mike, I REALLY appreciate your comments and your time. Hate to take up too much space here but, just to clarify a bit more: I had RALP in Aug '05. PSA was <.03 (lowest reading from that lab) until Jun '11 when it came back 0.55. First…"
yesterday
E. Michael D. ("Mike") Scott replied to Bill Washburn's discussion Is Proton Radiation (EBRT) superior to Photon Radiation Therapy?
"Bill: Re antioxidants, the following statement appears in an article on "Symptom management with complementary therapies for patients receiving radiation therapy": "The administration of high-dose antioxidants during radiation therapy…"
yesterday
E. Michael D. ("Mike") Scott left a comment for Lynn Noah
"Hi Lynn. Thanks for the additional information. I would just make a couple of comments, as follows: (1) You need to be careful about the use of PSA doubling time calculators for very low PSA levels like yours. Few of them are really accurate when…"
yesterday
Lynn Noah left a comment for E. Michael D. ("Mike") Scott
"Thanks for the comments Mike. When I plug my #'s in to a PSA doubling time calculator it comes back at 21 months. I had a pre-op PSA that bounced around between 2.5 yto 4.0. Path report showed positive margin at the apex. I was continent…"
yesterday

Forum

Is Proton Radiation (EBRT) superior to Photon Radiation Therapy? 20 Replies

I am hearing and reading  about the benefits of Proton Beam radiation therapy as compared to Photon Beam therapy with regards to either short term or long term less side effects? I know it is more…Continue

Started by Bill Washburn. Last reply by E. Michael D. ("Mike") Scott yesterday.

ADT Duration for High Risk PCa 2 Replies

Mike,I started Lupron in January 2012 prior to 45 IMRT treatments for a Gleason 9, T3B biopsy/diagnosis. I was told by my Radiation oncologist that he wants me on Lupron for three years after the end…Continue

Started by Tom Belt. Last reply by Tom Belt on Thursday.

Low T After PCa Treatment 1 Reply

I asked my urologist his opinion on resuming TRT for my low T.  I had stopped using Androgel prior to my seed implant.  He said, though the role in testosterone and prostate cancer is still being…Continue

Started by Robert James. Last reply by E. Michael D. ("Mike") Scott on Thursday.

Perineural invasion 3 Replies

Greetings all. I am 6 weeks post Da Vinci robotics removal of prostate and just received a copy of the path report which documents a finding that "perineural invasion" is present. Other than this…Continue

Started by Marc. Last reply by E. Michael D. ("Mike") Scott on Tuesday.

Cost of Treatment 1 Reply

With the vast information on this network regarding Prostrate Cancer procedures, would anyone have a proximate cost for 25 radiation treatments and seed planting ? I am on Medicare and have a…Continue

Started by Bill McQuerry. Last reply by Dave S. on Monday.

biopsy si? biopsy no? 2 Replies

After being diagnosed two and a half years ago at age 61 with only one out of 12 cores positive and a low psa (4 or 5) and Gleason, I have refused to undergo another biopsy due to the risk of…Continue

Started by Richard Natale. Last reply by E. Michael D. ("Mike") Scott May 16.

how long do i wait to start treatment 12 Replies

 PSA 6.0gleason score 6early stage62 yrs old1 core out of 24 cancer at 50%no other health issuesContinue

Started by Mark teodoro. Last reply by John Levine May 11.

Looking for advice - thinking of getting a penal pump 7 Replies

My husband Pat and I are six months on from surgery - first blood test PSA < 0.008. Incontinence Improving all the time. Down to using one pad and only occasional small leakages. Surgeon was very…Continue

Started by Pat. Last reply by Ed Brown May 8.

Hormonal Therapy 1 Reply

Mike,Maybe I'm jumping the gun here !Six months ago my psa jumped to 9.9. We started adt therapy immediately. After 3 months the psa dropped to 4.1.Continuing the therapy after another 3 months the…Continue

Started by Kenneth Hancock. Last reply by E. Michael D. ("Mike") Scott Apr 30.

Prostate Cancer Hormonal Therapy 1 Reply

Some 15 years ago I underwent a RP. ADT was utilized to reduce the PSA readings. It was successful.3 Years ago the PSA returned to previous levels. ADT was again utilized to reduce the PSA levels.…Continue

Started by Kenneth Hancock. Last reply by E. Michael D. ("Mike") Scott Apr 29.

 
 
 

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Arnon Krongrad, MD created this Ning Network.

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