The "New" Prostate Cancer InfoLink Social Network

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The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.


Latest Activity

Sheldon Hays commented on E. Michael D. ("Mike") Scott's group Proton-beam radiation therapy (PBRT)
"Thank you Dave and Christian.....I appreciate it.  Sounds like some good advice. Sheldon"
2 hours ago
Dave Ellis commented on E. Michael D. ("Mike") Scott's group Proton-beam radiation therapy (PBRT)
"Even though my PBRT was 7years  ago my urgency/ burn urination occurred around 10 days in but resolved itself with short RX 40 mg daily of Flomax less than 45 days. My Doc advised it can  take 30 days  just to make a difference…"
2 hours ago
Christian Ellefson commented on E. Michael D. ("Mike") Scott's group Proton-beam radiation therapy (PBRT)
"Sheldon, MDA advised me to take cranberry juice.  I don't like it very much, but when I started having a little bit of irritation, it worked like a charm.  Irritation only started for me in week 7.  Many of the guys didn't…"
9 hours ago
Sheldon Hays commented on E. Michael D. ("Mike") Scott's group Proton-beam radiation therapy (PBRT)
"Thanks Mike....I'll do that."
11 hours ago
E. Michael D. ("Mike") Scott left a comment for Robert B Nichols
"The group known as Radiotherapy Clinics of Georgia, has been promoting a form of combination radiotherapy (brachytherapy + external beam radiation therapy) for years. They refer to and promote this technique as "ProstRcision". They also…"
11 hours ago
E. Michael D. ("Mike") Scott commented on E. Michael D. ("Mike") Scott's group Proton-beam radiation therapy (PBRT)
"Dear Sheldon: Selected patients may receive treatment with a drug like tamulosin (Flomax) to shrink the prostate when they start radiation therapy in order to minimize risk for increased frequency and other symptoms of prostate enlargement…"
11 hours ago
Robert B Nichols left a comment for E. Michael D. ("Mike") Scott
"Thank you for the welcome.  I'm obviously new to this whole thing. Had a follow-up MRI in Dec. and a scheduled 2nd biopsy scheduled for early Feb. The MRI showed 2 PIRADS 5 lesions. One was where the biopsy showed previously and the 2nd…"
JERRY RUNNELS joined FairRider's group

Radiation Therapy for Prostate Cancer

A place to discuss radiation therapy in general (IMRT, IGRT, brachytherapy, wide field, etc.), outcomes, side effects, equipment, finding an radiation oncologist experienced in treating prostate cancer, etc, etc
JERRY RUNNELS joined E. Michael D. ("Mike") Scott's group

The CyberKnife Therapy Forum

CyberKnife therapy is a form of radiation treatment that is becoming more popular for the treatment of low- and intermediate-risk prostate cancer. Here's a space to share experiences and gain information -- along with physicians who use it.
Sheldon Hays commented on E. Michael D. ("Mike") Scott's group Proton-beam radiation therapy (PBRT)
"I am starting Proton Therapy in 9 days.  The info given me by the treating center alerts me to the fact that I may experience increased frequency of urination and burning about 2-3 weeks after start of treatment.  And to notify the staff…"
E. Michael D. ("Mike") Scott left a comment for Ronald Gordon
"Welcome Ronald. Do you really have prostate cancer? This would be EXTREMELY rare in a man of your age. If you do, please provide some details because you will almost certainly need early treatment."
Profile IconRonald Gordon, Robert B Nichols, Kathy Williamson and 1 more joined The "New" Prostate Cancer InfoLink Social Network
E. Michael D. ("Mike") Scott left a comment for Robert B Nichols
"Welcome Robert. It sounds as though you have a low-risk form of prostate cancer that may be being simply monitored because it is unlikely to be clinically significant (i.e., it is very unlikely to metastasize or lead to your demise). Is that…"
E. Michael D. ("Mike") Scott left a comment for Kathy Williamson
"Welcome Kathy. So what you are going to need to learn and understand will -- to a significant extent -- depend on the precise details of your husband's diagnosis and how he decides to be treated (if immediate treatment is even necessary). It…"
E. Michael D. ("Mike") Scott left a comment for Lloyd Belcher
"Welcome Lloyd. At 76 years of age if you have a very low-, low-, or favorable intermediate-risk form of prostate cancer, you should do well on active surveillance. Your urologist should probably confirm you biopsy status by giving you an…"
Diane Winston left a comment for Schnauzerluv
"Hello, my husband also has prostate cancer (diagnosed 6.5 years ago).  We live in western WA also.  Diane is not my name ... reading about all the treatment options is overwhelming.  I am an MD anesthesiologist and my husband was 57…"


Does one wait for cancer to present itself or begin Androgen therapy 34 Replies

Please see my stats for details on my recurrent cancer.  After more than 4 PET scans at the Mayo in 2017, my oncologist said I should wait until my PSA has risen to 8 before getting another scan because the cancer remained undetectable.  Then in…Continue

Started by Tom Full. Last reply by Tom Full on Wednesday.

Long term side effects 2 Replies

Hello All. 4yrs ask my dad was diagnosed and treated for Prostate cancer (surgery), current PSA status is 0.0. But as a side effect it seems he is very bothered by being constipated to a point where sometimes hell just a have a small meal for the…Continue

Started by Dev. Last reply by E. Michael D. ("Mike") Scott Jan 3.

Recently Discovered High PSA - Looking for Houston locals who have experienced Prostate Cancer

I was recently told my PSA level jumped very high. My PCP recommended I see a urologist.  I've now visited 2 and will need to get a biopsy.  I'm looking for individuals in the Houston area that can help make recommendations or help direct me.  I…Continue

Started by Carl Dec 27, 2019.

How aggressive are these numbers? 20 Replies

My PSA was <0.1 in March 2011, <0.1 in September 2011, 0.1 in March 2012, <0.2 in May 2012 (tested by GP), and 0.3 in August 2012 (again tested by the same GP).  How aggressive is that increase?Continue

Started by Arthur Rollins. Last reply by Arthur Rollins Dec 27, 2019.

Dry Mouth Syndrome 3 Replies

I have fairly recently experienced dry mouth. Google say a common cause of this malady is medications.There can be little doubt but that I am now and have been on a protocol which contains a large number of anticancer agents and supplements ala Dr.…Continue

Started by Don Oberlin. Last reply by Don Oberlin Dec 2, 2019.

Post RP Surgery feedback 3 Replies

SO, the Prostate has now been removed and I am in first week of recovery with a catheter. I have a question about how many other men have large swelling of the scrotum. It's now larger than a large grapefruit, and I am keep it on a towel stack and…Continue

Started by Jim Fink. Last reply by Tom Full Nov 22, 2019.





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