The "New" Prostate Cancer InfoLink Social Network

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The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.


Latest Activity

Robert Powell posted a status
"Hello guys, new to this site. Not really sure how to navigate, but I have in been diagnosed a year ago. I am looking to gain friends."
Oct 18
Tom Full replied to Tom Full's discussion Does one wait for cancer to present itself or begin Androgen therapy
"Apologies for just seeing this now @Mike B.  I never received an email notification.  C-11 Choline is a bit overrated imo.  It was ahead of its time when developed but PSMA tests, particularly f18 can detect cancer earlier.…"
Oct 17
SMac updated their profile
Sep 23
Mike B replied to Tom Full's discussion Does one wait for cancer to present itself or begin Androgen therapy
"This is very interesting as I am going through the exact same thing as Tom. Tom, I hope you are well. I appreciated all of your great info. I suspect I have same doctors, Dr.F in St.Paul and Doctor W at Mayo.  I’m only posting because the…"
Aug 25
Alan William updated their profile
Jul 6
Howard Ross posted a status
"Looks like this site is dead"
Jul 4
Don Oberlin posted a status
"To whom it may concern: How is Mike doing? Are we going to get him back? If so when? Don O."
Jul 4
Howard Ross posted a photo
May 28
Howard Ross posted a photo
May 28
Howard Ross posted a photo
May 28
Howard Ross posted a photo
May 28
Howard Ross posted a status
"Is this still active"
May 28
jeff updated their profile
May 12
Richard Stanton posted a status
"Mike, I hope you are doing well. I miss your newsroom posts and excellent analysis of prostate cancer abstracts and clinical trial results."
Apr 15
Richard Stanton updated their profile
Apr 15
Steve Z updated their profile
Apr 6


Does one wait for cancer to present itself or begin Androgen therapy 67 Replies

Please see my stats for details on my recurrent cancer.  After more than 4 PET scans at the Mayo in 2017, my oncologist said I should wait until my PSA has risen to 8 before getting another scan because the cancer remained undetectable.  Then in…Continue

Started by Tom Full. Last reply by Tom Full Oct 17.

irreversible electroporation

Is irreversible electroporation effective? An article Journal of Urology by Dr Bernardino Miñana López suggests 85% of patients treated this had good success with no incontinence or impotence. Would it work for Gleason 4+3Continue

Started by Laurent Huber Feb 22.

Artificial urinary Sphincter 2 Replies

Hi all, it's been awhile and I continue to have negative PSA's. However, my incontinence persists and an Artificial urinary sphincter procedure has been suggested. Anyone have experience with this surgery and how were the results?ThanksContinue

Started by Tom Graybill. Last reply by Tom Graybill Jan 12.

Has this happen to you during IMRT? 1 Reply

I'm halfway through salvage IMRT about four years after having a RP.  The IMRT also involves using CT imaging (IGRT) everyday to adjust the daily treatment area based on my particular body position and bladder size for that day.  I have tattoos the…Continue

Started by Steve L. Last reply by E. Michael D. ("Mike") Scott Dec 29, 2022.

Unexplained UTI symptoms 2 Replies

For the past 7-8 weeks I've had some discomfort in my penis. It largely mirrors the discomfort of a UTI, including a slight burning sensation when I start to urinate every few days. But over all I would say that I feel my penis in a way that I only…Continue

Started by Samuel Richards. Last reply by Samuel Richards Oct 11, 2022.

ELATOR Erectile Dysfunction Device 4 Replies

Is the ELATOR ED device just an expensive gimmick or ?Continue

Started by Harvey Hughett. Last reply by Harvey Hughett May 17, 2022.






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