The "New" Prostate Cancer InfoLink Social Network

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The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.


Latest Activity

Eric Latta posted a status
"Could you make any recommendations of a good doctor in the Denver area for a second opinion in order to better help me make a good decision?"
12 hours ago
Dave S left a comment for E. Michael D. ("Mike") Scott
"March 2017 PSA was .9, 2018 was 1.4 and 2019 was 2.1.  Each of the past two years has seen a 50% increase.  PCP suggests we wait and see another score in 6 months. "
14 hours ago
E. Michael D. ("Mike") Scott left a comment for Dave S
"Dear Dave: So can you tell me your last three PSA levels and the exact dates on which you had bllod drawn for the tests? It is not at all unusual for a man of your age to have a rising PSA. Whether it is actually cancer or not, and whether it needs…"
14 hours ago
Profile IconDave S, Robert Chapel and Eric Latta joined The "New" Prostate Cancer InfoLink Social Network
14 hours ago
Jan Manarite left a comment for Eric Latta
"So if you only had 2 out of 12 cores cancerous, and they were both Gleason 6, Active Surveillance would either be the preferable or recommended option for you.  I would seriously consider waiting the 6+ weeks (longer is better), and getting the…"
15 hours ago
Eric Latta left a comment for Jan Manarite
"Thank you for the welcome. it has only been about a week and a half since the biopsy. Guess just hearing the word 'cancer' is a bit overwhelming.  Among other things the Dr did recommend educating myself through this and other…"
17 hours ago
Jan Manarite left a comment for Robert Chapel
"Hi Robert - welcome.  Here's a few things I would look at, that might be helpful: (1) Is this "PSA/cancer recurrence"?  Or is this "PSA bounce/bump", which is NOT cancer recurrence?  I would make sure I asked…"
20 hours ago
E. Michael D. ("Mike") Scott left a comment for George rae
"Dear George: Have you sought your cardiologist's opinion about the risks associated with being on Lupron in your case? His/her opinion may be more relevant than a med/onc's! However, I see your point about finding out what your care team…"
20 hours ago
Jan Manarite left a comment for Eric Latta
"Hi Eric - welcome.  How long ago was your biopsy?  Has it been explained to you that a Gleason Score of 3+3=6 is the best (least aggressive) cancer you can have?  Read more here - Should pure Gleason 6 disease still be called cancer…"
George rae left a comment for E. Michael D. ("Mike") Scott
"Sorry for the long time to respond, my Uro and RO are not in agreement about stopping Lupron. My heart issues are the sticking point, it took care team a month to sign off on Lupron last year. I had hypofractionated RT 28 treatments with SpaceOar…"
E. Michael D. ("Mike") Scott left a comment for Dogdays
"If you are able to work at it and manage your diet, you may find you can dump that 30 lbs and  get back off the diabetes train too. It takes determination and patience, but some men are able to do it."
Jan Manarite left a comment for Bob Hannon
"Hi Bob - yes, I remember our conversation.  I am still intrigued by your ability to get insurance to pay for PROVENGE even though you didn't have suppressed testosterone.  That still amazes me, as I've never heard that before -…"
Bob Hannon joined Peter Stahl MD's group

Sex after prostate cancer treatment - what to expect

Forum moderated by me (Assistant Professor of Urology and Director of Male Sexual Medicine at Columbia University in NY) to discuss the sexual side effects of prostate cancer treatment, strategies to optimize sexual outcomes after treatment, and treatments for common sexual side effects such as erectile dysfunction and urine leakage during sexual activitySee More
Bob Hannon left a comment for Jan Manarite
"Hi Jan.  I was at the conference and we did speak (I am the one who got Provenge covered by private insurance without any ADT).  I had the gene testing done by Foundation about 3 or 4 years or so ago when I was doing the Inovio…"
Jan Manarite left a comment for Bob Hannon
"Hi Bob - welcome.  I work from my home in Ft Myers, and we just did a free conference on March 2nd at FGCU.  Were you there? I appreciate how you've made your treatment decisions, and thought outside the box on several things. …"
Jan Manarite left a comment for Richard Aston
"Hi Richard - welcome.  How long have you been doing "Watchful Waiting?"  Do you know the difference between that and "Active Surveillance"?  We actually run an Active Surveillance Virtual Support Group, where guys…"


PSA rising almost immediately after IMRT/IGRT external beam radiation 3 Replies

My 16 core biopsy on my 93cc prostate showed one core with Gleason 6 (<10%) and one core with ASAP cells. I completed 39 radiation treatments (no surgery) at the end of July 2018. Pre-treatment my PSA was 7.0. My first PSA test was at 7 weeks was…Continue

Started by Wayne Farris. Last reply by E. Michael D. ("Mike") Scott Mar 16.

Husband diagnosed last week 6 Replies

Hi all - my husband, at age 37, was diagnosed. It started off with the lab ordering a PSA because they hadn't received the lab slip from the dr, so they ordered what he "usually" orders. It came back at 5, which was investigated because of husband's…Continue

Started by Tammy. Last reply by ASAdvocate Mar 15.

Side effects of radiation treatment 5 Replies

I am almost 74 in good health and fairly active. I was recently diagnosed as having prostate cancer. I have had a MRI and a biopsy and waiting on the results of a bone scan. A rectal examination revealed a smooth fairly small prostate without…Continue

Started by James Crowe. Last reply by ASAdvocate Mar 15.

Salvestrols Against Hormone Refractory Prostate Cancer 487 Replies

Salvestrols have been discovered by the same scientists that discovered Abiraterone, hailed as the new wonder drug for the treatment of advanced metastatic castrate resistant prostate cancer. Salvestrols work beyond Abiraterone to treat cancer by a…Continue

Started by Prof Gerry Potter. Last reply by E. Michael D. ("Mike") Scott Mar 14.

PSA Rising after 8 years on Lupron 1 Reply

My oncologist tells me to change nothing until it reaches ,2.0. Any one experienced this.

Started by Michael Petrizzo. Last reply by E. Michael D. ("Mike") Scott Mar 14.

Xtandi 8 Replies

I have all my history of my prostate cancer on my home page if you want to read.My PSA was 2 around fall 2016 and then in February 2017 it jumped to 16 .I asked to take antibiotics and it dropped. My doctor was surprised and then he decided to take…Continue

Started by Jimmy Papas. Last reply by E. Michael D. ("Mike") Scott Mar 13.





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