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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

Ron left a comment for Ronald Martin Rosen
"Mark Emberton at University College Hospital in London  contact  rebecca.scott@uclh.nhs.uk To book a consultation with Professor Mark Emberton please call 020 7224 5089 or use the appointment…"
8 hours ago
Ronald Martin Rosen left a comment for E. Michael D. ("Mike") Scott
"Hi Mike, thank you for both your reply & your information. Prof Mark Emberton contact information is : rebecca.scott@uclh.nhs.uk     ...............Please keep this on file as I will & give to others needing. I'll know about…"
11 hours ago
Ronald Martin Rosen replied to Ronald Martin Rosen's discussion TIME to GET CLOSER TO THE REAL TRUTH
" IN ADDITION:Mr Emberton & Mr Ahmed have published over 50 articles on HIFU & their outcome data in just the past year...Ron Rosen, MD/ prostate ca patient . "
12 hours ago
Ronald Martin Rosen posted a discussion

TIME to GET CLOSER TO THE REAL TRUTH

Mr.Mark Emberton & his colleagues Mr. Hashim Ahmed, et. al who perform HIFU intervention at University College Hospital have been meticulously collecting outcome data for years. For those of you who have never been a part of a research team the collection of data is arduous, time consuming, frustrating & difficult. Collecting the same data at 3 yrs; at 5 yrs; at 7 yrs & at 10 or even 15 yrs takes tremendous patience and incredible perseverance & an insatiable need to know the…See More
12 hours ago
E. Michael D. ("Mike") Scott left a comment for Ronald Martin Rosen
"Mark Emberton the is Director of the Division of Surgery and Interventional Science at University College London (UCL),  UCL Partners’ Pathway Director for urological oncology for London Cancer, and the Honorary Clinical Director of the…"
13 hours ago
Ronald Martin Rosen left a comment for Gary Walker
"Having a normal PSA was exactly my situation. I also had no urinary or potency problems at all. Urology is finally getting around to understanding the true value of a PSA & prostate ca. Its not nearly as specific as once thought. Being a medical…"
14 hours ago
Ronald Martin Rosen left a comment for Ron
"I contacted Royal Marsden Hospital & ' they never heard of Dr Mark Emberton. I think it must be another hospital but I thought Dr Emberton performed some HIFU at Royal as well.There is a teaching hospital in London probably connected to a…"
14 hours ago
Ronald Martin Rosen left a comment for E. Michael D. ("Mike") Scott
"Hi Mike, Dr Scionti does around 1000 HIFU procedures a year & has been doing this procedure for years. I've never seen short, intermediate or longer term data published in any journal. All kinds of data & measurements are taken before…"
15 hours ago
E. Michael D. ("Mike") Scott left a comment for Ronald Martin Rosen
"Dr. Rosen: I didn't say that Dr. Scionti "doesn't keep outcome data". All that I know is that neither he nor SonaCare have actually published any."
15 hours ago
Ronald Martin Rosen left a comment for E. Michael D. ("Mike") Scott
"Its more than strange when the doctor from the USA who performs the most HIFU doesn't keep outcome data. Anyone can say anything but I never believe anything except hard data gathered by competent people. The problems with comparing data…"
16 hours ago
Ellen Balaban commented on Ellen Balaban's status
"Thank you Mike, this was very helpful."
17 hours ago
E. Michael D. ("Mike") Scott commented on Ellen Balaban's status
"Ellen: High-intensity focused ultrasound or HIFU is a technique used to direct ultrasound waves to disrupt and kill cancer cells in a similar way to that carried out by radiation therapists when using external beam radiation therapy, except that it…"
17 hours ago
Ellen Balaban posted a status
"Exactly what is this HIFU people are talking about?"
18 hours ago
Evans MACHERA replied to Arnon Krongrad, MD's discussion Surgical Travel
"Sickness lowers-ones physical health. The pain one suffers prompts one to seek or search for alleviation hence tourism of some sort. That is for the able,but what about those that are limited financially! Those who are limited often resign unto…"
21 hours ago
E. Michael D. ("Mike") Scott left a comment for Ronald Martin Rosen
"Dr. Rosen: (1) I have no idea what people are charging for HIFU in Europe if the patient is not covered under the national health system for the relevant nation. (2) The data reported by Emberton and his colleagues suggest that whole gland HIFU…"
yesterday
Ron left a comment for Ronald Martin Rosen
"To read other people's experiences with HIFU you should go to yananow.net and do a HIFU search:  http://www.yananow.net/Links.shtml#search Here is the hospital in the UK which specializes in HIFU:  The Royal Marsden…"
yesterday
Ron replied to Arnon Krongrad, MD's discussion Surgical Travel
"I've been to those "cheaper places" and find doctors who were trained in the USA, the hospitals are cleaner than the Cleveland Clinic."
yesterday
Ronald Martin Rosen replied to Arnon Krongrad, MD's discussion Surgical Travel
"Hello Dr Arnon Krongrad, you were fortunate to have the cash to pursue HIFU in Mexico where some USA urological specialist's practice HIFU. I'm a medical specialist who realizes HIFU is the best treatment for me at this time. I can't…"
yesterday
Ronald Martin Rosen left a comment for E. Michael D. ("Mike") Scott
"I couldn't find any appropriate clinical trials either. That's why I was searching the UK, Europe for highly experienced HIFU specialists with good outcome studies. In Europe I've heard the operation is 8,000USD which would be…"
yesterday
Mikki commented on Mikki's photo
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Waiting for Spring

"How nice of you to comment.  Thank You!!"
yesterday

Forum

TIME to GET CLOSER TO THE REAL TRUTH 1 Reply

Mr.Mark Emberton & his colleagues Mr. Hashim Ahmed, et. al who perform HIFU intervention at University College Hospital have been meticulously collecting outcome data for years. For those of you…Continue

Started by Ronald Martin Rosen. Last reply by Ronald Martin Rosen 12 hours ago.

Surgical Travel 20 Replies

Men are going from the US to Dominican Republic and other places for HIFU. This is a form of tourism for men who have means. And men come to the US for surgery, radiation, and more; they too have…Continue

Started by Arnon Krongrad, MD. Last reply by Evans MACHERA 21 hours ago.

cryotheraphy 1 Reply

I am 66 years old.   PSA 11, Gleason score 8, T1 is the clinical stage (stage 1.)   I have Type 2 diabetes complicated with an associated medical problem-- interigo in the scrotum (and sometimes…Continue

Started by Earl Hargrove. Last reply by E. Michael D. ("Mike") Scott yesterday.

Petition to test Salvestrols 14 Replies

I have started a petition on WhiteHouse.gov for conducting clinical trials on Salvestrols, a potential cure for cancer. The link to the petition is here…Continue

Started by David Grothe. Last reply by John L yesterday.

Salvestrols Against Hormone Refractory Prostate Cancer 485 Replies

Salvestrols have been discovered by the same scientists that discovered Abiraterone, hailed as the new wonder drug for the treatment of advanced metastatic castrate resistant prostate cancer.…Continue

Started by Prof Gerry Potter. Last reply by Dan S on Monday.

Best UK/European Sonoblate500/Ablatherm experienced & qualified operators with best outcome data AND their costs

My name is Ron & I was born & live in the USA. I have localized Ca of the Prostate only on the right side. I've had 2 - 12 sample biopsies which show 2 of 12 slides with adenocarcinoma; one…Continue

Tags: HIFU, UK/European

Started by Ronald Martin Rosen on Monday.

Rising PSA! 19 Replies

Thought I would reach out to forum, as I continue dialogue with Mike as well.  Am 70 years old and was diagnosed 10 years ago, with gleason 9. Had surgery which was not curative, an started on Lupron…Continue

Started by robert troy. Last reply by E. Michael D. ("Mike") Scott on Sunday.

what to do when the drs don't agree? 4 Replies

Hi Mike,It's been a half year since I have checked in.  My husband had the artificial sphincter surgery and is doing GREAT!  He only needs a liner when he plays golf.  It has changed his life. Now on…Continue

Started by patty a. Last reply by patty a Sep 9.

Upgrade from gleeson 6 to 7.3+4 8 Replies

After 12mths on active surviellance received the news on repeat biopsy of another 4cores positive.One core 100 percent gleeson 3+4 another 75percent Gleeson 3+4.The other 2 cores gleeson 3+3.Over 2…Continue

Started by Kingsley. Last reply by Kingsley Sep 3.

Is there REALLY a monster in the closet? 7 Replies

I feel like a little kid holding the closet door closed - he's convinced that there's a monster in there, but is afraid to look inside to see.With undetectable PSA, when does it make sense to go off…Continue

Started by Robert Heavey. Last reply by Robert Heavey Aug 24.

 
 
 

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