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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

mark rettman replied to Leah's discussion Can You Die A Good Death With Cancer? in the group Nearing the End / Living with Grace
"I am  recently diagnosed with pca at an intermediate stage favorable Gleason 7 , While death is not imminent what I find is that I am dealing with end of life questions at an earlier age than most. I am 61. The loss I am having is that I am…"
5 hours ago
mark rettman joined Kathy Meade's group
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Nearing the End / Living with Grace

We all want to have a quality death. It is something that everyone will face some day. Often it is a topic that is difficult to discuss. Studies have shown that education makes the transition easier. This is a place to discuss those difficult issues
5 hours ago
mark rettman gave a gift to Dave B
6 hours ago
mark rettman posted a discussion

newly diagnosed: This is where Im at after my second opinion

I was diagnosed after a truss biopsy done June 19th 2019 with the following findings : Intermediate pca, tc2, Gleason 7 favorable ( 3plus 4)12 cores were taken;  6 cores  were low  Gleason 6 (3 plus 3 ) One core was the Gleason 7 favorable (3 plus 4)…   THe pca is bilateral/ on both sides with PIN in the remaining cores w out pca. The pathology report lists the Gleason 7 as being located at the right apex of the prostate ; percentage of tissue with carcinoma was 5 % , Linear amount of tissue…See More
6 hours ago
mark rettman left a comment for E. Michael D. ("Mike") Scott
"ty mike! Clear and concise answers to the information I needed... So grateful for your perspective and generosity in answering my questions so QUICKLY! Thank you very, very ,much..."
16 hours ago
E. Michael D. ("Mike") Scott left a comment for mark rettman
"Mark: There is no normal way to tell, with any level of certainty, which of your positive cores might or might not progress first, but what we do know is that when Gleason pattern 4 is present, it is that form of prostate cancer that presents the…"
19 hours ago
mark rettman left a comment for E. Michael D. ("Mike") Scott
"Because that's why the VTP looks interesting to me... If They can " cure" the gelason 7 part of my prostate where the gleason 7 cores were taken then Id be all sixes … and able to extend my active surveillance period right?…"
yesterday
mark rettman left a comment for E. Michael D. ("Mike") Scott
"so, I have a question about cancer progression pca… I ma 6 biopsy cores of gleason 6 and one core of Gleason 7 … some of the 6 cores are close to PIN I am tod… when pca progresses, do the 6 gleason score progress first ? or will…"
yesterday
mark rettman left a comment for E. Michael D. ("Mike") Scott
"Thanks Mike! Yes, im seeing active surveillance as a better bet ? Especially with my low tolerance regarding side effects and quality of life issues... Still, a worst case and best case scenario will help inform my choice as to when I retire or semi…"
yesterday
E. Michael D. ("Mike") Scott left a comment for mark rettman
"Mark: Rather than using the pre-radical prostatectomy nomogram (which is interesting but only valuable if you decide that radical prostatectomy is what you want to do), I suggest you compare the data you got from the PREDICT nomogram to the data…"
yesterday
mark rettman left a comment for E. Michael D. ("Mike") Scott
"PRE RADICAL PROSTATECTOMY / punched my numbers in , gave me a 99 percent survival stat if I did radical prostatectomy ( NO WAY!  WILL I DO SURGRY UNLESS MY SPOUSE PUSHED ME TO DO IT... I AM A QULITY OF LIFE GUY!) "
yesterday
mark rettman left a comment for Jan Manarite
"Hi Jan      I used the  Pre radical prostatectomy nomonic … as I understand it will predict 10 and 15 year survival rates with my current stats ) what my survival would be AFTER I had a radical prostatectomy) … I m…"
yesterday
Jan Manarite left a comment for mark rettman
"Sure - but which nomogram is it?"
yesterday
mark rettman left a comment for E. Michael D. ("Mike") Scott
"https://www.mskcc.org/nomograms/prostate   msk nonograms   Mike thanks for all your help / overwhelmed by all the info,  ty. "
yesterday
mark rettman left a comment for Jan Manarite
"Hi jan,  Thank you for your correspondence … I am likely utilizing these incorrectly … the MSK HAS THE NONOGRAM ONT HEIR WEB SITE AND OTHER NONOGRAMS AS WELL SPECIFIC TO PCA but the link is here…"
yesterday
mark rettman left a comment for E. Michael D. ("Mike") Scott
"Hi Mike,  NO, I WASNT SUGGESTING USING vtp FOR A STAGE THREE HIGH CANCER... I WAS JUST SUGGESTING THAT that seems to be were those studying VTP are headed with their research.... Yes, I def will slow down, its a lot to take in , good advice…"
yesterday

Forum

newly diagnosed: This is where Im at after my second opinion

I was diagnosed after a truss biopsy done June 19th 2019 with the following findings : Intermediate pca, tc2, Gleason 7 favorable ( 3plus 4)12 cores were taken;  6 cores  were low  Gleason 6 (3 plus 3 ) One core was the Gleason 7 favorable (3 plus…Continue

Started by mark rettman 6 hours ago.

Does one wait for cancer to present itself or begin Androgen therapy 27 Replies

Please see my stats for details on my recurrent cancer.  After more than 4 PET scans at the Mayo in 2017, my oncologist said I should wait until my PSA has risen to 8 before getting another scan because the cancer remained undetectable.  Then in…Continue

Started by Tom Full. Last reply by Tom Full Jul 11.

My rant on clinical trials 7 Replies

Any of us who've attempted to gain access to clinical trials are often surprised at the difficulty.  I'm personally not qualified for almost all of them because I have hypothyroidism.  Hypothyroidism is an auto immune disease.  Most trials I've…Continue

Started by Tom Full. Last reply by Tom Full Jul 11.

Male Breast Reduction Surgery for Gynecomastia - Experience? 1 Reply

If you've had enlarged breasts (gynecomastia) resulting from prostate cancer treatment and sought breast reduction surgery or other remedy, please share your experience here.Continue

Tags: side-effect, PCa, gynecomastia

Started by Ken Schuster. Last reply by Don Oberlin Jun 8.

Newly diagnosised with PC 6 Replies

I just had my first biopsy and had 2 cores out of 4 with a gleason score of 4+3=7.  I know I'm in for some kind of treatment but trying to decide which one is best.  My PSA is 5 and MRI showed a PIADS 4 with a 7 mm hypodensity.  Prostate volume…Continue

Started by Bob Giocomo. Last reply by E. Michael D. ("Mike") Scott Jun 4.

Real Talk 7 Replies

I am 11 years post RP. I went through what could be described as a barbaric, disingenuous, and debilitating process. I have been in therapy for over 10 years. I've tried pill, shots, diet, pumps, etc. My marriage fell apart and all new attempts at…Continue

Started by Eduardo. Last reply by Carl V Peterson May 18.

 
 
 

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