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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

E. Michael D. ("Mike") Scott left a comment for David R Morgan
"Hi David. Well I am glad to hear that at least you don't need pads during the night now. Perhaps you will be able to get back to one pad per day after a while if that was where you were at prior to the radiation. The length of time that you…"
3 hours ago
David R Morgan left a comment for E. Michael D. ("Mike") Scott
"Thanks Mike, To answer your questions, 1. Just prior to starting EBRT I was down to one pad during the day and no pad through the night. That was 4 months after surgery. By the time I was halfway through radiation treatments I was at 3 pads during…"
4 hours ago
E. Michael D. ("Mike") Scott left a comment for David R Morgan
"Welcome David. So two questions: (1) How bad is your incontinence? I am worried about this because the radiotherapy tends to come with a risk of "freezing" recovery of good continence post-surgery at whatever level this was at when you…"
9 hours ago
Profile IconDavid R Morgan, James Smart and Mairi Sutherland joined The "New" Prostate Cancer InfoLink Social Network
9 hours ago
E. Michael D. ("Mike") Scott left a comment for James Smart
"Welcome James. I am sorry to hear that your second-line cryotherapy was such a problem. Unfortunately, any type of second line treatment like that after first-line radiation therapy can be associated with serious side effects, and it seems possible…"
19 hours ago
E. Michael D. ("Mike") Scott left a comment for Mairi Sutherland
"Welcome Mairi: Because the Devil is in the details of his diagnosis, and those details will help us (and you) to understand the potential outcomes related to his treatment (if immediate trreatment is necessary), it would help us to help you if you…"
19 hours ago
E. Michael D. ("Mike") Scott left a comment for wendy ritchie
"Hi Wendy. Thanks for the additional information. So you husband does seem to have quite a lot of cancer, but if only one out of 18 positive biopsy cores was Gleason 3 + 4 = 7 and all the others were 3 + 3 = 6, it does appear to be relatively…"
yesterday
wendy ritchie left a comment for E. Michael D. ("Mike") Scott
"Hi Mike My husband is 55 yrs old.He had a biopsy 2yrs ago and PSA was 3.6 and now hovers around 6. Don't know his clinical status. Gleason score 3+3, 3+3, 3+4, 3+3, 3+3, 3+3, 3+3. He had 31 biospys taken of which18 were cancerous. He has no…"
yesterday
E. Michael D. ("Mike") Scott left a comment for Kim
"Welcome Kim: As you may be aware, the incidence of prostate cancer in Trinidad & Tobago is very high ... among the higherst levels in the world as far as we know. Because the Devil is in the details of his diagnosis, and those details will help…"
yesterday
Profile IconKim, Paul Kluge and wendy ritchie joined The "New" Prostate Cancer InfoLink Social Network
yesterday
E. Michael D. ("Mike") Scott left a comment for Paul Kluge
"Dear Paul: First, thank you for all the additional information. So you were actually originally diagnosed with prostate cancer back in 1993 with a PSA of 11.7 ng/ml and a Gleason score of 2 + 2 = 4. Bascially you have been monitoring the cancer for…"
yesterday
Paul Kluge left a comment for E. Michael D. ("Mike") Scott
"Hi Mike; I for 21 years I fought this thing.  It has been stable for about 4 years but now it is increasing.  I have measured it and graphed it all this time. As my starting PSA was 11.7, I felt that surgery was not an option.  My…"
Thursday
Kingsley replied to Kingsley's discussion Upgrade from gleeson 6 to 7.3+4
"Hi Mike.Cancer was found in both sides of prostate.The visible lesion on mri is in the mid gland peripheral zone abutting the capsule.My urologist said the core that was 1oo percent gleeson 3+4 indicates a tumor of at least a cm. I know my urologist…"
Thursday
Len S left a comment for E. Michael D. ("Mike") Scott
"Hi Mike, Thanks for the advice on communication with my doc.  I was very clear with him from day one that I wanted open, honest communication, but who knows, he may have forgotten, so I'll reiterate that message on my next visit. As for…"
Thursday
Len S updated their profile
Thursday
E. Michael D. ("Mike") Scott left a comment for Len S
"Oh ... and Len ... if you are seeing bold type throughout the site (as opposed to just on your page on this site) then this is definitely something to do with the settings on your computer and not the settings related to this web site. I have no…"
Thursday
E. Michael D. ("Mike") Scott left a comment for Len S
"Dear Len: Underneath your photo on your page there is a links that says "Customize" that  will allow you to do all sorts of different things related to the appearance of your site page. However, whether it will allow you to remove the…"
Thursday
E. Michael D. ("Mike") Scott left a comment for Paul Kluge
"Welcome Paul. So I note that you are 76 years of age, and "physiological" age (as opposed to calendar  age) does have implications for the appropriate methods to be used in the management of prostate cancer of different types. For…"
Thursday
E. Michael D. ("Mike") Scott left a comment for wendy ritchie
"Welcome Wendy: Has your husband actually had surgery yet or is he simply scheduled to have surgery? Because the Devil is in the details of his diagnosis, and those details will help us (and you) to understand the potential outcomes related to his…"
Thursday
E. Michael D. ("Mike") Scott replied to Kingsley's discussion Upgrade from gleeson 6 to 7.3+4
"Kingsley: See the message I just left on your page."
Thursday

Forum

Upgrade from gleeson 6 to 7.3+4 2 Replies

After 12mths on active surviellance received the news on repeat biopsy of another 4cores positive.One core 100 percent gleeson 3+4 another 75percent Gleeson 3+4.The other 2 cores gleeson 3+3.Over 2…Continue

Started by Kingsley. Last reply by Kingsley on Thursday.

Petition to test Salvestrols 2 Replies

I have started a petition on WhiteHouse.gov for conducting clinical trials on Salvestrols, a potential cure for cancer. The link to the petition is here…Continue

Started by David Grothe. Last reply by David Grothe on Monday.

Is there REALLY a monster in the closet? 7 Replies

I feel like a little kid holding the closet door closed - he's convinced that there's a monster in there, but is afraid to look inside to see.With undetectable PSA, when does it make sense to go off…Continue

Started by Robert Heavey. Last reply by Robert Heavey Aug 24.

Salvestrols Against Hormone Refractory Prostate Cancer 483 Replies

Salvestrols have been discovered by the same scientists that discovered Abiraterone, hailed as the new wonder drug for the treatment of advanced metastatic castrate resistant prostate cancer.…Continue

Started by Prof Gerry Potter. Last reply by David Grothe Aug 16.

Anyone interested in performing a clinical trial on Salvestrols? 3 Replies

Would any of the researchers in the group be interested in submitting a proposal to NIH/NCI CAM to perform a clinical trial on Salvestrols. They have funding and this is just the kind of study that…Continue

Started by David Grothe. Last reply by Dan S Aug 15.

My Husband's journey with prostate cancer 5 Replies

He was diagnosed at the age of 51 - 12 years ago.  Radical ProstatectomyRadiation TherapyLupron Injections for 8 yearsExtensive bone mets found on bone scanHas had nearly every treatment possible…Continue

Started by Hollis Derrick. Last reply by E. Michael D. ("Mike") Scott Jul 27.

Cyber knife vrs RPT 1 Reply

Been a while since I posted. Last week my brother was found to have prostate cancer gleason 3+4 same as me and the same age as when I found out 65. He is thinking about cyber knife radiation, is…Continue

Started by george wilson. Last reply by E. Michael D. ("Mike") Scott Jul 23.

newly diagnosed with PC 22 Replies

I am 54 years old. I was diagnosed last week with PC. T2C. Gleason score of 3+3 =6. 12 cores, 5 positive, three cores at 2-5% and 2 around 10%.PSA at time of diagnosis was 3.5. I was diagnosed with…Continue

Started by Mark M. Last reply by E. Michael D. ("Mike") Scott Jul 21.

Cancer Forums . Net 25 Replies

Hi all,My husband was diagnosed last week and we have our first post-biopsy doctor's appt today. We'd like to go to the appt as prepared as possible. To that end I posted a question about low-PSA…Continue

Started by Melaine. Last reply by E. Michael D. ("Mike") Scott Jul 15.

endorectal mri 13 Replies

Anybody know anything about the endorectal MRI and its utility as a diagnostic tool?   Friend of mine had prostate cancer twelve years and went to St. Louis to have that procedure.   I read something…Continue

Started by Cliff Forbes. Last reply by Melaine Jul 14.

 
 
 

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