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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

Julie Hubbard left a comment for E. Michael D. ("Mike") Scott
"Thank you so much Mike for your response.  I really appreciate it and everything you've shared. We just learned of my husband's diagnosis on Friday (6/26) which also happened to be our 22nd wedding anniversary (and yes, that sucked!)…"
38 minutes ago
Macy Summers left a comment for E. Michael D. ("Mike") Scott
"Mike, PSA was 5.5 at diagnosis. Since then (6 mo.) has risen to 6.2. The three biopsy needles that were positive had 30% (discontinuously), 50% and 70%. I've never had any serious health issues except some L knee osteoarthritis which bugs me…"
1 hour ago
E. Michael D. ("Mike") Scott left a comment for Steve Frazier
"Welcome Steve. I see that you are 65 years of age and have just been diagnosed. When it comes to the initial management of early-stage prostate cancer (which is likely to be what you have been diagnosed with), the Devil is always in the details. ...…"
1 hour ago
Profile IconSteve Frazier, David, Naina Vira and 2 more joined The "New" Prostate Cancer InfoLink Social Network
1 hour ago
Naina Vira left a comment for E. Michael D. ("Mike") Scott
"Hi Mike..thank you so much for your comforting words.  I have been so worried.  for me, cancer is a cancer and it is a killer, but thanks for the information, I am now more aware and less concerned about the treatment.  We are meeting…"
4 hours ago
E. Michael D. ("Mike") Scott left a comment for David
"Welcome David. So feel free to "fire away with your questions ... However ... To be able to give you really goo answers it would help yto know as much as possible of the following about you and your diagnosis, because thew Devil is invariably…"
4 hours ago
Larry Booker left a comment for E. Michael D. ("Mike") Scott
"He wouldn't have it any other way! "
6 hours ago
E. Michael D. ("Mike") Scott left a comment for Naina Vira
"Naina: The one other thing that I would say at this time is that -- until it is clear whether your husband might be a good candidate for active surveillance as opposed to some type of invasive treatment (radiation therapy, surgery, or whatever) --…"
7 hours ago
Naina Vira left a comment for E. Michael D. ("Mike") Scott
"Thank you do much for your positive feedback. I will come back with response as soon as I get the report in hand.  Thanks again. Naina"
7 hours ago
E. Michael D. ("Mike") Scott left a comment for Naina Vira
"Welcome Naina. So I see that you had already found this social network before we suggested that you join it. It would really help us to help you if you could provide a little more information about your husband and his diagnosis, as follows: -- His…"
8 hours ago
E. Michael D. ("Mike") Scott left a comment for Larry Booker
"Hi Mrs. Larry. You're welcome ... and so long as Larry is enjoying the ride, where's the problem? :O)"
9 hours ago
E. Michael D. ("Mike") Scott left a comment for Julie Hubbard
"Welcome Julie. When it comes to the initial management of early-stage prostate cancer (which is likely to be what your husband has been diagnosed with), the Devil is always in the details. ... It would therefore help us to help you and your husband…"
9 hours ago
Larry Booker left a comment for E. Michael D. ("Mike") Scott
"Thank you so much Mike! You have provided us with valuable information to consider. We see Dr. Sartor again in a couple of weeks. I had no knowledge of the AR-V7 test. It sounds like good information to have. You are a great resource and if my…"
9 hours ago
E. Michael D. ("Mike") Scott left a comment for Arthur Wood
"Welcome Arthur. So seeking "the best" form of radiation therapy rather depends on the precise nature of your cancer. It would help us to help you if you could provide us with the following information (because the Devil is always in the…"
9 hours ago
E. Michael D. ("Mike") Scott left a comment for Larry Booker
"Hi Mrs Larry. I am both glad to hear that the initial treatment worked well for larry and you for 5 years and (obviously) sorry to hear about the progression. There are now a lot of different options that can be pursued in the management of men like…"
9 hours ago
Larry Booker left a comment for E. Michael D. ("Mike") Scott
"Mike, This is Mrs. Larry. As expected, my husband has had a recurrence after 5 years. Radiation, then 3 years of hormone therapy...really very good years as he tolerated the hormone therapy well. His PSA started doubling very fast at the first of…"
yesterday
E. Michael D. ("Mike") Scott left a comment for Luke Gawf
"Hi Luke. Thanks for the additional information. So yes ... With two biopsy cores containing Gleason 4 + 4 = 8 prostate cancer, you are definitely high risk and are going to need to get this treated by someone who really knows what they are doing --…"
yesterday
Luke Gawf left a comment for E. Michael D. ("Mike") Scott
"I just received my biopsy results a week ago.  Here they are: 12 cores  Five are rated Adenocarcinoma Gleason grade as follows (A (4+4=8,40%-4.0mm), B ((3+4=7,50% w 5.0mm) C (4+3=7,95% 12.0mm), D (4+3=7,70%,10.0mm), F (4+4=8,30%…"
yesterday
E. Michael D. ("Mike") Scott left a comment for Tom nicholas
"Welcome Tom. Can you clarify for us whether you are currently being treated with radiation therapy or whether you have had radiation therapy in the past (and if so how long ago)? Either way, how are you doing and how can we be of assistance?"
yesterday
Profile IconTom nicholas, Macy Summers and Luke Gawf joined The "New" Prostate Cancer InfoLink Social Network
yesterday

Forum

psa rising one year after Radical Prostatectomy 4 Replies

hi, I'm from Belgium. Here we say that cancer is back when PSA reaches 0.20 after radical Prostatectomy.In the States, is this the same or is it 0.4?Now my PSA is 0.30     18 months after…Continue

Started by Delhasse. Last reply by E. Michael D. ("Mike") Scott on Wednesday.

Cancer Treatement Centers of America 6 Replies

Has anyone had any experience with Cancer Treatement Centers of America?Continue

Started by David Grothe. Last reply by William Gary Jun 17.

Catheter Removal 4 Replies

I want to know if pulling out a foley catheter without full deflation of the balloon would cause trama with the spincter muscle. This happened in the ER to my husband Scott and he says he can now…Continue

Started by Vicki T. Last reply by Vicki T Jun 8.

Am I on the right track? 1 Reply

I'm 63, and my PSAs during last 2-3 years have ranged from 1.5 to 1.9. In February 2015, my PSA was 1.9, but the DRE revealed a nodule. Had a biopsy in May 2015 and the physician noted that there…Continue

Started by Gary wert. Last reply by E. Michael D. ("Mike") Scott Jun 5.

3T MRI recent information/studies and recommendations in the northeast 9 Replies

Hi all,    My PSA has jumped yet again, and I am hoping to avoid a third biopsy (first two were negative). I have been looking into doing a 3T MRI. Most of the information I have found on the web is…Continue

Tags: MRI, 3T

Started by Rich. Last reply by Rich Jun 1.

Bladder neck stricture 2 Replies

HiI had a RP in Aug 2011 and had  laser stricture opps in 01.2012 & 10.2012 , I also had a dialation in04.2014 my continence is good but my flow is slow meaning I must urinate up to 6 times each…Continue

Started by Norman Micheal Harris. Last reply by Norman Micheal Harris May 30.

cause for concern? 2 Replies

Brian was diagnosed with a Gleason of 9 in eight cores. No symptoms,no metastasis in March 2014. Was on Lupron for 9 months and had IMRT completed in Oct.  PSA readings were .04 in Nov.,.03in March…Continue

Started by Ellen Balaban. Last reply by Ellen Balaban May 21.

testicular pain during hormone therapy 5 Replies

Does anybody have any experience with testicular pain during hormone therapy?  I have been on lupron and casodex for five months.Continue

Started by W. Bell. Last reply by Nathan Gregory May 20.

Diagnosed Yesterday with Prostate Cancer 11 Replies

Hi Everyone,My worst nightmare came true yesterday afternoon.  My doc gave me the biopsy report after  weeks of stress and denial.  I could tell it was bad news just looking at his face as he entered…Continue

Started by David Dodson.. Last reply by Mr. Bill May 15.

Pathology Report 5 Replies

Hello again Mike.I'm wondering if you might be willing to 'weigh in' on my husband's pathology report following his RRP on April 21st?PERTINENT CLINICAL INFORMATION :CA of prostate. per winSURGE, the…Continue

Started by PJ Robinson. Last reply by PJ Robinson May 5.

 
 
 

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