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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

Ken Schuster posted a discussion

British study shows balm can protect nails from chemo damage

My fingernails and toenails became very brittle, discolored and uneven beginning with my second docetaxel infusion.This British study (although extremely small) shows that a polyphenol-rich balm can protect nails from chemo damage. http://conta.cc/2ePQZuq See More
5 hours ago
Profile Iconfred rapach, Allen Stricker and Frank might attend Jan Manarite's event
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Thursday - CureTalks - Modern Imaging Techniques in Prostate Cancer at online

July 27, 2017 from 8pm to 9pm
Listen in online...Dr Anthony Westphalen from UCSF discusses modern imaging in prostate cancer, moderated by Mike Scott, president of PCa International.   Panel of PC patients include Tony Crispino, Joel Nowak, and Allen Edel. Questions can be typed into the comment area of the link below:…See More
8 hours ago
Jan Manarite commented on Jan Manarite's event Thursday - CureTalks - Modern Imaging Techniques in Prostate Cancer
"Dave M - Type your question about PSMA based imaging in the question/comment box at the bottom of this link - http://www.curetalks.com/event/rsvp/Modern-Imaging-Techniques-in-the-Diagnosis-and-Management-of-Prostate-Cancer/282/?upcoming=yes I'm…"
19 hours ago
Jan Manarite commented on Jan Manarite's event Thursday - CureTalks - Modern Imaging Techniques in Prostate Cancer
"Allen - I believe so.  Mike will be moderating, and I believe that's why he made the title relatively general - "Imaging".  In addition, Joel Nowak and Tony Crispino know a lot about other types of imaging - probably Allen…"
19 hours ago
Profile IconBruce and Dave M are attending Jan Manarite's event
Thumbnail

Thursday - CureTalks - Modern Imaging Techniques in Prostate Cancer at online

July 27, 2017 from 8pm to 9pm
Listen in online...Dr Anthony Westphalen from UCSF discusses modern imaging in prostate cancer, moderated by Mike Scott, president of PCa International.   Panel of PC patients include Tony Crispino, Joel Nowak, and Allen Edel. Questions can be typed into the comment area of the link below:…See More
21 hours ago
Allen Stricker commented on Jan Manarite's event Thursday - CureTalks - Modern Imaging Techniques in Prostate Cancer
"Will there be info on new imaging techniques beyond using MPMRI for diagnosing prostate cancer?"
22 hours ago
E. Michael D. ("Mike") Scott left a comment for J Talker
"JT: Would it help you to be put in touch with a "buddy" who has been on active surveillance for a while? We can arrange that for you if you are interested."
yesterday
E. Michael D. ("Mike") Scott left a comment for rudy sund
"Rudy: If I have got this right, your last four PSA levels have been 0.4, 0.3, 0.5, and 0.7 ng/ml at 6-month intervals. These suggest a PSA doubling time of about 19 months or 1.6 years. So your PSA is rising, but it is not rising very past. If it…"
yesterday
Dave M commented on Jan Manarite's event Thursday - CureTalks - Modern Imaging Techniques in Prostate Cancer
"Am interested in how new imaging techniques, specifically PSMA-based imaging, ties into the new imaging/therapy field of theranostics."
yesterday
Jake Hannam posted an event

Nutrition & Prostate Cancer Virtual Presentation at Online - call-in

July 31, 2017 from 8pm to 10pm
All those questions you always wanted to know about how to eat right after a PCa diagnosis .....do I need to change my diet?does a vegan diet really make a difference?will Lupron make me fat?what supplements should I take?how should Ihttps://www.facebook.com/AnswerCancer/# change my diet during treatment?..... no doubt you can think of many more!Greta Macaire, the resident Registered Dietitian at UCSF Cancer Center will give her excellent presentation on Nutrition and Prostate Cancer and will…See More
yesterday
rudy sund left a comment for rudy sund
"Reply on ADT for 4 years now. Testosterone PSA reading now to increased .7 ML have had regular bones catalogues scan with no metastasis. Recent scan not evaluated yet. Dr. indicated may go to advanced program ? Elitist or something. Any advice?"
yesterday
J Talker updated their profile
yesterday
E. Michael D. ("Mike") Scott left a comment for Keith Zellmer
"Keith: (1) There shouldn't be any need to have a password to use the MSKCC male life expectancy survey. Maybe I gave you a bad link before. If so I apologize. You should be able to log into this directly after checking a box to state that you…"
yesterday
Don Oberlin left a comment for Keith Zellmer
"Keith: Your decision to locate outcome data on the trial you are considering is a wise move on your part. You may wish to expand your research effort to include other treatment options. In this respect you will find the following book…"
yesterday
Keith Zellmer left a comment for E. Michael D. ("Mike") Scott
"Mike, Thank you for the warm welcome and the suggestions. I will take that life expectancy test as soon as they reply on how to set up a new password. Prior to my prostate cancer diagnosis my life expectancy was in the 92-95 year range. (My dad…"
yesterday
E. Michael D. ("Mike") Scott left a comment for Keith Zellmer
"Welcome Keith. So a great deal is going to depend on what you actually want to do, and what you believe your reasonable life expectancy might be. In other words, if all the men in your family tend to be dead by the time they are 75 you are obviously…"
yesterday

Forum

British study shows balm can protect nails from chemo damage

My fingernails and toenails became very brittle, discolored and uneven beginning with my second docetaxel infusion.This British study (although extremely small) shows that a polyphenol-rich balm can protect nails from chemo damage.…Continue

Started by Ken Schuster 5 hours ago.

Hormone and radiation 4 Replies

So from what I read if I choose the combo the sequence is start with firmagon for 3 months and then begin the radiation therapy. Do I have it correct Gary

Started by Gary eichenlaub. Last reply by E. Michael D. ("Mike") Scott on Monday.

Update after RT & ADT 2 Replies

Hi Mike, just finished 35 RT sessions (2 Gy`s each one), with some problems due to inflammation of the bladder and urinary urgency, taking Vesicare pills for 3 weeks getting a little better.Next month I will have my second application of Zoladex and…Continue

Tags: ADT, RT

Started by Raul Miranda. Last reply by Raul Miranda on Monday.

Im a pissed selfish wife. I don't want to be but I am. 10 Replies

Well I should just rename myself angry pissy wife. I don't want my husband to just go into the treatment of standard medicine. Frankly I'm viewing it as barbaric. He is 64 (I'm 54) with a Gleason 9 tc2 we are waiting on MRI so could move to t3. PSA…Continue

Started by LovingWife. Last reply by Michael Hennessey Jul 21.

Radiation Proctitus during/after EBRT 3 Replies

We started the 25 treatments of radiation and after 2 weeks noticed intense diarrhea. Also started having anal soreness and odd discharge, especially during last week of treatments. At times the urgency to "go" was overpowering and always resulted…Continue

Started by Alan Kousen. Last reply by Alan Kousen Jul 19.

Serious thinking now 8 Replies

Thx mike and Alan on your replies. So if I consider radiation to start early October I should then get the firmagon in me as soon as early August And yes My status was originally intermediate from the biopsy but then changed to high risk as to what…Continue

Started by Gary eichenlaub. Last reply by Alan Kousen Jul 18.

 
 
 

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