The "New" Prostate Cancer InfoLink Social Network

A Service of Prostate Cancer International

NOW ON TWITTER / FACEBOOK

Follow The "New" Prostate Cancer InfoLink news blog with TWITTER or FACEBOOK.

CHECK OUT OTHER WEB SITES

Visit these links on other Prostate Cancer International web sites:

"LET'S TALK ..." VIDEO SERIES
THE DAILY NEWS BLOG
CORE PROSTATE CANCER ARTICLES
ASK ARTHUR or ASK AMY

Photos

  • Add Photos
  • View All

Videos

  • Add Videos
  • View All
 

WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

Omco left a comment for E. Michael D. ("Mike") Scott
"As far as blood thinners go, my cardiologist said it would be ok to stop them a few days before surgery and resume then after. What are your thoughts on success rates and life expectancies of radical prostatectomy vs radiation, I seem to be finding…"
yesterday
E. Michael D. ("Mike") Scott left a comment for Omco
"Omco: So the fact that you are on warfarin presents questions related to either a radical prostatectomy or the combination of radiation + ADT. You need to discuss all this with your cardiologist as well as with the urologist. The use of ADT can be…"
yesterday
Omco left a comment for E. Michael D. ("Mike") Scott
"My current PSA is 8.6. Last year it was 6.3.. Not sure about clinical stage. Here are the details about the findings.. Prostate, ROI (A), core biopsy:- Adenocarcinoma, Gleason score 4+4 = 8 (grade group 4,cribriform glands present), 3 of 3 cores, 19…"
Tuesday
E. Michael D. ("Mike") Scott left a comment for Omco
"Welcome Omco. I see that you are 65 years of age and have been diagnosed with Gleason 8 disease. This is going to mean ylou are going to need some form of invasive treatment, but it would help us to help you think through what type of treatment if…"
Tuesday
Profile IconOmco and Bert Bleckwenn joined The "New" Prostate Cancer InfoLink Social Network
Tuesday
Linda Sands left a comment for E. Michael D. ("Mike") Scott
"Thank you Mike, I did call Dr Cookson office in OKC and it looks like the appt would be booked within a week of receiving my husbands medical records. Dr did hear back from Dr Wilkins office and from the time of biopsy to getting results is 7 to 10…"
Aug 12
E. Michael D. ("Mike") Scott left a comment for Linda Sands
"Dear Linda: (1) Unfortunately it is not unusual for a man to get diagnosed with a potentially high risk for prostate cancer (i.e. a PSA level of 250 ng/ml or higher) even though he appears to be symptomless and otherwise in good health. This is why…"
Aug 12
Linda Sands left a comment for Linda Sands
"Mike, Thank you so much for your speedy response, my husband and I do value your opinion. I don't believe I told you my husband is 59 and in good health. His primary care physician had him go for blood work to check his cholesterol and that is…"
Aug 11
E. Michael D. ("Mike") Scott left a comment for Steve
"Steve: Depending on the details of your diagnosis, HIFU is certainly one of many possibilities, and I am sure we can find someone for you to talk to about that if it proves to be a reasonable option, but I think the important thing is to get the…"
Aug 11
E. Michael D. ("Mike") Scott left a comment for Linda Sands
"Linda: 1. I am neither a prostate cancer patient nor a doctor. I have been a healthcare communication specialist for most of the past 50 years and used my knowledge of prostate cancer to build what I believe to have been the very first web site for…"
Aug 11
Steve left a comment for E. Michael D. ("Mike") Scott
"I have a mri guided biopsy scheduled for 8/29. I guess I will post back when I get back my results. I am interested in HIFU if I need treatment and are a good candidate. Wondering if anybody has any experience with this type of treatment."
Aug 10
Linda Sands left a comment for E. Michael D. ("Mike") Scott
"One other thing I forgot to mention while waiting on the 2nd urologist appointment my husband did do another blood work up and it confirmed that his PSA is in fact 250. "
Aug 10
Linda Sands left a comment for E. Michael D. ("Mike") Scott
"Hello Mike, Thank you for your input on my husband Glen. May I ask, what is your expertise with prostrate cancer, are you a cancer survivor with a lot of experience or a doctor? Since I first spoke to you I made an appt with another urologist for a…"
Aug 10
E. Michael D. ("Mike") Scott left a comment for Steve
"Hi Steve. Thanks for the feedback. The PSA level of 3.7 while on finasteride would equate to a "normal" PSA  of something like 7.5 ng/ml. And the PI-RADS scores of 2 and 3 are elevated but what they really suggest is that you do need…"
Aug 10
Steve left a comment for Steve
"No other health issues other than mild high blood pressure"
Aug 9
Steve left a comment for Steve
"No biopsy yet. PSA was 3.7 while taking finesteride. Transitional zone lesion was pi-rad 2. Peripheral zone 3. Free PSA was 8% in 2021"
Aug 9

Forum

ELATOR Erectile Dysfunction Device 4 Replies

Is the ELATOR ED device just an expensive gimmick or ?Continue

Started by Harvey Hughett. Last reply by Harvey Hughett May 17.

Does one wait for cancer to present itself or begin Androgen therapy 64 Replies

Please see my stats for details on my recurrent cancer.  After more than 4 PET scans at the Mayo in 2017, my oncologist said I should wait until my PSA has risen to 8 before getting another scan because the cancer remained undetectable.  Then in…Continue

Started by Tom Full. Last reply by Tom Full Apr 20.

EBRT and ADT 8 Replies

Are there any circumstances where external radiation could be used as mono therapy for PCa, without use of adjuvant or neo-adjuvant ADT?

Started by Don S.. Last reply by MICHAEL GROSSMAN Apr 19.

Genetic Test

For those interested, here is a link to the Promise Program  Genetic Testing study. I've done this and it was free and easy.  I like the free part myself.  Consider talking this over with you MO before engaging.  This is not a simple "23 and me" or…Continue

Started by Tom Full Jan 10.

PLARIFY - An Imaging Agent 3 Replies

PLARIFY is a newly-approved agent to use with PET scans. It is available in some areas of the country now and is rolling out to many others.My doc at MDA says they will have trials with it in September, and he will put me in.My PSA has been ticking…Continue

Started by Mike Simmons. Last reply by Tom Full Jan 10.

Tampa Bay Radiation Oncology (TBRO)

Has anybody here live in Tampa Bay area and exp. with doctors in Tampa Bay Radiation Oncology. I have seen Dr Ronay and he was great. I have an appt with radiation oncologist, Dr. Jack Steel that supposed to have over 4000 operations and 20 years…Continue

Started by Scott G Oct 28, 2021.

 
 
 

About

Donate

Events

GENERAL DISCLAIMER

The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.

Information provided on this site should not be used for diagnosing or treating any health problem or disease.

The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.

© 2022   Created by Arnon Krongrad, MD.   Powered by

Badges  |  Report an Issue  |  Terms of Service