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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

Robert James posted a discussion

Low T After PCa Treatment

I asked my urologist his opinion on resuming TRT for my low T.  I had stopped using Androgel prior to my seed implant.  He said, though the role in testosterone and prostate cancer is still being debated, he was not convinced that it was a good idea to start TRT after prostate cancer treatment.  Though he did recommend DHEA.  I don't understand why this herbal supplement, if it raises testosterone, would be any safer than Androgel.  Any thoughts?See More
3 hours ago
0 Comments
E. Michael D. ("Mike") Scott left a comment for patc
"Welcome Pat ... And how are you doing 3 years post-treatment? Is your PSA stable? Are you off the androgen deprivation therapy (Lupron)? If you are off the ADT, how long have you been off it?"
3 hours ago
Profile Iconpatc, Gloria Offner and RonnyE joined The "New" Prostate Cancer InfoLink Social Network
3 hours ago
E. Michael D. ("Mike") Scott left a comment for Gloria Offner
"Welcome Gloria. Your friend's treatment options (if he actually needs treatment at all) are going to depend on the details of his individual case. It would help us to underrstand the situation -- and therefore to possibly help you and your…"
3 hours ago
E. Michael D. ("Mike") Scott left a comment for RonnyE
"Welcome Ronny ... And how are you doing 9 years post-RP?"
3 hours ago
E. Michael D. ("Mike") Scott left a comment for Brian Largey
"Hmmm ... That's a long time ... And has your PSA been at around 0.8 to 0.9 ng/ml ever since your surgery or is it rising?  What does your urologist have to say about this? And (incidentally) ... what is your age now?"
yesterday
Brian Largey left a comment for Brian Largey
"Hi Mike thanks. 18 mnths since surgery. .89 psa urinating better& improving. Brian"
yesterday
E. Michael D. ("Mike") Scott left a comment for Brian Largey
"Dear Brian: How long ago was your surgery? It is normal to have ED and be incontinent immediately after surgery ... but if it has been a couple of months you really ought to have been recovering continence by now ..."
yesterday
Profile IconBrian Largey, Thomas R McMinn and Nancy L joined The "New" Prostate Cancer InfoLink Social Network
yesterday
E. Michael D. ("Mike") Scott replied to Bill Wright's discussion What to Do? in the group The Surgical Treatment of Prostate Cancer
"I don't think you are taking too much risk by "playing with fire" yet ... You just don't want to play for too long! Do you know whether your oncologist is recommending intermittent bicalutamide (Casodex) at a dose of 50 mg/d or…"
yesterday
Don Oberlin left a comment for herb scott
"Herb: Please believe me when I say I am no expert  on the question you raised. Perhaps I can provide some personal perspectve that may be helpful. Based on blood tests my oncologist determined I am marginally low on vitamin D3 and placed…"
yesterday
Graham Gilbert replied to DVW's discussion How long does recovery of erectile function really take? in the group Sex after prostate cancer treatment - what to expect
"Got my third (of four) Lupron shot today.  PSA is .10 and testosterone is 6.  Doctor says as long as the PSA stays low, I'm in good shape.  Low libido and ED are no fun but at least I'm fighting the cancer!"
yesterday
Alastair Hepburn left a comment for E. Michael D. ("Mike") Scott
"Hi Mike: Thanks. Will keep you updated after op. Alastair"
yesterday
Bill Wright replied to Bill Wright's discussion What to Do? in the group The Surgical Treatment of Prostate Cancer
"Mike Just back from the Oncologist: She has advised me to go on intermittent Casodex to control the PSA.  In addition, she has arranged a CT scan in around two weeks time.  I asked about the accuracy levels of PSA blood test and she…"
yesterday
E. Michael D. ("Mike") Scott replied to Marc's discussion Perineural invasion
"Sounds like a plan to me!"
yesterday
Marc replied to Marc's discussion Perineural invasion
"Mike, your plain English reply greatly assists in understanding/interpreting this sometimes confusing jargon. The final diagnosis for pathologic staging was pT2a, unilateral disease involving less than one half of one side of the prostate with tumor…"
yesterday
E. Michael D. ("Mike") Scott left a comment for Alastair Hepburn
"Good (about your urologists skill levels, etc.) ... Hopefully everything will go like clockwork for you ... We'll keep our fingers crossed!"
yesterday
E. Michael D. ("Mike") Scott left a comment for Thomas R McMinn
"Welcome Thomas. So are you able to tell us a little more detail about your diagnosis? It sounds to me as though you maybe have a Gleason score of 3 + 4 = 7. Is that right? Can you also tell us: -- Your PSA level -- Your clinical stage It does not…"
yesterday
E. Michael D. ("Mike") Scott left a comment for Nancy L
"Welcome Nancy. Your friend's treatment options are going to depend on the details of his individual case. It would help us to underrstand the situation -- and therefore to possibly help you and your friend -- if you could tell us some of this…"
yesterday
E. Michael D. ("Mike") Scott replied to Marc's discussion Perineural invasion
"Dear Marc: The importance of the perineural invasion is likely to depend on context and you may want to discuss this with your surgeon. In general we can say that if your cancer was fully confined to your prostate (with no cancer in your seminal…"
yesterday

Forum

Low T After PCa Treatment

I asked my urologist his opinion on resuming TRT for my low T.  I had stopped using Androgel prior to my seed implant.  He said, though the role in testosterone and prostate cancer is still being…Continue

Started by Robert James 3 hours ago.

Perineural invasion 3 Replies

Greetings all. I am 6 weeks post Da Vinci robotics removal of prostate and just received a copy of the path report which documents a finding that "perineural invasion" is present. Other than this…Continue

Started by Marc. Last reply by E. Michael D. ("Mike") Scott yesterday.

Cost of Treatment 1 Reply

With the vast information on this network regarding Prostrate Cancer procedures, would anyone have a proximate cost for 25 radiation treatments and seed planting ? I am on Medicare and have a…Continue

Started by Bill McQuerry. Last reply by Dave S. on Monday.

biopsy si? biopsy no? 2 Replies

After being diagnosed two and a half years ago at age 61 with only one out of 12 cores positive and a low psa (4 or 5) and Gleason, I have refused to undergo another biopsy due to the risk of…Continue

Started by Richard Natale. Last reply by E. Michael D. ("Mike") Scott May 16.

how long do i wait to start treatment 12 Replies

 PSA 6.0gleason score 6early stage62 yrs old1 core out of 24 cancer at 50%no other health issuesContinue

Started by Mark teodoro. Last reply by John Levine May 11.

Looking for advice - thinking of getting a penal pump 7 Replies

My husband Pat and I are six months on from surgery - first blood test PSA < 0.008. Incontinence Improving all the time. Down to using one pad and only occasional small leakages. Surgeon was very…Continue

Started by Pat. Last reply by Ed Brown May 8.

Hormonal Therapy 1 Reply

Mike,Maybe I'm jumping the gun here !Six months ago my psa jumped to 9.9. We started adt therapy immediately. After 3 months the psa dropped to 4.1.Continuing the therapy after another 3 months the…Continue

Started by Kenneth Hancock. Last reply by E. Michael D. ("Mike") Scott Apr 30.

Prostate Cancer Hormonal Therapy 1 Reply

Some 15 years ago I underwent a RP. ADT was utilized to reduce the PSA readings. It was successful.3 Years ago the PSA returned to previous levels. ADT was again utilized to reduce the PSA levels.…Continue

Started by Kenneth Hancock. Last reply by E. Michael D. ("Mike") Scott Apr 29.

Salvestrols Against Hormone Refractory Prostate Cancer 379 Replies

Salvestrols have been discovered by the same scientists that discovered Abiraterone, hailed as the new wonder drug for the treatment of advanced metastatic castrate resistant prostate cancer.…Continue

Started by Prof Gerry Potter. Last reply by Jake Hannam Apr 26.

FOUND NO ANSWERS 2 Replies

Dear Friends, After two long years of seeing doctors in both Canada & the United States, I ended up with Zero results, no one was able to put me on a convincing treatment planI am glad to be here…Continue

Started by George Atari. Last reply by George Atari Apr 26.

 
 
 

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Arnon Krongrad, MD created this Ning Network.

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