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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

randy hoft replied to randy hoft's discussion psa
"Mike,I wasn't able to see your latest reply 33 minutes ago  Randy"
2 hours ago
E. Michael D. ("Mike") Scott left a comment for marc najar
"Dear Marc: I am sorry to hear that you have a bladder stone problem. However, thsi is not a condition we can help you with. All that I can tell you is that you need to find someone who specializes in the treatment of stones in the urinary tract, who…"
2 hours ago
Profile Iconmarc najar and T joined The "New" Prostate Cancer InfoLink Social Network
2 hours ago
E. Michael D. ("Mike") Scott left a comment for T
"Dear T: With a Gleason score of 8 or 9 in four biopsy cores and a rising PSA that has already reached nearly 8 ng/ml, you appear to have either high-risk or very high-risk prostate cancer and you are going to need some form of aggressive treatment…"
2 hours ago
E. Michael D. ("Mike") Scott replied to Prof Gerry Potter's discussion Salvestrols Against Hormone Refractory Prostate Cancer
"Dear Paul: It has been several years since Prof. Potter contributed to these discussions. I do not know what has happened to him, however. My understanding is that you can take silvestrols along with ADT (aka "hormone" therapy). You should…"
2 hours ago
E. Michael D. ("Mike") Scott replied to randy hoft's discussion psa
"Randy: Under normal circumstances (i.e., if you have never had prostate cancer or any treatment for it), PSA levels vary up and down a little over the course of as little as 24 hours. Even though you have had your prostate removed and had salvage…"
2 hours ago
randy hoft replied to randy hoft's discussion psa
"Mike,Thanks for your response.Educate me,why would that happen if testing is at the same lab and does that happen sometimes? Randy"
yesterday
Paul Puleo replied to Prof Gerry Potter's discussion Salvestrols Against Hormone Refractory Prostate Cancer
"You so much for this information prof. Potter,   I just want to be clear you can take Silvestrols along with hormone therapy simultaneously ? Paul"
yesterday
E. Michael D. ("Mike") Scott replied to randy hoft's discussion psa
"Dear Randy: I understand that you are concerned by this second very small rise in your PSA ... and you are right to be concerned. HOWEVER, ... Your urologist is also still correct ... in my opinion. Your PSA might still drop back down again, and the…"
Saturday
randy hoft replied to randy hoft's discussion psa
"Mike,My PSA from yesterday 9.24.20 was .02,up from .01 almost 4 months ago..Is this a pretty good indication that the cancer is still there? I talked to my Urologist and he said " it was still very low and next blood test in 3 months it could…"
Friday
Erick Goodman updated their profile
Friday
E. Michael D. ("Mike") Scott left a comment for Jerry
"Dear Jerry: Bladder neck strictures appear to be a lot less common than they used to be with the coming of robot-assisted laparoscopic prostatectomies. If you search for the term "stricture" (which is the correct technical term, rather…"
Thursday
Jerry left a comment for E. Michael D. ("Mike") Scott
"Hi Mike, All has gone okay with the prostatectomy with the exception of bladder neck structure. Had to go back in for a urethroplasty.  PSA results are way low, ~.01.  On a weekly self dilation regimen.  Joined the group to hear from…"
Thursday
E. Michael D. ("Mike") Scott left a comment for Jerry
"Hi Jerry. So I see you had radical surgery about 18 months ago. How have you responded to treatment? Is your PSA level low and stable? What about any side effects of treatment? How can we be of assistance?"
Wednesday
Jerry is now a member of The "New" Prostate Cancer InfoLink Social Network
Wednesday
E. Michael D. ("Mike") Scott commented on MIKE DOOLEY's status
"Hi Mike. So it impossible to project accurately, in advance, just how far your PSA will have dropped by late September. but hopefully it will have dropped a lot (say down to below 2.0 ng/ml). But it may continue to drop for a while. A lot depends on…"
Wednesday

Forum

psa 7 Replies

MIKE,it's been just over 2 years since I completed salvage radiation.My PSA has been. <0.01 until yesterday it was 0.01 I assume to be cancer free the PSA number should. zero out to 0.00?What's your opinion on the small increase? ShareContinue

Started by randy hoft. Last reply by randy hoft 2 hours ago.

Salvestrols Against Hormone Refractory Prostate Cancer 489 Replies

Salvestrols have been discovered by the same scientists that discovered Abiraterone, hailed as the new wonder drug for the treatment of advanced metastatic castrate resistant prostate cancer. Salvestrols work beyond Abiraterone to treat cancer by a…Continue

Started by Prof Gerry Potter. Last reply by E. Michael D. ("Mike") Scott 2 hours ago.

Lupron withdrawal? 2 Replies

Does anyone know whether there are lupron withdrawal symptoms?  I'm at end of a six month treatment and getting the impression that I'm getting more symptoms, particularly hot flashes, than usual.  Will there be uncomfortable endocrine system…Continue

Started by Guy B. Meredith. Last reply by Guy B. Meredith Sep 7.

Short course ADT side effects? 14 Replies

New question. I am doing 1 month + 1 month + 4 month Lupron with 5 1/2 (?) weeks high dose IMRT beginning at 8 weeks into ADT.For those who experience side effects of ADT in the short course, what is the timing and sequence of the side effects. That…Continue

Started by Guy B. Meredith. Last reply by E. Michael D. ("Mike") Scott Aug 25.

Sex and ADT

The thread below is from the Health Unlocked prostate cancer network. The members discuss how they discovered they can be sexually functional, including intercourse, while on ADT. In all cases it was self discovery, no encouragement or advice from…Continue

Started by Guy B. Meredith Aug 20.

Does one wait for cancer to present itself or begin Androgen therapy 51 Replies

Please see my stats for details on my recurrent cancer.  After more than 4 PET scans at the Mayo in 2017, my oncologist said I should wait until my PSA has risen to 8 before getting another scan because the cancer remained undetectable.  Then in…Continue

Started by Tom Full. Last reply by E. Michael D. ("Mike") Scott Aug 17.

 
 
 

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The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.

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The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.

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