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WHAT'S THIS SITE ALL ABOUT?

This site is a social network affiliated with The "New" Prostate Cancer InfoLink and Prostate Cancer International. Anyone with an interest in prostate cancer (patients, family members, physicians, other health care professionals, activists, and advocates) from all around the world is welcome here to share information; to seek, receive, and offer support; or just to monitor discussion and progress on Planet Prostate Cancer.

New members: Please note that only information on this home page is visible to non-members and to search engines. But if you wish to retain full control over your privacy, DO NOT use your real name or address or similar information on this site. Use a pseudonym.

Please note: This site does not permit any form of commercial messaging or advertising of commercial services by its individual members. If you wish to be a member of this site but have commercial interests in prostate cancer, please identify those commercial interests in your profile when you join.


Members

  • Gary Crow
  • Mark Leonard
  • Alisa
  • Don Goffredi
  • CHP
  • Gary Walker
  • Max Payne
  • Richard Hillyard
  • Richard Thomson
  • Barbara Byrd
  • Grady Logan
  • Patricia Bell
  • Jeanne
  • Don Don
  • Kathy K
  • D Janneck
  • David C. Linn
  • Cameron Welch

Latest Activity

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RDB left a comment for E. Michael D. ("Mike") Scott
I'm happy to post more info. My situation is a little more complicated like most things seem to be in my life. Here goes. I am 63 and in Nov my family doctor found a lump (BB sized) on the RIGHT side of my prostrate. I went to the…
54 minutes ago
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E. Michael D. ("Mike") Scott left a comment for Phil LaPorta
Hi Phil. Thanks for the feedback. You should know that the men who got treated (with surgery, radiation, whatever) also go through exactly the same stress every time they need a PSA follow-up test as you do. Treatment doesn't releive one of…
4 hours ago
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Phil LaPorta left a comment for E. Michael D. ("Mike") Scott
yes, AS.  age 57.  diagnosed 2 yrs 3 mos. ago.  PSA jump from 1 to 3.  < 1% of 1 of 12 samples.  gleason 3+3, tc1.  Was all set for surgery when I was encouraged by a cousin/resercher at UCSF to 'take it…
4 hours ago
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E. Michael D. ("Mike") Scott left a comment for Jeanseville
Hi Jeanseville! You will find daily news on our main site. This site is much more of a discussion site related to the needs of specific patients. Just so you are clear, I am something of a skeptic with respect to the relative merits of proton…
5 hours ago
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Jeanseville, Jon Canty, Dean Commins and 4 more joined The "New" Prostate Cancer InfoLink Social Network 5 hours ago
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E. Michael D. ("Mike") Scott left a comment for Jon Canty
Welcome Jon. Prostate cancer is extremely rare in men  under 30 years of age. However, if you come from a family in which close relatives (father, brothers) have been diagnosed with prostate cancer (or have had metastatic prostate cancer), you…
5 hours ago
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E. Michael D. ("Mike") Scott left a comment for Dean Commins
Welcome Dean. Please feel able to contribute and comment as you see fit. If you like the system, it's pretty easy to set up ... so you could do something Oz-specific. We have at least a couple of newly diagnosed Aussies coming on board each…
5 hours ago
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E. Michael D. ("Mike") Scott left a comment for Stephen
Hi Stephen. I don't know your age, which would be helpful. Clearly, with two close relatives with prostate cancer you do need to keep a careful eye on this situation. How high is your PSA now? Has anyone suggested it might be time for a second…
5 hours ago
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E. Michael D. ("Mike") Scott left a comment for Phil LaPorta
Phil: I assume you have low-risk disease with a PSA lower than 10 ng/ml; only one or maybe two positive biopsy cores; and all cancer Gleason 6 or lower grade. Yes? Are you actually doing "watchful waiting" or some form of "active…
5 hours ago
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E. Michael D. ("Mike") Scott left a comment for alastair Scott
Alastair: It would help us to help you if you could give us just a little more information, as follows:   -- Can you confirm that your clinical stage at diagnosis was T1c (which is what it sounds like based on "no hardness…
5 hours ago
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E. Michael D. ("Mike") Scott left a comment for RDB
RDB: So I think you said you were 63 years of age when you "signed up." Yes? It would help us to help you if you could give us just a little more information, as follows: -- Your PSA level at the time you were diagnosed -- Your clinical…
6 hours ago
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E. Michael D. ("Mike") Scott left a comment for John Millet
Dear John: So you didn't tell me your age, but for the purposes explained below I shall assume it is 60 years; your PSA is 4.1 ng/ml; your clinical stage is T1c; your Gleason score is 4 + 5 = 9; and you had 5/12 biopsy cores positive for…
6 hours ago
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E. Michael D. ("Mike") Scott left a comment for Ron
Ron: I think Dr. Walsh's book is now somewhat out of date. The best book for patients that I am aware of that really focuses on the ED issue is the one by John Mulhall, MD, called Saving Your Sex Life: A Guide for Men with Prostate Cancer. You…
6 hours ago
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Dave B updated their profile 8 hours ago
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Hugh W. Judd updated their profile 23 hours ago
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Rick Redner replied to Rick Redner's discussion 'Progression of nerve bundle healing' in the group ED and Incontinence Post-treatment
Ron, When you see the Dr for your 3 year check up, ask if you could be tested for venous leak. Also, I suggest you listen to this Dr on YouTube.  http://www.youtube.com/watch?v=ie8NkOu2VNA   He's one of the few experts in the US on…
yesterday
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John Millet left a comment for E. Michael D. ("Mike") Scott
Hi Mike, Thanks so much for your reply. We now have more information. 1. PSA - 4.1 2. T score - T1c 3. Bone scan  and CT scan - mnegative 4. Gleason 6 disease in the left lateral base. 10% of the tissue. Gleason 7 in the right lateral base, 20%…
yesterday
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Ron left a comment for E. Michael D. ("Mike") Scott
Thanks Mike. I'll talk to the Dr next month on my 3rd yr check up. Whats your opinion on a book by Dr Patrick Walsh? Rick in the ED discussion mentioned his book and I was thinking of buying it if it would give me ideas, hope etc.....thanks.
yesterday
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Ron replied to Rick Redner's discussion 'Progression of nerve bundle healing' in the group ED and Incontinence Post-treatment
To Rick....4 years! Well maybe there is hope yet...gotta check that!
yesterday
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Ron replied to Rick Redner's discussion 'Progression of nerve bundle healing' in the group ED and Incontinence Post-treatment
Dave and Rick thanks for the reply. I dont feel alone in my frustration! My wife tries to make me feel ok with it saying " you're alive, thats what counts and I'm not really into sex much anymore anyway ". Rick I'm not ready…
yesterday

Forum

Gary Dempsey

Calypso <><> Radiation With Proper Diet. 1 Reply

(“Mike”) Thanks for welcoming to the Group <><><>  Its been A Very Nervous Time three years of watching & waiting  the doctors suggested because of my age & I Just turned 70…Continue

Started by Gary Dempsey. Last reply by E. Michael D. ("Mike") Scott on Thursday.

Gary Dempsey

With Radiation Should You Take Antioxidants Or Not ? 4 Replies

Hello  <><><> I Started Calypso Radiation treatments today Have 27 more to complete .There Is so mush information out there about Taking or Not taking Food Supplements and…Continue

Started by Gary Dempsey. Last reply by Mr. Bill on Wednesday.

Tom Major

MRI & PC 1 Reply

I have had a burning sensation in my buttocks now for over 2 yrs alsoI have had a sore back for ever most of my life.Well it is going on 2 years since my RP every thing is going well on 6 monthly PSA…Continue

Started by Tom Major. Last reply by E. Michael D. ("Mike") Scott on Wednesday.

Jim Hock

Proton Beam Treatment & BPH symptoms 2 Replies

I have not seen much information on what actually happens to your prostate with Proton Beam Treatment. I’ve found conflicting information, some say the treatment is intended to kill all prostate…Continue

Started by Jim Hock. Last reply by jeff Jan 24.

John Brown

Surgeon Experience 7 Replies

Dear friends, How can I find a surgeon with a high volume track record of radical prostatectomy or if possible the outcome of his radical prostatectomy? My HMO is not providing me their surgeons'…Continue

Started by John Brown. Last reply by David Stevens Jan 23.

Kevin Flowers

Status update 4 Replies

I haven't posted in a long time... But I'm happy to report I'm doing pretty well, I go back into the doctor in January a year and a half after my RP surgery, but I'm feeling confident things will be…Continue

Started by Kevin Flowers. Last reply by Howard Katz Jan 16.

Jeffrey Dewolf

What to do for very young new diagnosis? 22 Replies

All,Perhaps it is not different than the rest but I just got biopsy confirmation that I have Stage T1C prostate cancer even though I am only 39!!!  7 out of 12 samples were cancerous.  Most scores…Continue

Started by Jeffrey Dewolf. Last reply by Mr. Bill Jan 11.

kathleen

Waiting on Biop results - what to ask (as the wife) at the appt? 3 Replies

Hubby was diagnosed with a "high" PSA and then an extremely large prostrate.  Dr's words at exam (per hubby) that is was "very bad"? Hubby had Biop and we should get the call tomorrow.  I am assuming…Continue

Started by kathleen. Last reply by kathleen Jan 3.

Jonathan Oppenheimer

Wouldn't it be nice if men could share prices paid for urological care/lab services. 4 Replies

By making the cost of medical care more transparent, we can help the dysfuctional medical marketplace become more efficient and get better quality information and care.

Started by Jonathan Oppenheimer. Last reply by Sam Nathanson Dec 27, 2011.

Michael Yan

What to do next with first Biopsy Negative? -- PSA 6.6 and DRE are positive 14 Replies

Hi All,I did published a question about 8 cores is enough for first biopsy test few days ago in this forum, Now, the test result come with all 8 cores are negative,  Good news or bad news?  Would…Continue

Started by Michael Yan. Last reply by Michael Yan Dec 26, 2011.

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The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

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