The "New" Prostate Cancer InfoLink Social Network

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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

E. Michael D. ("Mike") Scott commented on patty a's status
"Patty: You're not neurotic. You're curious. And that's a very sensible thing to be!"
8 hours ago
patty a commented on patty a's status
"Mike, Thank you so much for this explanation.  I actually was wondering if just because they might find a bit of PSA that it meant it could just be some random left over normal cells. I guess with all my questions I must seem neurotic.  I…"
12 hours ago
E. Michael D. ("Mike") Scott left a comment for Gerry
"Welcome Gerry. So I see you are 69 years young; that you seem to have been diagnosed with intermediate-risk prostate cancer; and that your PSA has dropped from 17 ng/ml at diagnosis to 0.47 ng/ml at 6 weeks post-surgery. However, ... What is not so…"
15 hours ago
Profile IconGerry and Ken Green joined The "New" Prostate Cancer InfoLink Social Network
15 hours ago
E. Michael D. ("Mike") Scott left a comment for Ken Green
"Hi Ken, and welcome. So I see you are 61 years young; your PSA level is 9.00 ng/ml; and Gleason score is 3 + 4 = 7. If your clinical stage is T1cN0M0 or T2aN0M0, thsi means that you have what is known as "favorable", intermediate-risk,…"
15 hours ago
E. Michael D. ("Mike") Scott commented on patty a's status
"Patty: So one of the problems with biology and medicine is that -- unlike physics and engineering -- there is a higher degree of variability in the things we measure over time not only in people as a group but in individual people in particular.…"
15 hours ago
patty a commented on patty a's status
"Hi Mike, Rather than panicked, I am more confused. For 5 years it was exactly the same number no matter when it was taken.  So it is confusing to me to see it bouncing around although in very small amounts.  So it is a bit confusing. …"
Saturday
E. Michael D. ("Mike") Scott left a comment for Darrell
"Hi Darrell. I have asked Tony Crispino if he would be willing to talk to you. He had surgery and radiation (and some other therapy too) several years ago and to all intents and purposes he seems to have been cured. His also one of the most…"
Saturday
Darrell is now a member of The "New" Prostate Cancer InfoLink Social Network
Saturday
E. Michael D. ("Mike") Scott commented on patty a's status
"Hi Patty. So I understand why you continue to worry about these very small changes in your husband's PSA level but: (a) No, I can't tell you that his cancer is back. Indeed, in all honesty that seems unlikely based on his PSA levels gong…"
Saturday
patty a commented on patty a's status
"Hi Mike, 8 weeks have gone by and his PSA went back up to .03.  I know it is not a significant amount but it is still bouncing around.  Here are the results this past year. <0.02 for 4 years since treatment.  Then 10/31/17 …"
Friday
Jan Manarite left a comment for Sally Bard
"Hi Sally!  Welcome to our Social Network.  How are things going with Dan?"
Friday
E. Michael D. ("Mike") Scott left a comment for Sally Bard
"Welcome Sally. I will let Jan know you have joined the network."
Friday
Profile IconSally Bard and Jeff joined The "New" Prostate Cancer InfoLink Social Network
Friday
E. Michael D. ("Mike") Scott left a comment for Jeff
"Welcome Jeff. I see you re 65 years of age. So a few things. ... (1) If you were cured back in 2009 with radiation therapy, I am having a hard time understanding why you are on shots of Lupron.  Have you been on that Lupron ever since you were…"
Friday
Jan Manarite left a comment for Megan
"Hi Megan - welcome.  I was also in my 40's when my husband was diagnosed.  He was 15 years older than me, but I can relate to dealing with this at a younger age. How can we help you?  What are some of your questions?  How is…"
Sep 17

Forum

What Does <0.1 Mean? 1 Reply

Mike,The good news is my recent PSA test came back <0.1. My urologist says this is effectively 0. However, when tests showed 0.02 and 0.03 consecutively he was pretty sure the cancer had returned. Then the test report came back as <0.1, which…Continue

Started by Arthur Rollins. Last reply by E. Michael D. ("Mike") Scott Sep 15.

HIFU today 1 Reply

I have tried to keep up, but I’m confused. HIFU was approved by FDA, yes? But for what? Studies? Clinical trials?My health status has changed lately. PSA is approaching 5, prostate volume has increased from 30 to over 50cc.If HIFU is available, I am…Continue

Started by Don Goffredi. Last reply by E. Michael D. ("Mike") Scott Sep 15.

salvage radiation 2 Replies

Mike,I just did my first blood work after finishing salvage radiation end of April.My count was <.01 My urologist was happy with that.My question to you doesn't that signal there is remaining cancer?  Thanks,RandyContinue

Started by randy hoft. Last reply by randy hoft Aug 28.

Hello 60 Replies

I am new to site after being recommended by a friend. I was diagnosed with prostate cancer from my biopsy results from yesterday. All of them had some % of cancer in them. All were 3+4=7 except 1 which was 4+3=7 and a couple had some nerve…Continue

Started by Kevin Tepper. Last reply by E. Michael D. ("Mike") Scott Aug 27.

Blood in urine (hematuria) after Prostatectomy 7 Replies

In 2005 , I was diagnosed prostate cancer with PSA 16I then treated with Intensity-modulated radiotherapy IMRT. During the following 2 years the PSA was raised from 1 to 12…Continue

Started by Edmund Chiu. Last reply by Rob Aug 21.

Update on RLRP Surgery with Dr Eastham at MSK . 8/16/18 3 Replies

Hello EveryoneI am in my 4th day of recovery from RLRP Surgery with Dr Eastham at MSK  I had my surgery at the Josie Robertson MSK Cancer Center .  My surgery went well according to Dr Eastham  about 4 hours start to finish Thursday morning  I was…Continue

Started by keith gerety. Last reply by E. Michael D. ("Mike") Scott Aug 21.

 
 
 

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GENERAL DISCLAIMER

The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.

Information provided on this site should not be used for diagnosing or treating any health problem or disease.

The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.

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