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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

Ron Baird is attending Jan Manarite's event
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3rd PCaI Conference - Ft Myers, FL at FL Gulf Coast University, COHEN CENTER

March 2, 2019 from 9am to 5pm
Conference website - CLICK here. More details coming soon. …See More
9 hours ago
Don Oberlin left a comment for Howard B. Levenson
"Howard: The way it is set up each page of my journal contains several entries; the latest is dated Oct. 20,2018. At the bottom of each page you can click on "Older Posts". To get to the narrative where I suggest you start, you need to…"
9 hours ago
Howard B. Levenson left a comment for Don Oberlin
"Hi Don: Being new to this site I am just learning how to navigate it. Not able to find your entry entitled “To My Family Friends,and Cyberspace.....”. Any hints? No problem finding your journal however. Thanks, Howard"
16 hours ago
Don Oberlin left a comment for Howard B. Levenson
"Howard: I have documented my ongoing experience with recurrent cancer in an online journal; see:  http://protondon.blogspot.com If you decide to check it out I suggest you start with my entry titled "To My Family, Friends and Cyberspace…"
18 hours ago
George U replied to wife of PC PT's discussion Considering IMRT/SpaceOAR + Hormone Tx over Surgery in the group Radiation Therapy for Prostate Cancer
"Hi, I chose radiation (after extensive research) over surgery as my MD said I had the option due to my Gleason and containment. I also paid out of pocket for the Space Oar procedure (experienced no rectal bleeding). Almost three years later, my PSA…"
yesterday
Jan Manarite left a comment for Ian Roger Smith
"Hi Ian, and welcome.  What can you tell us about your prostate cancer?  Are you newly diagnosed?  What are some your questions?  We're here to help."
yesterday
Jan Manarite left a comment for Howard B. Levenson
"Hi Howard - welcome.  What more can you tell us about your prostate cancer and recurrence?  Are you having recurrence by PSA only?  Have you had any imaging like an Axumin PET Scan or MRI?"
yesterday
Profile IconHoward B. Levenson and Ian Roger Smith joined The "New" Prostate Cancer InfoLink Social Network
yesterday
wife of PC PT added a discussion to the group Radiation Therapy for Prostate Cancer
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Considering IMRT/SpaceOAR + Hormone Tx over Surgery

Hello Everyone, Hoping there are active members still here from the 2016 chats.  My husband has a controlled ulcerative colitis but we are hoping he can get through 8 1/2 weeks of IMRT without too much trouble, vs. doing surgery.  Does anyone have any experience or advice to share?  Thanks.See More
yesterday
wife of PC PT joined FairRider's group
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Radiation Therapy for Prostate Cancer

A place to discuss radiation therapy in general (IMRT, IGRT, brachytherapy, wide field, etc.), outcomes, side effects, equipment, finding an radiation oncologist experienced in treating prostate cancer, etc, etc
yesterday
Gary Cohen is attending Jan Manarite's event
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3rd PCaI Conference - Ft Myers, FL at FL Gulf Coast University, COHEN CENTER

March 2, 2019 from 9am to 5pm
Conference website - CLICK here. More details coming soon. …See More
yesterday
Mark Barnes joined E. Michael D. ("Mike") Scott's group
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Proton-beam radiation therapy (PBRT)

This group has been set up specifically as a place for members to discuss the pros and cons of PBRT in the management of localized prostate cancer (including issues related to the cost and insurance coverage of PBRT)See More
yesterday
Jan Manarite's event was featured
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3rd PCaI Conference - Ft Myers, FL at FL Gulf Coast University, COHEN CENTER

March 2, 2019 from 9am to 5pm
Conference website - CLICK here. More details coming soon. …See More
yesterday
Jan Manarite posted an event
yesterday
Jan Manarite left a comment for Kirby Jantz
"Hi Kirby - welcome.  Here's a couple of questions that will help us to help you: - How long ago was your prostatectomy? - What was the Gleason Score from surgery? - How fast is your PSA rising?"
Sunday
Profile IconKirby Jantz, John James and Jack joined The "New" Prostate Cancer InfoLink Social Network
Sunday

Forum

Interstim therapy for incontinence 1 Reply

It has been quite a while (several years) since I was last on this site. I had RP surgery in 2009. Recently, Sep 10th, I went through surgery to have my left knee replaced. Because of my previous prostate surgery, the doctors decided I needed a…Continue

Started by Howard Robson. Last reply by E. Michael D. ("Mike") Scott Nov 6.

Hello 62 Replies

I am new to site after being recommended by a friend. I was diagnosed with prostate cancer from my biopsy results from yesterday. All of them had some % of cancer in them. All were 3+4=7 except 1 which was 4+3=7 and a couple had some nerve…Continue

Started by Kevin Tepper. Last reply by E. Michael D. ("Mike") Scott Oct 16.

What Does <0.1 Mean? 1 Reply

Mike,The good news is my recent PSA test came back <0.1. My urologist says this is effectively 0. However, when tests showed 0.02 and 0.03 consecutively he was pretty sure the cancer had returned. Then the test report came back as <0.1, which…Continue

Started by Arthur Rollins. Last reply by E. Michael D. ("Mike") Scott Sep 15.

HIFU today 1 Reply

I have tried to keep up, but I’m confused. HIFU was approved by FDA, yes? But for what? Studies? Clinical trials?My health status has changed lately. PSA is approaching 5, prostate volume has increased from 30 to over 50cc.If HIFU is available, I am…Continue

Started by Don Goffredi. Last reply by E. Michael D. ("Mike") Scott Sep 15.

salvage radiation 2 Replies

Mike,I just did my first blood work after finishing salvage radiation end of April.My count was <.01 My urologist was happy with that.My question to you doesn't that signal there is remaining cancer?  Thanks,RandyContinue

Started by randy hoft. Last reply by randy hoft Aug 28.

Blood in urine (hematuria) after Prostatectomy 7 Replies

In 2005 , I was diagnosed prostate cancer with PSA 16I then treated with Intensity-modulated radiotherapy IMRT. During the following 2 years the PSA was raised from 1 to 12…Continue

Started by Edmund Chiu. Last reply by Rob Aug 21.

 
 
 

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GENERAL DISCLAIMER

The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.

Information provided on this site should not be used for diagnosing or treating any health problem or disease.

The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.

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