The "New" Prostate Cancer InfoLink Social Network

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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

Jan Manarite left a comment for Gary Galey
"Hi Gary - I got your message.  Sorry, my son got married the same day and I overlooked it somehow.  Your Gleason Score from surgery is a 5+4=9, because you always use the highest Score.  (even though some cores were 3+4=7, etc). …"
6 hours ago
Gary Galey left a comment for Jan Manarite
"Hi Jan, Thanks for your message. I thought I had sent you a reply s few days ago through an email but found no message sent through my "sent email". Apparently I didn't understand the sites system so hopefully I have it now.  I…"
12 hours ago
Keith Disler commented on Keith Disler's status
"Thanks for the info, Mike..It has been used in other countries for 20 Years. Their around 90 clinics in the USA whom use this. They want around $3000 for six treatments. I cant get my wife on board, because she things it's a waste of money. The…"
yesterday
E. Michael D. ("Mike") Scott commented on Keith Disler's status
"Dear Keith: I have spent the past couple of hours doing a little homework (for the benefit of you and any other interested readers of our main news site. Click here."
yesterday
E. Michael D. ("Mike") Scott commented on Keith Disler's status
"Keith: After a more careful look this morning I managed to find one paper (from a group of Danish researchers) on  a very small group of men who had LI-ESWT for treatment of ED after a radical prostatectomy. They seem to think it has some…"
yesterday
Howard Ross posted a status
"Will do Mike."
Thursday
Zoe left a comment for E. Michael D. ("Mike") Scott
"Thank you, Mike, so much, for writing. Incredibly helpful.  Thank you for the positivity! "
Thursday
E. Michael D. ("Mike") Scott replied to Howard Ross's discussion PSA
"Hi Howard ... I understand your mindset. Do let us know what you and Dr. Ritter decide to do."
Thursday
E. Michael D. ("Mike") Scott commented on Keith Disler's status
"Hi Keith. So frankly I had never even heard of GainsWave therapy for ED until you left thsi message, but it appears to be a form of low-intensity extracorporeal shock wave therapy (LI-ESWT) and a recent review suggests that it does have some…"
Thursday
Keith Disler posted a status
"Looking for any men who have tried Gainswave treatment for ED?"
Wednesday
Keith Disler left a comment for E. Michael D. ("Mike") Scott
"I had surgery back in 2011...robotic"
Wednesday
Howard Ross replied to Howard Ross's discussion PSA
"Mike I had a three year run until the PSA hit .13 so I decided to take the next step to see if I can still get a cure. I will see Dr. Ritter next week to get the ball rolling while my PSA is still relatively low."
Wednesday
E. Michael D. ("Mike") Scott left a comment for Keith Disler
"Welcome Keith. Have you just been diagnosed or were you diagnosed a while ago and have already had some sort of treatment?"
Wednesday
Keith Disler is now a member of The "New" Prostate Cancer InfoLink Social Network
Wednesday
E. Michael D. ("Mike") Scott left a comment for Zoe
"Dear Zoe: I looked at the data you sent to Jan and I agree with her. Your husband appears to have favorable, intermediate-risk prostate cancer. And there are three important questions that I think you need to ask the doctors when you see them next…"
Wednesday
Jan Manarite left a comment for Zoe
"Hi Zoe.  Sorry for the delayed response - my son got married yesterday and my head is still in the clouds.  (-: The USA (AUA, ASTRO, SUO) published new guidelines in 2017 for newly diagnosed prostate cancer. .  According to those…"
Wednesday

Forum

PSA 5 Replies

Well, I could not wait until April so I took my PSA test last week. I was mentally prepared to see a rise in the PSA from .07 in Jan (0.05 in Oct 15) but lo and behold it remained the same, 0.07, so the next test is in July. I guess Mike may be…Continue

Started by Howard Ross. Last reply by E. Michael D. ("Mike") Scott on Thursday.

Status 4 Replies

When bone and Axumin scans did not show anything that is causing my PSA to rise, I consulted a general oncologist in Gainesville. He explained that while the cancer probably is present in my body, it may be in micro forms, too small for the scan to…Continue

Started by Paul Burns. Last reply by Howard Ross Oct 11.

Cyberknife treatments 1 Reply

Hi AllI begin my 5 days of cyberknife next month. How should I expect to feel after day 3 ? Will I have enough energy to work a 8 hour desk job plus commute by train .. I'm healthy and 61 years oldbestDanContinue

Started by dan dwyer. Last reply by E. Michael D. ("Mike") Scott Sep 29.

Patients of Dr. Menon - Henry Ford Hospital 2 Replies

Looking to talk patients of Dr. Men on At Henry Ford Hospital. Success rate of protecting surrounding nerves, recovery...etc?

Started by Scott. Last reply by E. Michael D. ("Mike") Scott Sep 29.

Looking for experience on Varian/TrueBeam radiation

Anybody treated with the Varian/TrueBeam platform?. Interested in hearing about it (sorry, not interested in Cyberknife or other technologies, only this particular one)Continue

Started by JJinCA Sep 28.

Following on from January's diagnosis 2 Replies

Following some amazing advice, here, earlier this year Dave and I are now in a better place. The diagnosis was T2 Gleason 6 PSA 12. Active surveillance was an option given by our consultant but after reading your replies we decided that we would…Continue

Started by Helen. Last reply by Alan Kousen Sep 28.

 
 
 

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GENERAL DISCLAIMER

The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.

Information provided on this site should not be used for diagnosing or treating any health problem or disease.

The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.

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