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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

Russ Henshaw left a comment for E. Michael D. ("Mike") Scott
"age 67 Gleason: 3+3 = 6 (Dec 2014; 1 positive core, <5%, out of 15 samples, per fusion biopsy at the University of Cincinnati ... which I found on my own, not referred by my urologist) PSA = 11.7 & free PSA = 13.5% (March 2015) stage: not…"
3 hours ago
Steve Z updated their profile
5 hours ago
Don Oberlin replied to Tony Redd's discussion Seeking Advice on Salvage Therapies Following Unsuccessful Proton Beam Treatments
"Tony: Evidently you have ruled out a consultation with Dr. Myers. If so, I would be interested in your rationale. If you would prefer to respond privately, please use the following address:  donandmar@yahoo.com Don O."
6 hours ago
E. Michael D. ("Mike") Scott left a comment for Russ Henshaw
"Russ ... Sorry ... I am pretty sure I made a mistake below when I referred to you being 68 years old. Mea culpa. Please let me know your correct age when you answer the other questions below."
6 hours ago
E. Michael D. ("Mike") Scott left a comment for Russ Henshaw
"Welcome Russ. When you say that you are "considering RCOG", I assume you are referring to treatment offered by the Radiotherapy Clinics of Georgia group. However, ... I see that you are 68 years of age, and obviously (as yet) we have no…"
6 hours ago
Profile IconRuss Henshaw, Mary Lacy and Dave W joined The "New" Prostate Cancer InfoLink Social Network
6 hours ago
E. Michael D. ("Mike") Scott left a comment for Mary Lacy
"Welcome Mary. I am sorry to hear about your husband's mCRPC. I assume that he has progressed to this status over time after multiple other forms of treatment. Yes? What are his doctors suggesting at this time? Has he tried any drugs like…"
6 hours ago
E. Michael D. ("Mike") Scott left a comment for gary tome
"Hi Gary. Thanks for the additional info. As you say, we'll have to just wait and see how you do on a regimen like this. I'm a little surprised your urologist recommended only 12 months of ADT since data supporting this possibility for men…"
7 hours ago
E. Michael D. ("Mike") Scott left a comment for Dave W
"Sorry to hear about the proctitis. Hopefully that will resolve after a while. You didn't mention how your PSA level has been doing since you came off the ADT. Is it still low and stable?"
7 hours ago
E. Michael D. ("Mike") Scott replied to robert troy's discussion Rising PSA!
"Good luck Troy ... Do keep us all informed."
7 hours ago
E. Michael D. ("Mike") Scott left a comment for Thomas E Hamilton
"Hi Thomas. So I see that you should effectively be "off" androgen deprivation therapy at about the beginning of July (i.e., 3 months after your last shot of Lupron). I'll keep my fingers crossed that your PSA stays down below 0.1…"
7 hours ago
E. Michael D. ("Mike") Scott left a comment for John M
"Hi John. Sorry to hear about the up-creep in your PSA. I can't tell you what the radiation oncologists is likely to recommend, but if I was you I would tell him that (in my opinion) there's not a lot of point in waiting for the PSA to hit…"
7 hours ago
Tony Redd replied to Tony Redd's discussion Seeking Advice on Salvage Therapies Following Unsuccessful Proton Beam Treatments
"Thanks, I've pretty much ruled out FLA.  I've narrowed my options down to cryo or the RP.  I have an appointment with the RP surgeon on the 29th and will make a decision afterwards. Thank you for your input. Tony"
8 hours ago
gary tome left a comment for E. Michael D. ("Mike") Scott
"Thanks Mike, 53 at diagnosis. The bone and CT scan post-diagnosis did not detect mets. Neither my urologist nor Dr Partin at JHU (second opinion) recommended surgery. Tx was neoadjuvant ADT and IMRT, with ADT for one year (3x 4-month depot…"
9 hours ago
gary tome updated their profile
9 hours ago
Thomas E Hamilton replied to Tony Redd's discussion Seeking Advice on Salvage Therapies Following Unsuccessful Proton Beam Treatments
"I would avoid the laser ablation; I read about a case of stage 1C gleason 6 that turned metastatic to bone within 24 months of the Medtronic laser.  I visited medtronic.com and read that the laser does not kill all the cancer cells that…"
13 hours ago
Thomas E Hamilton left a comment for E. Michael D. ("Mike") Scott
"My dad had radiation scarring that caused also caused bleeding.  His Oncologist prescribed Trental (Pentoxifylline) taken 3x per day.  It worked well and even helped with his ringing ear (Tinnitus) and warmed up his cold hands and feet…"
13 hours ago
Dave W left a comment for E. Michael D. ("Mike") Scott
"Hey Mike, thanks for the welcome.  Finished IMRT in Sept and ADT in December.  Taking a PCa vacation in FL for Winter, except three weeks ago starting to experience symptoms of radiation proctitis.  Working with my Oncologist in…"
16 hours ago
Don Oberlin replied to robert troy's discussion Rising PSA!
"Troy: Appreciate the update. Best wishes.  Don"
18 hours ago
robert troy replied to robert troy's discussion Rising PSA!
"Mike/Don,          Just received my 3rd and final intermittent Lupron injection at Moffitt in Tampa with recent(4-10) PSA reading at 0.9. Can't say enough about the quality of care there(Oncologists) as…"
19 hours ago

Forum

Seeking Advice on Salvage Therapies Following Unsuccessful Proton Beam Treatments 15 Replies

Mike,I have recurrent PC following unsuccessful proton beam treatments (PBT) in 2011 and am currently investigating salvage therapy options.  I’d appreciate your thoughts.The way I see it, we have 4…Continue

Started by Tony Redd. Last reply by Don Oberlin 6 hours ago.

Rising PSA! 35 Replies

Thought I would reach out to forum, as I continue dialogue with Mike as well.  Am 70 years old and was diagnosed 10 years ago, with gleason 9. Had surgery which was not curative, an started on Lupron…Continue

Started by robert troy. Last reply by E. Michael D. ("Mike") Scott 7 hours ago.

high white blood cell count 6 Replies

Could a high white blood cell count of 11.8 thousand cause an elevated psa of 10.4?Continue

Started by Thomas D. Wood. Last reply by Thomas D. Wood on Monday.

ThomasW 1 Reply

2009-4.8 psa 2009 Truss biop-neg. 2010 6.6 psa 2010 7.0 psa 2010 Truss biop-neg. 2011 6.3 psa 2011 7.0 psa 2011 8.0 psa 2011 Truss biop-neg. 2012 Truss biop-neg. 2012 7.1 psa 2012 9.5 psa 2012 8.8…Continue

Started by Thomas D. Wood. Last reply by Thomas D. Wood Apr 11.

medical oncologist 7 Replies

I am seeking advice for finding prostate oncologist in the boston ma. area. I am on AS and would like to have a medical oncologist who specializes in prostate cancer on my team Also, is it common to…Continue

Started by paul. Last reply by paul Apr 10.

High PSA 5 Replies

I just wanted to pass my status along. I was symptom free and had a PSA of 124 at my regular physical exam. My CT scan and bone scan have come back negative! So there is hope if you too have a high…Continue

Started by shurk. Last reply by shurk Apr 9.

Weight training after robotic surgery

I'm eight weeks post surgery tomorrow. Started back to the gym after five weeks and began just going through the motions using weights that I could do 30-40 reps. Probably no more strenuous than…Continue

Started by JoeM Apr 7.

What if CANCER is revealed in TURP? 1 Reply

If biopsy doesn't reveal cancer, and during TURP the urologist suspects cancer - what will he do? Change to radical prostatectomy? Will he remove lymph nodes? Continue

Started by Hull. Last reply by E. Michael D. ("Mike") Scott Apr 2.

Any heard of HOLEP laser treatment? 1 Reply

Did anyone hear of Holep? Why is it so rare? Why is not an option in case cancer has not been ruled out, if it in fact removes the entire prostate but is somewhat easier to the patient than TURP? Is…Continue

Started by Hull. Last reply by E. Michael D. ("Mike") Scott Apr 2.

Hello! 3 Replies

I feel like I've already been through most of these problems.  I'm the wife (of 48 years) of a man who was diagnosed with pc in 2001 (age 70)  Gleason score of 9.  Had a prostatectomy, 6-week…Continue

Started by Judy DeGraffenreid. Last reply by E. Michael D. ("Mike") Scott Mar 31.

 
 
 

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