"Hi Chris.
S it is hard to know how best to help you and your husband without knowing at least a little about things like: his age, what the actual prostate problems are, and where you live.
Has he seen his primary care doctor? Do you know if he has…"
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Sexual Function, Penile …
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Androgen Deprivation The…
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Active Surveillance / Ex…
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Sex after prostate cance…
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Proton-beam radiation th…
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WHAT'S THE POINT OF THIS SOCIAL NETWORK?
The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.
If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.
One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.
Latest Activity
"Thanks for the correction! Yes, it is Dr. Peter Carroll. I was definitely happy to get a 2nd opinion from him, and that based on his advice my provider ran additional diagnostic tests."
Sexual Function, Penile Rehabilitation, and Quality of Life
Recovery of good sexual function (particularly post-surgery) is important for many men (and their partners). Here's a place to share what you can do to optimize your chances of a high erectile and sexual QoL (albeit, normally, without the full capabilities of an 18-year-old).See More
"Welcome Mike.
So the single most important question is ... Are you still responding well to first-line androgen deprivation therapy (also known as "hormone" therapy) with a drug like Lupron or similar?"
"Your really will need to discuss those with your urologist and with a radiation oncologist. These are awfully hard to predict for an individual patient because there are so many possible variables. However, as I have told you previously, the risk…"
"Thanks Mike. A lot to ponder. Need to know os without 2nd line treatment and with second line treatment. Also side effects vs benefits?"
"Hi Mike. My one year PSA up to .04. Dr pushing radiation. Inclined to wait til .2 then Axumin. Then weigh risks vs benefits. Your thoughts"
"Welcome Bill.
So I am not sure that I understand why your Gleason score would have been revised from 3 + 3 = 6 to 3 + 4 = 7 based on a PSA level of 11.57. However, I can understand why your risk level would have been revised from low- to…"
"Hi Jonathan.
So I am not aware of a Dr. Bill Carroll at UCSF. but if you actually saw a Dr, Peter Carroll at UCSF, he is one of the most expert physicians on the management of low- to intermediate-risk prostate cancer in the whole of the US, and on…"
"Quick update - I got a 2nd opinion, from Dr. Bill Carroll at UCSF. Based on my urologist's advice, I'd already gotten an Oncotype DX report which showed that my cancer may be more consistent with Intermediate than Low Risk (which is where…"
"Welcome Chris.
So that's NOT a fun diagnosis at your age. And obviously I have no idea what your doctors have told you to date. However, there are three things that I would absolutely be doing in your situation:
Making sure that I was seeing…"
Forum
Newly Diagnosed 3 Replies
Hi I am Char, my husband Mike age 75 was recently diagnosed with Prostate cancer, his psa is 81 Gleason score is 8 and stage 4 from what I understand. The Urologist put him on generic for Casodex for a month and ordered a complete bone scan which…Continue
Started by Mike Green. Last reply by E. Michael D. ("Mike") Scott Feb 6.
treatment of metastatic prostate cancer 1 Reply
Mike, thank you again for your comments. I hae one more question, Are you familiar with Proton Therapy? My understading is this is radiation that targets a beam to each cancer cell. Is this viable for my condition?Thanks again for your time and…Continue
Started by Thomas M. Drago. Last reply by E. Michael D. ("Mike") Scott Dec 11, 2020.
Treatment for metastatic prostate cancer 4 Replies
Mike, I hope these comments find you as I would really appreciate your input. It's been a while since I have written. Last time was in 2018.At that time I was diagnosed with metastatic prostate cancer. I went thru a clinical trial at MUSC in…Continue
Started by Thomas M. Drago. Last reply by E. Michael D. ("Mike") Scott Dec 9, 2020.
BCR with slightly lower PSA after 7 Weeks radiation 7 Replies
Hi guys, just looking for some advice. Had robotic removal in June 2018. PSA undetectable til Feb 2020 when it peaked at 0.22. Had seven weeks of radiation an 2 Luperon (?) injections. PSA now at 0.10 but still there. Just looking for any experience…Continue
Started by Mike B. Last reply by Mike B Nov 23, 2020.
Does one wait for cancer to present itself or begin Androgen therapy 53 Replies
Please see my stats for details on my recurrent cancer. After more than 4 PET scans at the Mayo in 2017, my oncologist said I should wait until my PSA has risen to 8 before getting another scan because the cancer remained undetectable. Then in…Continue
Started by Tom Full. Last reply by E. Michael D. ("Mike") Scott Nov 16, 2020.
Does Infolink notify participants of new posts/discussions and new comments on older posts? 4 Replies
I belong to another forum that sends me daily updates of new questions/posts. Does infolink do the same?Continue
Started by dale maley. Last reply by dale maley Oct 18, 2020.
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