The "New" Prostate Cancer InfoLink Social Network

A Service of Prostate Cancer International

NOW ON TWITTER / FACEBOOK

Follow The "New" Prostate Cancer InfoLink news blog with TWITTER or FACEBOOK.

CHECK OUT OTHER WEB SITES

Visit these links on other Prostate Cancer International web sites:

"LET'S TALK ..." VIDEO SERIES
THE DAILY NEWS BLOG
CORE PROSTATE CANCER ARTICLES
ASK ARNON or ASK ARTHUR or ASK AMY

Photos

Loading…
  • Add Photos
  • View All

Videos

  • Add Videos
  • View All
 

WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

E. Michael D. ("Mike") Scott left a comment for Gary Smith
"Gary: I'm not a doctor so I can't tell you what you should or shouldn't be doing. All that I can tell you is that if you were to start the ADT and you could get an appointment at the Mayo within the next 6 weeks, there is nothing…"
1 minute ago
E. Michael D. ("Mike") Scott replied to Andrew's discussion Back home from the RP with clinical pathology report...
"Andrew: Your anxiety would be normal even if you had never had the prior colon cancer. Given that history, the anxiety and concern is almost entirely predictable. I am sorry to hear that the adhesions from your prior treatment resulted in the need…"
6 minutes ago
E. Michael D. ("Mike") Scott replied to Mark Bartlett's discussion use of cannabis oil to treat pc
"Dear Mark: (1) Yes implantation of radioactive pellets or seeds (formally known as "brachytherapy") is a well-known, well-understood, and quite widely used form of first-line treatment for localized prostate cancer. Sometimes it is…"
18 minutes ago
Gary Smith left a comment for E. Michael D. ("Mike") Scott
"Mike:  I am scheduled to have the markers installed Tuesday and start ADT.  Do want to get started as it has been a month since the diagnosis.  In your opinion would it make sense to get started and then consider a trip to Mayo during…"
50 minutes ago
Mark Bartlett posted a discussion

use of cannabis oil to treat pc

Having read a lot of favorable information regarding the use of cannabis oil to treat pc as well as other cancers, I am wondering if anyone has tried this or knows someone who has.  As someone who is only 50 years old I don't relish the thought of becoming impotent, incontinent or being cut on if there is any other way.  It's hard to decide what is the best way to treat when there is so much information out there and the ability to determine the truth is near impossible. Lots of good info and…See More
5 hours ago
Mark Bartlett updated their profile
5 hours ago
Sam DuPont left a comment for phil
"Phil: Thanks for the note.  Yes, I have tracked my PSA over time.  Feb 2011 2.3; Jan 2012 3.1; Aug 2014 4.67; 2nd reading Oct 2014 4.3;  On the biopsies, 3 of the 16 samples were positive, all in one lobe from the mass that was seen…"
10 hours ago
Andrew replied to Andrew's discussion Back home from the RP with clinical pathology report...
"Thanks, Mike.   That is certainly a question to pose - he had mentioned, at bedside, that he would determine the need (or, hopefully not) for adjuvant RT at the one month PSA blood test (in a couple more weeks).  Given my colon history, I…"
12 hours ago
E. Michael D. ("Mike") Scott replied to Andrew's discussion Back home from the RP with clinical pathology report...
"Andrew: Everyone loathes having to deal with the catheter, although I can never previously remember anyone telling me specifically that their's was "horribly uncomfortable in the perineum." That does seem a little odd. Did your doctor…"
15 hours ago
phil left a comment for Sam DuPont
"You report one psa measure.  Have you tracked over time to see if there is change and, if so, at what rate?  How much cancer was found in each of the three affected cores? Consult with as many physicians as you feel a need to.  Each…"
21 hours ago
Andrew posted a status
"Hi Mike. Back home with catheter: horribly uncomfortable in the perineum - is that normal?"
22 hours ago
Andrew posted a discussion

Back home from the RP with clinical pathology report...

Hi Mike and all,Back home with catheter, which is horribly uncomfortable in the perineum - is that normal?Clinical pathology report confirmed pT2c:Microscopy resection margins:Anterior: 3mm awayPosterior: less than 1mm awayRight lateral: 1mm awayLeft lateral: less than 1mm awayNo evidence of malignancy in:Seminal vesiclesVas DeferensMalignancy in both lobes (peripheral and transitional zones)No pelvic lymph nodes submitted.Report says: "Organ-confined, bilateral disease (pT2c)"Gleason 3+4Tumour…See More
22 hours ago
E. Michael D. ("Mike") Scott left a comment for Gary Smith
"Gary: I should emphasize that there is nothing "wrong" with ADT + radiation therapy. It is the standard form of treatment for someone like you ... but ... if you were to go to the Mayo Clinic in Rochester, they would probably offer you the…"
yesterday
E. Michael D. ("Mike") Scott left a comment for Gary Smith
"Gary: There is little published work in this area, but here is a link to data from a recent, very small German pilot study that shows some potential value to debulking. In this case the patients received ADT first, then surgery; radiation…"
yesterday
Gary Smith left a comment for E. Michael D. ("Mike") Scott
"Thanks Mike, your message re debulking reached me after the second opinion at the medical college.  The medical ongologist confirmed the diagnosis and strongly agrred with the recommended treatment apporach of androgen suppression followed by…"
yesterday
E. Michael D. ("Mike") Scott left a comment for shawn austin
"Welcome Shawn. So have you decided you need a penile implant or are you scheduled to have one or are you just trying to do some homework? If you want to talk to a patient who got one (and it made him very happy after he had had to have serious…"
yesterday
Profile Iconshawn austin, George A Southiere, Charles Dick and 3 more joined The "New" Prostate Cancer InfoLink Social Network
yesterday
E. Michael D. ("Mike") Scott left a comment for George A Southiere
"Welcome George. So your diagnosis must have come "outta the blue" ... which would have been a big shock. Is your PSA still up at 94 ng/ml or is that what it has come down to since your diagnosis. How long have you been on the degarelix…"
yesterday
E. Michael D. ("Mike") Scott replied to David Grothe's discussion Anyone interested in performing a clinical trial on Salvestrols?
"David: I don't think your question is answerable. ... It could be a random fluctuation; it could mean the salvestrols are "doing something" (but my level of confidence about that would be low); or it could just mean that you are…"
yesterday
David Grothe replied to David Grothe's discussion Anyone interested in performing a clinical trial on Salvestrols?
"latest PSA test came in at 15. Here is how it has been going this year. I am on Lupron/Zytiga. Mar 12June 15 start Salvestrols 6000 points/dayJul 12Sep 12Oct 1 go to 12000 points/dayNov 15 So, does 12 to 15 mean that the Salvestrols are starting to…"
yesterday

Forum

Back home from the RP with clinical pathology report... 3 Replies

Hi Mike and all,Back home with catheter, which is horribly uncomfortable in the perineum - is that normal?Clinical pathology report confirmed pT2c:Microscopy resection margins:Anterior: 3mm…Continue

Started by Andrew. Last reply by E. Michael D. ("Mike") Scott 6 minutes ago.

use of cannabis oil to treat pc 1 Reply

Having read a lot of favorable information regarding the use of cannabis oil to treat pc as well as other cancers, I am wondering if anyone has tried this or knows someone who has.  As someone who is…Continue

Started by Mark Bartlett. Last reply by E. Michael D. ("Mike") Scott 18 minutes ago.

Anyone interested in performing a clinical trial on Salvestrols? 5 Replies

Would any of the researchers in the group be interested in submitting a proposal to NIH/NCI CAM to perform a clinical trial on Salvestrols. They have funding and this is just the kind of study that…Continue

Started by David Grothe. Last reply by E. Michael D. ("Mike") Scott yesterday.

Awaiting results 24 Replies

Waiting results or second biopsy. First was two years ago at that time PSA was 2.7. Showed one core of 14 with high-grade pin. since then six-month intervals PSA has been 2.9, 2.7, 3.1, AND NOW 4.3.…Continue

Started by Anon. Last reply by Frankp yesterday.

Is there REALLY a monster in the closet? 11 Replies

I feel like a little kid holding the closet door closed - he's convinced that there's a monster in there, but is afraid to look inside to see.With undetectable PSA, when does it make sense to go off…Continue

Started by Robert Heavey. Last reply by E. Michael D. ("Mike") Scott Nov 16.

Robotic prostare surgery. 3 Replies

Hi I have a question.My robotic radical prostatectomy is booked for 8th Dec 2014.I also have a grade 2 spondylolithesis in my lower back.My question could this cause other complications with the…Continue

Started by Kingsley. Last reply by E. Michael D. ("Mike") Scott Nov 9.

Upgrade from gleeson 6 to 7.3+4 10 Replies

After 12mths on active surviellance received the news on repeat biopsy of another 4cores positive.One core 100 percent gleeson 3+4 another 75percent Gleeson 3+4.The other 2 cores gleeson 3+3.Over 2…Continue

Started by Kingsley. Last reply by Kingsley Nov 3.

RapidArc vs. CyberKnife 1 Reply

Hi All, My dad had a 12 needle biopsy on October 14th that came back positive for PCa in three cores on the right side of his prostate, 5%, 10% and 20%. He has been rated a Gleason 6 and has received…Continue

Started by sarah d. Last reply by E. Michael D. ("Mike") Scott Oct 31.

Fasting really helps my PSA going down 7 Replies

I'm 56 years old18 months ago my prostate was removed (Gleason 7)then PSA was undetectable, I thought I was saved but...8 months ago PSA was 0.10, one month later 0.11 one month later 0.11 then 0.12…Continue

Started by Delhasse. Last reply by Steve Thomas Oct 19.

 
 
 

About

Top Rated

Prostate Cancer International is a non-profit for 2012 as rated by Great NonProfits.

Need InfoLink cards?

GENERAL DISCLAIMER

The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.

Information provided on this site should not be used for diagnosing or treating any health problem or disease.

The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.

Events

© 2014   Created by Arnon Krongrad, MD.   Powered by

Badges  |  Report an Issue  |  Terms of Service