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The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.


Latest Activity

Jan Manarite's event was featured

Active Surveillance: Connect and Learn at At Your Computer

September 27, 2017 from 2pm to 3pm
Intended Audience:  Men who are on Active Surveillance or considering Active Surveillance.Goal:  Have some meaningful discussion about other men's experiences - successes or failures.  How do they 'surveil' their prostate cancer?  What tips do they have for you. Led and moderated by Jan Manarite.  There will be several…See More
16 hours ago
E. Michael D. ("Mike") Scott left a comment for alan james green
"Hi Alan. Good. If you have more questions, just ask."
17 hours ago
alan james green left a comment for E. Michael D. ("Mike") Scott
"Thank you, Mike makes me feel better to know that you think the same as me but we Can’t be 100% Shure, have to live with the cloud overhead. I am on tablets same as Flomax For my weak stream works fine for me for the last year that I have been…"
23 hours ago
E. Michael D. ("Mike") Scott left a comment for alan james green
"Hi Alan. Thanks for the additional info. So it looks to me as though you have a large prostate and a classic case of BPH ... but I am not a physician (let alone a urologist, so please don;t take my word for this. While your PSA is…"
E. Michael D. ("Mike") Scott left a comment for jim sequin
"Welcome Jim. I see you are 63 years of age. How can we be of assistance to you?"
jim sequin is now a member of The "New" Prostate Cancer InfoLink Social Network
lyn mckee commented on lyn mckee's status
"Thanks Mike. We are very encouraged and will keep all posted."
Don Oberlin left a comment for Rob Bennett
"Rob and Mike: Mike says: " I have been a long-time advocate for both active surveillance and watchful waiting -- i.e., no immediate treatment at all -- in some types of appropriately selected patients)." Don says: I wholeheartedly…"
alan james green left a comment for E. Michael D. ("Mike") Scott
"Thanks, Mike, here’s my story so far, 2014 April  PSA 8.4  sent to urologist, 2014 may had dre all ok, June put on Cipro For 7 days, 2014 sept PSA 7.04   fpsa 27.7,  2015 April  PSA 9.12  fpsa 24.78 2015…"
E. Michael D. ("Mike") Scott left a comment for Rob Bennett
"Dear Rob and Don: I have no interest in getting into arguments about the relative effectiveness of PBRT and other forms of therapy. My problem is that there is no good comparative effectiveness data for PBRT compared to anything, and survival data…"
E. Michael D. ("Mike") Scott commented on lyn mckee's status
"Dear Lyn: The reason that Zytiga was (initally) only being used in very late stage (chemotherapy-resistant, metastatic, castration-resistant) prostate cancer was that that was what it was first tested in and approved for. Then it was tested in a…"
Rob Bennett left a comment for Don Oberlin
"Don: I am grateful to you for sharing what you know about this. I am definitely going to check it out. Rob"
Don Oberlin left a comment for Rob Bennett
"Rob: To my knowledge there is no PCa treatment that is 100% effective. The University of Florida Prostate Institute fairly recently published a number of research articles on their website that appear quite favorable , the first of which…"
lyn mckee commented on lyn mckee's status
"Hi Mike. We were not able to get it covered by insurance but took Jan's advice on looking into a Specialty pharmacy. Johnson and Johnson came through for us. The Dr. was planning docetaxel combined with the HDT. I researched it and most of the…"
Brent Heuser updated their profile
Brent Heuser left a comment for E. Michael D. ("Mike") Scott
"Thanks Mike.  Cath still in (coming out next Friday).  Have not started Kegel exercises yet, but I was doing them before surgery.  Post-op recovery going well.  I walk a lot, but that is it for now for exercise.  I found a…"


ADT and Dementia 6 Replies

My husband is undergoing ADT. I have read a couple of articles  - one that indicates there is a link between ADT and dementia and another that says there is no link. Does anyone have experience or knowledge of this link?Continue

Started by Patricia Peterson. Last reply by Steven Hess on Saturday.

Finally received my pathology report... 4 Replies

Received pathology report. 11 of 12 cores benign.  1 core cancerous - Left Apex 25%, .15cm long. GS 7(3+4). PNI id'd - T1c. DRE - ok.  My concerns are the cancer is in the APEX where capsule doesn't exist & PNI. With such a small area exposed -…Continue

Started by Rich Garland. Last reply by Rich Garland Sep 17.

Active Surveillance 4 Replies

I am 75 years old, in good health and recently had a prostate biopsy which resulted in a low risk Gleason score of 3+3=6. After lots of research and reading, it seems to me the best approach would be Active Surveillance as my life expectancy is…Continue

Started by Arthur Heath. Last reply by Alan Kousen Sep 15.

Patients of Dr. Menon - Henry Ford Hospital

Looking to talk patients of Dr. Men on At Henry Ford Hospital. Success rate of protecting surrounding nerves, recovery...etc?

Started by Scott Sep 13.

Biopsy of tumor 1 Reply

Ive had a 3t mri which shows a .9 cm tumor(most likely) 4/5 pi rads, doc wanted to do a trus sampling but i opted for 3 samples just from the tumor itself, i figure the treatment will likely be the same. Your thoughts are very much appreciated

Started by Ron chapman. Last reply by E. Michael D. ("Mike") Scott Sep 6.

Gleason 6(3+3) how to deal with alternative way of treatment 1 Reply

Age: 55PSA level: 4,72biopsy 2016: 2/10 positive gleason 6biopsy 2017: 4/12 positive all gleason 6Doctor recommended radical prostacomy but I am searching for other options. Has anyone the same diagnosis? I am looking for advices expecialy about…Continue

Started by Helena. Last reply by E. Michael D. ("Mike") Scott Aug 30.





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