"Hi
I just thought I let you know that, fortunately, I regained continence 3 months after my surgery over 7 years ago. With the use of a pump our life has returned to relative normality. I have no doubt that a good surgeon and a lot of suitable…"
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The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.
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Latest Activity
"I have been using a pump for the past 7 years with great result. If you have a loving wife/partner this approach works well - erection when you/she wants it and you can have the same size erection as you had when very young!! The main…"
FREE Conference - Ft Myers, FL (PCaI's 3rd conference) at FL Gulf Coast University, COHEN CENTER
March 2, 2019 from 9am to 5pm
"Welcome V.
I'm pleased to hear that your husband seems to have responded well to treatment in terms of the cancer.
How can we help you?"
"Welcome Thomas.
Obviously I am sorry tp hear about the recurrence and progression of your disease.
How do you seem to be responding to the combination of androgen deprivation therapy (ADT, also known as "hormone" therapy) and…"
Tom Full replied to Tom Full's discussion Does one wait for cancer to present itself or begin Androgen therapy"Thank you again. Much appreciated."
"Hello Chris.
Are you a doctor, a study coordinator?
I tried to look up the RESPOND trial quickly on clinicaltrials.gov, but I couldn't see anything obvious. Are you looking for help in recruiting patients. We are often more than willing to help…"
"Hi Tom.
So the additional notes you added to your profile helped me to understand the situation better too.
I think you are getting the right level of care.
I think that the people at the Mayo are worried about over-treating you too early because…"
Tom Full replied to Tom Full's discussion Does one wait for cancer to present itself or begin Androgen therapy"Thank you Mike. This is extremely helpful. The Mayo clinic reached the same conclusion in November but (and although they think they communicated effectively) did not articulate it to my understanding.
I've added some…"
"Hi LH4E.
So keep your fingers crossed. Encourage your husband to keep up his exercise regimen to whatever extent he can before, during, and after the treatment (because this will help him to recover his quality of life after therapy is complete).…"
LovinHim4Ever left a comment for LovinHim4Ever"Good Morning, Mike. Yes that is correct. He started the pre-therapy pill last week and on friday he will get his first hormone treatment. In 2 months he will start radiation for 2 months. They offered a 3 month shot 2x or 1 6 month shot. My husband…"
"Dear LH4R:
OK. So the MRI data would imply that any recurrence is probably in the prostate bed (where the prostate used to be before it was removed), and there is a good chance that the combination of ADT + radiation therapy will be able to wipe it…"
"Tom:
I think it is very important for you to understand that, in a case like yours, what is critically important to the timing of ADT is where there is a recurrence (assuming that there is one) and your PSA doubling time ... and in your specific…"
Forum
Does one wait for cancer to present itself or begin Androgen therapy 4 Replies
Please see my stats for details on my recurrent cancer. After more than 4 PET scans at the Mayo in 2017, my oncologist said I should wait until my PSA has risen to 8 before getting another scan because the cancer remained undetectable. Then in…Continue
Started by Tom Full. Last reply by Tom Full on Thursday.
Real Talk 5 Replies
I am 11 years post RP. I went through what could be described as a barbaric, disingenuous, and debilitating process. I have been in therapy for over 10 years. I've tried pill, shots, diet, pumps, etc. My marriage fell apart and all new attempts at…Continue
Started by Eduardo. Last reply by Chuck Grim on Tuesday.
PSA 7 Replies
Hello, I just saw results from first PSA post prostatectomy and radiation therapy Sep 2018. value is <0.006. I will see radiation oncologist this week and am looking for comments or questions on this situation.Thank You, Tom GContinue
Started by Tom Graybill. Last reply by Howard Ross Jan 7.
Locations for HIFU treatment 1 Reply
I'm new to this site and not sure if my question could have been found or answered in other discussion but couldn't find. I have decided to have the HIFU treatment for my prostate cancer and wondering where I can find the best and most experienced…Continue
Started by cj. Last reply by E. Michael D. ("Mike") Scott Jan 6.
Locations for HIFU treatment
I'm new to this site and not sure if my question could have been found or answered in other discussion but couldn't find. I have decided to have the HIFU treatment for my prostate cancer and wondering where I can find the best and most experienced…Continue
Started by cj Jan 5.
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PCRI's Mid-year Conf - Los Angeles
March 30, 2019 from 9am to 4pm – Los Angeles
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The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.
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