The "New" Prostate Cancer InfoLink Social Network

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The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.


Latest Activity

Jan Manarite commented on JEFFREY C LE DOUX's status
"Jeffery - I'm not sure 3 weeks is enough to always see a PSA drop on Zytiga.  If I'm reading this right, it looks like your PSADT is the same, or even a little slower ( 3 mos to 3.3 mos)?  from Oct 28 - Nov 16?  I…"
16 minutes ago
JEFFREY C LE DOUX commented on JEFFREY C LE DOUX's status
"The new PSA from 11/16/2017 is in.  It climbed from 7.8 8.34 ng/ml.  It looks like the approach will be insanity and do the Zytiga for another month.  Doubling time is now 3.3 months.   The number of arrows in the quiver is…"
2 hours ago
E. Michael D. ("Mike") Scott left a comment for R.M.K
"Oh, and BTW, there are two pretty good introductory booklets for patients that you can download for free. See here to get the relevant info."
4 hours ago
E. Michael D. ("Mike") Scott left a comment for R.M.K
"Welcome RMK. One of the first things you need to understand about prostate cancer is that the Devil is invariably in the details. If you can  tell us some of the details about your relative, we may be able to help you to understand and…"
6 hours ago
R.M.K is now a member of The "New" Prostate Cancer InfoLink Social Network
6 hours ago
Don Oberlin left a comment for Alex Brown
"Alex: As part of your research effort you and your husband may find the following book by Bob Marckini  helpful: "You Can Beat Prostate Cancer..." His chapter on the advantages and disadvantages of several methods for…"
Jan Manarite left a comment for Alex Brown
"Hi Alex - welcome.  Are you advocating for your husband?  Family member? All prostate cancers are different, so it's important to understand yours (his).  The Gleason Score of 3+4=7 would put him into this category - Favorable…"
Profile IconAlex Brown and JorD joined The "New" Prostate Cancer InfoLink Social Network
Jan Manarite left a comment for JorD
"Hi JorD - welcome.  The Gleason of 3+3=6 is the type of cancer that experts say doesn't need need treatment.  It's the Gleason 4+3=7 that is of concern.  Read more here…"
Howard Ross posted a status
"Salvage radiation starts on Nov 27. It will be for 5 weeks."
Jan Manarite left a comment for Lisa Gray
"Hi Lisa - welcome.  Sorry to hear about your father, but we can help you. Some prostate cancers are so slow-growing, that they don't require treatment, especially in older men.  But some prostate cancers do need treatment.  Maybe…"
Profile IconLisa Gray, Dave Aronson and Mark joined The "New" Prostate Cancer InfoLink Social Network
E. Michael D. ("Mike") Scott left a comment for Dave Aronson
"Dave: The Axumin scan is approved by the FDA and I know it is available at several nuclear medicine facilities in the Phoenix area (click on the "Find an Axumin imaging site" link on the Axumin home page."
Dave Aronson left a comment for E. Michael D. ("Mike") Scott
"Thanks for getting back to me.   My Urologist is very good and wants to throw everything at this.   Currently one Lymph node has shown evidence outside the prostate and near the pelvis.   He would like to remove the…"
E. Michael D. ("Mike") Scott left a comment for Dave Aronson
"Dear Dave: A C-11 choline or acetate scan is certainly an option, but an even better test might be the recently approved Axumin PET/CT scan if you are approved for this. The role of radical surgery to remove the prostate in men like you already…"
E. Michael D. ("Mike") Scott left a comment for Mark
"Dear Mark: Welcome. So the Devil is always in the details when it comes to understanding risks associated with a diagnosis of prostate cancer. It would help us to help you understand your precise situation and all of the possible options that you…"


Comprehensive Erectile Dysfunction Survey

If you are a man, suffering from Erectile Dysfunction, we would sincerely appreciate 10-15 minutes of your time. We are conducting a comprehensive study of how erectile dysfunction impacts men and their partners.This is an important study that we…Continue

Started by Robert Nicholson Nov 2.

Cyberknife treatments 2 Replies

Hi AllI begin my 5 days of cyberknife next month. How should I expect to feel after day 3 ? Will I have enough energy to work a 8 hour desk job plus commute by train .. I'm healthy and 61 years oldbestDanContinue

Started by dan dwyer. Last reply by Robert Nicholson Oct 26.

PSA 5 Replies

Well, I could not wait until April so I took my PSA test last week. I was mentally prepared to see a rise in the PSA from .07 in Jan (0.05 in Oct 15) but lo and behold it remained the same, 0.07, so the next test is in July. I guess Mike may be…Continue

Started by Howard Ross. Last reply by E. Michael D. ("Mike") Scott Oct 18.

Status 4 Replies

When bone and Axumin scans did not show anything that is causing my PSA to rise, I consulted a general oncologist in Gainesville. He explained that while the cancer probably is present in my body, it may be in micro forms, too small for the scan to…Continue

Started by Paul Burns. Last reply by Howard Ross Oct 11.

Patients of Dr. Menon - Henry Ford Hospital 2 Replies

Looking to talk patients of Dr. Men on At Henry Ford Hospital. Success rate of protecting surrounding nerves, recovery...etc?

Started by Scott. Last reply by E. Michael D. ("Mike") Scott Sep 29.

Looking for experience on Varian/TrueBeam radiation

Anybody treated with the Varian/TrueBeam platform?. Interested in hearing about it (sorry, not interested in Cyberknife or other technologies, only this particular one)Continue

Started by JJinCA Sep 28.






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