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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

Dr Pratap Mehta left a comment for E. Michael D. ("Mike") Scott
"Hi I just thought I let you know that, fortunately, I regained continence 3 months after my surgery over 7 years ago. With the use of a pump our life has returned to relative normality.  I have no doubt that a good surgeon and a lot of suitable…"
6 hours ago
Dr Pratap Mehta replied to Glenn Kavanagh's discussion Sexual activities/observations post treatments in the group Sex after prostate cancer treatment - what to expect
"I have been using a pump for the past 7 years with great result.  If you have a loving wife/partner this approach works well - erection when you/she wants it and you can have the same size erection as you had when very young!!  The main…"
8 hours ago
Jan Manarite's event was featured
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FREE Conference - Ft Myers, FL (PCaI's 3rd conference) at FL Gulf Coast University, COHEN CENTER

March 2, 2019 from 9am to 5pm
Conference website - CLICK here. More details coming... …See More
11 hours ago
E. Michael D. ("Mike") Scott left a comment for V Sanchez
"Welcome V. I'm pleased to hear that your husband seems to have responded well to treatment in terms of the cancer. How can we help you?"
12 hours ago
Profile IconV Sanchez and Thomas M. Drago joined The "New" Prostate Cancer InfoLink Social Network
12 hours ago
E. Michael D. ("Mike") Scott left a comment for Thomas M. Drago
"Welcome Thomas. Obviously I am sorry tp hear about the recurrence and progression of your disease. How do you seem to be responding to the combination of androgen deprivation therapy (ADT, also known as "hormone" therapy) and…"
12 hours ago
Tom Full replied to Tom Full's discussion Does one wait for cancer to present itself or begin Androgen therapy
"Thank you again.  Much appreciated."
Thursday
E. Michael D. ("Mike") Scott left a comment for Chris Haiman
"Hello Chris. Are you a doctor, a study coordinator? I tried to look up the RESPOND trial quickly on clinicaltrials.gov, but I couldn't see anything obvious. Are you looking for help in recruiting patients. We are often more than willing to help…"
Thursday
Profile IconChris Haiman and RockyGreen joined The "New" Prostate Cancer InfoLink Social Network
Thursday
E. Michael D. ("Mike") Scott replied to Tom Full's discussion Does one wait for cancer to present itself or begin Androgen therapy
"Hi Tom. So the additional notes you added to your profile helped me to understand the situation better too. I think you are getting the right level of care. I think that the people at the Mayo are worried about over-treating you too early because…"
Thursday
Tom Full replied to Tom Full's discussion Does one wait for cancer to present itself or begin Androgen therapy
"Thank you Mike.  This is extremely helpful.  The Mayo clinic reached the same conclusion in November but (and although they think they communicated effectively) did not articulate it to my understanding.   I've added some…"
Thursday
Tom Full updated their profile
Thursday
E. Michael D. ("Mike") Scott left a comment for LovinHim4Ever
"Hi LH4E. So keep your fingers crossed. Encourage your husband to keep up his exercise regimen to whatever extent he can before, during, and after the treatment (because this will help him to recover his quality of life after therapy is complete).…"
Thursday
LovinHim4Ever left a comment for LovinHim4Ever
"Good Morning, Mike. Yes that is correct. He started the pre-therapy pill last week and on friday he will get his first hormone treatment. In 2 months he will start radiation for 2 months. They offered a 3 month shot 2x or 1 6 month shot. My husband…"
Thursday
E. Michael D. ("Mike") Scott left a comment for LovinHim4Ever
"Dear LH4R: OK. So the MRI data would imply that any recurrence is probably in the prostate bed (where the prostate used to be before it was removed), and there is a good chance that the combination of ADT + radiation therapy will be able to wipe it…"
Thursday
E. Michael D. ("Mike") Scott replied to Tom Full's discussion Does one wait for cancer to present itself or begin Androgen therapy
"Tom: I think it is very important for you to understand that, in a case like yours, what is critically important to the timing of ADT is where there is a recurrence (assuming that there is one) and your PSA doubling time ... and in your specific…"
Thursday

Forum

Does one wait for cancer to present itself or begin Androgen therapy 4 Replies

Please see my stats for details on my recurrent cancer.  After more than 4 PET scans at the Mayo in 2017, my oncologist said I should wait until my PSA has risen to 8 before getting another scan because the cancer remained undetectable.  Then in…Continue

Started by Tom Full. Last reply by Tom Full on Thursday.

Real Talk 5 Replies

I am 11 years post RP. I went through what could be described as a barbaric, disingenuous, and debilitating process. I have been in therapy for over 10 years. I've tried pill, shots, diet, pumps, etc. My marriage fell apart and all new attempts at…Continue

Started by Eduardo. Last reply by Chuck Grim on Tuesday.

IMRT vs Cyberknife vs Proton vs Seeds

Continue

Started by Jan Manarite Jan 12.

PSA 7 Replies

Hello, I just saw results from first PSA post prostatectomy and radiation therapy Sep 2018. value is <0.006. I will see radiation oncologist this week and am looking for comments or questions on this situation.Thank You, Tom GContinue

Started by Tom Graybill. Last reply by Howard Ross Jan 7.

Locations for HIFU treatment 1 Reply

I'm new to this site and not sure if my question could have been found or answered in other discussion but couldn't find. I have decided to have the HIFU treatment for my prostate cancer and wondering where I can find the best and most experienced…Continue

Tags: LOCATIONS, HIFU

Started by cj. Last reply by E. Michael D. ("Mike") Scott Jan 6.

Locations for HIFU treatment

I'm new to this site and not sure if my question could have been found or answered in other discussion but couldn't find. I have decided to have the HIFU treatment for my prostate cancer and wondering where I can find the best and most experienced…Continue

Tags: LOCATIONS, HIFU

Started by cj Jan 5.

 
 
 

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The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.

Information provided on this site should not be used for diagnosing or treating any health problem or disease.

The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.

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