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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

Igor posted a status
"PSA 9.3, score (3+3) , 7% in one core, what should I do?"
17 hours ago
Igor updated their profile
17 hours ago
Jan Manarite left a comment for Igor
"Hi Igor.  Welcome to the PC InfoLink Social Network.  It would help us to help you better if you have he following information?... -PSA before biopsy -Gleason Score(s) from biopsy -How many biopsy cores were cancerous -What are your main…"
19 hours ago
Igor is now a member of The "New" Prostate Cancer InfoLink Social Network
19 hours ago
E. Michael D. ("Mike") Scott left a comment for Alan Kousen
"Alan: See this commentary just published on our main site. It may be highly relevant to you, and you may want to share it with your doctors."
21 hours ago
Jan Manarite left a comment for Doug Kinney
"Hi Doug.  Welcome to the Prostate Cancer InfoLink Social Network.  How far into your radiation treatments are you?  How are your urinary symptoms?  Was hormone therapy also used? I hope you do well with this treatment.  If…"
Wednesday
Doug Kinney is now a member of The "New" Prostate Cancer InfoLink Social Network
Wednesday
E. Michael D. ("Mike") Scott replied to Alan Kousen's discussion ADT- For Low and Intermediate PCa- How much is needed?
"Alan: I think it is important that you understand that you appreciate that there is a synergistic clinical benefit to the combination of ADT + radiation therapy. It is not only about reducing the size of the prostate. I am sorry to hear about what…"
Tuesday
Alan Kousen replied to Alan Kousen's discussion ADT- For Low and Intermediate PCa- How much is needed?
"You are correct in my original line of inquiry; which was trying to understand the role of ADT for men with low to intermediate PCa. Nothing turns up for brachytherapy + ADT of any length of time. I know several men who elected brachytherapy and…"
Tuesday
E. Michael D. ("Mike") Scott replied to Cliff Richardson's discussion PSA error????? in the group PSA Persists After First-Line Treatment
"Cliff: Regarding d.walker's comments, he is correct in what he is saying and if your insurance covers all these sorts of test and if you even live near anywhere that you can get these tests done, they might be something to look into. However,…"
Tuesday
d. walker replied to Cliff Richardson's discussion PSA error????? in the group PSA Persists After First-Line Treatment
"Hello CR, Without knowing more history, I would want to have your RP tumor tissue sample tested for aggressiveness and possible small cell carcinoma (SCC).  GL 9 -SCC is rare.  It does not produce any or very little PSA in blood tests. The…"
Tuesday
E. Michael D. ("Mike") Scott left a comment for Jaime JJ
"Jaime: Thank you for telling me that you can read English OK. So with an original PSA level of 7.5 ng/ml that dropped to 0.03 after surgery and again to  the minimum detectable level after radiation and the hormone therapy, you have responded…"
Tuesday
E. Michael D. ("Mike") Scott replied to Alan Kousen's discussion ADT- For Low and Intermediate PCa- How much is needed?
"Hi Alan: There are a lot of data in papers like this one showing that adding a short course of ADT to external beam radiation therapy is beneficial in treatment of men with intermediate- and high-risk prostate cancer. I thought you understood this.…"
Tuesday
Jaime JJ left a comment for E. Michael D. ("Mike") Scott
"Mike: su traducción al español se entiende sin problema. Gracias por responder. en adelante puede hacerlo en inglés, pues no tengo problema en entender, pero tengo dificultades para escribir en inglés- Mi PSA antes de la…"
Tuesday
Alan Kousen replied to Alan Kousen's discussion ADT- For Low and Intermediate PCa- How much is needed?
"Thanks very much for your answer. I actually stumbled onto a recent publication with some answers. The Harvard Medical Journal- Source: Journal of the American Medical Association, 2004;292:821–7. PMID: 15315996. Its states: A randomized…"
Monday
E. Michael D. ("Mike") Scott replied to Alan Kousen's discussion ADT- For Low and Intermediate PCa- How much is needed?
"Alan: As fasr as I know, with the exception of the risk for hot flashes, there are few real downsides to a short course of ADT for someone like you. Indeed some patients will even retain their erectile/sexual function during such a short course of…"
Monday

Forum

ADT- For Low and Intermediate PCa- How much is needed? 7 Replies

I have yet to see or find research findings related to the administration of ADT for low to intermediate Pca. It appears that the "gold standard" is 6 months, but on what basis is that made? Given the bad side effects of ADT, especially returning to…Continue

Tags: Pca, Level, Low, ADT

Started by Alan Kousen. Last reply by E. Michael D. ("Mike") Scott on Tuesday.

histology report 13 Replies

Just wondering if anyone can shed any light on this histology report. The laproscopy RP took place Christmas Eve 2010 and the PSA was a neglibible<0.05 until May 2013 when it rose to 0.06, continued rising to 0.09 and is currently 0.1.  A…Continue

Started by jo camin. Last reply by jo camin on Monday.

Brachytherapy (seed implants) 4 Replies

I am having difficulty finding stage 1, low risk men who have had or are considering permanent Brachytherapy (seed implants).  I have only connected with 3 guys out of 3 various forums.  We would like to hear from more guys who have had this…Continue

Started by Robert James. Last reply by Robert James Sep 22.

Rapid Rise in PSA Levels 2 Replies

I'm 49 yrs old and always had normal PSA in the past but this year it spiked almost 4x see below. I went to see Uro and he said my DRE was normal and put me on 30-day Cipro antibiotics then retest again in October.Looking at the PSAs between 2015…Continue

Started by David Le. Last reply by Don Oberlin Sep 19.

Been a while and wanted to check in 6 Replies

I have been watching the site, but haven't posted for a while, and thought I would share my current status, perhaps for someone's benefit, and perhaps for any suggestions or advice.Let me quickly summarize my background:67 Year Old Male.  I have…Continue

Started by John L. Last reply by John L Sep 18.

Dr Sanda on Tues 6 Replies

I have a date with Dr Sanda and his robotic friend early (5 am) Tuesday moning at Emory in Atlanta .I hope he's a "morning person" because I'm certainly not. I feel fortunate to have been told about a pca surgeon of his stature and abilities here in…Continue

Started by SB. Last reply by SB Sep 11.

 
 
 

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