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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

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Latest Activity

E. Michael D. ("Mike") Scott left a comment for Jeff williams
"Hi Jim. Obviously this is your decision, but if I was wearing your shoes I would certainly at least talk to an experienced radiation oncologist to see what they had to say. It never hurts to get a second opinion. And I am certainly not going to tell…"
1 hour ago
Jeff williams left a comment for E. Michael D. ("Mike") Scott
"Hi Mike, Yes I will be scheduled for a bone scan and C scan. The Dr does not want to do surgery for about a month to let the prostate settle down after the biopsy. He did say since the main tumor was on the edge of the prostate he didn’t think…"
20 hours ago
Jim Fink posted a discussion

Post RP Surgery feedback

SO, the Prostate has now been removed and I am in first week of recovery with a catheter. I have a question about how many other men have large swelling of the scrotum. It's now larger than a large grapefruit, and I am keep it on a towel stack and trying to elevate above my leg, any other suggestions, or can anyone compare notes with me on this.ThanksJimSee More
yesterday
E. Michael D. ("Mike") Scott left a comment for mark rettman
"Dr. Z. does indeed know exactly what he is doing!"
yesterday
mark rettman posted a status
"sorry correction that's 5 radiation treatments over 2 (two) weeks"
yesterday
mark rettman replied to Jan Manarite's discussion IMRT vs Cyberknife vs Proton vs Seeds
"I have decided to take MSK Precise ( trademarked)  for treatment... Jan 29 2020 the gold fiducial markers are to be  inserted and the hydrogel spacers.... Then 5 radiation treatments over 5 weeks hyopfractionated stereotactic radiation....…"
yesterday
mark rettman left a comment for E. Michael D. ("Mike") Scott
"Hi Mike, Well, before I called Dr Voog today I recieved a call from the radio-logical dept at MSK and the first words out of the employees mouth was that she wanted to schedule an appointment for Radiation Oncologist Dr. Michael Zelefsky to implant…"
yesterday
E. Michael D. ("Mike") Scott left a comment for Cindy
"Welcome Cindy. I am sorry to here that you and your husband have been having "relationship struggles" since his surgery last year. Unfortunately this is far from unusual. As most women understand well, men don't always think with…"
Monday
Cindy is now a member of The "New" Prostate Cancer InfoLink Social Network
Monday
E. Michael D. ("Mike") Scott commented on RICHARD ROBERT PASTARS's status
"Richard: I would concur with Jan that you need to take a step at a time here. If you had a PIRADs 4 that led to a biopsy showing three positive cores -- all Gleason 3 + 3 = 6 -- then you were and may well still be (at least theoretically) a good…"
Monday
E. Michael D. ("Mike") Scott left a comment for Jeff williams
"Hi Jeff. Thanks for the additional information. Someone has probably already explained to you that a Gleason score of 4 + 5 = 9 inevitably implies that you have high-risk prostate cancer. If you are otherwise in good health and have a life…"
Monday
E. Michael D. ("Mike") Scott left a comment for mark rettman
"Mark: My suspicion is that anyone who is doing this type of radiation therapy at an MSKCC facility anywhere is highly skilled and well trained. MSKCC has a reputation to protect. You could simply ask Dr. Voog is he can arrange for an appointment to…"
Monday
RICHARD ROBERT PASTARS posted a status
"My PI - rads is category 4. Three cores were taken from left side lesion. Total specimens of 15 were taken."
Monday
Jan Manarite left a comment for RICHARD ROBERT PASTARS
"Richard - a PSA doubling time is most useful for men who have had treatment, and are having recurrence.  It is even more useful if the man has had surgery (prostate removed).  But in the setting of Active Surveillance, it's a little…"
Monday
Don Oberlin left a comment for RICHARD ROBERT PASTARS
"Richard: The doubling time of five months in your recent PSA  history is a worrisome development. You would be wise to begin researching your treatment options if you have not already done so. As per Jan M's earlier request it would help…"
Monday
RICHARD ROBERT PASTARS posted a status
"My Gleason score is 6."
Monday

Forum

Post RP Surgery feedback

SO, the Prostate has now been removed and I am in first week of recovery with a catheter. I have a question about how many other men have large swelling of the scrotum. It's now larger than a large grapefruit, and I am keep it on a towel stack and…Continue

Started by Jim Fink yesterday.

IMRT vs Cyberknife vs Proton vs Seeds 1 Reply

Continue

Started by Jan Manarite. Last reply by mark rettman yesterday.

newly diagnosed: This is where Im at after my second opinion 20 Replies

I was diagnosed after a truss biopsy done June 19th 2019 with the following findings : Intermediate pca, tc2, Gleason 7 favorable ( 3plus 4)12 cores were taken;  6 cores  were low  Gleason 6 (3 plus 3 ) One core was the Gleason 7 favorable (3 plus…Continue

Started by mark rettman. Last reply by mark rettman Nov 12.

Help finding surgeon! 6 Replies

I've seen a radiation oncologist, my gastroenterologist, and 3 surgeons. Radiation ruled out due to high risk of damage to my colon/rectum. Open surgery recommended due to the prior surgeries and scarring. Recommended that I find a surgeon with "a…Continue

Started by Rob R. Last reply by E. Michael D. ("Mike") Scott Nov 11.

Kidney disease and Prostate Cx treatment options

Early 2019, had radical nephrectomy for renal cell carcinoma, with recent 6 mo follow up negative CT.  Result: one less kidney and about 50% of kidney clearance rate I had previously.  Nephrologist told to avoid advil or the like as well and be very…Continue

Started by Kauai Steve Michelob Nov 8.

coming off testosterone therapy due to pca 2 Replies

I was diagnosed recently with Gleason 7 favorable... New doc at sloan kettering, he suggested a  second mri and biopsy scheduled for early October and we can re assess re possible  Active surveillanceafter l I get those results in oct... I was on…Continue

Started by mark rettman. Last reply by mark rettman Nov 7.

 
 
 

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The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.

Information provided on this site should not be used for diagnosing or treating any health problem or disease.

The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.

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