The "New" Prostate Cancer InfoLink Social Network

A Service of Prostate Cancer International

NOW ON TWITTER / FACEBOOK

Follow The "New" Prostate Cancer InfoLink news blog with TWITTER or FACEBOOK.

CHECK OUT OTHER WEB SITES

Visit these links on other Prostate Cancer International web sites:

"LET'S TALK ..." VIDEO SERIES
THE DAILY NEWS BLOG
CORE PROSTATE CANCER ARTICLES
ASK ARTHUR or ASK AMY

Photos

  • Add Photos
  • View All

Videos

  • Add Videos
  • View All
 

WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... please DO NOT use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

E. Michael D. ("Mike") Scott replied to Tom Wimberly's discussion Anyone here down-staged by pathologist after RP
"Tom: Your Gleason score, your pathological stage, and your first post-surgical PSA level (if it is 0.1 ng/ml or less) can all be used together to project your future prognosis at 2, 5, 7, 10, and 15 years through the use of the post-surgical…"
yesterday
Tom Wimberly replied to Tom Wimberly's discussion Anyone here down-staged by pathologist after RP
"Thanks Mike! Now I'm reading about genomic tests while I wait for 1st PSA test after RP. It's not clear to me just how useful any of these tests are now for the purpose of deciding on adjuvant vs salvage therapy for T3 patients after RP.…"
yesterday
E. Michael D. ("Mike") Scott replied to Tom Wimberly's discussion Anyone here down-staged by pathologist after RP
"Dear Tom Down-staging after surgery (based on pathological data as compared to earlier clinical data, inclusive of imaging data like an MRI) is not particularly unusual. If you had no sign of extraprostatic extension based on the pathology report --…"
Thursday
Guy B. Meredith replied to Guy B. Meredith's discussion PSA bounce after IMRT and ADT?
"I have a PSA and testosterone (at my request) check around July 27, just before the final one month lupron injection on August 4 and 'm pretty anxious to see the results.  After the first month on lupron the PSA went from 3.1 to 2.74.…"
Wednesday
Tom Wimberly posted a discussion

Anyone here down-staged by pathologist after RP

How many people have been down-staged after RP?Back in April, mpMRI suggested that I had some extraprostatic extension (EPE).After my RP, the pathologist didn't see any EPE, so I was down-staged (cT3a to pT2c).From my reading of the literature, it seems more likely that the MRI is wrong than the pathology. Seems like the resolution of the pathology should be higher than that of MRI. In addition, there was an anomaly during the MRI -- some of the contrast solution leaked onto my arm, so maybe…See More
Tuesday
E. Michael D. ("Mike") Scott replied to Guy B. Meredith's discussion PSA bounce after IMRT and ADT?
"Hi Guy. So any PSA test that you have between now and about September 19 really should come back at < 0.1 ng/ml, although it is possible that a PSA test around September 1 might show a very slight rise. Equally, if any PSA test carried out before…"
Tuesday
Guy B. Meredith replied to Guy B. Meredith's discussion PSA bounce after IMRT and ADT?
"Thanks.  Two more months until we begin collecting figures, I guess.I am 4 months into a 6 month ADT treatment that began February 19, finished 28 high dose IMRT sessions that began April 15, ended May 27.Home stretch."
Tuesday
E. Michael D. ("Mike") Scott left a comment for Tom Wimberly
"Welcome Tom. So have you received a copy of your post-surgical pathology report from your surgeon? If you have, then when you get your first post-surgical PSA result, the important thing is that it should be less than 0.1 ng/ml (i.e., in the…"
Tuesday
Tom Wimberly is now a member of The "New" Prostate Cancer InfoLink Social Network
Tuesday
E. Michael D. ("Mike") Scott replied to Guy B. Meredith's discussion PSA bounce after IMRT and ADT?
"Dear Guy: You may well have a PSA "bounce" after IMRT with ADT. However, predicting the likelihood of that "bounce" and the precise data relevant to an individual case is near to impossible. There are several important issues…"
Tuesday
Guy B. Meredith replied to Guy B. Meredith's discussion Short course ADT side effects?
"Thought I'd update.  I'm at 4 months on ADT, have completed the 28 high dose radiation sessions.ADT side effects are lack of libido, shrinking testicles, lots of emotional swings, warm flashes and fatigue.  Very minor radiation…"
Jun 27
Guy B. Meredith posted a discussion

PSA bounce after IMRT and ADT?

Title says it all.  Is there a PSA bounce after IMRT with ADT? PSA numbers? Testosterone?See More
Jun 27
Jeffrey updated their profile
Jun 27
E. Michael D. ("Mike") Scott left a comment for Jeffrey
"Welcome Jeffrey. It isn't clear to me whether there is any reason to believe that you might have prostate cancer. Do you have an elevated PSA level or any other sign or symptom that might be relevant? How old are you? It is true that an MRI…"
Jun 26
Jeffrey is now a member of The "New" Prostate Cancer InfoLink Social Network
Jun 26
E. Michael D. ("Mike") Scott replied to ROBERT EPPICH's discussion Looking For A Biparametric MRI Provider In Ohio Or Close
"Dr. Turkbey is one of the members of the molecular imaging group at the NIH. The team is led by a Dr. Choyke."
Jun 26

Forum

Anyone here down-staged by pathologist after RP 3 Replies

How many people have been down-staged after RP?Back in April, mpMRI suggested that I had some extraprostatic extension (EPE).After my RP, the pathologist didn't see any EPE, so I was down-staged (cT3a to pT2c).From my reading of the literature, it…Continue

Started by Tom Wimberly. Last reply by E. Michael D. ("Mike") Scott yesterday.

PSA bounce after IMRT and ADT? 4 Replies

Title says it all.  Is there a PSA bounce after IMRT with ADT? PSA numbers? Testosterone?Continue

Started by Guy B. Meredith. Last reply by Guy B. Meredith on Wednesday.

Short course ADT side effects? 10 Replies

New question. I am doing 1 month + 1 month + 4 month Lupron with 5 1/2 (?) weeks high dose IMRT beginning at 8 weeks into ADT.For those who experience side effects of ADT in the short course, what is the timing and sequence of the side effects. That…Continue

Started by Guy B. Meredith. Last reply by Guy B. Meredith Jun 27.

Looking For A Biparametric MRI Provider In Ohio Or Close 3 Replies

I have had three tests showing elevated PSA in the last 14 months and am researching my next step for treatment.I have seen two doctors at the Cleveland Clinic's Glickman Institute and both have declined imaging in favor of a traditional biopsy…Continue

Started by ROBERT EPPICH. Last reply by E. Michael D. ("Mike") Scott Jun 26.

robotic surgery surgeon search 1 Reply

Hi. I live in Uruguay, south america, so I have not much info about surgeons in the US, besides the info is founded on the internet.After 10 years of active surveillance on my prostate cancer, I decided to go to surgery with robotic (after opinion…Continue

Started by ANTONIO. Last reply by E. Michael D. ("Mike") Scott Jun 21.

Anyone have a biopsy sample genetically test by Myriad Genetics out in Salt Lake City? 12 Replies

I recently had a fusion biopsy and of the 16 samples one came back with a Gleason 7 (3+4).As I was told the 4 part represented 30%.  The urologist asked if he could send this sampleto Myriad Genetics for testing.  The test is called Prolaris.  If…Continue

Started by Martin M. Last reply by Martin M Jun 8.

 
 
 

About

Donate

Events

GENERAL DISCLAIMER

The "New" Prostate Cancer InfoLink's Social Network is intended for informational and educational purposes only. It is not engaged in rendering medical advice or professional services.

Any person who appears to knowingly render medical advice or promote a professional or commercial service on this site may be removed by the administrators without notice.

Information provided on this site should not be used for diagnosing or treating any health problem or disease.

The "New" Prostate Cancer InfoLink is not a substitute for professional care. If you have or suspect you may have a health problem, please consult your health care provider.

© 2020   Created by Arnon Krongrad, MD.   Powered by

Badges  |  Report an Issue  |  Terms of Service