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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

James H left a comment for E. Michael D. ("Mike") Scott
"I should add that I've never had any sexual symptoms -- even with the low testosterone this entire time. I'm a bit overweight (about 60 lbs)... They also pulled testosterone when they did the last PSA tests and it came back 105... Which he…"
3 hours ago
James H left a comment for E. Michael D. ("Mike") Scott
"Mike -- thanks for the welcome! So here's the situation of why I ended up having a PSA test in the first place -- it started 3 years ago when I was 29. I was having some depression issues, feeling very tired and sluggish. My GP thought it…"
3 hours ago
E. Michael D. ("Mike") Scott left a comment for Vickie
"Welcome Vickie. So we'd be happy to help you to learn and to help you father. To do that we need some very specific information about your Dad and his diagnosis, including as much as possible of the following information: -- His age -- His PSA…"
5 hours ago
Profile IconVickie and James H joined The "New" Prostate Cancer InfoLink Social Network
5 hours ago
E. Michael D. ("Mike") Scott left a comment for James H
"Welcome James. Diagnosis of prostate cancer in a 32-year can and does happen, but it is extraordinarily unusual. You should be cautious about how you approach this problem, and before you commit to a biopsy I think you should talk with your doctor…"
5 hours ago
G McLennan posted a status
"Hi Mike, Do we know for sure if biopsy cores cause future imaging problems due to scar or other lesions on prostate tissue?"
16 hours ago
Robert left a comment for Janet Blanchard
"Janet, What is the latest with your husband? I am 57 now by the way. So he and I aren't that far apart age wise. Robert"
yesterday
Tory commented on Leah's group For Wives and Partners
"Well my husband of 30 years has left me. Says he doesn't love, hasn't for a long time. Had 1 Lupron shot, says no more and wants the Lymph nodes taken out. I'm devastated"
yesterday
Len Pitts left a comment for E. Michael D. ("Mike") Scott
"Mike, PSA was 5.7 to start. It went to .1 after 6 months of lupron/Casodex. I had 7 Gl 9,3 Gl 7,and one 8 with 1 clean core. Doc calls me a paradox. CT/bone scans came back clean. Right now I'm 30 days into 45 days of radiation."
yesterday
Mark Oldrunner left a comment for E. Michael D. ("Mike") Scott
"Bill, thanks for the insights. I had spoken with my brother in law yesterday; he had the surgery this past January in response to a much more aggressive presentation, so my attitude wasn't very positive at the time of your post. The Webcore…"
Monday
E. Michael D. ("Mike") Scott left a comment for Len Pitts
"Welcome Len. I see that you are 64 years of age in addition to the other information above. Having "many" positive Gleason 9 cores is obviously not the world's best news -- even if there is no evidence of metastasis on your bone…"
Monday
Profile IconLen Pitts, Mark Oldrunner and David Mogavero joined The "New" Prostate Cancer InfoLink Social Network
Monday
E. Michael D. ("Mike") Scott left a comment for David Howe
"David: (1) Decisions about treatment are VERY personal. Surgeons tend to recommend surgery; radiation oncologists tend to recommend radiation therapy. However, my general advice to men with high risk disease is to think hard about going with surgery…"
Monday
David Howe left a comment for E. Michael D. ("Mike") Scott
"No, the CT and bone scan is coming Friday July 1; urologist conference to discuss results and direction on July 11.  I have been considering requesting the DCE-MRI if it is not already on the schedule; is this the same as a multiparametric…"
Monday
E. Michael D. ("Mike") Scott commented on G McLennan's status
"Dear G: I assume that what you are actually asking is whether MRI/TRUS fusion biopsy is better than a standard, systematic 12-core biopsy. Yes? It is my understanding that the recommended type of biopsy for at least some patients is actually a…"
Sunday
G McLennan posted a status
"Is MRI/doppler fusion better? More cores needed?"
Sunday
E. Michael D. ("Mike") Scott left a comment for Mark Oldrunner
"Welcome Mark. So you appear to have been diagnosed with a low-risk form of prostate cancer. The good news is therefore that you almost certainly have plenty of time to do your homework before you need to make a decision about (a) whether treatment…"
Sunday
E. Michael D. ("Mike") Scott left a comment for David Mogavero
"Welcome David. Unfortunately, as yet, I am not sure that there is anyone out of the 6,000+ men who we have on this web site who have tried to get Medicare to pay for an FLA. However, having said that, I really can't see any really good reason…"
Sunday
E. Michael D. ("Mike") Scott left a comment for David Howe
"Hi David. Thanks for the additional information. So clearly this is not an indolent, low -risk cancer that could just be monitored. This is going to need treatment, and I get the impression from your feedback that you are already feeling pretty…"
Sunday
Howard Ross left a comment for Alan Foster
"Good luck"
Sunday

Forum

Brachytherapy Vs Removal Outcomes 3 Replies

Mike, I fired my first Urologist. My Gleason is 6 in 4 areas/both sides/2b. I have a new doctor. I am only 53, recommendation was removal, best chance for long term health.  I am referred to a…Continue

Started by John Kiraly. Last reply by Francis X. Talbot Jun 19.

should he avoid treatment? 4 Replies

Husband is scheduled for ADT & radiation treatments. After following a plant based diet for 3 months, the last PSA test showed a 1.1 point decrease. Can this go lower with diet choices and can it…Continue

Started by Concerned. Last reply by E. Michael D. ("Mike") Scott Jun 19.

rising psa 4 Replies

Well, I was hoping we would be one of the lucky ones but we're not. Husband had a prostectomy a year ago and his psa is rising. 6 weeks it was .01, 6 months .05 and one year .08. Doctor wants to wait…Continue

Started by Lisa A.. Last reply by Howard Ross Jun 15.

Insurance Need Help 7 Replies

BUPA/IHI have refused to cover HIFU treatment for  my recurrent prostate cancer.This is despite I pointed out that FDA in the US and NHS in the UK cover HIFU treatment.Does anyone know if BUPA has a…Continue

Started by Mike A. Last reply by Mike A Jun 15.

Update 1 Reply

So a few months in to treatment and wanted to give an update. Had a Lupron injection on 5-16...so my PSA has declined from 658 on 3-23, started Casodex on 4-11 and by 4-25 had dropped to 110, by 5-16…Continue

Started by Greg H. Last reply by E. Michael D. ("Mike") Scott Jun 15.

Not sure 7 Replies

Not sure that with the surgery being a failure that the radiation will be any different. Just putting my body through more hell with the same results seems pointless to me. Need good trusting advice…Continue

Started by Clifton Simpler. Last reply by E. Michael D. ("Mike") Scott Jun 15.

Persistent psa after Robotic Prostatectomy

Allways bear in mind that my gleason score was 6 and my stage T1c as result from my first biopsy.Further, only one core out of 13 cores was positive with only 2mm invasion. The results from my next…Continue

Started by johan ziervogel Jun 12.

Biopsy

Some info for those who may be apprehensive about a biopsy without being "put to sleep."  The first one I had was under anesthesia.   I just had a confirmatory TRUS biopsy but was awake for the…Continue

Started by Cliff Forbes Jun 9.

update on my husband's treatment 6 Replies

Hello MikeHope you had a good weekend!  Just thought I would share with you my husband's update.I think you remember that he underwent biopsy which showed 10% involvement in one of the 6 cores with…Continue

Started by Naina Vira. Last reply by Naina Vira Jun 8.

New data regarding Sipuleucel-t / Provenge - relevance? 3 Replies

Going through the ASCO 2016 abstracts I came across this here: http://meetinglibrary.asco.org/content/162239-176 - the paper presents…Continue

Started by Michael Moppert. Last reply by E. Michael D. ("Mike") Scott Jun 7.

 
 
 

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