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"Live in Canada part of the year, and FL part of the year. Also being screened for FLA trial at U of Chicago. We were all in for FOCAL until PSA jumped from 10 to 14....I have done so much research and PSA of 14 (with normal size…"
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Life after Prostate Cancer
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WHAT'S THE POINT OF THIS SOCIAL NETWORK?
The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.
If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.
One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.
Latest Activity
E. Michael D. ("Mike") Scott left a comment for Frank"Hi Frank.
OK. Well participation in a trial of focal therapy might well make sense for someone like you who has a single positive biopsy core which is only 10% cancerous.
The trial number you gave me was for a trial occurring at Princess Margaret…"
E. Michael D. ("Mike") Scott left a comment for Frank"Frank:
What is the clinical trial that you are considering? Do you know the NCT number (a number like NCT01902251) from the ClinicalTrials.gov web site?
I am a little puzzled by your urologist's statement that "no more PSA for time being…"
Frank left a comment for E. Michael D. ("Mike") Scott"Yes. Urine culture negative. Still considering clinical trials and uro suggested no more PSA for time being as if it crosses 15, won't be eligible."
E. Michael D. ("Mike") Scott left a comment for Edgardo Ariola"Welcome Edgardo.
So how many of your biopsy cores were positive for cancer at each of the two biopsies you mention above? Do you know what percentage of each positive core was actually positive for cancer? And were all the positive biopsy cores in…"
John Stankus posted a videoLife after Prostate Cancer
After prostate cancer, many men experience erectile dysfunction and urinary incontinence. UW Medicine patient Mike Stankus and his urologist, Dr. Thomas Wals...
E. Michael D. ("Mike") Scott left a comment for Frank"Hmmm ... Odd, but not unheard of.
Has anyone considered giving you a urine test to see if you have a bacterial infection on top of the loow-risk prostate cancer?
Alternatively, has anyone just tried giving you a repeat standard PSA test since the…"
E. Michael D. ("Mike") Scott left a comment for Dan Marinescu"Dan:
The primary con to not having the biopsy is that you don't have a biopsy result (which might tell you something or nothing).
Few invasive procedures like a biopsy are "a pleasure to have". By comparison with a bone marrow biopsy,…"
Dan Marinescu left a comment for E. Michael D. ("Mike") Scott"Thank you Mike. I called on Monday to postpone my appointment with Dr.Thomas Ahlering after the biopsy. My appointment for biopsy is on 1/29/14.
What are the cons not to do the biopsy? I saw it is not a pleasure to have it but I want to make sure it…"
Frank left a comment for E. Michael D. ("Mike") Scott"2 negative biopsies in 2010 (psa 5) and 2011 (psa 7.5). MRI guided biopsy done this Sept when June's PSA hit 10. 1/12 pos. 10% of core (left apex) with 3+3. Stage T1C.
PSA then jumped to 14 in October. Free PSA 6%.…"
E. Michael D. ("Mike") Scott left a comment for Frank"Welcome Frank.
So with a PSA level of 14 ng/ml and a Gleason score if 3 you would appear to fall into the "intermediate-risk" category. However, it would help us to help you if you could provide us with just a little more information as…"
E. Michael D. ("Mike") Scott left a comment for frank pingatore"Hi Frank. Thanks for the feedback.
Try to keep working at the workouts. It'll take your body a while to adapt to some of the changes, and if you were running sub-4-minutes miles before you may have to settle for sub-5-minutes.
What is important…"
frank pingatore left a comment for E. Michael D. ("Mike") Scott"Doing Ok aches and pains, weight gain, mood swings and ups and downs mentally are my side effects. Can't work out like I did. PSA down to 0.2 before radiation was a mental plus for me. Casodex once…"
E. Michael D. ("Mike") Scott left a comment for frank pingatore"Welcome Frank.
I see that you are relatively young at 57 years of age.
The treatment you describe (brachytherapy + external beam radiation + adjuvant hormone therapy for about 2-3 years) seems like a highly appropriate form of treatment for a man…"
E. Michael D. ("Mike") Scott left a comment for Jacqui Hall"Welcome Jacqui.
So has your husband just been diagnosed, or has he already had some sort of treatment? How is he doing? How are YOU doing?
It would probably help us to help you if you could tell us a little more detail about your husband and his…"
E. Michael D. ("Mike") Scott left a comment for Joe Williams"Welcome Joe.
A rising PSA is a common occurrence in men of 61 years of age like you. The question of why one's PSA is rising is a lot more difficult to deal with. This can occur for several possible reasons.
It would hep us to help you if you…"
E. Michael D. ("Mike") Scott left a comment for Nabih Al-Amin"Welcome Nabih.
Lifestyle modifications can be valuable for any patient diagnosed with prostate cancer. Whether they will be enough -- on their own -- to delay or prevent progression of cancer in a particular individual depends on a whole variety of…"
Forum
Alkaline Phosphatase 10 Replies
Hi Mike and all,I am wondering if you have any thoughts about this blood test? I know bone scans are used to check for met but what about this blood test? My husband had a bone scan before RP and…Continue
Started by patty a. Last reply by E. Michael D. ("Mike") Scott on Friday.
Skate for Prostate - Prostate Cancer Survivor Skated 555 Miles Across TX!
I would like to let everyone know that if you need a man to talk to about your pending surgery, post surgery questions, or support of any kind, my boyfriend Keith is the man to talk to. Please visit…Continue
Started by Faye Funk Nov 29.
Insurance Denial of Provenge coverage
Has anyone else had the experience of being denied insurance coverage for Provenge treatment? I was told, via a denial letter from Group Health Cooperative of Seattle, on 10-30-13, that I do not meet…Continue
Tags: provenge
Started by Robert Heavey Nov 28.
Medical Oncologist vs. Prostate Cancer Specialist 2 Replies
Well approaching year 7 of the journey. We've been with the same oncologist and we like him. Never really thought about venturing outside his care but Im wondering if it is not time now that his…Continue
Started by Pam Hintermeyer. Last reply by E. Michael D. ("Mike") Scott Nov 27.
SCANS 4 Replies
I am looking for feedback with regards to PTScan vs C11 Choline Pet Scan. My husband has only had the standard PetScan. But I have read up with regards to this different type of scan. Can anyone…Continue
Started by Pam Hintermeyer. Last reply by E. Michael D. ("Mike") Scott Nov 27.
START AND STOP OR CONTINUOUS THERAPY? 1 Reply
First of all i will want to thank you all for making me take the right decision and i started my treatment on Feb 2013 .My Doctor put me on a shot every 4 months and a pill which i take everyday…Continue
Started by Jimmy Papas. Last reply by E. Michael D. ("Mike") Scott Nov 26.
prostate ASAP 1 Reply
Well just received the results from my 16 core biopsy which was 7 days ago.. Out of the 16 cores one had what they call ASAP. Doctor indicated he wants to start me on finistrade for 2 month to shrink…Continue
Started by george ramos. Last reply by E. Michael D. ("Mike") Scott Nov 25.
testicular pain during hormone therapy
Does anybody have any experience with testicular pain during hormone therapy? I have been on lupron and casodex for five months.Continue
Started by W. Bell Nov 22.
PSA Velocity 3 Replies
In 2012 my PSA was 3.3. This June it was 4.6 and when it was retested in July was 6.6. Since then I have had my biopsy and was diagnosed with prostate cancer (T1c and a Gleason score of 7-3/4 and…Continue
Started by Stephen H. Roberts. Last reply by E. Michael D. ("Mike") Scott Nov 18.
Newly diagnosed patient seeks input on treatment choice 3 Replies
Ronald -- a newly diagnosed patient -- has narrowed his treatment decision down to either robot-assisted surgery…Continue
Started by E. Michael D. ("Mike") Scott. Last reply by Ronald Webb Nov 17.
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