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WHAT'S THE POINT OF THIS SOCIAL NETWORK?

The "New" Prostate Cancer InfoLink Social Network is a service of Prostate Cancer International and is closely associated with the core information and daily news made available through The "New" Prostate Cancer InfoLink. We welcome patients, family members, physicians, researchers, and anyone else who is seeking information about what's happening on Planet Prostate Cancer.

If you want to remain anonymous on this network ... do not use your real name when you sign in. Use a pseudonym, or just your first name and an initial.

One of our primary goals is to help newly diagnosed men to come to the best possible decision for them about a specific course of action. Given two men with exactly the same clinical characteristics, the best possible decision for man A may be very different to the best possible decision for man B.

Members

Latest Activity

Vicki T replied to Gretchen Atkins's discussion Grrrh a new twist to this 'journey' or rather test of merit in the group For Wives and Partners
"Oh my goodness Gretchen what a horrible thing to find out.  I am so sorry this happened to you.  We are new to this disease too and it has been very frustrating to my husband and therefor to me.  Your husband did a hurtful stupid…"
9 minutes ago
Don Oberlin left a comment for Robert Ressegue
"Robert: In reviewing your treatment options you may find the following book by Bob Marckini helpful: "You Can Beat Prostate Cancer..." Mr. Marckini devotes a chapter to a discussion of the advantages and disadvantages of the most common…"
12 minutes ago
john z left a comment for E. Michael D. ("Mike") Scott
"Mike,   Thank you for the response.  I am attempting to learn how to navigate in this social network system and learn about PC and have been reading forums.  To answer your questions: PSA 4.06.  do not know clinical stage…"
2 hours ago
Jane Calipari replied to Lime's discussion 4 weeks post RRP surgery--a slump? in the group For Wives and Partners
"Lime, Hi.  At two months we were having to do a lot just to have intercourse.   A pill would not work well enough or consistently enough.   We had to use a pump and ring in addition to the pill We did this for a couple of…"
2 hours ago
Jane Calipari replied to Gretchen Atkins's discussion Grrrh a new twist to this 'journey' or rather test of merit in the group For Wives and Partners
"I am so sorry you are going through this.  I cannot offer much insight, but want to give you my support and let you know I am listening.  My boyfriend had his surgery a year and a half ago too, also Gleason 6.  We were both 48 at that…"
2 hours ago
Jane Calipari replied to Lime's discussion The bumpy road of recovery is paved with old issues.... in the group For Wives and Partners
"Sorry about all you are going through.   Recovering from PCa surgery is a long process and men do tend to get depressed.   I am in touch with a lady whose husband did decide to get on antidepressants and did go to therapy. …"
3 hours ago
Vicki T posted a status
"Flying, TSA and External Catheters and Leg Bag. Has anyone had any experience positive or negative? What can we expect?"
5 hours ago
Lynn updated their profile
10 hours ago
E. Michael D. ("Mike") Scott left a comment for Jen
"Welcome Jen: So I assume that your husband and just been diagnosed with prostate cancer. Is that correct? When it comes to the initial management of early-stage prostate cancer (which is likely to be what your husband has been diagnosed with), the…"
10 hours ago
Profile IconJen, Robert Ressegue, joselito e climaco and 1 more joined The "New" Prostate Cancer InfoLink Social Network
10 hours ago
E. Michael D. ("Mike") Scott left a comment for Robert Ressegue
"Welcome Robert. So at 59 years of age, with a PSA of 7.8, a Gleason score of 3 + 4 = 7, and an AJCC stage of Stage I, you appear to have intermediate-risk prostate cancer. If your life expectancy is of the order of 15+ years (which it probably is if…"
10 hours ago
E. Michael D. ("Mike") Scott replied to Gretchen Atkins's discussion Grrrh a new twist to this 'journey' or rather test of merit in the group For Wives and Partners
"Dear Gretchen: Ummm ... Well ... I think you are right ... I don't remember another post in the past 7 years that meets these criteria. What to do about it? Well, I suppose that rather depends on how sorry your husband really is, whether he is…"
10 hours ago
Gretchen Atkins added a discussion to the group For Wives and Partners
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Grrrh a new twist to this 'journey' or rather test of merit

So my husband of 26 years (!) who is now 56, had a RP one and a half years ago ... and he had a nerve sparing Gleason 6 smallish tumor of bad luck removed by a wonderful surgeon here in Boston with no incontinence & the usual slow - very slow - return to not-so-great erection issues.  So right out of the gate we went into the injections of trimix into the penis in addition to daily Cialis which worked and he was okay with that for a while.  He mentioned once that if that medicine didn't…See More
13 hours ago
Gretchen Atkins joined Leah's group
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For Wives and Partners

The wives and partners of prostate cancer patients have their own particular problems and issues to deal with. This is a group where we can share and learn together.
13 hours ago
E. Michael D. ("Mike") Scott left a comment for joselito e climaco
"Welcome Joselito. I haven't come across too many men who had such severe complications as a consequence of their radiation therapy in the past decade. I am tempted to wonder about the skill of the radiation oncologist who treated you.... …"
yesterday
Lime replied to Lime's discussion 4 weeks post RRP surgery--a slump? in the group For Wives and Partners
"Jane,  Thanks for your response.  Now I have a follow-up for you or anyone else who cares to respond.  Last night hubby got nothing even with Cialis.  Today he did share with me how he doesn't have much sensation and how…"
yesterday
E. Michael D. ("Mike") Scott left a comment for Jay
"Welcome Jay ... and here's to the next 25 years!"
yesterday
E. Michael D. ("Mike") Scott left a comment for Scott Tatum
"Welcome Scott. So I think I know who your wife is, in which case I gather that you have been having a really hard time coping with your post-surgical incontinence issues, although (if I have got this right) you are already "dry" at night…"
yesterday
Ken left a comment for Scott Tatum
"Welcome to the PCa survivors family, Scott.  Hope you find many answers and much support here and your recovery goes smoothly! "
yesterday
Profile IconScott Tatum, Suzy and john z joined The "New" Prostate Cancer InfoLink Social Network
yesterday

Forum

EBRT 1 Reply

I had a appointment with a team at GW today, not a good time. I wanted surgery but that's not an option because i have a ostomy  , the only option i have is EBRT. Are the results as good as surgery???Continue

Started by Joey. Last reply by E. Michael D. ("Mike") Scott on Friday.

Pls Recommend Best/Recommended Urologists / Centers in the U.S. - coming from overseas 16 Replies

Hi, We are coming to the US from overseas for an MRI-guided biopsy (high risk because prostate is very englarged prior to cancer) and thereafter prostatectomy (PSA rose in a month and a half from 12…Continue

Started by Hull. Last reply by Mr. Bill on Tuesday.

Diagnosed Yesterday with Prostate Cancer 6 Replies

Hi Everyone,My worst nightmare came true yesterday afternoon.  My doc gave me the biopsy report after  weeks of stress and denial.  I could tell it was bad news just looking at his face as he entered…Continue

Started by David Dodson.. Last reply by Chuck Grim Mar 23.

Confusion by Han and Partin Tables 3 Replies

Hello All,I'm wondering if anyone could enlighten me on how to understand what I think are odd stats that I read on the Johns Hopkins website. I may be missing the obvious, so any thoughts would be…Continue

Started by Mary Oliver. Last reply by E. Michael D. ("Mike") Scott Mar 18.

Newly diagnosed with bone mets 12 Replies

Hoping for some advice!  Very scared for my husband.  He has just turned 60, was having some intermittent hip pain, and they discovered tumor. PSA 19.  Biopsied Thursday, results yesterday:  Gleason…Continue

Started by K Thomas. Last reply by David Lennon Mar 10.

The significant of 5 years undetectable PSA after radical prostatectomy 3 Replies

The significant of 5 years undetectable PSA after radical prostatectomyContinue

Started by Tony Williams. Last reply by E. Michael D. ("Mike") Scott Mar 1.

Digital scale to monitor bone, muscle mass, hydration 1 Reply

Might a $100 home digital scale that measures weight, bone mass, muscle mass, body fat, hydration and weight via BIA (body impedance analysis) -- NOT BMI, help guide us? If it shows bone loss…Continue

Started by Lee Green. Last reply by E. Michael D. ("Mike") Scott Feb 25.

Anyone interested in performing a clinical trial on Salvestrols? 15 Replies

Would any of the researchers in the group be interested in submitting a proposal to NIH/NCI CAM to perform a clinical trial on Salvestrols. They have funding and this is just the kind of study that…Continue

Started by David Grothe. Last reply by frank defazio Feb 22.

Sugar: Real or imagined danger? 9 Replies

I've seen many posts on various forums about the danger of ingesting sugar when one has prostate cancer, especially recurring prostate cancer.  I've also seen many conflicting websites on the topic.…Continue

Started by Dave S.. Last reply by E. Michael D. ("Mike") Scott Feb 20.

Color Doppler in Diagnosis? 1 Reply

Hello Everyone,I'm writing as the spouse of someone (age 57) who has a PSA of 5.27 and a %FPSA of 14.4 (negative DRE). My question concerns regular random biopsies vs. color doppler-assisted…Continue

Started by Mary Oliver. Last reply by E. Michael D. ("Mike") Scott Feb 16.

 
 
 

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